Inaccurate test results |
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mainsailset 
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Joined: Jul 27 2008 Location: Washington State Status: Offline Points: 5004 |
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 Topic: Inaccurate test resultsPosted: May 28 2009 at 8:26am |
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Another reminder that tests and doctors are not perfect beings, beware all this one may be from Quebec but it is not an outlier. http://www.ctv.ca/servlet/ArticleNews/story/CTVNews/20090528/quebec_tests_090528/20090528?hub=Health
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Nancy
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Joined: Jul 23 2007 Location: Altoona, PA Status: Offline Points: 3814 |
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Posted: May 28 2009 at 11:57am |
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Mainy,
I posted this link in the news forum, and now let me fill you in on what little I know as to Lori's test results from the anti-aging specialist.
Lori will join the site and post all the tests she had done.
Well, it seems that Lori's D tests were also innacurate, as the results from today are a whopping 44.6!!!!
 When she had them done at the Altoona hospital, they told her they were 76, and we thought they were doing them here., but apparently they are sending them away, and who knows, maybe it is to Quest? She will now up her iu's alot! So...she has Cytomegalovirus, which is a hospital borne virus, and the last time she was in the hospital was last June for reconstruction, and her breast took almost 3 months to heal! This virus produces symptoms such as short-term memory loss, Epstein Barr symptoms, fatigue, etc. Here is a link.
She will be on Valcyte every day for 3 months and this med produces flu-like symptoms. The doctor said that some people actually end up in bed for 9 weeks taking this med. This is not Valtrex.
Lori's tests show that she has a chronic virus in her system, and that is why she had shingles 2 years before dx and again about 2 months ago. However, the shingle virus is staying in her body and not coming out as the blisters as it did 4 years ago. Chronic inflammation leads to cancer. Inflammation is actually a good thing...but not chronic.
Lori also has MS symptoms,
 her NK cells are low, she has hypothyroidism, her cortisol levels are really high, her B12 is low, they did not find any metals in her blood, the RBC's were good, testosterone good, has been exposed to mono, growth hormone good, cholesterol and triglcycerides great, estrogen low and in fact only 12, and it should be at least 90, progesterone low, WBC low, and her DHEA is very high.In fact, he said that her levels were the highest of any he has ever seen...of his 3500 patients!! The range for the DHEA is between 110-554, and hers are 1,659! This has to do with the adrenal glands, and while he said there is a very low suspicion of cancer in the adrenal glands, he is ordering a CAT scan, which she will have at Magee Women's in Pittsburgh.
He was glad that she had TNBC, especially the HER2-.
The compounding pharmacist in Pittsburgh is who will be doing her meds, not the one here in Altoona. The one in Pittsburgh is an expert, and he can get the insurance companies to pay!! She can however have lab work done her as there is one of their labs here in Altoona.
Not a good day, and she was pissed to say the least. Why the hell isn't every doctor ordering all these tests on every woman, and I don't mean just those dx with bc...I mean every woman and man!! The drugs that we are prescribed are not the answers, and the damned doctor does not even know to order all these tests...and trust me there were more....I just cannot remember everyone.
So..from fatigue to short-term memory loss, to chronic inflammation, and everything ...it is related to our body's ability to handle everything.
Cost per visit...$340.00, but she will not be on all these meds all her life, just the ones to keep her healthy, and hopefully help her fight off cancer.
Nancy Edited by Nancy - May 28 2009 at 12:06pm |
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Nancy
DD Lori dx TNBC June 13,2007 Lumpectomy due to incorrect dx of a cyst mastectomy July 6 2007 chemo ACT all 3 every 3 weeks 6 tx Aug-Nov 28 rads ended Jan 2008 |
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trip2
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Joined: Jun 03 2007 Location: Under Palm Tree Status: Offline Points: 8549 |
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Posted: May 28 2009 at 12:24pm |
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Thanks for the update on Lori Nancy.
She will be in my prayers with the upcoming Cat.
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Stage 2 2003
Stage 1 2007 BRCA 1+ |
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Sunris
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Posted: May 28 2009 at 1:37pm |
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Nancy,
I will keep Lori in my prayers, and thanks for the update. You have now officially ( not that you haven't before) highly encouraged me to RUN, not walk to my ONC office and DEMAND these tests. This pisses me off just to read about it. LADIES : IT IS TIME TO TAKE A STAND!! ARE YOU WITH ME?? |
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 Dawn Age 43 at DX DX 3-09 IDC 3.9cm TN-Stage2-Grade3 Taxolx9, FACx2, halted TX, Lump.8-25-09..rads x 8wks. |
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Nancy
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Posted: May 28 2009 at 2:03pm |
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Dawn,
A regular doctor will not even have the levels correct. Only an anti-aging specialist will know the correct levels. That is why this is cutting edge medicine right now, and the damned insurance companies do not want to cover the office visit...unless you know how to submit them correctly.
As far as we know all the lab work will be covered. If you all will just read the book Anti Cancer a New way of life, it speaks to all these many ways to fight cancer. I don't care what anyone thinks of Suzanne Somers, but I am telling you that the book Ageless is filled with information and facts!!
Just the symptoms of MS is so frightening, and all this due to hormones? Yes that is right! HORMONES!! If you look up DEATH, it will say "loss of hormones". Without hormones, there is no quality of life. Do you think you had quality of life before dx of bc ....in which your body was allowing the cancer cells to grow...or after chemo and rads which destroyed the balance of hormones? I don't think so.
Why do you think the drug companies are fighting the biodentical hormone replacement therapy? They cannot manufacture them, yet the synthetic hormones and birth control...which are synthetic hormones are causing bc, and women are dying.
It is time....where is the outrage for breast cancer...another dear woman died...our sisiter...how tragic!
Love,
Nancy
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Nancy
DD Lori dx TNBC June 13,2007 Lumpectomy due to incorrect dx of a cyst mastectomy July 6 2007 chemo ACT all 3 every 3 weeks 6 tx Aug-Nov 28 rads ended Jan 2008 |
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trip2
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Posted: May 28 2009 at 2:36pm |
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Hi Mainy and thank you for the information.
These are things we need to know even if it does add to our stress level.
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Stage 2 2003
Stage 1 2007 BRCA 1+ |
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Yankeespie
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Joined: Mar 20 2009 Location: Maine Status: Offline Points: 41 |
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Posted: May 28 2009 at 4:07pm |
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Hi all ~ Gee Nancy thank you for all that info! I for one will be checking into Bio identical Hormone Replacement. I like the idea that they check to see the status of your (overall) health before they recommend any treatment for you. Now that makes alot of sense! You would think that should be part of everyones yearly physical examine! Not to mention being Dx with BC or any major illness for that matter,these test would be a Baseline of our over all health before and after any treatment! Makes a person wonder why they aren't doing it??? How costly could these simple test be, in comparison to the countless lives they could potentially save?? As for Lori's Vit D3 levels being off that far. She should hold the hospital accountable for that! If they are that far off on a simple Vit D3 test how far off are they on more significant testing???? That we have no way of knowing??? Where are the check and balances?? Just shows me just how important it is for us to take charge of our own Health and question everything!
And most importantly for us all to keep one another informed of the different approaches we are taking, and always remember to keep an open mind for alternative approaches to this Beast.
Blanket of Warm Hugggs,
Bev
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Dx 2-10-09
Er neg Pr neg Her2 neg 1+ Double Mastectomy 3-2-09 2.7cm grade 3 Lymph Nodes neg NO reconstruction, NO chemo KNOWLEDGE IS POWER |
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sibu
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Posted: May 28 2009 at 5:43pm |
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Wow, Nancy I'm floored!
Where to begin? Thank G-d she had the full range of tests run. Guess all the answers were in those 22 vials they drew. I always wonder about those results, the accuracy. Hasn't Lori been on fairly major doses of D for some time now? You know my testosterone levels came back very high, which is funny because I haven't had any ovaries that produce testosterone for over a year! Hmmm... Could Lori's high adrenals be related to her being a serious runner? I am actually having blood drawn tomorrow for a follow-up after a couple months on bhrt, to see how it checks out. PS I don't think the article was referring to Quest, but rather Que as in Quebec's lab? Please post about how her compounding pharmacist gets these things covered. I'm sure many will be interested. My particular regimen costs about $100 a month, and with copays that would only be lowered by $25 or so, but I know there are others who are dealing with this. Nothing but love and infinite support for Lori, you and the entire family, my dear. I just want to see her system reach that tipping point of health and flush out all of this terrible stuff. She has battled too many things for too long. Maybe she needs 9 weeks flat in bed and let her body burn off every nasty thing. She hasn't taken a break since this all started. She is indeed lucky to have you in her corner. XOXOXO Donna |
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Donna, age 42
Dx IDC 12/06, 5/18 Nodes + BRCA1+ Double mast. 1/07 Chemo 6 X TAC 6/07, rads 10/07 Hyst./Recon. 12/07 |
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dmwolf
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Posted: May 28 2009 at 5:52pm |
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Nancy, I had no idea that Lori is dealing with so much. MS symptoms especially sound really frightening. When I was 27 I went through an MS scare, and boy did it freak me out.
It sounds like her body is worn down. Is she getting enough rest? Is she too stressed at work? A self-care sabbatical might be in order, if she can afford it. How are you doing with all this? I can imagine it being very hard on a mother, maybe even harder than if the symptoms were your own. Love, Denise |
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DX 2/08@43 stg II IDC; gr2,0 nodes. Neoadj chemo, first ACx2 (fail) then CarboTaxotereX6(better). Lump, Rads done 11/08; Clodronate. False alarm queen: PetCT lung & TM marker. NED. PBM w/recon 9/10.
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Nancy
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Joined: Jul 23 2007 Location: Altoona, PA Status: Offline Points: 3814 |
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Posted: May 29 2009 at 7:52am |
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Donna,
The Quest labs to which I was referring are the labs in question as to the Vitamin D levels. I should have clarified that in my first post and not hacked this thread of mainy's.
The 9 weeks flat in bed, from what the doctor said as to the Valcyte, is not a very pleasant 9 weeks. The flu like symptoms are pretty bad, and the shingles can come out all over her body, and from my experience and hers of having shingles, believe me this is not pleasant. You feel as though you have electrical shocks at the nerve endings, and there are blisters as with the chicken pox. The doctor said she will not be contagious.
Once the ovaries are gone, or not functioning, due to menopause or even perimenopause, the adrenals are to take over...this is what our bodies are to do if they are functioning properly. However, if the adrenals are blown out, or there is a mass, then they do not produce estrogen.
Trust me these test results are accurate, and if your testosterone levels are very high then there is a possiblity that your adrenals are not functioning properly either, as that is a symptom. Did you have that test? Lori was tested for everything that you can possibly think of, and this doctor uses only one lab, as from what I gather, many others do not give accurate results.
As to her doses of D3, she stopped taking the cod liver oil, as her onc said that 76 was too high. How can these oncs, or for that matter any doctor continue to practice when they are not continuing to be educated as to the latest findings. 76 is great, and could be higher, especially for a person dx with cancer.
I think what really has Lori upset is the insurance companies not wanting to pay for your bios, and the appointments also. These doctors are MD's, not some quacks as people think, and have been in practice ...some for over 50 years.They are OB/GYN's reaching out to women to help them...not just supply them with yet another drug to compound their problems. How do you think the drug name Premarin came to be? Mares urine.
The men have hormonal problems also, and boy are they quick to cover Viagra and all those other "get it up....keep it up for over 4 hours drugs". Of course we have old white men in Congress so that really benefits them, and they run everything.
Anti-Aging is a branch of medicine, just as sports medicine and a list of others. It is the drug companies in line with the insurance companies which are fighting this. There are millions of women taking biodenticals because they know the synthetic ones are causing cancer, and a "one size fits all" is not helping anyone.
Thank you for your concerns and support for Lori..
Hugs,
Nancy
Edited by Nancy - May 29 2009 at 8:04am |
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Nancy
DD Lori dx TNBC June 13,2007 Lumpectomy due to incorrect dx of a cyst mastectomy July 6 2007 chemo ACT all 3 every 3 weeks 6 tx Aug-Nov 28 rads ended Jan 2008 |
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sibu
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Posted: May 29 2009 at 9:08am |
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Okay, so if she puts herself through 9 weeks of h***, is the doctor confident that it will knock out this virus?
Thank for the info. on the testosterone. I'll bring it up to my bhrt specialist when I see her next week. She said the only other time she'd seen that was with someone taking testosterone supplements. She thought there may have been something in the Chinese herbs I was taking. My oncologist also asked me why I was taking high doses of D3. Hello?! Love ya, Donna |
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Donna, age 42
Dx IDC 12/06, 5/18 Nodes + BRCA1+ Double mast. 1/07 Chemo 6 X TAC 6/07, rads 10/07 Hyst./Recon. 12/07 |
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Nancy
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Posted: May 29 2009 at 10:53am |
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Donna,
He said this "could happen", (the 9 weeks in bed), not that it would happen. She is to take 2 pills a day, and took the first one last night. There was no reaction at that time, and I have not talked with her today. This Valcyte is the drug they give to people who have had transplants. Cost...$3,700.00 per month...her copay is $35.00. Since the shingles are in her body and have not surfaced, that is a real concern, as when they stay in the body that is a chronic infection. Chronic infections can lead to cancer. That could well be the reason for the extremely high DHEA levels. The same with chronic inflammation.
So how many times have you heard that? How many doctors test for all these things? One out of 100,000 or more? Probably.
I think I posted when she had the blood work that they were testing for molds, viruses, metals....everything. In fact many years ago her son had mono, and that showed up in her test results. She had been exposed to mono through him, and that was still in her blood. Pretty amazing what is revealed in our blood, and the many illnesses that we have and yet are not treated for by our doctors, simply because they have never tested us for them.
As to your onc, and his statement, they are now saying that almost all of the women dx with osteoporosis are most likely just very very deficient in D3. Now that would not surprise you or me or many of the women, but have the doctors read these latest findings? Nope...just give Fosomax!
Drug comapnies don't care, as they have billions set aside for the lawsuits and attorneys ready to fight these women. Oh, but that could take 20 years and the women who have taken them and it has affected them ,may well be dead by that time. 23 already dead from esophageal cancer. This crap stay in your body for years after being off of it.
Education is the key, and if our doctors will not educate themselves as medicine progresses, then we must educate ourselves. If we do not, then we only have ourselves to blame. So much is just a keyboard away.
Hugs,
Nancy
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Nancy
DD Lori dx TNBC June 13,2007 Lumpectomy due to incorrect dx of a cyst mastectomy July 6 2007 chemo ACT all 3 every 3 weeks 6 tx Aug-Nov 28 rads ended Jan 2008 |
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sibu
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Posted: May 29 2009 at 1:36pm |
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Even when I try, I have a hard time educating myself on certain subjects.
The information that's allowed "out" is very controlled by big pharma. As an example, I just happened across a scathing medical criticism of Gardasil. It said the "research" Wyeth did (why does that name keep popping up?) was sketchy at best, done with a handful of young girls in Africa. And now we're jumping on the "one less" bandwagon and injecting our young daughters with this while they make billions. They know just how to manipulate the FDA approval process, while fighting it for things that really help people like bhrt. Let's check back 20 years from now and see what effects this has caused--like all the birth control pills our generation was encouraged to take. |
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Donna, age 42
Dx IDC 12/06, 5/18 Nodes + BRCA1+ Double mast. 1/07 Chemo 6 X TAC 6/07, rads 10/07 Hyst./Recon. 12/07 |
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dmayes
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Posted: May 29 2009 at 2:15pm |
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Nancy,
I bought the Anti-Cancer book yesterday (i've sent you a PM) and could not put it down last night!
LADIES - BUY THE BOOK ANTI CANCER: A NEW WAY OF LIFE.
It is compelling and life changing. Some friends told me of some things to do whilst on chemo, though they hadnt read the book it was like they had. My bloodwork was better yesterday (I had dose 2 today) than it was before dose 1. Major change I made - adding tumeric (with black pepper) to one meal a day (usually eggs, goes great). Using ginger and garlic in cooking, and exercising 1/2 a day Mon to Fri (when there are no kids around to stop me).
And this showed up in my bloodwork in 3 weeks - we all know it is not a good side effect of chemo. Thanks Nancy for telling me about the book - it should be number one on the list and have 5 stars after it.
I am looking forward to finishing it and making my new shopping list - no more white bread and sugary foods at all! Hope the family like the change - nothing else is coming in the door!
Best wishes for Lori - rest sounds like it is what she needs. I hope you get some too, to keep yourself energised and positive for her. Hugs and prayers coming your way.
Cheers all, Debs
Edited by dmayes - May 29 2009 at 2:25pm |
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Debs | Laugh every day, Love every minute.
Dx Mar09 - LB IDC 4.5cm - 0 nodes. BRCA - Cytoxin/Taxotere x4 end Jul09. ReCon surgery March10. |
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Nancy
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Posted: May 29 2009 at 2:19pm |
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Donna,
I had posted an article on this vaccine a few months ago, and they were saying it was not good! So, now when will the lawsuits start on this and how many very young girls will have many complications and perhaps even die from this until it is pulled off the market. Here is the link which I posted in February. It is the second link.
So they tried this vaccine on a handful of unsuspecting dear young girls in Africa. Yes, what say did they have in all this" None! Now doesn't that sound familiar? Ahhhh.... yes..... it brings to mind the Tuskeege study of untreated syphilis in the African American males.
Ahhh, but the birth control pills are already having an effect on the women and it is called breast cancer and ovarian cancer. I will not believe that it only affected those who have been dx with BC+. Boy did the drug companies make billions, probably trillions from these.
I guess we have to start demanding more information be released and standing up for our rights as women.
Let's see.... in 20 years, at the rate we are going, approximately 818,600 women will have died, and every year 182,460 are dx, that's one every 3 minutes, and there are 66,770 cases of in situ dx every year. That is in the US alone. Every 13 minutes here in the states a woman dies from breast cancer..actually from causes related to being dx with bc. Again...where the hell is the outrage. I just don't see it!!
Nancy
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Nancy
DD Lori dx TNBC June 13,2007 Lumpectomy due to incorrect dx of a cyst mastectomy July 6 2007 chemo ACT all 3 every 3 weeks 6 tx Aug-Nov 28 rads ended Jan 2008 |
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Beth Anne
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Posted: May 30 2009 at 7:30am |
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Nancy,
If men were dying at the same rate the drug companies would be all over that. Beth Anne |
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Dx 5/07 DCIS Stage3 gr9 A/C x 6, Abrax x 16 Bi-Mass 2/08
Navelbine x 12, finished radiation end of July 08. DX Brain Met's 2/09StageIV CK3/09.Brain resection4/09 WBR Dreaming of dancing with Ned! |
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mainsailset
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Posted: May 30 2009 at 8:18am |
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Nancy, I read your updates on Lori and feel this huge anger rising up. In a sense the comparison to the Tuskegee experiments you mention pretty much sum up the whole philosophy of big pharma even/and especially today. If often think it's a case of 'just how far can we push these people'
I took a trip to a respected vitamin store yesterday and was startled to see how many vitamin D with 4,000 iu's were available. Some (gel caps) said to take one gel cap (4,000 iu's) every other day, some (tablets named Breast D on label) were 4,000 iu's an said to take 1-2 tablet each day!
I keep going back to the Vitamin D because I really think - and let's take Lori as an example (please and thank you)...they're still lumping her D results into one number. She could be suffering from a D3 deficiency which would certainly explain her counts and her MS symptoms and compromised immune system and yet have a high D2 count which is overwhelmingly disguising the real problem. I go back to the onc prescribing a D2 50,000 tablet for me to take 1x a week...never addressed the D3 for me but whoa howdie did it bring up my count!
Lori is all of us and all of us are Lori, we must stand together on this.
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Nancy
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Joined: Jul 23 2007 Location: Altoona, PA Status: Offline Points: 3814 |
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Posted: May 30 2009 at 5:29pm |
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Denise,
First to you, as to how I am handling all this? I am really really pissed, ...outraged, ...so damn angry that Lori was even dx with breast cancer, but more so now, as not one doctor until now has ever ordered all these tests for her, or for that matter any of you. Denise have you ever had all these tests? Have any of you women on this site ever had all these tests?
For mono to be found in her blood work, which was when she was exposed to her son 14 years ago and just sits there is unbelievable. For the shingles to lie in her body and not come out and cause an elevated DHEA of 1,659 when normal is 110-554, and know that this can mean a recurrence of cancer/mets, or death in 5 years, is unforgiveable. So she was a walking time bomb, and she was saying that maybe she should have never had these tests. I say now something can be done about it.
Beth Annne, you are so right if this were men dying at this rate, it would not be tolerated. Forgive me Steve and any of the other wonderful men on this site.
Then Mainy tells me that the RSS feed was running that cancer rates are down. Who the hell are they trying to fool? Oh that's right...how far can we push people, how many times can we lie to the American public, or for that matter to everyone in the world, and how many times will they believe us? Well, we (not me), continue to believe, and nothing is ever questioned. If they say it is so...well it must be, because they are reporting it on the national news....which is run by I think 3 old white men!! You get my drift here?
Don't any of you ever question as to why or how you got breast cancer? Of course you do! What have you done to deserve this? Not a damned thing!! Don't any of you ever look at your doctors/oncs and ask them where they have had their heads over the past few years that they do not even know about the benefits of D3?
Don't you ever ask them why they continue to believe everything the drug companies tell them? Oh that's right, they would have to forfeit their cruise next year if they did. The drug companies were threatening the doctors, and I posted the article stating that. Harvard students were rebelling against the drug companies but then...it went quiet once again.
When I decidesd to stop taking Fosomax, I called my GYN, and her nurse called me back stating it was of course my choice, but I did have osteopenia, and the Fosamax was helping. NOT!!! Bone pain, trouble swallowing recently. I had to talk over the nurse as she was not listening to me when I was saying that 23 women have died from esophageal cancer and I did not want to be number 24!
The council on D states that every woman dx with osteoporosis is most likely very deficient in D3. Do they test for that? Hell no!! Gee what do I want to take for that then? Bath tub cleaner or sunshine and a little white capsule? I opted for the latter.
My GYN is great, but when I go in August, I will have print outs of all the articles I have read on the bisphosphonates, and I will buy her the book ...The Truth About Fosomax. Also every article from the vitamin D council that I can find. And the book Ageless and the Anti cancer book.
So if we all....every woman, man and child takes about 5000-10,000 iu's of D3 every day and all of a sudden the cancer rates actually go down, gee...what will "they" have to say? It is a hormone and a very very very necessary hormone for our bodies/immune systems to function properly.
Lori said she will really pump up the D3 now and the cod liver oil! My sweet friend Bev (Yankeespie) is taking 10,000 iu's a day, as she is not doing chemo, but knows without a doubt how very important D3 is. Her doctor doesn't!
So, what do we do about this, and the testing that all of you should have but your doctors are either stupid/uneducated as to what you deserve or just don't give a damn...take you pick.
Look at how they treat you for chemo..no testing on the tumors, nothing, just throw everything at the cancer and hope to hell that something sticks, and then 2 years later say that a certain chemo is worthless for TNBC, and that is the one you had. Demand the testing on your tumors also!!
I tell you my dear women, at my age I have nothing to lose to go out there and make a stand. We have 5 daughters and 7 granddaughters many many nieces, and since the odds are 1 in 8 for bc, Lori may not be the only one dx with bc in this family. And if you believe those odds don't! It is more like 1 in 5 now.
I keep looking at Lori's tests, and just the MS symptoms make me sick. You all know how she lives her life, as I have told you a thousand times. Had she not researched how the body functions, and read the Anti Cancer book, and the Ageless book, and researched the anti-aging field of medicine, and what they had to offer, what would have happened? Tick-tock-tick-tock-tick-tock!
Ok, done for the night...just the night
 You know I will be back!Hugs,
Nancy
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Nancy
DD Lori dx TNBC June 13,2007 Lumpectomy due to incorrect dx of a cyst mastectomy July 6 2007 chemo ACT all 3 every 3 weeks 6 tx Aug-Nov 28 rads ended Jan 2008 |
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mainsailset
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Posted: May 30 2009 at 6:26pm |
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You know Nancy, if we on this site, got baseline D readings (from a lab besides Quest) then took the D3 in large doses, (or as much as onc's would allow) such as 5-10,000, then took another test say in 3 mos, then 6 then we can tell a couple of things
1. we can keep doing this and see if survival rates improve, recurrence rates drop, tumors shrink, overall health improves, etc
2. we can also test the idea that maybe our bodies don't assimilate D3 well
The Vitamin D council website was showing horrendous percentages for us cancer patients that have low D levels...this is something we can do for ourselves and it seems to impact the health of our whole system.
I think it's real nice to have a low fat diet and exercise after I've put my body through a year of chemo, surgery and radiation but that's not enough and the D3 seems a viable strategy for life.
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cg---
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Joined: Jul 20 2007 Location: Canada Status: Offline Points: 1379 |
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Posted: May 31 2009 at 5:41am |
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Dear All,
In the general population 80% of the population have CMV virus which lays dormant in our systems. When people have the virus present itself - it usually mimics symptoms of mononucleosis. Many people have this and are not aware of what is causing their symptoms when they have a flare and feel 'fluish'. When our immune system is compromised by chemotherapy it could awaken the dormant virus.
The general standard of care is rest, good food, exercise, healthy living generally and symptomatic treatment for the most annoying symptoms. WARNINGS AND PRECAUTIONS FOR THIS DRUG are many and these are the indications for which this drug is recommended. This was copied directly from the 2009 CPS - Page 2249 supplied by the manufacturer Roche.
Valcyte is indicated for:
1. The treatment of cytomegalovirus retinitis in patients with acquired immunodeficiency syndrome (AIDS).
2. The prevention of CMV disease in solid organ transplant patients at risk.
A few of the most frightening side effects are: Prolonged usage increases bone marrow toxicity.
Neutropenia 27% -
Anemia 26 -
Retinal Detachment 15
High on the list of other side effects, fever, diarrhea and many other side effects that would affect the quality of life.
Connie
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