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COZAZ View Drop Down
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    Posted: Feb 09 2020 at 4:37pm
Newly diagnosed TNBC on Jan 30th.  No matter how prepared I thought I was to hear the words.  "You have breast cancer"  Damn was I wrong.  I am fortunate to be in a state with one of the best cancer facilities... although I am still terrified.  They believe it has been caught early as tumor is 5mm  Clinical Stage 1Ta/bN0M0  but won't know until surgery.. Breast cancer does not run in either side of family.  Genetic testing should be back next week.   Most articles are negative and I can't bear to google anymore.  Thankfully I found this forum and have read many positive outcomes.  I know a couple people who had TNBC and have just passed the 5 year mark.  I'm slated for lumpectomy first, then chemo (hopefully can cool cap it) and then radiation.   I have my contrast imaging tomorrow morning to make sure surgery is still first and not chemo first....But either way, I just want this out of me...  anyway......just wanted to get involved with people who have and are going through this. Praying for everyone.  
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Suebhs View Drop Down
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Post Options Post Options   Thanks (1) Thanks(1)   Quote Suebhs Quote  Post ReplyReply Direct Link To This Post Posted: Feb 09 2020 at 7:21pm
I'm very sorry for your recent diagnosis. I can very much relate as I was recently diagnosed in Oct. My tumor was 7 mm, stage 1, no lympth node involvement, clear margins at lympectomy. The good news is yours and mine both were caught early! Do not drive yourself crazy googling. I did the same and while I believe knowledge is power and it's helpful to learn all you can, you need to understand you have a situation where you have a good prognosis because it was caught early. My oncologist keeps reassuring me of this as I did the same and completely freaked myself out after I was first diagnosed and read all these negative posts about tnbc. Not trying to discount the fact that it is a more aggressive form of breast cancer than the other types. But you caught it early and your in a good place  
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Post Options Post Options   Thanks (0) Thanks(0)   Quote COZAZ Quote  Post ReplyReply Direct Link To This Post Posted: Feb 09 2020 at 10:51pm
Thank you...my breast surgeon mentioned i was in a good place but that was before we found out i was TN.   I plan on doing whatever they say... I'm of course nervous about chemo...horror stories as well... would like to here more about your treatment and how you are handling all of it and any tips...  Im sorry you are going through this as well.. and Yes...it was caught early.  I keep focusing on that word.  I think I say it 20 times a day...  Hang in there as well..

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Post Options Post Options   Thanks (0) Thanks(0)   Quote Suebhs Quote  Post ReplyReply Direct Link To This Post Posted: Feb 10 2020 at 1:28am
I understand how you feel. I never heard of tnbc until my diagnosis. I vaguely remember hearing about a more serious type of breast cancer  that younger, african-american, hispanic and/or BRCA gene mutation positive women are more likely to get - ironically, none of which apply to me. Googling the internet can put the fear in anyone. However, stage, grade, lympth node status all matter. And tnbc responds very well to chemo. My understanding is 5 mm is considered that "grey area" where chemo my not even be recommended. You'll know more once you've had more imaging and the lympectomy. I just completed my last of 4 rounds of chemo. I tolerated it much better than I anticipated. No nausea - didn't even have to take meds for it - just some occasional acid reflux the first few days. My appetite was very good - in fact, a little too good. I gained some weight during treatment - about 10 pounds. Some of it possiblly due to steroids/meds. But not exercising as much, stress eating, etc. played a part. Definitely focusing on getting back on track with eating right and my daily walking. Maintaining a healthy weight is important to help prevent reccurrence. Was told not to worry too much about it during treatment. Weight gain is common. But eat healthy as much as possible and with some effort I can get those extra ten pounds off after treatment is complete. I compare the chemo to getting the flu - but not as severe. A week after chemo I feel crudy, fatigued, a general malaise and stay in a lot and rest. By week 2 I'm starting to feel better, venture out more, start taking short walks, able to do some housework and errands. By week 3 I feel much better - like myself again. It honestly wasn't as bad as I thought. Yes, the hair loss part was probably the hardest thing. But cold capping is always an option! It really has worked for some women. I tried it the first treatment but it didn't prevent my hair loss. However, I went the  "do it yourself" route and ordered cold cranial caps off of Amazon and watched videos on YouTube on how to do cold capping. I may have been more successful had I rented a cold capping system but I couldn't afford it. Still I don't regret trying. I would've regretted had I not tried. At this point I have a couple of really cute realistic wigs that were covered by my insurance and I'm looking into hair extensions this summer. There's options out there. Other than the hair loss the worse part has been my recent hot flashes. Chemo put me into menopause. But I'm 50 and was peri-menopausal before treatment so I somewhat expected it. The menopause may or may not be permanent. I'm okay if it is. After suffering with heavy menstrual cycles for years I welcome it. Hopes some of this helps. You're going to have to go through some "stuff" but it's not as bad as what the internet would have you believe. It's caught early, it's treatable. ♥️🤗 🙏

Edited by Suebhs - Feb 10 2020 at 8:58am
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COZAZ View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote COZAZ Quote  Post ReplyReply Direct Link To This Post Posted: Feb 10 2020 at 10:31am
Thanks again.. You are a huge help to me with going through this.   I am off to my imaging and hoping that little bastard stayed at 5mm.  Dr. is recommending chemo.  I had a hysterectomy at 42 so hopefully that helps.  Same statistics for TNBC did not apply to me...  still waiting for BRCA test though..   Anyhow.. i'll keep you posted! Off to the hospital...  

I am the Storm!
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Suebhs Quote  Post ReplyReply Direct Link To This Post Posted: Feb 10 2020 at 11:42am
Prayers that everything goes well! Your tumor may actually end up being smaller after they remove it and get the most accurate measurement. So don't freak out if it's a little larger from imaging. Once it's removed they get the most accurate measurement. Please keep be updated. You got this 🙏♥️
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