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jenniferlcw View Drop Down
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Joined: Jan 08 2021
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Post Options Post Options   Thanks (0) Thanks(0)   Quote jenniferlcw Quote  Post ReplyReply Direct Link To This Post Posted: Jan 20 2021 at 8:02pm
Hello, Amrit. I'm glad to meet you! How are you doing with your AC treatment? I am doing 4 rounds of AC every 2 weeks followed by 12 consecutive weeks of Taxol. I'm not sure about my surgery decision yet. I look forward to learning more about how you are doing.

Hang in there,
Jennifer
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jenniferlcw View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote jenniferlcw Quote  Post ReplyReply Direct Link To This Post Posted: Jan 20 2021 at 8:08pm
Thank you, Andrea! I appreciate how you shared your decision to get a bilateral masectomy. You're right about Claritin. I am taking Claritin and Pepcid for bone pain (both suggested by my CNP) and so far it's doing the job. Right now I find myself going back and forth on the surgery decision (lumpectomy v. masectomy, to reconstruct or not), even if my tumor shrinks quite a bit. 

Take care,
Jennifer
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SagePatientAdvocates View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote SagePatientAdvocates Quote  Post ReplyReply Direct Link To This Post Posted: Yesterday at 12:15am
Dear DebbieW,

Donna has given you an important reference.

Have you had genetic testing?

I know it may be impossible for you to travel with your circumstances and Covid but I think it might be useful to get a second opinion. There is a very good Breast Medical Oncologist in Singapore who is an expert in TNBC. I don't know if she is doing any video conferences but I can try to find out.

If you would like to speak please send me a PM and I can set-up a Zoom conference. There are no charges but I am not a medical professional and the second opinion would come from the oncologist in Singapore. 

welcome to our TNBC family.

warmly,

Steve
I am a BRCA1+ grandson, son and father of women affected by breast/oc-my daughter inherited mutation from me, and at 36, was dx 2004 TNBC I am a volunteer patient advocate with SAGE Patient Advocates
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DebbieW View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote DebbieW Quote  Post ReplyReply Direct Link To This Post Posted: Yesterday at 2:24am
Steve,
Thank you very much for your warm welcome and kind offer.
I have sent you a PM.
Am truly glad to be a part of this community. Thank you for having me.

Debbie
 
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Amrit View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Amrit Quote  Post ReplyReply Direct Link To This Post Posted: Yesterday at 10:21am
Dear Jennifer,
I finished 4 rounds of AC, am still recovering from the 4th treatment. Next, I start weekly Paclitaxel. One thing I want to share about Adriamycin infusion is that when the nurse gives the infusion through a syringe, I used to chill my mouth with a few ice cubes.  I did that for all 10 - 15 minutes during the infusion, and avoided drinking anything warm for another 30 minutes. Once I had a bit of throat irritation, so instead of drinking the melted ice, I used to just spit it our in a bag.  This probably helped me in avoiding mouth sores.
Hope you are drinking a lot of water after the infusion to flush out the drugs and avoid urinary irritation. Wish you all the best for your treatments!
Amrit
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SagePatientAdvocates View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote SagePatientAdvocates Quote  Post ReplyReply Direct Link To This Post Posted: Yesterday at 1:57pm
Dear Amrit,

The other remedy for painful mouth sores is 'magic mouthwash.'

Here is an article from Mayo Clinic that helps explain-

https://www.mayoclinic.org/tests-procedures/chemotherapy/expert-answers/magic-mouthwash/faq-20058071

Anecdotally, I have seen it help more women than not. Your local pharmacist should be familiar or medical oncologist.

with my love to all here,

Steve
I am a BRCA1+ grandson, son and father of women affected by breast/oc-my daughter inherited mutation from me, and at 36, was dx 2004 TNBC I am a volunteer patient advocate with SAGE Patient Advocates
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tjpecknh View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote tjpecknh Quote  Post ReplyReply Direct Link To This Post Posted: 6 hours 37 minutes ago at 7:39am
I will be having surgery first (Monday) as my tumor is <1cm. Once pathology comes back I'll decide on if I'll have systemic chemo before radiation.

Terri
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DebbieW View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote DebbieW Quote  Post ReplyReply Direct Link To This Post Posted: 4 hours 55 minutes ago at 9:21am
My oncologist has arranged for 6 sessions of chemo (3 rounds of FEC, then 3 rounds of FEC + Docetaxel every 3 weeks) followed by 20 sessions of radiotherapy. 

1st chemo starts 6 Feb. Have arranged it to be done on Saturdays so as to minimise any disruption to my work and my children's school schedule. Pray the side effects will be manageable. 

Debbie
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