New Posts New Posts RSS Feed - No Chemo - Surgery only
  FAQ FAQ  Forum Search   Events   Register Register  Login Login

No Chemo - Surgery only

 Post Reply Post Reply Page  <1 567
Author
outnumbered View Drop Down
Senior Member
Senior Member
Avatar

Joined: Feb 02 2009
Location: New Jersey
Status: Offline
Points: 525
Post Options Post Options   Thanks (0) Thanks(0)   Quote outnumbered Quote  Post ReplyReply Direct Link To This Post Posted: Mar 28 2009 at 8:20am
Pam,
The BRCA 1+ is a facor for second primary, but I have had the bilateral already.  That is why there is some concern over the nipple sparing procedure.  He really does not think it is enough of a concern to have me go back and revise my reconstruction though. He is discussing this at conference also.  I was already told by my surgeon that I will need to ultrasound my nipple/areolas once a year.   I may need additional surgery because I am experiencing some encapsulation.  I might consider revision at that time depending on what the conference tells me.  UGHH  Why didn't I do more research in the beginning????  I feel like everything has been screwed up and done a$$ backwards. 
~Sara

DX @ age 40 6/24/08 Stage 1 Grade 3 BRCA1+ 187delAG

BMX (nipple-areola-sparing) 8/5/08

Redo BMX (remove nipple and areola) w/ Lat Flap 7/6/09

BSO 9/3/09

NED since 08/05/2008
Back to Top
trip2 View Drop Down
Senior Member
Senior Member
Avatar

Joined: Jun 03 2007
Location: Under Palm Tree
Status: Offline
Points: 8549
Post Options Post Options   Thanks (0) Thanks(0)   Quote trip2 Quote  Post ReplyReply Direct Link To This Post Posted: Mar 28 2009 at 8:28am
Ok I am sorry, not looking at all the details and forgot the mastectomy.
 
I see more of what he is saying now.  One of the things I have tried
to understand is if the brca 1+ provides additional risk after you are diagnosed and I thought it did but this info is hard to find.
 
With mastectomy we cut that risk way down whatever it might be.
 
With vigilence you should be fine Sara.  I can undersand your concerns though because this darn tnbc can be very sneaky.


Edited by trip2 - Mar 28 2009 at 8:30am
Stage 2 2003
Stage 1 2007
BRCA 1+
Back to Top
outnumbered View Drop Down
Senior Member
Senior Member
Avatar

Joined: Feb 02 2009
Location: New Jersey
Status: Offline
Points: 525
Post Options Post Options   Thanks (0) Thanks(0)   Quote outnumbered Quote  Post ReplyReply Direct Link To This Post Posted: Mar 28 2009 at 8:39am
Its very confusing.  I think my issue is I am at a higher risk for recurrance because I have not had chemo. Although since the tumor was tiny, maybe not so much?  I am at a slightly higher risk of a new primary compared to someone who had a traditional mastectomy because of the NS. 
 
I think this may sum it up. 
 
Never a need to say you are sorry.  Smile  Its never simple, thats for sure...
~Sara

DX @ age 40 6/24/08 Stage 1 Grade 3 BRCA1+ 187delAG

BMX (nipple-areola-sparing) 8/5/08

Redo BMX (remove nipple and areola) w/ Lat Flap 7/6/09

BSO 9/3/09

NED since 08/05/2008
Back to Top
trip2 View Drop Down
Senior Member
Senior Member
Avatar

Joined: Jun 03 2007
Location: Under Palm Tree
Status: Offline
Points: 8549
Post Options Post Options   Thanks (0) Thanks(0)   Quote trip2 Quote  Post ReplyReply Direct Link To This Post Posted: Mar 28 2009 at 9:52am
Sara,
 
I came across an article today about BRCA 1/2 carriers and they don't
seem to know the risk once we have had breast cancer, whether it ups our risk who knows.  So that would be in line with what Dr. Winer said.
 
 
 
Stage 2 2003
Stage 1 2007
BRCA 1+
Back to Top
outnumbered View Drop Down
Senior Member
Senior Member
Avatar

Joined: Feb 02 2009
Location: New Jersey
Status: Offline
Points: 525
Post Options Post Options   Thanks (0) Thanks(0)   Quote outnumbered Quote  Post ReplyReply Direct Link To This Post Posted: Mar 31 2009 at 10:48am
Ok its official, NO CHEMO.  I know I shoudl be happy, but I feel like a sitting duck.  I have done all I can do, so now I wait.  I made it very clear that I was not happy, that my gut says different, I even told them I hope I do not have the opportunity to say I told you so. 
 
Anyway, perhaps I will post more on the recurrance anxiety thread. 
~Sara

DX @ age 40 6/24/08 Stage 1 Grade 3 BRCA1+ 187delAG

BMX (nipple-areola-sparing) 8/5/08

Redo BMX (remove nipple and areola) w/ Lat Flap 7/6/09

BSO 9/3/09

NED since 08/05/2008
Back to Top
trip2 View Drop Down
Senior Member
Senior Member
Avatar

Joined: Jun 03 2007
Location: Under Palm Tree
Status: Offline
Points: 8549
Post Options Post Options   Thanks (0) Thanks(0)   Quote trip2 Quote  Post ReplyReply Direct Link To This Post Posted: Mar 31 2009 at 11:00am

Hi Sara,

 
So you got your answer today.  Well I can understand your concern and certainly hope you don't have the opportunity either to say I told you so.
 
Yes stay with us we enjoy your company.Smile
Stage 2 2003
Stage 1 2007
BRCA 1+
Back to Top
josie33 View Drop Down
Groupie
Groupie


Joined: Jan 30 2009
Location: New Jersey
Status: Offline
Points: 81
Post Options Post Options   Thanks (0) Thanks(0)   Quote josie33 Quote  Post ReplyReply Direct Link To This Post Posted: Mar 31 2009 at 11:22am
Sara, everyone here can understand your anxiety and unhappiness, but you really have gone the extra mile to make sure you get the best opinion and treatment plan by consulting so many docs (including one experienced in TNBC)--so, at the end of the day, if there is unananimity among them, I hope you can come to a place where you can feel comfortable relying upon their expertise.   Just as we always want to make sure the world knows that not all breast cancers are created equally, I assume that not all TNBC is created equally--and there may be features of your particular cancer and pathology that, in addition to your small tumor size, convince them that chemo is not needed in your individual case.  Anyway, I hope you can be at peace with the decision and try to view it as a positive thing rather than a negative (easy for me to say, I know.)  
Sister DX'ed 11/08
Lumpectomy & SN biopsy 12/08
1.6 cm tumor, poorly differentiated, lymphovascular invasion, node neg (0/2)
Stage 1
DD A/C x 4, Taxol x 4, to be followed by rads
Back to Top
 Post Reply Post Reply Page  <1 567
  Share Topic   

Forum Jump Forum Permissions View Drop Down

Forum Software by Web Wiz Forums® version 12.01
Copyright ©2001-2018 Web Wiz Ltd.