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New Diagnosis, researching options

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Juil0909 View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Juil0909 Quote  Post ReplyReply Direct Link To This Post Posted: Apr 13 2022 at 3:34am
Hi everyone,

I am 47 yo and was dx with TNBC in January 2022 and have the BRCA2 gene mutation. The tumor was measured to be 1.7cm and no cancer found in lymph nodes.Stage 1
I was recommended to have neoadjuvant treatment before surgery but decided to go ahead with double mastectomy with nipple sparing reconstruction without doing the chemo first.
I had surgery on March 16. After surgery they said the tumor was 2.2 cm and negative in nodes. So since the tumor was 2.2 they staged me as 2A.
Now the doctors are saying I should definitely do chemo for 5 months as soon as I am healed from the surgery.
I am looking for any advice and words of wisdom as I am still contemplating my decision with doing chemotherapy.
I did see a radiology oncologist last week and he said he would not recommend radiation for me at this time, which is a huge relief.

Thank you for reading and I appreciate any insights.
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joyjiang View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote joyjiang Quote  Post ReplyReply Direct Link To This Post Posted: Apr 13 2022 at 10:34am
My understanding is chemo is the most critical for TNBC. The reason why doctors recommend chemo first is that allows them to find out whether and what regimen works. 

BMX of course prevented cancer coming back in breasts. I would suggest you check whether chemo would prevent distant metastasis. 

With BRCA 2, you need to find out the risk for ovarian cancer, if necessary take out ovaries preemptively. Ovarian cancer is often found late (Stage 3 /4) with bad prognosis. 

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rickles View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote rickles Quote  Post ReplyReply Direct Link To This Post Posted: Apr 13 2022 at 6:26pm
Hi Juil0909, I was diagnosed with TNBC 8/2021. I had a lumpectomy, chemo and am currently finishing up my radiation treatments. It is my understanding that even with a double mastectomy and clear lymph nodes there is still the possibility that microscopic breast cancer cells could be left behind to travel through the rest of your body, liver, lungs, bone and lymph nodes. Once these cells grow outside the breast, the cancer is then metastatic with a poor prognosis. Medical oncologist rely heavily on chemotherapy to treat TNBC and eradicate any microscopic breast cancer cells that survived surgery.
  I hope this informations is helpful. I wish you all the best .  Diane
 
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cookie54 View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote cookie54 Quote  Post ReplyReply Direct Link To This Post Posted: Apr 13 2022 at 9:16pm
Hi Juil0909, I had a BMX in 2016 and had clear lymph nodes Stage 1. I had chemo(A/C) post surgery and radiation was not needed . Four years later had a recurrence in my lymph nodes and chest wall, I am now Stage 3c. So I would not underestimate TNBC it can be aggressive! Microscopic cells can escape and hang out in our system without us knowing for quite sometime. It is so very important that you take every step to give yourself the best chance of eradicating it forever! Best wishes with your decision.
8/2016,IDC,StageIA, Gr3,0/1 nodes ER-/PR-,HER2-
9/2016 BMX implants,AC
6/20,StageIIIC,Gr3,ER-/PR-HER2-
6/20 Carbo/Gem/pembro
10/20 ALND 5/8 nodes,Rad x25
11/20 thyroid ca, surg
Xeloda2/21-7/21


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marlenad View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote marlenad Quote  Post ReplyReply Direct Link To This Post Posted: Apr 18 2022 at 7:44pm
Hi Cookie,

What is your current treatment? We almost have similar stories but I had a lumpectomy. So in 2018(stage 3 TNBC) I had chemo, then a lumpectomy in 2019, then radiation, then took Xeloda. I had a reoccurence as of TNBC 3/2022 opposite side in lymph nodes & chest wall. 
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cookie54 View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote cookie54 Quote  Post ReplyReply Direct Link To This Post Posted: Apr 19 2022 at 7:44pm
So I finished Xeloda 7/21 I am not on any chemo currently. However I think it's coming! My last three CT's of the chest show 3 enlarging lung nodules that radiologist is calling slow growing pulmonary metastasis. Unfortunately and fortunately they are to small to get a biopsy of yet. MO feels a wedge resection of the lung is too aggressive and wants to wait 3months to see if they are big enough to biopsy.

I'm sorry you are dealing with this  beast again! What treatment are you on? Is it still considered a loco-regional recurrence?
8/2016,IDC,StageIA, Gr3,0/1 nodes ER-/PR-,HER2-
9/2016 BMX implants,AC
6/20,StageIIIC,Gr3,ER-/PR-HER2-
6/20 Carbo/Gem/pembro
10/20 ALND 5/8 nodes,Rad x25
11/20 thyroid ca, surg
Xeloda2/21-7/21


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