New Posts New Posts RSS Feed - Newly diagnosed metastatic tnbc
  FAQ FAQ  Forum Search   Events   Register Register  Login Login

Newly diagnosed metastatic tnbc
 Post Reply Post Reply
Author
  Topic Search Topic Search  Topic Options Topic Options
BridgettAnn View Drop Down
Newbie
Newbie
Avatar

Joined: May 05 2021
Location: N Augusta, SC
Status: Offline
Points: 3 		Post Options Post Options   Thanks (0) Thanks(0)   Quote BridgettAnn Quote  Post ReplyReply Direct Link To This Post Topic: Newly diagnosed metastatic tnbc
    Posted: May 05 2021 at 3:08pm
Where to go from here? I am 47 years old.  Orginally diagnosed with tnbc November 2019.  Treated very aggressivly at my request, chemo, DMX, radiation, capecitabine, hysterectomy (just in case)...and I go to a routine Scan to find mets in my femur, hip, and spine.  Devestated doesn't begin to cover it.  I have an appointment early next week to discuss options and clinical trials.  I need to hear something positive from someone in the same boat.  *SCARED*
Back to Top
cookie54 View Drop Down
Newbie
Newbie
Avatar

Joined: Oct 24 2020
Location: 08012
Status: Offline
Points: 35 		Post Options Post Options   Thanks (0) Thanks(0)   Quote cookie54 Quote  Post ReplyReply Direct Link To This Post Posted: May 06 2021 at 5:47pm
Hi BridgettAnn , Sorry you are dealing with a recurrence, I know how devastating and scary it can be! I was diagnosed with tnbc in 8/2016 Stage 1 and  now a recurrence in 2020. I don't have bone mets I had recurrence in the axillary nodes and chest wall. I just wanted to reach out to you for support and let you know you are not alone. I'm sure one of our tnbc sisters will pop on here with information for you.

I'm glad you have an appointment next week, you will feel a little better when you have your plan of attack. Wishing you faith ,hope and strength as you move forward in treatment.
“Hope Is Then Only Thing Stronger Than Fear.” via... | Official Tumblr of To Write Love on Her Arms.
8/2016,IDC,StageIA, Gr3,0/1 nodes ER-/PR-,HER2-
9/2016 BMX implants,AC
6/20,StageIIIC,Gr3,ER-/PR-HER2-
6/20 Carbo/Gem/pembro
10/20 ALND 5/8 nodes,Rad x25
11/20 thyroid ca, surg
Xeloda2/21-7/21
Back to Top
BridgettAnn View Drop Down
Newbie
Newbie
Avatar

Joined: May 05 2021
Location: N Augusta, SC
Status: Offline
Points: 3 		Post Options Post Options   Thanks (0) Thanks(0)   Quote BridgettAnn Quote  Post ReplyReply Direct Link To This Post Posted: May 06 2021 at 5:57pm
Thank you so much for the book suggestion and kind words!
Back to Top
Jean17 View Drop Down
Newbie
Newbie
Avatar

Joined: Nov 14 2021
Status: Offline
Points: 1 		Post Options Post Options   Thanks (0) Thanks(0)   Quote Jean17 Quote  Post ReplyReply Direct Link To This Post Posted: Nov 14 2021 at 8:04am
Hi BridgettAnn,

I was recently diagnosed with metastatic breast cancer. It has spread to the lungs and liver. I am triple negative and just beginning my journey. I hope that you are doing well.
Back to Top
SagePatientAdvocates View Drop Down
Senior Advisor
Senior Advisor
Avatar

Joined: Apr 15 2009
Status: Offline
Points: 4726 		Post Options Post Options   Thanks (0) Thanks(0)   Quote SagePatientAdvocates Quote  Post ReplyReply Direct Link To This Post Posted: Dec 03 2021 at 8:43pm
Dear BridgettAnn,

I am sorry I missed your post some months ago. I know why I missed it and it was very understandable and personal but still sorry I did.

I don't know where you are in your treatment plan but please feel free to send me a PM and I will send you my contact info or you can write me at-

info@sagepatientadvocates.org

I am not a medical professional and will not give you medical advice but I have a suggestion for you fairly close to your home, I believe.

warmly,

Steve
I am a BRCA1+ grandson, son and father of women affected by breast/oc-my daughter inherited mutation from me, and at 36, was dx 2004 TNBC I am a volunteer patient advocate with SAGE Patient Advocates
Back to Top
TNBC Fighter View Drop Down
Newbie
Newbie
Avatar

Joined: Dec 09 2021
Location: USA
Status: Offline
Points: 2 		Post Options Post Options   Thanks (0) Thanks(0)   Quote TNBC Fighter Quote  Post ReplyReply Direct Link To This Post Posted: Dec 09 2021 at 4:54pm
Originally posted by BridgettAnn BridgettAnn wrote:

Where to go from here? I am 47 years old.  Orginally diagnosed with tnbc November 2019.  Treated very aggressivly at my request, chemo, DMX, radiation, capecitabine, hysterectomy (just in case)...and I go to a routine Scan to find mets in my femur, hip, and spine.  Devestated doesn't begin to cover it.  I have an appointment early next week to discuss options and clinical trials.  I need to hear something positive from someone in the same boat.  *SCARED*

Wow, so sorry to hear this. My friend was originally diagnosed with Stage 4 TNBC 2 years ago.  She had started with 2 lumps in the breast. Started with Immunotherapy and taxol combo. Inital Scan showed spread on bone in ribs. Later moved on to another IV chemo, then moved to surgery to remove 2 lumps and 27 lymph nodes. After the masectomy, on to radiation (not fun). Then onto a chemo pill (Xyloda) and now on another IV chemo. Never fun, she is experiencing some headaches and nausea lately. The positive, over 2 years later, she is still pretty active and going strong, although very tired at times. The negative, it's terminal and requires treatment for life. Hang in there, at times it can get very tough...
Back to Top
 Post Reply Post Reply
  Share Topic   

Forum Jump Forum Permissions View Drop Down

Forum Software by Web Wiz Forums® version 12.01
Copyright ©2001-2018 Web Wiz Ltd.