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zoomommy2 
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Joined: Sep 26 2009 Location: Denver, CO Status: Offline Points: 1356 |
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 Posted: Aug 02 2010 at 1:04pm |
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Hi guygirl,
I hope that the leadup to the chemo was a bigger deal than the actual chemo. It usually works that way. Like Carol, I was anxious to DO something to kill the beast in my body. Nurses were explaining on the first day how much the copay would be for various drugs. I mistook what was said to mean that my copay for Neupogen was going to be $5000/month. I burst into tears, saying I didn't have that kind of money! The Social Worker came over to comfort me, but by that time I'd had my mistaken figures corrected and was fine. But I got my little cry over and done with. My DD AC went smoothly, but really kicked my butt. I figured the worse I felt, the more of the buggers were getting killed. Not necessarily true, but it kept me going.
Lee in Denver
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dx6/09,stageII,gr3,(L)mastectomy 7/09,ACx4,Taxolx7,Avastin study,gall bladder surgery 1/10,4/11 Stage 4, mets to lung, 4/11 Started Taxotere and Xeloda, 5/11 Taxotere stopped, off Xeloda
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Lillie
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Joined: Jul 10 2009 Location: Eastern NC Status: Offline Points: 3616 |
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Posted: Aug 02 2010 at 1:17pm |
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Hi guygirl,
Best Wishes for a good day today. I also hope you get along well with any after treatment symptoms. The nurses told me on my first day of chemo that for the first couple of hours I sat there like a "deer in the headlights". I probably did because I was scared. I soon learned I was in good hands and relaxed. God Bless, Lillie |
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Dx 6/06 age 65,IDC-TNBC
Stage IIb,Gr3,2cm,BRCA- 6/06 L/Mast/w/SNB,1of3 Nodes+ 6/06 Axl. 9 nodes- 8/8 thru 11/15 Chemo (Clin-Trial) DD A/Cx4 -- DD taxol+gemzar x4 No Rads. No RECON - 11/2018-12 yrs NED |
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CiGi
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Joined: May 12 2010 Location: Bound Brook, NJ Status: Offline Points: 223 |
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Posted: Aug 02 2010 at 1:36pm |
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Hi Guygirl - good luck today. Hope it all goes well for you today. Get your rest, eat what you can, ask questions - everyone here on this site is very helpful.
Pam - I love how you put the 'only good lump is one in a jar'.
Steve - I was also told not to be concerned about my lump because it hurt and it felt like a cyst. The mam made it hurt even more. I had two lumps, one close to the surface and one much lower. The one closer to the surface they thought was a cyst and the one lower they were more concerned about cancer. After biopsy - the one close to surface was cancer and the lower one was a cyst; they removed both.
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Age 40, 4/28/10 lumpectomy (3 cm) TNBC Grade 3 Stage 2 0/3 nodes, TAC 6x 3 week cycles start 6/15 finish 9/27, 33 rounds rads 11/22. BRCA1 & 2 neg. Lymphedema rt hand 8/14. Joint pain Dec 2010.
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guygirl
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Joined: Jun 22 2010 Location: Maryland Status: Offline Points: 27 |
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Posted: Aug 02 2010 at 5:24pm |
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Chemo went well, the time passed pretty quick. Had a great lunch afterwards and not just feeling water logged. I am drinking as much water as i can to flush me out. Waiting on son's girlfriend to drop by she is bringing me something. I get the shot tomorrow. So all you folks who have been here before me, what next, if I feel good now will I be ok tomorrow. I get the nuelesta shot tomorrow and I heard that is what will give me flu like symptoms. Can't wait. Bring it on!
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Age 50 DX: 6/3/10 IDC, Stg 1A Grd 3 1.9cm, KI-67 85%, lump. w/SNB, clear margins, lymph node 0/1, 4 cycles A/C (dose dense) every 2 wks, 4 cycles Taxol(dose dense) every 2 wks, 33 rads, BRCA 1/2 neg.
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123Donna
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Joined: Aug 24 2009 Location: St. Louis, MO Status: Offline Points: 13510 |
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Posted: Aug 02 2010 at 5:39pm |
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Guygirl,
I found the side effects started 2 to 3 days after chemo. For the Neulasta shot, try taking Claritin (just Claritin, not D). It helps with the side effects. Hope the side effects are minimal and you sail through the tx. Keep us posted. Donna |
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DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15 |
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Scott
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Joined: Dec 08 2009 Location: Arkansas Status: Offline Points: 126 |
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Posted: Aug 02 2010 at 5:53pm |
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Take one claritin today, tomorrow, and then the two days following the shot.
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guygirl
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Joined: Jun 22 2010 Location: Maryland Status: Offline Points: 27 |
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Posted: Aug 02 2010 at 5:57pm |
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Thanks, will do.
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Age 50 DX: 6/3/10 IDC, Stg 1A Grd 3 1.9cm, KI-67 85%, lump. w/SNB, clear margins, lymph node 0/1, 4 cycles A/C (dose dense) every 2 wks, 4 cycles Taxol(dose dense) every 2 wks, 33 rads, BRCA 1/2 neg.
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guygirl
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Joined: Jun 22 2010 Location: Maryland Status: Offline Points: 27 |
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Posted: Aug 04 2010 at 11:52am |
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Had the shot yesterday, woke up with a headache, but otherwise feeling ok. Thanks for all the prayers and support
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Age 50 DX: 6/3/10 IDC, Stg 1A Grd 3 1.9cm, KI-67 85%, lump. w/SNB, clear margins, lymph node 0/1, 4 cycles A/C (dose dense) every 2 wks, 4 cycles Taxol(dose dense) every 2 wks, 33 rads, BRCA 1/2 neg.
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Katastrophe
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Joined: Jul 22 2010 Location: Australia Status: Offline Points: 287 |
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Posted: Aug 04 2010 at 12:06pm |
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Hi guys and gals, I suffered mercilessly after treatment. It surprises me when I read that someone went off and had lunch. I couldnt even think of food. Between the mouth ulcers and the metalic taste in my mouth, the vomitting, nausea and diarrhoea (which I could barely hold back till I got home). I was pretty crappy the first week... less crappy the second week... and just coming out of crapville in the third week. Even the Avastin alone plays havoc with me for at least a week and a bit. Now if I go on Lee's theory ... I have been crappy for the best part of a year ...so... I should have kicked this cancers butt!!! You could make a fortune Lee if your theory works out. Just remember the little people on your way up. I'd like a new dress with boobs please? catcha luv Kat
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Age 49. Stg2 gr3 19mm lump in L/br 1 lymph node in L/br 3/14 lymph nod under left arm full clear bil/mast 6rds Chemo 3wkly 25rds Rad 18rds of Avastin finished treatment on 19th August 10.
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Carol (Tenn)
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Joined: Aug 06 2009 Location: Paris,Tennessee Status: Offline Points: 2707 |
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Posted: Aug 04 2010 at 12:31pm |
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It so strange how everyone is so different...
I only had low wbc twice...they stayed up pretty much on their own. I did have to have Neulasta
shot twice and I had no side effects. Kept waiting for them but nothing...
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St 2 Gr 3, A/C/T, DD
Radiation x35 Rec chest wall 07/09 Radiation x28 NED 10/24/11 NED 10/5/12 NED 03/15/13 |
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zoomommy2
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Joined: Sep 26 2009 Location: Denver, CO Status: Offline Points: 1356 |
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Posted: Aug 04 2010 at 12:47pm |
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Kat,
If I make a fortune on my theory, I'll buy you lots of dresses with boobs! Since I haven't made my fortune yet, I doubt it's coming my way! BTW, I was crappy from October 09 til February 10. Nothing but diarrhea, but I just accepted it as part of the deal to cure me. You are ahead of me!
Lee in Denver
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dx6/09,stageII,gr3,(L)mastectomy 7/09,ACx4,Taxolx7,Avastin study,gall bladder surgery 1/10,4/11 Stage 4, mets to lung, 4/11 Started Taxotere and Xeloda, 5/11 Taxotere stopped, off Xeloda
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TNBC_in_NS
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Joined: Jul 26 2009 Location: NS Canada Status: Offline Points: 2028 |
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Posted: Aug 04 2010 at 1:32pm |
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Oh Guygirl, I was the same as you! First week was really down, second beginning to come around, third week not too bad and then back for more of the "devil poison".... I had to give myself Neupogen injections for five days after chemo my WBC bottomed out big time. Chemo was postponed twice and had allergic reactions to Taxotere almost took heart attack, my throat closed off and the nurses were flying back over to me. They were great! Couldn't walk a straight line so looked like I was drunk leaving .....funny Carol we are all so different but yet so much the same.
Zoomommy2 I was so sick from this stuff and burned so bad from the radiation I just wanted to die.. but the BIG GUY said "Not your time" so here I am today just getting my new life and new thoughts together and wondering what will I be when I grow up???
Hope you all have a good day and your side affects are behaving themselves, but we do want to kick _ss so heads up ladies the race is on. Your sister on a new journey, Love ya's Helen in NS
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Diag@57TNBC04/092.5cm Lquad 05/09 TCx4Radsx30CT03/01/10 FU03/31/10ClearBRCA- 01/2011 RTNBC BMX 06/14/2011~2013 clear
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zoomommy2
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Joined: Sep 26 2009 Location: Denver, CO Status: Offline Points: 1356 |
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Posted: Aug 04 2010 at 1:39pm |
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Helen,
I was fortunate to not need radiation. If the beast returns that may be in my future. For most of us, chemo is just for a little while. For others, it's not such a little amount of time. It never feels like we are in it for a short time while it's going on. I remember when I had finished 7 rounds of Taxol and had 5 more to go. I didn't realize at the time, my misery was from my gall bladder and not related to the Taxol at all. I didn't know if I could go 5 more weeks on it. Then the gall bladder surgery ended those 5 weeks. What I wouldn't have given to be able to finish those 5!
Lee in Denver
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dx6/09,stageII,gr3,(L)mastectomy 7/09,ACx4,Taxolx7,Avastin study,gall bladder surgery 1/10,4/11 Stage 4, mets to lung, 4/11 Started Taxotere and Xeloda, 5/11 Taxotere stopped, off Xeloda
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CiGi
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Joined: May 12 2010 Location: Bound Brook, NJ Status: Offline Points: 223 |
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Posted: Aug 04 2010 at 1:54pm |
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My first day of treatment isn't bad, a little tired from the Benadryl. I go out and eat as much as I can. The second day I get the shot and my bones hurt, all of them through the night. The third through about 8th day, I have no appetite, feel really crappy, not sick not well, just BLAH. Really constipated, like rocks!!! No taste (especially salt - my favorite one), kinda tired, my brain easily distracted, stomach just unsettled - not really nauseous. I don't feel sick enough to stay in bed but not well enough to get something done. Each round the BLAH feels a little worse. This round my feet felt a little tinglely, hoping that doesn't get worse. I'm half way done, so hopefully it doesn't get too bad. August 18 is the next round. Everyone has some similar and different side effects, but if we all talk about them, we know what to expect if any.
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Age 40, 4/28/10 lumpectomy (3 cm) TNBC Grade 3 Stage 2 0/3 nodes, TAC 6x 3 week cycles start 6/15 finish 9/27, 33 rounds rads 11/22. BRCA1 & 2 neg. Lymphedema rt hand 8/14. Joint pain Dec 2010.
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TNBC_in_NS
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Joined: Jul 26 2009 Location: NS Canada Status: Offline Points: 2028 |
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Posted: Aug 04 2010 at 3:58pm |
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Oh Lee, I can't imagine having gall bladder surgery on chemo??? I had mine out when I was 20 years old and thought I would die....sick, sick, sick. It is a dirty surgery and my incision where the drain was did not want to heal. I was cut from the middle of my breastbone to nearly the side of my right hip (they did an exploratory, they said) sh*t they should have taken everything else out while they were at it, but I wouldn't have had my son the next year so I guess I did ok.... I hope you are feeling better now girl. Don't worry about not having the other five doses, if the first batch don't work, nothing will....the surgery was more important at that time. And yes, you can have radiation if needed.
CiGi: So glad your treatment went well. Get some rest and go with the flow for now. I have peripheral neuropathy in my hands and feet now from the chemo but it is manageable. Watch for your temperature. If you have a thermometer take your temp if you feel warm and don't let your fever rise higher than 100. If it does go to Emergency Dept for treatment of Neutrapenia. As for the constipation, get some stool softeners - Collace or something like that to keep your stool soft. Drink lots of water, juice, etc. to keep hydrated. The Decadron and Benedryl cause the constipation and dry your body right out. Eat lots of fresh fruit too. Push the soft foods to ya, yogurt and jello, ice cream, etc. Keep your strength up. I know the taste buds go when you are taking all this medication, but push yourself to keep your vitamins up too. Also, have your Vitamin D levels checked at your next blood work. If it is down then get the Vitamin D3 and take that every day. It is another saving grace that is now the top item to remain cancer free... Just some stuff to think about. Hang in there girl, this too shall pass. Hugs,
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Diag@57TNBC04/092.5cm Lquad 05/09 TCx4Radsx30CT03/01/10 FU03/31/10ClearBRCA- 01/2011 RTNBC BMX 06/14/2011~2013 clear
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staceydooley
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Joined: May 05 2010 Location: Burbank CA Status: Offline Points: 52 |
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Posted: Aug 04 2010 at 4:03pm |
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Lee, I am so sorry to hear about your gall bladder surgery. Just hang in there. This is a tough time we are going through. But we are going through it. meaning, we will get through it.
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http://www.youtube.com/watch?v=0Nvx7vFE2fs
Stacey, 43 years, TNBC Double mastectomy 04-01-10 BRCA 1, porto cath put in no nodes chemo to start June 3rd |
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zoomommy2
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Joined: Sep 26 2009 Location: Denver, CO Status: Offline Points: 1356 |
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Posted: Aug 04 2010 at 5:11pm |
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Stacey and Helen,
My surgery was back in January and yes, I had chemo the week before and was scheduled for it the day I was sent to the ER instead of getting chemo. I wanted them to give me the chemo and then let me go to the ER! I'm glad they didn't listen to me! I had to have the old fashioned long incision because I had a major infection in there along with a huge stone that destroyed the bile duct. That was the end of my chemo, but I didn't know it at the time. I just wanted back on chemo to finish up. I actually healed pretty quickly, but not fast enough to resume chemo. It's definitely not the thing to do! If the beast comes back I'll always wonder if not getting those last 5 Taxol was the cause. I'm fine now. Once the effects of the Taxol wore off I was tap dancing!
Lee in Denver
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dx6/09,stageII,gr3,(L)mastectomy 7/09,ACx4,Taxolx7,Avastin study,gall bladder surgery 1/10,4/11 Stage 4, mets to lung, 4/11 Started Taxotere and Xeloda, 5/11 Taxotere stopped, off Xeloda
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Katastrophe
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Joined: Jul 22 2010 Location: Australia Status: Offline Points: 287 |
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Posted: Aug 04 2010 at 9:08pm |
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licorice licorice licorice = soft poo's also shove as much vasolene up yer butt as you can before you go. Or prune juice ( I personally think prunes are disgusting, but thats me) I had my gall bladder done when I was in my late 20's. It was one of the worst surgeries and most painful experiences that I have had. And I have had plenty... Vaginal reconstruction, Caesarean, tubal ligation, hysterectomy, oopherectomy, sphincterectomy, lumpectomy ( I am the Ectomy queen) mortons neuroma's, bladder lift (twice), bowel lift (twice) as well as the gall bladder, not to mention laparoscopies galore. I jokingly told my surgeon after my last op, that there was nothing left to take now except vital organs (wont he be surprised if I turn up next without breasts) I wasn't counting on that. I even spent 7 months in hospital carrying my son to term, because I could not stop bleeding.
It's good to be me!!! NOT...
Lee: I like maxi dresses, flowy, and I am fairly tall. I like to wear flat shoes too, so something casual .
 One day at a time CiGi... luv Kat
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Age 49. Stg2 gr3 19mm lump in L/br 1 lymph node in L/br 3/14 lymph nod under left arm full clear bil/mast 6rds Chemo 3wkly 25rds Rad 18rds of Avastin finished treatment on 19th August 10.
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zoomommy2
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Joined: Sep 26 2009 Location: Denver, CO Status: Offline Points: 1356 |
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Posted: Aug 04 2010 at 9:48pm |
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Kat,
I wrote up your order just now, pending the arrival of my fortune!
Lee in Denver
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dx6/09,stageII,gr3,(L)mastectomy 7/09,ACx4,Taxolx7,Avastin study,gall bladder surgery 1/10,4/11 Stage 4, mets to lung, 4/11 Started Taxotere and Xeloda, 5/11 Taxotere stopped, off Xeloda
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trip2
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Joined: Jun 03 2007 Location: Under Palm Tree Status: Offline Points: 8549 |
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Posted: Aug 06 2010 at 2:21pm |
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You ladies amaze me with your stories, thanks for sharing.
Lee, me too, I want to get on the same list as Kat.
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Stage 2 2003
Stage 1 2007 BRCA 1+ |
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