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TNBC_in_NS View Drop Down
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    Posted: Sep 23 2010 at 5:58pm
I wonder when they will find the true sources for cancer?  How much more information can we be inundated with? 
 
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Post Options Post Options   Thanks (0) Thanks(0)   Quote 123Donna Quote  Post ReplyReply Direct Link To This Post Posted: Sep 23 2010 at 7:07pm
Helen,

Thanks.  These studies are so confusing.  We see one study that says it's liked to cancer and then other studies that say there is no connection or it helps prevent cancer.  What are we to believe?

Donna
DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15

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Post Options Post Options   Thanks (0) Thanks(0)   Quote TNBC_in_NS Quote  Post ReplyReply Direct Link To This Post Posted: Sep 23 2010 at 8:47pm
Donna:
The more I read, the more confused they get me! Some say take vitamins, others say don't???
When they get it figured out, let me know.....urgggggg
h in NS
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Post Options Post Options   Thanks (0) Thanks(0)   Quote 123Donna Quote  Post ReplyReply Direct Link To This Post Posted: Sep 23 2010 at 8:59pm
Maybe take them every other day!  LOL
DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15

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Post Options Post Options   Thanks (0) Thanks(0)   Quote TNBC_in_NS Quote  Post ReplyReply Direct Link To This Post Posted: Sep 23 2010 at 9:21pm
Good Point Donna:
Mainy takes a break from her Vitamins every Saturday she skips...Does she know something we don't???
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Post Options Post Options   Thanks (0) Thanks(0)   Quote TracyAMac Quote  Post ReplyReply Direct Link To This Post Posted: Sep 24 2010 at 9:20am
thanks Helen for the article....it really is a struggle to figure out which articles and reasearch have the most validity. I  take B1 and B6 for for peripheral neuropathy  B12 and folate to help me with my anemia and falling iron counts plus  Vit D, calcium, and fish oil so might try dropping the multi pill at least on alt days as Donna suggests

Tracy in Toronto
TN&non-TN tumors April/10 Gr3&2;1 metaplastic
Rmast.1/9 nodes w/isolated t.cells
Taxotere&Cytoxan x6
Bone cancer 1980 age17;surgery&chemo AC+Methotrexate
BRCA-ve
On hormone therapy & Metformin Trial
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Post Options Post Options   Thanks (0) Thanks(0)   Quote TNBC_in_NS Quote  Post ReplyReply Direct Link To This Post Posted: Sep 24 2010 at 9:27am
Hi Tracy:
Yes, it is hard to know what is the right thing to be doing but with Vitamins? I know we don't get enough Vitamins in our food anymore so how could taking supplements hurt us and even cause breast cancer? I take the Multiple Vitamin every day with 2,000 IU of Vitamin D3 (my level is still low) and Black Cohash for the hot flashes (they are intolerable.)  I will continue on my regimen but maybe take a day off a week as Denise does.  Keep in touch, Helen in NS
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Post Options Post Options   Thanks (0) Thanks(0)   Quote TracyAMac Quote  Post ReplyReply Direct Link To This Post Posted: Sep 24 2010 at 10:13am
Hi Helen

How much Black Cohash do you take for the hot flashes? I crashed  into 'chemo pause" after my last previous chemo (last one coming up mid Oct!) My reg. onc. was away and his colleage was not very  helpful - she said that they might put me on Effexcor (an ant-dep. that also treats hot flashes) when I go on hormone therapy after chemo. I understand the onc's rationale that she  is recluctant to start Effexcor while I am on chemo, steroids etc. and my periods may come and go again for a while but she didn't have any suggestions on how to manage in the interim. Meanwhile not getting much sleep with the hot flashes running day and night. I have some sleep pills from my general practioner I can take the night before if I need some good zz's if I have a big day at the hospital or whatever but don't want to get too hooked on them....any other tips you might have on the managing the hot flashes? If it gets unbearable I will call my regular onc. before my next appt. 

PS: I will be going on hormone therapy (e.g Tamoxafin or one if its sister drugs) to help prevent recurrence of my 2nd non-TN hormone positive tumor.  This will eventually put me in permanent early menopause.

Tracy in Toronto


TN&non-TN tumors April/10 Gr3&2;1 metaplastic
Rmast.1/9 nodes w/isolated t.cells
Taxotere&Cytoxan x6
Bone cancer 1980 age17;surgery&chemo AC+Methotrexate
BRCA-ve
On hormone therapy & Metformin Trial
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Post Options Post Options   Thanks (0) Thanks(0)   Quote TNBC_in_NS Quote  Post ReplyReply Direct Link To This Post Posted: Sep 24 2010 at 12:59pm
Hi Tracy:
Oh aren't they horrid! I was sweating profusely and could not move without the sweat running in my eyes and my upper lip!  It was dreadful!  Even my head would sweat!  I have therefore not been able to clean around as I would have liked to.  No vacuuming or walls dusted, etc.  It is awful to feel like this.  I am not sure if you want to ask your Dr. prior to taking them, but my doc ok'd them and I take two a day, usually at night - that way if there are any side-effects I have them while I sleep.  My daughter bought mine at Shoppers Drug Mart and they are made by Holista.  I take two 40 mg before bed and after one week I saw a difference.  I still sweat but not as bad.  I was never one to sweat at all, even in a sauna. I was weird, but I liked it better when I didn't sweat.  I hope this works for you.  There is also, Evening Primrose that I hear works well with a lot of people.  Whatever you decide, I am hoping it works as good for you!  Bless you Tracy
Helen in NS
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Post Options Post Options   Thanks (0) Thanks(0)   Quote jacquio Quote  Post ReplyReply Direct Link To This Post Posted: Sep 24 2010 at 2:48pm
I was on a big vitamin / supplement binge for months before I was diagnosed in 2007. Those prepackaged multi-pill packs with all sorts of stuff in them...To this day, a part of me believes that had something to do with my diagnosis. Who knows? 
Jacqui
11/9/07 at age 53, Stage IIb, grade 3, 1/10 nodes DD 4 x A/C and 4 x Taxol, 33 rads with boosts
8/2010 dx early stage endometrial cancer, total hysterectomy 9/3 via da Vinci robotic system.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote TNBC_in_NS Quote  Post ReplyReply Direct Link To This Post Posted: Sep 24 2010 at 11:16pm

Jacquio:

This is very interesting!!! Which vitamins did you take more of? Would be good to try to track back and see if maybe there is some validity in your theory....
Thanks, Helen in NS
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Post Options Post Options   Thanks (0) Thanks(0)   Quote jacquio Quote  Post ReplyReply Direct Link To This Post Posted: Sep 25 2010 at 9:40am
It was multi formula, including all the regular stuff, and mineralized seaweed, echinacea, acidophilus, fruit and vegetable powder blend, enzymes, magnolia bark, ginseng, fish oil)...4 pills a day with all this stuff in them. I never took vitamins on a daily basis before this, and really got into these for a while. At the time I was diagnosed, I figured..well, I am generally very healthy, good numbers on my blood tests...so maybe these vitamins and herbs kept me from being 'sicker' at my diagnosis...who knows. All I know is ever since then, I have a little bit of worry with every swallow of a vitamin I take, and I don't take them every day any longer, and I don't take this brand, either. 
Jacqui
11/9/07 at age 53, Stage IIb, grade 3, 1/10 nodes DD 4 x A/C and 4 x Taxol, 33 rads with boosts
8/2010 dx early stage endometrial cancer, total hysterectomy 9/3 via da Vinci robotic system.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote TNBC_in_NS Quote  Post ReplyReply Direct Link To This Post Posted: Sep 25 2010 at 10:06am
Gee Jacquio:
 
It is so hard to know what triggered the cancer.  It looks like everything was natural ingredients with your vitamins so maybe as you said "you might have been more ill than you are if you hadn't taken them?"  Who knows, my dear.  I believe stress is a big factor in changing our DNA, genes and cells and if you look back at the last few years of your life, you may see some triggers too.  I know mine is definitely related to stress... It has been a very difficult seven years for me.
 
We need to be vigilant in what we are taking, eating and doing in our lives to find what our triggers are but then on the other hand, we could drive ourselves crazy worrying.. I choose not to do that. 
If something comes up that needs to be checked, so be it, but til then, live life!
 
I see we are close to the same age and you had your first round at 53.  What is the da Vinci robotic system?  I too had hyst at 22.  I was lucky to have my son before that though.  I had my daughter four years earlier so I had my two children (blessings.) 
 
You have certainly come to the right site for information and I look forward to sharing our journey's together.  Bless you, Helen in NS
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