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dawncoskren
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Joined: Jun 19 2013
Location: NH
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Posted: Jul 11 2013 at 10:11pm |
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Great news suew. It is a hard decision. Go with your gut.
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DX 6/14/13 TNBC-IDC 7/15 BRCA 1 Positive 7/16 double mastectomy 7/23 Post surgery Pathology- Stage1,tumor 2cm nodes clr. 8/16/13 4 A/c and 4 Taxol 1/6/14 implants 3/13/14 ovaries and tubes removed
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Grateful for today
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Joined: Sep 21 2011
Location: U.S.A.
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Points: 1835
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Posted: Jul 12 2013 at 11:04am |
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Barb,
Wanted to leave some good and healing post surgery thoughts for you. Continue to listen to your body ......and your gut feelings....for what you need to heal best.
With lots of caring thoughts, Grateful for today...............Judy
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Sue W,
Great to hear "mri results after chemotherapy. Had good news tumor is just about gone ......... (Surgeon) leaning towards a lumpectomy the oncologist is leaning towards a mastectomy but he has not seen the mri results yet" Initially you posted "my oncologist is leaning towards a mastectomy because of the size and location of the tumor". Just a thought..........maybe consider asking both surgeon and oncologist the pros and cons of both procedures (lumpectomy vs mastectomy)in YOUR situation. If you need more information, maybe consider a second opinion re: the surgery.
With caring and positive thoughts, Grateful for today...........Judy
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ctlindah
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Joined: Nov 06 2012
Location: Connecticut
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Posted: Jul 12 2013 at 11:10am |
Hi Sue, So glad to hear the good news about the tumor! I agree with Judy - a second opinion for such a serious decision would be the way I would lean - if the surgeon and MO weren't in agreement. Linda
Edited by ctlindah - Jul 12 2013 at 11:12am
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DX IDC TNBC 10/12 age 48, Stage 1, Grade 3, 1.5cm Lumpectomy DD AC & Taxol BRCA- rads X30 finished 5/13
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123Donna
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Joined: Aug 24 2009
Location: St. Louis, MO
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Posted: Jul 12 2013 at 11:19am |
Sue,
Good news about the tumor. Your ultimate decision is the one that's best for you. I agree, listen to your gut or as I always say that little voice inside my head.
Donna
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DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09) 11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15
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suew
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Joined: Jun 14 2013
Location: new york
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Posted: Jul 12 2013 at 5:37pm |
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Thank you all for your advice my question to the oncologist is if I dont have a mastectomy what are the odds of the cancer coming back. My gut is saying try the lumpectomy if surrounding tissue comes back positive than do the mastectomy
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Sue
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weekender09
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Joined: Mar 29 2013
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Points: 135
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Posted: Jul 13 2013 at 9:17am |
Hey all it's Barb!! I started this post 10 days ago and today I am on the other side of surgery. All went well. Sentinel node was clear (which we expected as my internal mammary node was the positive one). I am moving around great. My surgeon wants me utilizing motion as much as I can so I am putting arms over my head already and doing great. Monday is the pathology report with the oncologist. The surgeon is betting on a full response to the chemo.
The drains are truly the toughest thing to get used to. of course the more you do the more they fill up. Hope they can come out Tuesday at post op.
My sister cried when the nurse took off the dressings. I didn't though as all I thought of them as are killers so they are gone. I even took a photo and think I will put it on my caring bridge. It is reality right.
The two T-Shirts I have worn proudly: My Oncologist does my hair and Hey Cancer...You picked the wrong B*tch.
Dawn and Julie you will be in my thoughts this week. Barb
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02/12/13 DX TNBC, Grade III, Stage 3, 3.3cm tumor, IMN and 1 lymph Positive, Chemo A/C T complete 6/13 BRCA1-/BRCA2+ Variance, BIL 7/13, 33 RADS complete 10/13 Remssion :)
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Jude
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Joined: Feb 17 2013
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Posted: Jul 13 2013 at 9:27am |
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Hi Barb, Thanks for the report on your recovery. It helps to know what to expect when it's my turn. (7/25) Your positive attitude is inspiring. I hope I'll feel the same way. Love your t shirts!
Judy
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Dx TNBC 1/20/13; age 60 BRCA-, 4.7 cm, stage 2A, grade 2 lumpectomies 1/24/13 and 2/15/13 clear margins not obtained; SND 0/6 TAC chemo completed 6/21 bilateral mastectomy 7/25
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dawncoskren
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Joined: Jun 19 2013
Location: NH
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Posted: Jul 13 2013 at 9:35am |
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Hi barb really good to hear. 3 days for me. Can't wait to get rid of them. Thats not to say I'm scared sh*tless cause I am. Where did you find those shirts. I would love to get some.
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DX 6/14/13 TNBC-IDC 7/15 BRCA 1 Positive 7/16 double mastectomy 7/23 Post surgery Pathology- Stage1,tumor 2cm nodes clr. 8/16/13 4 A/c and 4 Taxol 1/6/14 implants 3/13/14 ovaries and tubes removed
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weekender09
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Posted: Jul 13 2013 at 2:19pm |
Cafe Press online has the funniest shirts. :)
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02/12/13 DX TNBC, Grade III, Stage 3, 3.3cm tumor, IMN and 1 lymph Positive, Chemo A/C T complete 6/13 BRCA1-/BRCA2+ Variance, BIL 7/13, 33 RADS complete 10/13 Remssion :)
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dawncoskren
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Location: NH
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Posted: Jul 13 2013 at 2:45pm |
weekender09 wrote:
Cafe Press online has the funniest shirts. :)
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ordered two thank you
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DX 6/14/13 TNBC-IDC 7/15 BRCA 1 Positive 7/16 double mastectomy 7/23 Post surgery Pathology- Stage1,tumor 2cm nodes clr. 8/16/13 4 A/c and 4 Taxol 1/6/14 implants 3/13/14 ovaries and tubes removed
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denise07
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Posted: Jul 13 2013 at 10:48pm |
weekender09,
So glad your surgery went well and is behind you now it must be such a relief for you. With your positve attitude you will get thru the rest liks a breeze.Just remmember you are strong and you WILL get thru this.
Wishing you well
Denise
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DX Idc 10/07,st2,gr3,2/6 lymphnodes
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Grateful for today
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Joined: Sep 21 2011
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Posted: Jul 13 2013 at 11:40pm |
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Barb,
Great to hear your "I am on the other side of surgery. All went well. I am moving around great." Hope your drains come out soon.
You mentioned how your surgeon wants you utilizing motion as much as you can........ and you are putting your arms over your head. From what I have heard and read, everyone seems to be in ageement for gentle, easy movement.
Things may have changed since I had a mastectomy/ALND with a drain over 2 years ago...... back then activity allowed varied with different surgeons. Some surgeons advised range-of-motion at the shoulder should be limited to 90 degrees until the drains have been removed. (Limited to 90 degress: your arm should not go above the level of your shoulder.) Maybe consider confirming with your surgeon about using your arm above the level of your shoulder while drains still in. Barb, am not telling you what to do or not to do. Your activity instructions are the ones your surgeon gave you. Just suggesting confirming about the arm going above the level of the shoulder as it seems different surgeons have different post op instructions regarding activity allowed when drains still in. Some postop instructions are more specific than others regarding what activites the surgeon allows and does not allow.
With positive thoughts for continued healing and post op recovery, Grateful for today............Judy
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mags20487
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Location: Florida
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Posted: Jul 14 2013 at 9:52pm |
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I just had a lymph node transfer in May for LE and my therapist said that the new National LE Network recommendation is no lifting arms above shoulder level for 2 weeks post op (Mast and lymph transfer) to help prevent lymphedema and auxillary web syndrome. Please be sure to check with your surgeon or LE therapist for advice as you may have misunderstood the direction. Anything that can be done for prevention!! As with Judy I am def not telling you what to do or that your surgeon is wrong. Happy healing
Maggie
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Diag 8/17/2011 2cm metaplastic grade 3 bmx 8/23/2011 3/18 lymphs-Taxol x4 9/22/11 a/c x4 1/16/11.rads and recon 2012 diep 11/1/12 failed left side redone gap flap 3/5/13. lymph node transfer 5/22/13
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dawncoskren
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Location: NH
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Posted: Jul 15 2013 at 5:53pm |
So tomorrow it the BIG day. I will have this cancer out of me. Glad I made the decision I did. Found out today I'm BRCA 1 positive. Hope everyone is having a Great day. I spent today with my daughter who is my best friend. So much fun! We ate really bad stuff and shopped. Best therapy ever :) I will be kicking Cancers ass tomorrow.
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DX 6/14/13 TNBC-IDC 7/15 BRCA 1 Positive 7/16 double mastectomy 7/23 Post surgery Pathology- Stage1,tumor 2cm nodes clr. 8/16/13 4 A/c and 4 Taxol 1/6/14 implants 3/13/14 ovaries and tubes removed
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ctlindah
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Posted: Jul 15 2013 at 6:15pm |
Hi Dawn,
Good luck tomorrow. I hope your surgery and recovery go smoothly. Sorry to hear that you're BRCA+, but glad you have the information.
Linda
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DX IDC TNBC 10/12 age 48, Stage 1, Grade 3, 1.5cm Lumpectomy DD AC & Taxol BRCA- rads X30 finished 5/13
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Jude
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Posted: Jul 15 2013 at 6:20pm |
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Good luck tomorrow. I'll be thinking of you. Will be eager to hear how you're doing. I'll be right behind you with my double mastectomy scheduled for next week.
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Dx TNBC 1/20/13; age 60 BRCA-, 4.7 cm, stage 2A, grade 2 lumpectomies 1/24/13 and 2/15/13 clear margins not obtained; SND 0/6 TAC chemo completed 6/21 bilateral mastectomy 7/25
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GailF
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Posted: Jul 15 2013 at 6:24pm |
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Barb & Dawn,
Thinking of both of you today and sending positive healing vibes. Please know that you are not alone and try to feel all the love from your family, friends and all of us hear at this site.
One day at a time...
GailF
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DX IDC TNBC 5/13 age 52, Stage II, Grade 3, 3.5cm, Taxol x4 6/3/13, A/C x4 8/26/13
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dawncoskren
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Posted: Jul 15 2013 at 6:27pm |
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Thank you all. We will all do great and beat this!!
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DX 6/14/13 TNBC-IDC 7/15 BRCA 1 Positive 7/16 double mastectomy 7/23 Post surgery Pathology- Stage1,tumor 2cm nodes clr. 8/16/13 4 A/c and 4 Taxol 1/6/14 implants 3/13/14 ovaries and tubes removed
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hopeful57
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Posted: Jul 15 2013 at 7:18pm |
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Good luck tomorrow, Dawn. I am glad you found out the BRAC results before tomorrow's surgery. Glad you made that decision. We will be praying for you.
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Grateful for today
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Posted: Jul 15 2013 at 7:31pm |
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Dawn,
How wise to have spent the day with your daughter.....including food and shopping.
Sending lots of positive and healing thoughts your way.
With all good thoughts for your surgery and post-op healing, Grateful for today........Judy
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