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Newly diagnosed at 26

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123Donna View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote 123Donna Quote  Post ReplyReply Direct Link To This Post Posted: Feb 19 2010 at 4:58pm
Terje,

Yes I meant Body Mass Index.  I can't remember where I saw or heard it, but it was something about women with a BMI greater than 25 either having a greater chance of recurrence or poorer prognosis.  I wish I could remember if I read it somewhere or heard it from a news article.  It may have some correlation with higher BMI and insulin like you pointed out. 

Lillie,

I found how to put the picture in the avatar.  Go to the Member Control Panel and edit profile.  Scroll down to where you type stuff in for your signature and where you can select an Avatar for your screen name.  You can select from an avatar on this site or upload your own.  The picture can only be 15kb in size or 64 X 64 pixels.  I took a picture then cropped it down using one of the photo software programs from my digitel camera.  Then I resized it to 64 x 64 pixels and saved it.  I just browsed my pc until I found the picture, then uploaded it and saved it as my new avatar.  It wasn't too difficult, but if your picture is larger than 15 kb in size, it won't upload.
DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15

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Yulia View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Yulia Quote  Post ReplyReply Direct Link To This Post Posted: Feb 20 2010 at 4:00am
I also read about BMI and it's relation to breast cancer but my index is ok and still here I am with tnbc. Probably insulin and BMI are not related? Probably it's insulin only? I love sweets and fruits, my glucose index is 5,0. Although it is within normal limits, I consider it pretty high for my age.
 
Has anyone heard of homeopathic medicine and immune modifiers? I'm trying to find research on these topics but am not successful so far. Embarrassed 
Diagnosed with TNBC at age 26. Stage 2a,Grade 3, size 2.5x3 cm. 10 - 12/2009 4 CAF Chemo rounds. Radical resection 19/01. Started paclitaxel.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Autumn10182001 Quote  Post ReplyReply Direct Link To This Post Posted: Feb 20 2010 at 10:36am

Yulia,  MY BMI is out of whack... I was 242 lbs and am 5' 6". I am done to 199 - 202, depending on the day, i have hot that plateau and haven't move any in a while. I have started exercising 50 - 60 minutes a day, 4-5 days a week. I have totally changed my diet, because of my TNBC dx.  The first book I read on it was "AntiCancer - A New Way of Life". I believe a lot of what he writes about and contiue to try to updated my supplements and diet based off of that book and what I read on the internet. I will include what I am currently taking, in addition to my multivitamin which is very good, low Iron,   higher in Selenium (200) .  I also spend a lot of time researching things I read hear, and any new things I hear about. I am not following a Dr prescribe supplement  program...  this is my own thing..and based on  my opinion of what i have read.  Those in orange I haven't started yet.. Flax has me in the bathroom a lot, tried to start that a few times.. and I am eating Tuna Steaks a couple times a week along with things lime pasta with extra omega 3 and egss with extra omega 3, so I haven't started the fish oil yet..

Vitamin / Mineral   Total  
       
A    30000 IU
Acai x 2      
Alfalfa Leaf   350 mg
Beet Root x 4   2000 mg
Calcium x 2   2000 mg
Cayenne Pepper x 1   1350 mg
Cinnamon x 2   1000 mg
D as D3  x 2   4800 IU
Fish Oil Omega - 3   x 1     mg
Flax Seed x 1     mg
Ellagic acid (40% of pomergranite extract)       
Garlic x 2   1300 mg
Ginger Root x 1   1590 mg
Green Tea Extract x 2   800 mg
Iron   6 mg
Pomergranite   350 mg
Potassium   25 mg
Raspberry leaves   950  
Selenium   200 mcg
Shiitake Maitake x 1   200 mg
Spirulina Organic   300 mg
Tumeric (450 from extract 50 from root) x 2   1000 mg
Wheat Grass Pills/Capsules x 3   2600 mg
DX2/99 Stg I,ER+PR+ Chemo lumpectomy - Neg nodes,rads, tamox,femara. DX4/09, Stg IIB /III, TNBC IDC, Grade III, 2.5CM, mastectomy. 4AC DD,12 wkly taxol,BRAC1&2Neg, Right Mast 11/25/09
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Yulia View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Yulia Quote  Post ReplyReply Direct Link To This Post Posted: Feb 26 2010 at 11:00am
Thank you for your cosiderations, will discuss some with my oncologists.
 
I got perfect news today. I am BRCA1 and BRCA2 NEGATIVE! Big smile
I am sooooo happy!
 
Now it is a real mistery why I got tnbc like many on this site. Confused
Diagnosed with TNBC at age 26. Stage 2a,Grade 3, size 2.5x3 cm. 10 - 12/2009 4 CAF Chemo rounds. Radical resection 19/01. Started paclitaxel.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote trip2 Quote  Post ReplyReply Direct Link To This Post Posted: Feb 26 2010 at 7:20pm
Hi Yulia and welcome.Smile
 
Congratulations on your negative brca 1/2 results!
Stage 2 2003
Stage 1 2007
BRCA 1+
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mom&grandma View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote mom&grandma Quote  Post ReplyReply Direct Link To This Post Posted: Feb 26 2010 at 11:28pm
Congrats!
Bonnie, mom of Heather, age 32, Dx on 9/1/09 TN IDC Stage 1, 1.4 c, lumpectomy, 10/8/09, DD AC & T, 3/9/10 bilateral mastectomy and immediate reconstruction, BRCA 1/2-
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Post Options Post Options   Thanks (0) Thanks(0)   Quote scared Quote  Post ReplyReply Direct Link To This Post Posted: Feb 26 2010 at 11:34pm
Hello Yulia,

You don't live by any radioactive land do you?  I know this probably sounds stupid, but it could be a reason why.  You are so young have breast cancer and I am sorry you have to go through it.  I guess the reason why is not as important as beating the cancer.

How are the treatments going, and what can we do to help?

Dave


Edited by scared - Feb 26 2010 at 11:35pm
Wife diagnosed 7/08 stage 2B 4.78cm with 3 nodes. 15 weeks of Adriamycin and Cytoxin, Mastectomy, 12 weeks of Taxol, and 6.5 weeks of radiation.
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Yulia View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Yulia Quote  Post ReplyReply Direct Link To This Post Posted: Feb 27 2010 at 6:06am

Thank you all for congradulations!

 
Yes, Dave, I've been thinking about radioactive land. I was near Chernobyl when the disaster happened. Besides that, I've been living in Australia for several months, after which I actually found the tumor. You probably know how dangerous sun is there due to ozone hole. Australians suffer the highest rates of skin cancer in the world. Probably, bc lived somewhere inside of me and was provoked by change of climate. Shocked That is the only explanation I can find so far. Smile
Diagnosed with TNBC at age 26. Stage 2a,Grade 3, size 2.5x3 cm. 10 - 12/2009 4 CAF Chemo rounds. Radical resection 19/01. Started paclitaxel.
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Yulia View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Yulia Quote  Post ReplyReply Direct Link To This Post Posted: Feb 27 2010 at 6:08am

Almost forgot to say that my treatments are going just great, thank you!!! The WBC count is low but it should be alright by the time of next Chemo, which is on Tuesday.

Diagnosed with TNBC at age 26. Stage 2a,Grade 3, size 2.5x3 cm. 10 - 12/2009 4 CAF Chemo rounds. Radical resection 19/01. Started paclitaxel.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Carol (Tenn) Quote  Post ReplyReply Direct Link To This Post Posted: Feb 27 2010 at 8:43am
Dear Yulia,
I am so happy to hear about negative testing. That should make you feel much better.
I have asked myself the "why" question many many times. I was 66 at dx and this is somewhat unusual as tnbc usually strikes women younger. There's just no definitive answer. I am overweight and that could contribute but look at the women here that are thin.
So I've decided to quit asking a question that no one seems to know the answer to. I just trust that God knows what He's doing, because I sure don't.
Love and Prayers,
Carol Hug
St 2 Gr 3, A/C/T, DD
Radiation x35
Rec chest wall 07/09
Radiation x28
NED 10/24/11
NED 10/5/12
NED 03/15/13
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Post Options Post Options   Thanks (0) Thanks(0)   Quote diane1234 Quote  Post ReplyReply Direct Link To This Post Posted: Feb 27 2010 at 10:34am
Yea....I too continue to say WHY?????? I was also BRCA 1 and 2 negative...... I am still trying to figure this out. I had all three of my kids young, nursed, and absolutely no family history of any kind of cancer LET ALONE BREAST....oh yea diagnosed at 36
dx 4/09 at 36 yrs old. dbl Mast. 5/09. 12 weekly Taxol 4 FAC tri weekly. 32 rads completed 2/2010. Its Back 5/2010!! Chest wall, Mediastinal node, Lft mammary node and liver. Back on chemo.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Karen W. Quote  Post ReplyReply Direct Link To This Post Posted: Feb 27 2010 at 4:11pm
Has anyone heard of homeopathic medicine and immune modifiers? I'm trying to find research on these topics but am not successful so far. Embarrassed 
[/QUOTE]
 
Yulia,
I am on a program to rebuild my immune system.  It involves nutrition along with supplements that influence the body at the cellular level. I use liquid herbs along with omegas, minerals, vitamins, phyotonutients, enzymes, ambrotose and other cellular rejuvenators.
 
Chemo is so harmful to the body overall and your body needs to be rebuilt to protect itself. Otherwise your overall health will be at risk and susceptible to cancer again. By rebuilding the body and maintaining it, your body will then be able to fight cancer at the microscopic level and prevent future metastasis. There is a lot of research to support this.  There is a great book called, "RACE FOR PREVENTION - Don't wait for a cure... 8 Steps to Cancer Prevention", by Bonnie Schnautz.
www.brenewed.com  It is available for sale on her web-site if you are interested.
 
Take care and thanks for sharing your story.
Karen
DX July 07; lumpectomy,Chemo 4 sesions,36Rad; DX Oct 09;36 Rad;Metastatic Clavical lymph nodes in neck; chemo pending****CHEMO NO LONGER PENDING. DR SLEDGE SAYS NO CHEMO SHOULD BE USED (4 my case)
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123Donna View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote 123Donna Quote  Post ReplyReply Direct Link To This Post Posted: Feb 27 2010 at 4:17pm
Yulia,

There is another great book, Anticancer:  A New Way of Life, by Dr. David Servan-Schreiber.

http://www.anticancerways.com/




DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15

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