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Donna 
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Joined: Aug 09 2007 Location: United States Status: Offline Points: 9 |
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 Topic: joint and muscle painPosted: Aug 09 2007 at 3:25pm |
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Hi I'm new I'm 47 I was diagnosed last 8/25/06 with triple neg metastatic carcinoma of the left breast and had 2 nodes with 25% found to be cancerous.
I have gone through 8 rounds of chemo, which was ac and then taxotere. I've been in remission since 6/25/07, but now have continous joint and muscle pain. I've had tests done to make sure it wasn't cancer again and everything looks good. But the pain is getting worse. has anyone else gone through this since coming off of chemo.
My husband found this web site for me, I was very depressed until he found it. hope to hear from others who share this ugly cancer also. Until then take care .
Love a new friend,
Donna
 Edited by Donna - Aug 10 2007 at 2:07pm |
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Donna
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trip2
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Joined: Jun 03 2007 Location: Under Palm Tree Status: Offline Points: 8549 |
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Posted: Aug 13 2007 at 9:31am |
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Oh dear Donna welcome and I'm so sorry you are having problems after your treatments were finished.
I'm not sure why you are still hurting but I know it can take some time for all of the chemo to get out of your body. I have read some women say they have a hard time for quite some time from the side effects and others are not bothered too much.
That's good to hear the tests done looked good for no cancer!
Have you spoken with your Oncologist about what is going on? There is no reason for you to be in pain. If they feel it has nothing to do w/the chemo side effects maybe they can refer you to someone that can help.
Hope you'll let us know how it's going for you. Do you have pain meds?
Best wishes
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Stage 2 2003
Stage 1 2007 BRCA 1+ |
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Vicki G
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Joined: Jul 06 2007 Location: United States Status: Offline Points: 48 |
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Posted: Aug 13 2007 at 1:01pm |
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Hi Donna,
Have you had a bone density test yet? I found out recently that I have Osteoporosis!! I was in total shock when I heard that news! But thanks to chemo and menopause, I do have it!! I was having a lot of joint pain too. It wasn't getting any worse, it just didn't get any better. Bone scans all came out okay too. I'd call your Onc or primary physician and get a dexi-scan. It's quick and painless and results are fast. I'm currently taking a TON of vitamins before we proceed with any other meds for it and I've started walking everyday. That seems to have helped. Good luck! Take care, Vicki |
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Lb Lumpectomy, IDC, Stage 2, Grade 3, 1+ node, 4 x A/C, 4 x Taxol, 33 x Rads. NED almost 4 yrs.
Los Angeles, Ca. |
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Donna
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Joined: Aug 09 2007 Location: United States Status: Offline Points: 9 |
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Posted: Aug 14 2007 at 9:30am |
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Hey Pam and Vicki, Thank you I called my dr. to set up and appt. for the scan, I'm currently taking hydrocodone 325 and advil for the pain and they also have me on valium. Before this I never took anything except for tylenol once in awhile. Hope to here back from you all soon. Thanks again,
Donna
Stage 3
Grade2b Edited by Donna - Aug 14 2007 at 9:32am |
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Donna
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trip2
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Joined: Jun 03 2007 Location: Under Palm Tree Status: Offline Points: 8549 |
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Posted: Aug 14 2007 at 10:54am |
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Donna, I'm so glad you've made an appointment. Now you can find out what is going on and get it fixed or medicated, whatever it takes.
I know, having cancer sure changes everything including taking pills and having residuals from the chemo and rads, dealing with that. Hopefully you can learn something from the scan and get on w/your life.
Keep us posted!
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Stage 2 2003
Stage 1 2007 BRCA 1+ |
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BeeCee
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Joined: Aug 26 2007 Location: United States Status: Offline Points: 20 |
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Posted: Aug 26 2007 at 6:31pm |
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Hi Donna, I just joined this forum today and yours is the first post I read and I was shocked to see that you have exactly the same thing going on as me. I was dx 8/7/06 with IDC, stage 1, grade 3, triple neg, 8 nodes neg. I had 4 x AC and 4 x Taxotere and 33 rads. I have had back pain for years, but managed to keep it under control until Dec when I had my first Taxotere. Since then, I have been in varying degrees of pain in back, hips, knees, fingers and toes. But in the last few months, the pain in my back and hips has become almost unbearable at times. I take Neurontin (which doesn't help) and ibuprofen (which does). I'm trying to be patient and treat this like a side effect that will get better. But I'm aware that some of the side effects from Taxotere are permanent and this may be one of them. I do have osteoporosis (there are no symptoms of this until you fracture a bone) and have been on Actonel for about 3 years. I'm older than you, 63, and you are young to have osteoporosis. But, steroids cause bone loss and you had a lot of IV as well as oral steroids with chemo. Also, did you take Nexium or Prilosec for stomach problems during your treatment? If so, that kept you from absorbing any calcium supplements you might have been taking. I had to quit my Actonel while I was doing chemo, but I'm back on it now and taking 2 calcium tabs a day and I stopped taking Prilosec. Sorry this is so long. I hope this helps you some and I hope to see answers to your post that will help me as well. I had my mammo 8/9 and it was all clear. Thank God! I am praying that we are both done with this pain soon so we can get on with living.
Hugs to you, Bonnie
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trip2
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Posted: Aug 29 2007 at 11:45am |
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Congratulations on a clear mammo Bonnie!
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Stage 2 2003
Stage 1 2007 BRCA 1+ |
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Donna
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Joined: Aug 09 2007 Location: United States Status: Offline Points: 9 |
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Posted: Sep 08 2007 at 6:34pm |
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Hi everyone, been awhile since I was on, not sure yet but worried I may be out of remission, I'm having constant fluish like aches and temp. is staying below norm. Which my Dr. says could just be a coincidence, also fighting w/ my insur. comp. about my 2nd mast. , cause I also have lypmh nodes enlarged under that arm and around the rt. breast. I'm really scared. I want to help my husband and my kids w/ this but can't even help my self. Still learning so much about this cancer, and myself.
I want to take that 60 mile walk next year w/ my wonderful 18 year old son , He says mama remember you promised to not give up and let this beat you, like it did (granny) my mom. Please someone give me some much needed advice about staying positive. I'm really scared now, I thought I was really strong I'm not.
  Donna
Stage 3 2b
Edited by Donna - Sep 08 2007 at 6:36pm |
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Donna
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Ronda
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Joined: Jul 31 2007 Location: United States Status: Offline Points: 587 |
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Posted: Sep 08 2007 at 7:10pm |
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Hi Gals,
It's me, the vitamin freak again here to talk about vitamin D deficencies. I posted a site that talks about body aches. I was very deficient at the time of DX and have gradually built my levels up to almost normal levels, but its taken 4 mos. now. D deficiencies have also been linked to BC. Any chance of having your blood levels tested by your onc. or primary care md? Don't settle for the "you have normal levels", get a number reading you want to be around 50-55. The feds are getting ready to raise the daily requirements on this vitamin. Let me know if you'd like more info.
Ronda Edited by Ronda - Sep 08 2007 at 7:11pm |
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Nancy
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Joined: Jul 23 2007 Location: Altoona, PA Status: Offline Points: 3814 |
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Posted: Sep 09 2007 at 9:08am |
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Hi Ronda,
Just me..Nancy.
Did you have severe joint pain going through chemo? Last evening when I posted I had just spoken with Lori and she was in severe joint pain. She thinks it is from the Neulasta, but is going to call her onc tomorrow. She is definitely going to discuss supplements with him. She said that it has been so severe that she can't even meditate. I did post about her weight loss. She said that she bought a pair of slacks, size 0 and they are too big. Oh, I am so worried. Some times I think that maybe she should have gone to the Cancer Center in Philadelphia. Perhaps they are more progressive and would have looked at supplements. I wonder if anyone on this site goes to one of their centers for treatment. I so appreciate all the info you have given to everyone.
Someone had posted an article that was looking at chemo every 2 weeks instead of 3. I don't know how anyone gets through every 3 weeks. For over a week Lori is battling fatigue, joint pain and many other horrible side effects. Then she has maybe 2 fairly good weeks, and back to chemo. How in the world could anyone have chemo every 2 weeks? It would put you out of commission for the entire therapy!
 For women who must care for their children, are single moms, and must go to their jobs, it would be impossible!You are not a vitamin freak. You are looking out for your own well being, and quite apparently others as well. If we don't take control of our own bodies, no one else will.
Thanks again Ronda,
Hugs,
Nancy
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Ronda
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Joined: Jul 31 2007 Location: United States Status: Offline Points: 587 |
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Posted: Sep 09 2007 at 6:11pm |
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Hi Nancy,
I did chemo every 2 weeks and felt pretty normal the 2nd week of each treatment. I think the liver support is important to help get rid of those toxins quickly after they've done their job.
I did have bone pain, it's caused because your bones are producing white blood cells. Mine was mostly in my hips. I described it like a symphony of aches, each body part throbbed at a different rhythm. They tried to give me steroids but I didn't take 'em. I pretty much roughed it out, but at one point took a Vicodine cause it was driving me crazy.
The sublingual B12 really helps with fatigue/anemia, I'd also have her D levels checked. My fatigue before chemo was so great I postponed it for two weeks to get healthier. The D3 really helped me alot with fatique prior to chemo. I also had anemia ( I actually had it before chemo) so they gave me a couple of shots for red blood cell production, but after I read the black box warning I opted not to get the last one. The B12 is good for blood building. Her onc may even give her some via IV if she asks.
Maybe you could find her a good whey protein powder to help with weight. I treated AC like I was pregnant... I GOT WHATEVER I WANTED!
and that happend to be hamburger and eggs in the morning and banana splits at night!
My naturopath worked at the Cancer Center in Illinois and a couple of other centers as well. It's too bad these oncs only sell what the phamacuetical companies are pushing. I can't believe we pay this much and go through all this crap to increase our chances a measley 15%. I can't think of anything I would invest in that only gave me that slim of a chance of winning, and yet here we are.
Your daughter is so tiny she may need to lay off the bike a bit. She needs to keep her energy and body weight up. The further into this she gets, the more she could develope anemia, she really needs to reserve her strength for healing after each treatment.
I hope Lori starts doing better.
Hugs
Ronda
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woolie
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Joined: Jul 11 2007 Location: Uruguay Status: Offline Points: 30 |
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Posted: Sep 10 2007 at 5:15am |
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Hi , everyone I was diagnose 6/07 and have now finished 3 rounds of 6 of ACT. I ad very severe bone pain with my first dose of Neulasts but not as severe on the second. It is a natural response my MD told me beacuse it has the bone marrow jump started to make more white blood cells and platelets. You may have to find a pain med regime that works for you during this period I did find that deinking large amounts of water help.I was not a water drinker before this but now I force myself.God Blees all .
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woolie
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Joined: Jul 11 2007 Location: Uruguay Status: Offline Points: 30 |
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Posted: Sep 10 2007 at 5:16am |
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Hi , everyone I was diagnose 6/07 and have now finished 3 rounds of 6 of ACT. I ad very severe bone pain with my first dose of Neulasts but not as severe on the second. It is a natural response my MD told me beacuse it has the bone marrow jump started to make more white blood cells and platelets. You may have to find a pain med regime that works for you during this period I did find that deinking large amounts of water help.I was not a water drinker before this but now I force myself.God Bless all .
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2kidzmom
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Joined: Jun 20 2007 Location: United States Status: Offline Points: 22 |
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Posted: Sep 10 2007 at 5:54am |
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Welcome BeeCee and hello everyone,
I just turned 46 and I have the same dx as you do, ...stage 1, grade 3 triple neg IDC. I have been suffering from the joint and muscle pain also since about a month after my chemo ended (6 rounds of FEC). I've brought it up a few times to my oncologist but she doesn't seem to have much to say about it other than it may be due my chemo-induced menopause.
It seems to me that many of us are suffering these symptoms and yet there doesn't seem to be any straight answer for it. I worry...as I'm sure many of you do, that something could have spread to my bones. I'm thinking of pushing for a bone scan but I don't want to be paranoid either. My mother-in-law had BC 11 years ago and at that time they automatically gave bone scans to BC patients. I think that still should be part of the regime just to be sure.
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woolie
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Posted: Sep 10 2007 at 6:22am |
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You can not be too paranoid when it comes to cancer. My own breast cancer literally popped up out of nowhere.By talking to alot of people that is how I found out about going for a PET scan and the only area that lit up was my breast where the tumor was sitting. So I was given a little reassurance even if it is only for now that was all they saw.
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marathonmom
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Joined: Jul 10 2007 Location: Canada Status: Offline Points: 66 |
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Posted: Sep 10 2007 at 8:36am |
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I support Ronda with the vitamins. I also saw a naturopath who recommended vitamin D as well as B complex (rather than B12) to support liver fuction. My understanding is that if we have optimal liver function, we are able to easily get rid of all toxins that are in our system. And not only residuals from chemo but also anything present in the foods we eat....
Good luck!
Oana
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dx 3/6, stage2, grade3, triple neg, 6FEC, lumpectomy, 0 nodes, 4 Taxotere, rads
Oct 2007 mets to lungs and brain |
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trip2
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Posted: Sep 10 2007 at 9:38am |
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Donna, are you feeling better today? Honey I think, I bet, we all have times when we feel scared and not strong. This will pass, please hold the faith and continue to stay on top of what is going on and fight w/that insurance company! We are our best advocate remember.
Let us know what you find out.
Having cancer can be so overwhelming and we being women worry about our families and it's hard to handle everything, we can't do it. Not right now. Try to go day by day or hour by hour. Maybe your doc can give you something mild to help with the feeling down?
You and your son will take that walk next year.
Big hugs to you and keep us posted
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Stage 2 2003
Stage 1 2007 BRCA 1+ |
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Donna
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Joined: Aug 09 2007 Location: United States Status: Offline Points: 9 |
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Posted: Sep 10 2007 at 4:56pm |
Hi pam feeling a little better today, the pain sometimes I guess makes me a little paranoid. had blood work done today because of the low grade fevers and the fluish aches and pains. guess i'll hear from that tomorrow, hopefully. My first cousin has her 2 pos. and she had her surgery last year along with chemo and rads, and was doing real well but has and infection on the side where the cancer was found last year. I wanted to go be with her in s. carolina but they said I cant right now because my white cell count is down a little. but hopefully after tomorrow I'll no something, I Know I will go on that walk some how, even if i have to wait till the following year. thanks again, hearing from all of you some how gives me a little energy to keep going each day, because even though we cant be actually together, none the less we are all in this together in many different ways, right
  Donna Edited by Donna - Sep 10 2007 at 4:58pm |
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Donna
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trip2
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Posted: Sep 11 2007 at 8:31am |
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Yes Donna, we are all in this together and we're here to support each other thru the good and bad.
I'm glad you're feeling a little better, that is a good thing.
I hope there is nothing serious that shows up in your blood work, let us know what you find out.
I can so understand your wanting to be with your cousin but this is a time when you must take care of yourself, especially with the low white blood count. I hope everything will be ok for her.
My daughter is having a hysterectomy Friday and I would so love to be with her. She lives out of State but I can't as I'm having chemo on Thursday. It is very frustrating but we've got to get ourselves well.
You hang in there and keep writing to us,
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Stage 2 2003
Stage 1 2007 BRCA 1+ |
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Ronda
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Joined: Jul 31 2007 Location: United States Status: Offline Points: 587 |
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Posted: Sep 11 2007 at 3:32pm |
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[QUOTE=marathonmom]I support Ronda with the vitamins. I also saw a naturopath who recommended vitamin D as well as B complex (rather than B12) to support liver fuction. My understanding is that if we have optimal liver function, we are able to easily get rid of all toxins that are in our system. And not only residuals from chemo but also anything present in the foods we eat....
B complex is GREAT but, as we age B 12 is hard to absorb in the gut so it's easy to become deficient even with an oral supplement (I just discovered this). Whats more is that STRESS is can suck the B12 right out of you, alcohol is another culprit. With the stress of our situations and our guts being affected by the chemo,a B12 deficiency is likely. I can tell you I felt a huge difference when I took the sublingual B12 with energy level and mental clarity!
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