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Lawsonval
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Joined: Jun 13 2019
Location: WA
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Points: 15
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Posted: Jul 19 2019 at 12:23pm |
Lumpectomy surgery is completed, 7 mm tumor, clear margins, no cancer in sentinel lymph nodes. So T1aN0, but aggressive, 8/9 . BUT when the doctor goes through the decision tree for TNBC, it says Consider Chemo, its in the grey area, its in the middle between NO Chemo and Yes Chemo. I can't get in to see the medical oncologist for a month. Asked for second opinion, and will get a referral. But how do people make this decision when you end up in the middle like this?
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Penny
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Joined: Dec 28 2016
Location: Sacramento
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Points: 157
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Posted: Jul 19 2019 at 12:33pm |
Mine was the same... 6mm - and my uncle is a radiology oncologist - he said don't mess with it and do the chemo. That was his guidance for me. I was glad it was 6mm instead of 5. NCCN says over 5 strongly consider chemo. So, I am two years through this and lump/chemo/rad and reconstruction is complete. And, I am feeling great! I hope that helps you.
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DX IDC, TNBC 12/7/16 (age 55), Stage 1a Grade 2, .6cm, 0/1 nodes, Lumpectomy & node dissection 12/22/16, BRCA1&2 negative 1/23/17 Chemo TC. Chemo completed 3/28/17. 30 RADs completed 6/6/17.
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mainsailset
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Joined: Jul 27 2008
Location: Washington State
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Points: 4996
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Posted: Jul 19 2019 at 7:10pm |
Basically, after years of watching women post similar results, I've learned that the answer is 'go for it', don't hold back on treatment but stay aggressive. If you don't go the chemo route and you have a recurrence it will be that much harder to fight.
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dx 7/08 TN 14x6.5x5.5 cm tumor
3 Lymph nodes involved, Taxol/Sunitab+AC, 5/09 dbl masectomy, path 2mm tumor removed, lymphs all clear, RAD 32 finished 9/11/09. 9/28 CT clear 10/18/10 CT clear
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AnneB
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Joined: Jul 21 2019
Location: Arizona
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Posted: Jul 22 2019 at 12:18am |
Thank you for posting this. <3 I'm curious - what made you decide on a bilateral mastectomy vs a lumpectomy?
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Lawsonval
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Joined: Jun 13 2019
Location: WA
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Points: 15
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Posted: Jul 28 2019 at 5:23pm |
The nurse coordinator managed to get me moved up, so I now have visited radiation and medical oncologists. Radiation seems pretty clear. Chemo still sounds pretty intense. Doc is recommending 4 doses, 3 weeks apart, of Cytoxan and Taxotere. Also found out that these are paired with steroids, which can raise your blood sugar, andI am a borderline type 2 diabetic. After seeing the statistics, where in 10 years, 15% will metastasize and die without chemo, while 10% still will with chemo, I really am struggling with this decision. Any other thoughts from the group? Thanks for the help.
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fkooei
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Joined: Oct 21 2019
Location: London
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Posted: Oct 21 2019 at 5:38pm |
You said your tumor was small so I think you mean 1.0 cm? Are you getting treated in Seattle? There are a couple of great cancer centers in Seattle. Have they tested you for genetic mutations? If not, ask them to give you a test.
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Lawsonval
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Posted: Oct 21 2019 at 10:00pm |
Tumor was 7 mm, no node involvement, being treated in Bellingham, 100 miles north of Seattle, negative on genetic mutation.
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Lawsonval
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Location: WA
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Posted: Oct 21 2019 at 10:01pm |
taking TC, one last dose this week, then on to rads. Chemo has not been fun, but close to the end
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