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BeeCee 
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Joined: Aug 26 2007 Location: United States Status: Offline Points: 20 |
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 Posted: Oct 14 2007 at 4:47pm |
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Hi there Jenn, Welcome to you. I am a lot older than you (63) but I was in pretty good shape, except for some back pain, until I started Taxotere in 12/06. The allover bone and joint pain started immediately. I would get relief for about 12 days right after each infusion and found out that was from the steroids that I took orally and by IV with the chemo. I even asked my onc if I could take steroids for the pain and he said NO WAY. They are to be used only temporarily. Now, it's been 8 months since I finished chemo and I am in more pain than ever. I started Neurontin in Mar, but it hasn't helped. I take otc ibuprofen and that helps some, but I need something more. I will see my onc for my 3 month checkup next week and I hope he will have some answers for me. My ideas are to see either a rheumatologist or go into pain management. I read about Taxotere before I took it and I knew about the neuropathy (and I had that in my feet, fingers and toes) but it didn't mention permanent bone and joint pain. I thought it might be because of my age, but I see lots of young ladies with the same problems as me. So, it seems to be chemo related. Wish I had known of this beforehand. I'm not sure if I would have taken Taxotere if I had.
Congratulations on being 3 years out from dx! That's very encouraging to hear.
If I might ask, what was the aspirin supposed to do for your heart? I have been taking a baby aspirin each day for many years and continued to do so during my chemo, which included Adriamycin. I know the dangers it poses to the heart. Maybe taking the aspirin as a blood thinner was a good thing, yes? I asked my onc if I could continue taking it and he said yes.
I wish you many more years of being cancer- free and hopefully, soon you can be pain-free as well.
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Bonnie, age 63, Dx on 8/7/06 IDC stage 1 grade 3, triple neg, lumpectomy x2 of L breast, 8 nodes neg, 4 x AC & 4 x Taxotere, bone scan 2/07 (neg), 33 rads, Tx finished 5/7/07, Mammo 8/9/07 (normal)
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patricia
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Joined: Oct 26 2007 Location: United States Status: Offline Points: 15 |
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Posted: Oct 26 2007 at 10:44am |
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Hi girls,
I'm also new here today. It's been exactly 1 year since my cancer was found. I am so glad to talk to others with triple negative breast cancer. I had 17 kemo treatments and 33 radiation treatments. I was finished in June 07. My joints hurt so bad. My shoulders are the worst. My hips, knees and ankles also hurt. My doctor did every blood test going but nothing showed up. My husband drinks sour cherry juice which helps muscle pain so I started it. It helped my ankles a little but not much. My bones are good so that's not it.
If anyone has any ideas, let me know. Good luck to all you girls. I am 57 and really feel very good except for this joint pain. I still have my port but I don't think that has anything to do with this.
Patricia
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shellieh51
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Joined: Oct 10 2007 Location: United States Status: Offline Points: 218 |
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Posted: Oct 26 2007 at 2:38pm |
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I finished chemo 8/2/07 4 A/C and 12 weekly taxol. Pain continues especially if I sit still for longer periods of time - an hour will do it. I have a cane that I use at times. Our old crippled dog can almost beat me on walks - I am very slow but... Last week I outpaced a one and two year old in the corrider at the medical center - a memorable moment!
Take care and welcome!
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dx 11/6/2006 1.5cm IDC, Gr3, TN, BRCA-, lump, partial breast rads 1/2007, 4 AC, 12 wkly Taxol. Completed tx 8/2/2007. NED 12/2007. Malignant parotid tumor 4/2008. Clear head 4/09 & bones 11/08 -
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woolie
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Joined: Jul 11 2007 Location: Uruguay Status: Offline Points: 30 |
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Posted: Oct 27 2007 at 4:29am |
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HO EVERYONE : HOPE ALL IS WELL . WE SHOULD HAVE SOMEONE FROM THE MEDICAL RESEARCH TEAMS READ THIS SITE SO THEY COULD FOCUS ON THE BONE PAIN. I LIVE IN NY AND IT IS RAINIG THESE PAST FEW DAYS AND BOY DO MY BONES ACHE , IT DOES GET BETTER WHEN THE WEATHER CHANGES . I NEVER HAD ACHY BONES BEFORE CHEMO. THIS MONDAY IS MY LAST TREATMENT AND THEN ONTO PET SCAN TO SEE IF I GET THE ALL CLEAR SIGN. I WILL START 35 RADS AFTER THANKSGIVING. ANYONE HAVE GOOD SKIN CARE ADVICE ON THE RADIATION AREA AS I HAVE VERY FAIR SKIN? GOOD LUCK YL ALL WOOLIE
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shellieh51
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Joined: Oct 10 2007 Location: United States Status: Offline Points: 218 |
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Posted: Oct 27 2007 at 5:19am |
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Greetings BeeCee!
I have had bad knees for years (I am 56) - probably heredity and then skiing the bumps in my younger years. Ask your onc and read about Taxotere - I continue to be told that the pain I have in hips, legs (burning sensation in the bones) and knees is from the Taxol - similar to Taxotere.
I take Advil gel caps during the day and on the worst nights, I take 2-500 mg. Vicodin as prescribed. I wobble when I walk and have had 2 months of rehabilitation (PT) 2x a week, an hour per session. I need to get to the gym but just don't have the energy. I do walk a lot throughout the day at the office and climb stairs between floors rather than use the elevator if someone else is using the staircase as well. I have fallen - at home on a flat surface - and am mortified of falling again and breaking something. I do not have osteoporosis but have the precursor, osteopenia.
I am almost three months out of treatment. I have been told that the fatigue and pain may persist for as long as a year following chemo. I have been sleeping well and sleep about 12 hours per night with the aid of Ambien CR - no more naps since I am working at the office until 4 PM - if I can maintain.
I hope this helps you - I think that is one of the best things about this site - finding out that we're not alone. I may start a thread on memory - that has been the biggest challenge for me.
Take care.
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dx 11/6/2006 1.5cm IDC, Gr3, TN, BRCA-, lump, partial breast rads 1/2007, 4 AC, 12 wkly Taxol. Completed tx 8/2/2007. NED 12/2007. Malignant parotid tumor 4/2008. Clear head 4/09 & bones 11/08 -
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kirby
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Joined: Oct 09 2007 Location: bay area,california Status: Offline Points: 1088 |
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Posted: Oct 27 2007 at 9:27pm |
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Alright ladies,
Haven't heard this one mentioned here yet. And to give you all some hope [I am feeling pretty good about this myself these days] I am a 7 year survivor. I only had 4 rounds of AC [that's how it was done then] but after treatment I remember my joints being very achy. I took glucosimine/chondroitan. I t has been so long I don't remember all the details. I think I did double doses for a while then cut it down, then quit altogether. My joint pain was not severe but enough to really bother me. Eventually I quit taking it and i don't have problems with my joints now.
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trip2
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Joined: Jun 03 2007 Location: Under Palm Tree Status: Offline Points: 8549 |
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Posted: Oct 29 2007 at 7:37am |
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I finished Taxotere about 6 weeks ago and can barely walk 10 ft or stand very long from weak legs. I asked my Onc how long this would last and he said oh it could be months or a year or longer, lovely. I keep trying to stay up more, push myself, it gets very frustrating as I'm not a sitter.
For the life of me and maybe it is by choice but after treatments with
ACT 4 yrs ago I cannot remember how long it took to feel like myself again. Edited by trip2 - Oct 29 2007 at 7:38am |
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Stage 2 2003
Stage 1 2007 BRCA 1+ |
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Angelstone70
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Joined: Oct 24 2007 Location: United States Status: Offline Points: 6 |
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Posted: Oct 29 2007 at 7:56am |
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Hi Donna, I also continue to have joint pain, almost like a restless leg syndrome. Neuropathy or nerve damage is a side effect of Taxol or Taxotere. Sometimes I will take 3 Advil, and that will help. other times, it won't. My doctor thinks that if it persists, she will look into an alternative. But I'm only 37 and they don't think it's bone density. Also, it's been three years for me, so it's still ongoing.
Try not to get frustrated. Every morning you get up and look outside, remember YOU WIN today and Breast cancer loses! Every day you get to wake up and start YOUR LIFE, you've won and breast cancer has lost! start your day off as a winner! I, too, started walking and that has helped.
Best wishes and good luck!
Tracy
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patricia
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Joined: Oct 26 2007 Location: United States Status: Offline Points: 15 |
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Posted: Oct 29 2007 at 8:19am |
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Hi girls,
Thanks for all your encouragment. Except for my joint pain, I really feel good. It's so good to hear from all of you and know I'm not the only one. I walk every day which seems to help more than anything. Thanks again.
Patricia
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lisab
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Joined: Sep 27 2007 Location: United States Status: Offline Points: 169 |
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Posted: Oct 29 2007 at 3:13pm |
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Hi all - I cannot believe how many of us are having aches and pains who have been on radiation and/or chemo. I finally convinced my oncologist to give me the name of an orthopedic surgeon and am going to see him this coming Thursday. I'll let you all know what he finds if anything and what he recommends for treatment. I am so sick and tired of this (I'm sitting in the recliner right now with the heating pad on my back). I'm sure all the overcompensation for my knee is causing my body to go through unnatural contortions and thus pain in other areas.
Geesh.
 Love and hugs,
Lisa B.
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paula
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Joined: Sep 23 2007 Location: Saskatchewan, Canada Status: Offline Points: 64 |
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Posted: Oct 29 2007 at 6:35pm |
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I went to see my GP, she is referring me to a neurosurgeon for my back and neck. My legs and arms have been going numb/falling a sleep. At times the pain is so bad I can't even walk and standing can be excrutiating at times. I had an MRI last year and a bone scan a month ago. They said that everything was clear. They did note that I had degeneration of the C1 to C3 and the L1 to L5. I hope this doctor can help me. No one else seems to be able to.
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shellieh51
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Joined: Oct 10 2007 Location: United States Status: Offline Points: 218 |
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Posted: Oct 30 2007 at 4:46am |
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Please keep us posted on your progress. It seems that most of us with the newer Taxol/Taxotere have similar symptoms and we are all eager to learn something that can help with the pain. While I joke about my economy size Vicodin prescription, I try to take the meds as infrequently as possible. The pain subsides but I feel a little loopy the next day and I am not one to 'give up control' in any circumstance readily
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Take care and please keep us updated on the dx.
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dx 11/6/2006 1.5cm IDC, Gr3, TN, BRCA-, lump, partial breast rads 1/2007, 4 AC, 12 wkly Taxol. Completed tx 8/2/2007. NED 12/2007. Malignant parotid tumor 4/2008. Clear head 4/09 & bones 11/08 -
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Angelstone70
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Joined: Oct 24 2007 Location: United States Status: Offline Points: 6 |
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Posted: Oct 30 2007 at 5:24am |
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Working for Y-ME affords me many opportunities, one of which is access to resources such as a support group for neuropathy. here's the info if you're interested:
The Neuropathy Association |
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EWKSeattle
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Joined: Oct 25 2007 Location: United States Status: Offline Points: 218 |
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Posted: Oct 30 2007 at 6:31am |
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Thanks for this. The neuropathy in my feet has gotten much worse in the last month, and I'm finding it harder and harder to walk. I had no idea there was such a resource.
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Dx 05/06 Stage IIIC
Local Recurrence 01/07 Mets in opposite side axilla nodes 12/07 Mets to mediastinal nodes confirmed 11/08 NED March 2009-March 2010 Brain met March 2010. |
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marathonmom
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Joined: Jul 10 2007 Location: Canada Status: Offline Points: 66 |
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Posted: Oct 30 2007 at 7:33am |
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hello ladies,
Just back from the doctor's. She dx me with facial neuropathy....thanx Taxotere. Just wondering if any of you fav experienced this. Best, Oana |
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dx 3/6, stage2, grade3, triple neg, 6FEC, lumpectomy, 0 nodes, 4 Taxotere, rads
Oct 2007 mets to lungs and brain |
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trip2
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Joined: Jun 03 2007 Location: Under Palm Tree Status: Offline Points: 8549 |
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Posted: Oct 30 2007 at 7:41am |
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Goodness Oana, is it just one area of your face, like one side? What is she going to do to help you.
I just finished Taxotere too and have a numb thigh and of course the feet.
The stuff is nasty if you ask me but if it works it is worth these residuals.
Just wish w/time they would go away.
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Stage 2 2003
Stage 1 2007 BRCA 1+ |
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marathonmom
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Joined: Jul 10 2007 Location: Canada Status: Offline Points: 66 |
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Posted: Oct 30 2007 at 7:44am |
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Thanks Pam,
Yes, it is just one side of the face, along the jaw line....like I just came back from the dentist. They do not know if it is permanent. Nothing will help...hoping it will go away! Oana |
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dx 3/6, stage2, grade3, triple neg, 6FEC, lumpectomy, 0 nodes, 4 Taxotere, rads
Oct 2007 mets to lungs and brain |
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trip2
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Joined: Jun 03 2007 Location: Under Palm Tree Status: Offline Points: 8549 |
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Posted: Oct 30 2007 at 8:21am |
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Well Oana that stinks, I hope it isn't too bothersome for you and that it goes away quickly.
I have been trying to google side effects after Taxotere and am not getting anywhere really.
My Onc had said it could be months or a year possibly before some of my symptoms go away, hope he is wrong for both of our sakes.
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Stage 2 2003
Stage 1 2007 BRCA 1+ |
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Ronda
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Joined: Jul 31 2007 Location: United States Status: Offline Points: 587 |
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Posted: Oct 30 2007 at 2:12pm |
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Hi Oana,
I found this site hosted by a Naturopath that mentioned alpha lipoic acid for neuropathy. It also contained compelling information regarding integrative cancer care. I hope all the gals will read it. There are supplements we can safely take while being treated for cancer that can prevent or at least reduce some of these serious side effects before they become permanent.
These oncs need to educate themselves so as to guide us rather than keep themselves ignorant and say "everything" is bad and must be avoided which is NOT THE TRUTH. Integrative support is necessary to maintain and restore health from these nasty cocktails, and we must insist on having all of the safe options available for us to choose from, even if these oncs need to go back to school for a bit.
I hope your face gets better!
Ronda Edited by Ronda - Oct 31 2007 at 12:41pm |
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Ronda
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Joined: Jul 31 2007 Location: United States Status: Offline Points: 587 |
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Posted: Oct 30 2007 at 2:37pm |
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Hey Paula,
You sound miserable. Vitamin B deficency has carpal tunnel syndrome symptoms (numbness) (I'm pretty sure it's B6 but taking a B complex will is better).
Also If you have a vitamin D deficiency your body doesn't absorb calcium/magnesium (and a whole lot of other crap for that matter) the way it should which could cause joint and muscle pain. Research it and you'll see what I mean. The feds are getting ready to raise the standard daily allowance of D to 800, many naturopaths still don't think it's enough. If you can see a naturopath to get diagnosed you may find simple solutions like this. Doctors typically don't address deficiencies and spend much of their time prescribing drugs to cover up symptoms. The problem with that is, long term deficiencies can lead to disease....like cancer.
Good Luck,
Ronda
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