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Newly Diagnosed - Need Friend!

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Tammy O View Drop Down
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    Posted: Mar 20 2024 at 8:27am
I知 newly diagnosed TNBC stage 2b. Ultrasound no node involvement. Tumor 2cm. Going in for MrI today and meeting with oncologist for first time next week. I met with my breast surgeon and she is wanting to do lumpectomy next week.  Says I will then do 4-6 months chemo and then radiation. 

I am so overwhelmed. I知 63 and just retired last year so thought I would be enjoying the fruits of all my labor. I sis blood work in BRCA and don稚 know results but I have no family history of breast or any cancers!  How does one stay so strong?  I am a very strong person but feel like I知 on a roller coaster in a bad dream. 

I don稚 see many current posts on here. Nothing in 2024?  Maybe I知 not looking in right places.  Would love to just hear from anyone. 
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JShawna3 View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote JShawna3 Quote  Post ReplyReply Direct Link To This Post Posted: Mar 24 2024 at 10:08am
Hi! 

I知 so sorry you池e here, but I知 glad you found this page. 
I知 new here too. Was diagnosed 2/9. 

I was staged 2A (honestly don稚 know what A vs B means). I知 starting with chemotherapy, Taxol (now Abraxane after an allergic reaction to taxol) with carboplatin, then AC. With Keytruda throughout. Then DMX then reconstruction. 

Like I said, I知 new here, and by no means an expert in anything. My advice- get a second opinion. If you can. 
It helped me hearing 3 doctors tell me what was happening. And they all had different ways of saying things. I now feel more confident to advocate for what痴 right for me. It helped me feel stronger - just a suggestion. 

Are you on Facebook or Instagram? 
There痴 SO many active supporters/support groups. It honestly changed my entire outlook! I致e been able to ask questions and I don稚 feel as alone anymore. I highly recommend looking for those. 

I hope this helps even a little. 
It痴 okay to be angry. Sad. Mad. 
Honestly my shower arguments and melt downs made me feel better LOL 
Wash away the bad. Dry off and attack the day. One day at a time.


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Tammy O View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Tammy O Quote  Post ReplyReply Direct Link To This Post Posted: Mar 24 2024 at 11:22am
Hello and thanks for responding!  I have heard get second or third opinions but with TNBC I was thinking don稚 wait - get it out of there!  And the waiting for appointments is the hardest!  My docs have decided to lumpectomy first - so it痴 scheduled for Friday 3/29!  

I do love your suggestion for every morning in the shower. Wash off the bad and start each day ready to fight!  
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1HarleyNurse View Drop Down
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Hello Newbies!
Although I am not a Newbie as I was diagnosed in 2018 and had bilateral mastectomy in 2019, I feel I am in the right place. While I am not suggesting that I am an expert, I can and will answer all questions based on my research, perspective, and understanding. I had no one to ask when I was diagnosed. Not many had even heard of Triple Negative Breast Cancer. 
My diagnosis caught me by surprise as I had had an unremarkable mammogram just 6 months prior. I never drank, smoked or lived recklessly and somehow I believed my lifestyle would protect me.

Please understand that when I respond to the chat, my intent is to simply let you know how I experienced my journey.

Please feel free to ask my ANY questions. Nothing is too personal. I've been looking for a forum such as this to share and be supportive. 
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Karen_D View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Karen_D Quote  Post ReplyReply Direct Link To This Post Posted: Apr 08 2024 at 12:58pm
Hi Tammy, my diagnosis in 2022 was very similar to yours, and I'm just a year older than you. I had lumpectomy followed by chemo, finished chemo just over a year ago. 

At this point I've completed my treatment and am actually doing well. It was a rough road for sure but I made it through and lately I've been joining in the Thursday Thrivers group and feeling like I really am thriving.

Don't despair, you can do this!

Call on me if you have any questions or want to share your experience. I had lots of support along the way and if you want a sympathetic ear I'm hear to listen!
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Tammy O View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Tammy O Quote  Post ReplyReply Direct Link To This Post Posted: Apr 10 2024 at 12:43am
Hi Karen. Thanks for reponding. I checked out for awhile. I could use someone to talk to. How do I listen to the Thursday forums? 
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1HarleyNurse View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote 1HarleyNurse Quote  Post ReplyReply Direct Link To This Post Posted: Apr 10 2024 at 12:17pm
Hi Tammy

Please feel free to call me at any time.

If you would like to talk at any time (day or night), I am amenable.

Please respond to my personal email if you would like to have my phone number at Gigi.ellis07@yahoo.com.

Since my diagnosis and treatment, I have attended and graguated from nursing school. I am now working as an ER nurse. 

Don't lose hope!!
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Tammy O View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Tammy O Quote  Post ReplyReply Direct Link To This Post Posted: Apr 10 2024 at 1:18pm
Earlier I mentioned I was having lumpectomy on 3/29 as advised by my breast surgeon but after meeting my oncologist on 3/27 the plan changed.  In 3/29 I had surgery to put in my port only. And doc thought a better route would be to do chemo 1st.  On 4/2 I started with a 12 week plan of doing taxol every week. And then every 3 weeks they add in the keytruda & carbo platinum. I致e had 2 treatments so far with no severe side effects. God is Good!  After this 12 week session I switch to getting AC & keytruda every 3 weeks for 4 sessions.  After that, they will do the lumpectomy. And then radiation and more keytruda. 

I pray that I can stay on schedule and not get the bad health side effects so many write about.  I know losing my hair is going to take a mental effect but I知 taking charge of that by doing a severe short cut this weekend. I think that will be easier than seeing clumps fall out. The steroids after treatment are something else. I知 a hyper person but they make me feel calm but with tons of energy and no sleep!  But on days 4-5 I crash and get shakes and no balance - like I知 detoxing. Keep in mind I don稚 do caffeine as I can稚 even handle one soda!  But it痴 a mild side effect than most.  I worry about neuropathy. Had some hand tingling last night but it didn稚 last. I just don稚 wish to have lasting effects for years after. But I guess no choice - face each day and see what it brings. 

I知 working hard on eating better and exercising more. But sometimes I feel overwhelmed like I am having to change my whole world at the same time. Makes me sad. 
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Karen_D View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Karen_D Quote  Post ReplyReply Direct Link To This Post Posted: Apr 10 2024 at 9:01pm
I'm glad to hear you are bearing up with the side effects. I had some neuropathy with taxol but it went away after I finished treatment and I hope yours will do the same. Hair loss is hard to deal with. I felt like my hair was never going to grow back, but it did. Get some cute hats and head coverings and a nice wig to see you through. It sounds like you have a good attitude and I admire you for that!
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Tammy O View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Tammy O Quote  Post ReplyReply Direct Link To This Post Posted: Apr 10 2024 at 10:21pm
Hi Karen. My attitude webs and flows. Tonight is bad as after my 2nd treatment Tuesday morning it is now Wednesday evening and I still have not slept!  The steroids are kicking my butt and my mind is so jumpy!  And I知 suppose to take the oral steroids again in the morning!!??  I never lasted through a kid slumber party this long!  Haha  any suggestions?  Maybe I should go run a few miles. 
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Karen_D View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Karen_D Quote  Post ReplyReply Direct Link To This Post Posted: Apr 14 2024 at 12:13pm
I skipped the steroids other than at the time of infusion, with my doctor's consent of course. If you are struggling with the steroids you might ask if you can do without. 
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Tammy O View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Tammy O Quote  Post ReplyReply Direct Link To This Post Posted: Apr 14 2024 at 12:46pm
Thanks Karen. I will ask about that.  The steroids do give me great energy - but then I go through a little withdrawal in the day I stop taking them then and I sleep for hours!  I guess I just need to find a balance. Any tips on mouth sores?  I知 dealing with a lovely fever blister and not sure if it痴 from meds or just brought on by stress and lack of sleep.  Happy Sunday to you!  
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Karen_D View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Karen_D Quote  Post ReplyReply Direct Link To This Post Posted: Apr 15 2024 at 10:48am
I had some trouble with mouth sores. The nurse told me to mix a teaspoon of salt and a teaspoon of baking soda in a glass of water to rinse my mouth with. It worked great and is so simple I starging doing the rinse every night before bed and after that I didn't have any trouble. The cold sore is probably just a cold sore, but I definitely recommend the mouth rinse. Keep up the fight!
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