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BruinJT 
Newbie 
Joined: May 25 2009 Location: Arcadia, CA Status: Offline Points: 5 |
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 Posted: May 27 2009 at 9:58pm |
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Thanks for the info Pam! I've found a lot of great things on the forum. I'm so grateful that I found this website! It gives me a little more hope to find others in my situation since everyone I had spoken to were NOT triple negative.
And I want to publicly apologize for not knowing how to start my own thread. As a result, I've been posting on Christine's thread!! Luckily, Christine was nice enough to forgive me. 
Jonie 
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Dx Apr09 - RB IDC 2.0cm - 0 nodes.
Cytoxin/Taxotere x6 every 3 weeks, will begin June 4th. Radiation (unless test positive for BRCA in which might do mastectomy) |
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armywife
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Joined: May 28 2009 Location: Ft. Drum, Ny. Status: Offline Points: 1 |
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Posted: May 28 2009 at 7:23am |
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Hello all! My name is Karolyn, I am 33 years old, a mother of 1 teriffic little boy, Army Wife, sister, daughter, Aunt, and Godmother. I was diagnosed on March 17, 2009, yeah St. Patricks day! It really hit hard, I just lost my 38 year old brother to a heart attack in January. I had my bilateral mastectomy on April 24, 09 with immediate reconstruction. I am a stage 3 and started chemo on May 22, 09. My coctail is the A/C fo the 1st 4. The 2nd 4 I'm not sure yet. Unfortunately I have my entire summer planned for chemo and sleeping, and then moving to Tx. the day of my last treatment. My husband has been so wonderful and helpful, he is the only family I have close here. Everyone else has to fly up here, the woes of being in the Army! I have no family history of BC much less TNBC, so needless to say we were in awe when I was diagnosed. I find ready some of the post's on here comfort me a lot. I am 1 week into my 1st treatment, going for blood work 2morrow to see how I am fairing it all. Thanks for looking, Karolyn |
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trip2
Senior Member 
Joined: Jun 03 2007 Location: Under Palm Tree Status: Offline Points: 8549 |
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Posted: May 28 2009 at 8:07am |
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Hi Karolyn and a warm welcome to you. I am so very sorry to hear about your brother. So so young. Karolyn go to the News, Resouces & Tips section of the forums and the top few posts will be alot of good information for you in regard to beginning treatment. Also you can to to the right near the top of the page, click on Resources, then a drop down box will have "take charge of your own care", click on that and there too you will find very helpful information. You might want to check out this website http://www.facingourrisk.org which focuses strictly on hereditary brreast cancer and the two known mutations brca 1/2. Many triple negs have the brca 1 mutation but not all. Even though you believe you have no family history you might research a bit to be sure and also might consider genetic counseling.
There have been women who are brca 1 plus w/no family history.
You've found a great place to land although we are very sorry to hear you've been diagnosed.
Please feel free to ask any questions and we'll do our best to help you.
Best wishes,
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Stage 2 2003
Stage 1 2007 BRCA 1+ |
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Loricarol
Groupie 
Joined: May 24 2009 Location: Utah Status: Offline Points: 85 |
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Posted: May 28 2009 at 11:01am |
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Jonie
I am i the same situation nearly as exactly to yours. I was diagnosed april 30th with Invasive breast cancer triple negative stage 1 and a grade 3. It grew very rapidly i had had a scan of my breast just 5 months prior that showed all clear. The ladies on here are very supportive and offer a wealth of information. Be careful what you read on the internt it will be overwheming at leat it was for me. I am 45 years old. I will be starting my chemo on June 17th for a total of 20 weeks.
If i can be of any help to you feel free to message me back.
God Bless you
Lori
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DX 4/30/2009 IDC, stage 1 ,grade 3,2 tumors,node negative,clear margins ,BRCA negative left breast mastetcomy, 4 cycles of Adramycin and Cytoxan 12 weekly treatments of Taxol start 8/12. No rads.
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Cebo
Senior Member
Joined: May 13 2009 Location: New Jersey Status: Offline Points: 103 |
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Posted: May 29 2009 at 5:14pm |
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Christine, hope your first chemo went smoothly--you are on your way!
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Sister DX'ed 11/08
Lumpectomy & SN biopsy 12/08 1.1 cm tumor, node neg (0/2) Stage 1 DD A/C x 4, Taxol x 4, completed 4/17/09 33 rads (incl 8 boost), completed 6/22/09 |
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musette green
Groupie
Joined: May 29 2009 Location: So.Ca Status: Offline Points: 82 |
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Posted: May 30 2009 at 9:23am |
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Dear Jonie,
Pleased to meet you! I received my diagnosis in October of 2008. I had my 4th and last round of chemo (Cytoxin and Taxotere) January 12,2009.  While I am a few years older than you in age, this is all new to me even though I work in the health care industry. I have 2 sons ages 19 and 23 and I am a single parent. My husband passed away 10 years ago, a complication of M.S.. I am glad I found this site for 2 big reasons. 1) to educate myself more so that I can understand what the doctors are telling me- and ask the right questions. 2) To help others walk this path- in the last 7 months I have leaned mightly on my family, friends and especially my "Breast Buddies"- the women who like me are doing battle with this disease. Especially my TNBC sisters. I thought I was alone and not going to win this battle. But look what is here- all those brave women who are making it! Some with more obstacles than I have. It is my sincerest hope that you find what you need here. I monitored this site for a couple of months before I registered- I wasn't sure I had anything worth saying that hasn't been said before. But I had a momment of clarity amid my chaos, I think I heard the voices of my "Breast Buddies". No I'm not delusional and the chemo brain wasn't at maximum effect.  But it dawned on me that everytime you hear something you can learn something new you didn't know before and that you hear things when you need it, no matter where it comes from. I hear you! Lisa P.S I was home recovering from my mastectomy the day you started your journey. There are many travelers on this path.  P.S.S I just like these emoticons  Lisa
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DX 10/08. IIB,gr 3, 2.5cm. TNBC, BRAC1&2-, nodes+(left axillary, supraclavicular, ant. mediastinal & IM). Neoadjuv. chemo 4x C/T. Left mast.3/09,completed 40 rads 9/09. Reconstruction pending.
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Nancy
Senior Member
Joined: Jul 23 2007 Location: Altoona, PA Status: Offline Points: 3814 |
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Posted: May 30 2009 at 1:39pm |
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Hi Karolyn,
Sorry I missed your first post on Thursday. How well I know the role of the Army wife, and all the transfers. I see where you will be moving on the day of your last treatment. Bless you sweetie, as it is difficult enough and stressful enough just making a move from one base to another, but while on chemo! Big hugs from me to you
 It is my daughter Lori who was dx with TNBC in June 2007, and I joined this site in July. The women and men on this site are amazing, and you will get answers to every question that you ask, and will receive all the support you need.
My husband is a retired Master Sergeant E8, and we moved 21 times in 18 years. He retired in 1978. We were stationed at Seneca Army Depot, NY twice,and our twins were born in Geneva , NY in 1960. Lori was born at White Sands Missle Range Hospital in NM, another daughter was born at Fort Campbell, KY, and our baby (now 38) was born at Fort Hood Texas.
I am so sorry to hear that you lost your brother, and my sympathies to you and your family. You just don't expect someone 38 years old to have a heart attack, so this must have been devastating to your family. You also do not expect a woman 33 years old to be dx with breast cancer.
So how was your blood work as you said you were going on Friday to have that checked? Are you taking the Neulasta or Neupogen to build the white blood cells? Did your first treatment go well, and how are you feeling overall? Lori had ACT...Adriamycin, Cytoxan and Taxotere, all 3 every 3 weeks for 6 treatments. However, they are doing chemo differently for some now.
Where will you be stationed in Texas? We have a daughter who lives in San Antonio. Sorry to have so many questions, and you certainly do not have to answer all of them.
 I will send you a private message with my email address so that I can send you directions to retrieve all the resources from here on the site.
Many hugs,
Nancy
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Nancy
DD Lori dx TNBC June 13,2007 Lumpectomy due to incorrect dx of a cyst mastectomy July 6 2007 chemo ACT all 3 every 3 weeks 6 tx Aug-Nov 28 rads ended Jan 2008 |
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Nancy
Senior Member
Joined: Jul 23 2007 Location: Altoona, PA Status: Offline Points: 3814 |
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Posted: May 30 2009 at 1:55pm |
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Dear Lisa,
First, my condolences to you and your family on the loss of your husband, and while it was 10 years ago, I am sure his death was devasting to you, your boys and the family. Single parenting can be very lonely, and requires so much patience and determination.
Oh you certainly can contribute to this site and anyone ever dx with bc has much to say
 Everything is worth repeating as new members are joining every day, and they do not have the time nor the energy to go searching through posts, so let those "Breast Buddie voices" dictate what you write  On this site you are never alone, and now you Lisa can guide a "newbie" on this unplanned journey. We would also love to hear what your "journey" was like, for every woman has different reactions to chemo and rads, and especially just your feelings being dx.
We have chemo, rad and after surgery tips in the TNBC News, Resources & Tips forum, and I would appreciate you taking a look at them when you have the time. If there is anything you can add to them, please just send me a private message and I will edit and add your tips also.
Also, and again ...when you have time, please go to the polls and survey forum, as there are many to fill out.
Many hugs,
Nancy
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Nancy
DD Lori dx TNBC June 13,2007 Lumpectomy due to incorrect dx of a cyst mastectomy July 6 2007 chemo ACT all 3 every 3 weeks 6 tx Aug-Nov 28 rads ended Jan 2008 |
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trip2
Senior Member
Joined: Jun 03 2007 Location: Under Palm Tree Status: Offline Points: 8549 |
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Posted: May 31 2009 at 10:37am |
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Hi Lisa, I wanted to wish you a warm welcome to our forum.
I am so very sorry to hear of your husband's passing and know it can be a very tough job raising kids alone.
So you have finished our treatments, that is wonderful news.
When you have time maybe you would fill in more about your story?
I absolutely know you will be a great asset to our foum. We all learn from each other.
We try here to support each other and find some of the latest news going on so that we have a feel of what is going on in the medical/research field.
Best wishes
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Stage 2 2003
Stage 1 2007 BRCA 1+ |
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Spiderman
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Joined: Jun 01 2009 Status: Offline Points: 10 |
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Posted: Jun 01 2009 at 11:33am |
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Hi All, thanks for what has been the best site i've come across thus far while trying to understand what is happening to my mother. I don't have all the specifics, but she was diagnosed in December of 2008, no nodes, relatively small tumour. Tumour was removed, chemo for the last while,with a little while to go, and then onto radiation.
She remains strong, focused, upbeat, and most importantly, the best mother and grandmother on the planet.
I've really enjoyed reading the information and stories on here and have sent the link to her.
I wish you all the best in this fight
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trip2
Senior Member
Joined: Jun 03 2007 Location: Under Palm Tree Status: Offline Points: 8549 |
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Posted: Jun 01 2009 at 11:45am |
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Hi Spiderman and a warm welcome to you.
I look forward to meeting your mother. It is good to hear she is handling her treatments well.
This type of cancer is very complex and they have just begun to give us the attention we needed a long time ago.
Thanks for the nice comments and if you have any questions just give us a yell.
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Stage 2 2003
Stage 1 2007 BRCA 1+ |
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scain808
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Joined: May 30 2009 Location: IL Status: Offline Points: 3 |
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Posted: Jun 01 2009 at 3:41pm |
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My name is Shauna and I am 38 years old and on 4/27, I found a lump on
my breast. I called my dr. and had a mammogram on 5/1. At that time I
was told I needed to have a biopsy, I chose to have a surgical biopsy, I
wanted the lump removed because after the mammogram I was in
a quite a bit of pain. On 5/7, I had surgical biopsy, and on 5/14 I was
diagnosed with Invasive ductal carcinoma with medullary features grade
III ( I have not been staged yet, Im assuming Im in stage 1). On 5/27,
I had a SNB and my nodes were clear...This is very overwhelming...I
requested a copy of my pathology report and learned that I was triple
negative....I go to my surgeon tomorrow for a check up from surgery and
Im assuming he is going to refer me to an oncologist etc...Im already
scared because I have BC ,but the triple negative scares me even worse...
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trip2
Senior Member
Joined: Jun 03 2007 Location: Under Palm Tree Status: Offline Points: 8549 |
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Posted: Jun 01 2009 at 4:19pm |
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Hello Shauna and welcome.
I am so very sorry to see you have been diagnosed. Of course you are scared. We all were, it is normal and you have so much going on at once and decisions to make, doctors to see. It is a whirlwind.
Good for you for getting a copy of your pathology report. Be sure and get copies of any tests, scans, etc., that you may have in the future and start your own file at home. This also allows you to go over them and see if you have any questions you might want to ask the doctor.
It is very overwhelming, many of us take a mild sedative after being diagnosed. Try your best to take one day at a time or sometimes you might have to go hour by hour, it is so much that a person has to think about and it is so shocking to hear those words. Like a rollercoaster and that is what this will be for you.
Not only will you most likely have some sort of treatment but your emotions play a big part in this.
I hope your doctor visit goes well for you. If you have any questions feel free to ask us and we'll try to help. Also write down anything you might want to ask the doctor. It helps to take someone with you.
Be careful in your reading that you stay with current information. Do your research as you can handle it. This will help you ask the right questions and feel more empowered.
We are here all the time so let us know how you are doing.
In the Research, News and Tips section of the forum there are many tips that you may find helpful and also we try to stay current with articles and studies so there is alot to read there.
Near the top of your page on the right side is a link called Resources. Click on that and then you'll see a drop down box, click on "Taking Charge of Your Care". This also will be helpful information for you.
Best wishes
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Stage 2 2003
Stage 1 2007 BRCA 1+ |
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scain808
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Joined: May 30 2009 Location: IL Status: Offline Points: 3 |
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Posted: Jun 01 2009 at 8:19pm |
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Thanks for you kind words and I will check out more forums for information....Im learning, I just have to take things one day at a time...and keep living...
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SagePatientAdvocates
Senior Advisor 
Joined: Apr 15 2009 Status: Offline Points: 4748 |
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Posted: Jun 01 2009 at 8:32pm |
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Hi Shauna,
Please try to see a Certified Genetic Counselor and ask about the BRCA mutation.. wishing you good luck, Steve |
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I am a BRCA1+ grandson, son and father of women affected by breast/oc-my daughter inherited mutation from me, and at 36, was dx 2004 TNBC I am a volunteer patient advocate with SAGE Patient Advocates
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scain808
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Joined: May 30 2009 Location: IL Status: Offline Points: 3 |
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Posted: Jun 02 2009 at 3:56am |
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Good Morning Steve
I plan on doing that...BC runs in my fathers family...His mother, sisters, and nieces have had BC. I had no contact with my biological father, so I was unaware of this. I am also considering a bi-mast, so hopefully I wont have to go thru this again...
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trip2
Senior Member
Joined: Jun 03 2007 Location: Under Palm Tree Status: Offline Points: 8549 |
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Posted: Jun 02 2009 at 11:17am |
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Hello Shauna,
Here is a link on Medullary Breast Cancer
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Stage 2 2003
Stage 1 2007 BRCA 1+ |
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