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Mastectomy Next Week - I'm nervous

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JulieKCA2013 View Drop Down
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Post Options Post Options   Thanks (1) Thanks(1)   Quote JulieKCA2013 Quote  Post ReplyReply Direct Link To This Post Posted: Jul 18 2013 at 10:52pm
I asked the general surgeon that question Barb he wouldn't give me a definite answer. He said most likely 3-4 weeks. He mentioned feeling coming back as pins and needles first.

Rest easy my friends.











Edited by JulieKCA2013 - Jul 19 2013 at 5:30pm
Dx 3-7-13 TNBC, 5cm pT2N1M0
3-19-13 ACx4, 5-14-13 Taxolx4
7-17-13 BMX ypT1N2M0(.9mm) 4/24 nodes.
10-8-13 completed Rads x 30
12-3-13 completed Eribulin Trial
10-18-13, 3-19-14 Bone/Ct Scan Clear
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arabella View Drop Down
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Post Options Post Options   Thanks (1) Thanks(1)   Quote arabella Quote  Post ReplyReply Direct Link To This Post Posted: Jul 18 2013 at 11:47pm
Originally posted by weekender09 weekender09 wrote:

I am so excited that my TNBC friends also got through the surgery and hoping pathology reports are as positive as mine was. 

Question for those senior members - how long does the numbness and swelling last?  I am one week post op and still have areas under the arm where it is numb yet when touched I feel pain within the swollen areas.  I know it will continue to be numb probably forever, but if you know what I'm talking about and can shed some light???

Barb

Barb,

I've no clue what others feel or don't feel or how they healed, but this is my story:

On Jan. 4, 2013,  I had a surgical biopsy and six days later a lumpectomy in the same incision together with an axillary lymph node dissection.  The hardest part by far for me to heal from was the lymph node dissection.  I still have soreness and numbness from inside of my elbow to under my armpit, but I have gotten some feeling back especially on top of my elbow and it has made a lot of difference.  I still can feel what seems to be swelling (but you can't see it with your eyes) between armpit and breast.  I am having an ultrasound to check fluid build-up in that area next month.  I became aware of getting some feeling back for the first time in April.  One of my doctors says I will get the feeling back and one says I might not get all the feeling back.  I will tell you that I still feel like something is "wrong"..... like I've been injured in that area of my body......certainly something I can live with forever, but it is something I'm aware of....more at some times and less at others. 

I too am curious as to what others might tell you.

Wishing you continued good healing and peace,
Kaye
Dx TNBC 1/2013; age 63; 1.1 cm; Stage 1, Grade 1(?); lumpectomy clear margins; ALND -; severe SEs to first TC and treatment stopped; radsX25; BRCA -
Recur 6/2015 Mastectomy
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arabella View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote arabella Quote  Post ReplyReply Direct Link To This Post Posted: Jul 19 2013 at 9:14am
Oh, and Barb....I wanted to add, that I've no problem with putting my arms together over my head or behind my head.  I have full range of movement and had full range in about 6 weeks after surgery.  I was trying to raise my arm above my shoulder after a few days and was showing off to  my surgeon and he had a fit.  My surgeon told me not to do anything....to just use my arm as normally as possible within reason and that it would come back.  He didn't want me to lift arm above my shoulders for first couple of weeks.....so I didn't try to do that any more.    My surgeon said that it is people who are scared to use their arm and try to protect it who have problems and have frozen shoulders to deal with.   My other doctors, would tell me to do the exercises.  So, I did a few exercises but within reason and I used my arm  and tried not to overdo.   

Kaye
Dx TNBC 1/2013; age 63; 1.1 cm; Stage 1, Grade 1(?); lumpectomy clear margins; ALND -; severe SEs to first TC and treatment stopped; radsX25; BRCA -
Recur 6/2015 Mastectomy
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Post Options Post Options   Thanks (0) Thanks(0)   Quote weekender09 Quote  Post ReplyReply Direct Link To This Post Posted: Jul 19 2013 at 10:51am
Kaye - that is fitting since I just did my exercises.  LOL

I do love the different docs points of view.  My Surgeon says if you can raise the arm and exercise do it as it prevents scar tissue build up during healing.  I have near full range of motion so I just go about daily stuff and do the exercises.  And yes I still have my drains in.  Surgeon said the lifting issues are more of a concerns if you have expanders at the time of surgery etc.  Oh well I will do what I can to get through the day. It seems to be working.  

Thanks. 

Barb
02/12/13 DX TNBC, Grade III, Stage 3, 3.3cm tumor, IMN and 1 lymph Positive, Chemo A/C T complete 6/13
BRCA1-/BRCA2+ Variance, BIL 7/13, 33 RADS complete 10/13 Remssion :)
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Grateful for today Quote  Post ReplyReply Direct Link To This Post Posted: Jul 21 2013 at 11:48pm
Hi,

Just wanted to share a thought that I heard/read from a physical therapist in relation to Kaye's
Surgeon's " that it is people who are scared to use their arm and try to protect it who have problems
and have frozen shoulders to deal with."
No question that one should use one's arm.
I liked the way Kaye said " did a few exercises but within reason and I used my arm and tried
not to overdo." Sometimes it can be a challenge to know what is within reason and what is overdo.
In which case, one may give consideration to a physical therapy consult....as long as it is with someone
who is skilled in post breast surgery physical therapy.

No question, exercises post surgery is one of those areas where one needs to discuss with and
follow the recommendations of one's providers for one's particular situation. Providers do seem
to have different recommendations.   At the same time I think it is helpful to read different member's experience
........then one can discuss any differing info with one's providers if needed.

First, most people do NOT get frozen shoulders.
(Following is the PT thought)
Some patients do their exercises faithfully.......and do not get a frozen shoulder.
Some patients do their exercises faithfully......and do get a frozen shoulder.
Some patients are told they have a "frozen shoulder".........and do have a frozen shoulder.
Some patients are told they have a "frozen shoulder"........and what they actually have is tightness/
       fibrosis on chest/in axilla from surgery/radiation that prevents full shoulder ROM.
With continued decreased shoulder ROM (range of motion) not responding to general exercises given,
      consider seeing a physical therapist who treats a lot of/specializes in post breast surgery physical
      therapy.
      Even though, one does not have lymphedema, one may look for a physical therapist who is
       knowledgeable about post breast surgery lymphedema therapy ( they tend to proficient in
       post breast surgery physical therapy as well.)

There is a thread on Physical Therapy and Breast Cancer:
http://forum.tnbcfoundation.org/physical-therapy-and-breast-cancer_topic11279.html

I am not a physical therapist.......and tried to post only considerations for discussion with
one's physician if there are concerns in this area.    I posted for others who might still be having
decreased ROM several weeks after surgery/radiation.
Kaye and Barb.........it is great that you both have such good range of motion.


With caring and positive thoughts,
Grateful for today.............Judy


-----------------------------------------------

Barb,

You asked about how long the numbness post mastectomy can last.
As usual,   many different experiences........and for many different lengths of times........and
        different "sensations" felt.   
In my unilateral mastectomy/ALND experience, I had significant numbness, no pain. My numbness
     took a little   over 2 years to significantly decrease....it was a very, very gradual decrease.   
     At one year post surgery, the numbness had decreased somewhat.
     At a little over 2 years,   I still have some(mild) numbness upper arm and axilla (no longer have
     chest numbness.) I do not remember having any pins and needles feelings.

Barb, continued positive thoughts for your healing from surgery. Sounds like you are making
a remarkable good recovery.


With caring and good thoughts,
Grateful for today..............Judy

Edited by Grateful for today - Jul 21 2013 at 11:52pm
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dawncoskren View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote dawncoskren Quote  Post ReplyReply Direct Link To This Post Posted: Jul 22 2013 at 10:14am
Day 6 after surgery. Doing better everyday. Had a few hard days with a fever but doing much better today. I was harder than I thought it would be, but well worth.
 
Thank you all
 
Thinking of everyone else going through this recently. XOXOXOXO
DX 6/14/13 TNBC-IDC
7/15 BRCA 1 Positive
7/16 double mastectomy
7/23 Post surgery Pathology- Stage1,tumor 2cm nodes clr.
8/16/13 4 A/c and 4 Taxol
1/6/14 implants
3/13/14 ovaries and tubes removed
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Post Options Post Options   Thanks (0) Thanks(0)   Quote dawncoskren Quote  Post ReplyReply Direct Link To This Post Posted: Jul 23 2013 at 8:59am
I wanted to share my good news. Just heard from the doctor. I'm stage 1 not stage 2.. there was only one tumor 2cm not the 3.3 like they thought and all nodes they removed were clear of cancer.



I'm so grateful for all of you. Dont know what I would do with out this site.

Feeling so blessed and grateful. Wishing everyone good news!
DX 6/14/13 TNBC-IDC
7/15 BRCA 1 Positive
7/16 double mastectomy
7/23 Post surgery Pathology- Stage1,tumor 2cm nodes clr.
8/16/13 4 A/c and 4 Taxol
1/6/14 implants
3/13/14 ovaries and tubes removed
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Post Options Post Options   Thanks (1) Thanks(1)   Quote 123Donna Quote  Post ReplyReply Direct Link To This Post Posted: Jul 23 2013 at 9:06am
Dawnscoskren,

Great news!  So happy for you.

Donna
DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15

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Post Options Post Options   Thanks (0) Thanks(0)   Quote hopeful57 Quote  Post ReplyReply Direct Link To This Post Posted: Jul 23 2013 at 9:23am
I am so happy for you, that is certainly great news. Glad you are feeling better!
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Post Options Post Options   Thanks (0) Thanks(0)   Quote weekender09 Quote  Post ReplyReply Direct Link To This Post Posted: Jul 23 2013 at 12:46pm
Dawn:
Fabulous news.  Congrats!

Barb
02/12/13 DX TNBC, Grade III, Stage 3, 3.3cm tumor, IMN and 1 lymph Positive, Chemo A/C T complete 6/13
BRCA1-/BRCA2+ Variance, BIL 7/13, 33 RADS complete 10/13 Remssion :)
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Post Options Post Options   Thanks (0) Thanks(0)   Quote calamityjane90 Quote  Post ReplyReply Direct Link To This Post Posted: Jul 23 2013 at 8:49pm
Dawncoskren,
Also happy to hear your uplifting surprise downgrading your Stage from your pathology!
I got good news today as well after almost a month of waiting for results- I don't have the mutated BRCA gene...as I've seen written by Steve - one time that it's GOOD to be negative!
Tomorrow we meet the oncologist & next Tues. I have a 2nd opinion down at Jefferson University Hospital in Philly. Moving along!
Dx Hodgkins Lymphoma 1990 Age 24; Rec 1998 Age 31; Chemo 6 mos./Rads 3 mos. both times.
Dx TNBC Age 47 06-18-13 Rt: 1.6 cm. Stage 1 Grade 3 IDC / Left: 1.5 cm. Stage 0 Grade 3 DCIS BRCA- BMX 08-14
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Grateful for today Quote  Post ReplyReply Direct Link To This Post Posted: Jul 24 2013 at 10:23pm
Jude,

Sending caring and good thoughts for your surgery tomorrow 7/25/13. Will be thinking of you.


With thoughts of healing and comfort,
Grateful for today...........Judy

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Post Options Post Options   Thanks (0) Thanks(0)   Quote Grateful for today Quote  Post ReplyReply Direct Link To This Post Posted: Jul 27 2013 at 1:02pm
Jude,

Postop caring and healing thoughts and wishes


Grateful for today...........Judy
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Jude Quote  Post ReplyReply Direct Link To This Post Posted: Jul 27 2013 at 1:13pm
Judy, Thanks so much. It all went really well. The anticipation was much worse than the actual event! I came home late yesterday afternoon with my four drains (yuck) and exercise assignments. I'm having no pain at all - only took tylenol in the hospital and now really don't need anything. I feel so good that I have to be careful not to overdo it. What a relief to have the surgery behind me. Now I'm just hoping that I get a good pathology report. Hope those poisons did their job completely. Will keep everyone posted... Judy (while I made my screen name is Jude, my real name is actually Judy too!)
Dx TNBC 1/20/13; age 60 BRCA-, 4.7 cm, stage 2A, grade 2
lumpectomies 1/24/13 and 2/15/13 clear margins not obtained; SND 0/6
TAC chemo completed 6/21 bilateral mastectomy 7/25
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Post Options Post Options   Thanks (0) Thanks(0)   Quote calamityjane90 Quote  Post ReplyReply Direct Link To This Post Posted: Jul 27 2013 at 1:37pm
Wow, great to read Jude's update from surgery since I'm on the schedule soon myself. I'm worried about how "flat on my back" I'll be...Jude, did you have any kind of immediate reconstruction also?
And best wishes for your path report!!!
Kim
Dx Hodgkins Lymphoma 1990 Age 24; Rec 1998 Age 31; Chemo 6 mos./Rads 3 mos. both times.
Dx TNBC Age 47 06-18-13 Rt: 1.6 cm. Stage 1 Grade 3 IDC / Left: 1.5 cm. Stage 0 Grade 3 DCIS BRCA- BMX 08-14
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Jude Quote  Post ReplyReply Direct Link To This Post Posted: Jul 27 2013 at 2:14pm
Hi Kim,

No I didn't have any reconstruction which I'm sure makes recovery more difficult. Speaking of being "flat on my back," that's what I found difficult was sleeping on my back since I'm a side sleeper. I woke up this morning with low back pain but I think a pillow under my knees should solve that problem.
Any other questions you have I would be happy to answer. Enjoy your time now before the surgery and try not to worry. BTW, did you already have chemo or do you need it after surgery? Judy
Dx TNBC 1/20/13; age 60 BRCA-, 4.7 cm, stage 2A, grade 2
lumpectomies 1/24/13 and 2/15/13 clear margins not obtained; SND 0/6
TAC chemo completed 6/21 bilateral mastectomy 7/25
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Post Options Post Options   Thanks (0) Thanks(0)   Quote JulieKCA2013 Quote  Post ReplyReply Direct Link To This Post Posted: Jul 27 2013 at 3:25pm
Dawn, Awesome news.  Congratulations!!!  :)

Jude,  I hope you are recovering well.  Surgery was the same for me.  

Kim,  Do not worry about surgery.  Jude is right the anticipation is much more than the actual surgery.  I fell asleep and woke up bandaged.  I felt a wonderful relief since the tumor was finally out.  The pain does seem to come later when I try to do normal stuff.  I feel more sore then pain at the end of the day.  I had 3 drains originally now I have only one and am waiting for that to come out.  I was much more mobile and willing to do stuff once I was down to one drain.  

A side note.  Just this afternoon my son bumped into the side that had my drain.  Once he did this I felt cold/wet.  When I inspected I see a clot stuck in my drain and my pad around my drain was wet.  So the clot was blocking the drain and it was backing out.  My husband with his wonderful skills broke up as much of the clot he could and got the rest to go back in.  It immediately stared to drain liquid again.  I would think about 5-10 mLs came out after we moved the clot.  Any suggestions on how to get that clot through?  
Dx 3-7-13 TNBC, 5cm pT2N1M0
3-19-13 ACx4, 5-14-13 Taxolx4
7-17-13 BMX ypT1N2M0(.9mm) 4/24 nodes.
10-8-13 completed Rads x 30
12-3-13 completed Eribulin Trial
10-18-13, 3-19-14 Bone/Ct Scan Clear
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Post Options Post Options   Thanks (0) Thanks(0)   Quote btstark2003 Quote  Post ReplyReply Direct Link To This Post Posted: Jul 28 2013 at 11:31am
Judy,

So happy for you that your surgery was successful and that you are not in much pain. Thats amazing! I think you are right that reconstruction with the mastectomy makes it worse. I had a bilat mx in 2010 with reconstruction and i think those expanders implanted under the pectoral muscles are an instrument of torture. I had regional LN recurrences in 2012 and needed to have the implants removed so all that pain was for nothing!

I sure hope that your pathology report contains no surprises and confirms clear margins and no LN involvement and that you are done with treatment forever.

Beth
2008 Stg1 TNBC, LX, FEC+T, rads
2010 2.5cm tumor BRCA-, BMX,CMF
2011 LN mets, Gem/Carbo, surgery, rads
2012 lung mets, PI3Ki/taxo
2013 anti-PD-1
2014/15 Xeloda, IMMU-132, eribulin
Aug 2015 Keytruda
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Post Options Post Options   Thanks (0) Thanks(0)   Quote dawncoskren Quote  Post ReplyReply Direct Link To This Post Posted: Jul 28 2013 at 11:44am
I agree beth. I think the reconstruction hurts a bit more. No worries for the ladies doing it though maybe a little worse but not to badm I would say it took about a week for me to be where judy is so not to bad.
I also had a port put in at the same time. I think that is the most uncomfortable.

So glad to hear all the great news
Dawn
DX 6/14/13 TNBC-IDC
7/15 BRCA 1 Positive
7/16 double mastectomy
7/23 Post surgery Pathology- Stage1,tumor 2cm nodes clr.
8/16/13 4 A/c and 4 Taxol
1/6/14 implants
3/13/14 ovaries and tubes removed
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Jude Quote  Post ReplyReply Direct Link To This Post Posted: Jul 28 2013 at 12:00pm
I also didn't have the discomfort of the port as I had chemo before my surgery and the port was taken out at the same time as the mastectomy. I struggled with the decision as to whether to have implants, reconstruction or just the bilateral mastectomy. After having had two unsuccessful lumpectomies earlier this year before chemo, I felt like I just wanted to have the easiest procedure. My surgeon assured me that if I change my mind and want to do reconstruction at down the road, it is still an option. Wondering if there's anyone in the group who had a mastectomy and then chose to have reconstruction later.
Judy
Dx TNBC 1/20/13; age 60 BRCA-, 4.7 cm, stage 2A, grade 2
lumpectomies 1/24/13 and 2/15/13 clear margins not obtained; SND 0/6
TAC chemo completed 6/21 bilateral mastectomy 7/25
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