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How often for checkups? What about diet?

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Diamond2Wheels View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Diamond2Wheels Quote  Post ReplyReply Direct Link To This Post Posted: Nov 25 2008 at 2:27pm
Dear Ladies,
     I  do have a book that backs up everything I have written about...{clearing throat} and the links I am an advocate for, if you got to my links before they were taken off!
     Anyway this book is written by a Doctor who had brain cancer!   He co-founded the Center for Integrative Medicine at the Pittsburgh School of Medicine.
Star Anti cancer-A New Way Of Life by David Servan-Schreiber, MD,PhD
 
I think you'll enjoy this one.  Talks about chemo, radiation and the chemistry of your body and why you should eat natural foods!
 
Hugs of Love, Pink%20Ribbon
      Tia


Edited by Diamond2Wheels - Nov 25 2008 at 2:30pm
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Nancy View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Nancy Quote  Post ReplyReply Direct Link To This Post Posted: Nov 25 2008 at 2:36pm
Tia,
 
I just posted about this book on the previous page! Great book!! Lori had recommended it and then I went and bought it on Saturday. So much valuable info....so much. Why won't the medical community listen?
Nancy
 
 
What do you mean befor they were taken off?


Edited by Nancy - Nov 25 2008 at 2:38pm
Nancy
DD Lori dx TNBC June 13,2007
Lumpectomy due to incorrect dx of a cyst
mastectomy July 6 2007
chemo ACT all 3 every 3 weeks 6 tx Aug-Nov
28 rads ended Jan 2008
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Diamond2Wheels View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Diamond2Wheels Quote  Post ReplyReply Direct Link To This Post Posted: Nov 28 2008 at 6:43am
Hindis like sugar!
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Cheryl51 Quote  Post ReplyReply Direct Link To This Post Posted: Nov 29 2008 at 8:42am

I think diet is essential.  Particularly alcohol...boy do I miss that chardonnay!!!!  Cry

However, I think that a diet for the soul is essential.  I certainly can't say what that might mean to each of us as an individual...that is personal...but I do believe that something beyond eating broccoli and drinking lots of water carries us into a deeper place of recovery. 

Just a thought...
Cheryl51
Diagnosed 3/07, Stage IIB, Grade 3, 2/10 nodes positive
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Ms.Pat Quote  Post ReplyReply Direct Link To This Post Posted: Dec 01 2008 at 11:52am
Hey Cheryl--
I think there's something beyond eating broccoli, too. I've been a lacto-ovo vegetarian for a number of years and every now and then someone would ask me, don't you find it limiting in what you can eat? Don't you get bored? And the truth is, this choice actually expanded what I chose to eat. If anything, there was greater variety. Most meat-eaters plant their meals around whatever meat they're having, but vegetarians can plan around having pasta, beans, rice, etc. Lots of choices, really. However, I am still resisting giving up cheese, especially goat cheese which I love. I do think it's possible to eat well without taking in any animal products, though. Every time I eat at my favorite Thai restaurant, I'm reminded of that.

Pat
Age 57, Diagnosed May 2008, Stage II; gr. 3; 4 A/C, 3 Taxol; lumpectomy Sep. 30, 2008; Radiation Oct. 28, 2008.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Arnica Quote  Post ReplyReply Direct Link To This Post Posted: Dec 05 2008 at 5:26am

My checkup schedule is to see onc and dr at the imaging center every 3 months for the first two years, then every six months after that. The surgeon saw me every 3 months for the first year and will see me every 6 months after that. The doctor at the imaging center sees me herself because of my high Ki-67 score. I'm having ultrasound on each side every three months along with mammo on alternating sides, so have mammo on each side every 6 months.



Edited by Arnica - Dec 05 2008 at 6:42am
Dx 4/15/2007,
IDC, 1cm, Stage I, Grade 3, 0/1 nodes, ER-/PR-,HER2-
Lumpectomy 5/23/07, Re-excision 5/30/07,
Completed 30 Rads 8/22/07

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Post Options Post Options   Thanks (0) Thanks(0)   Quote trip2 Quote  Post ReplyReply Direct Link To This Post Posted: Dec 05 2008 at 4:13pm
Wow Arnica it looks like you are being watched very closely, that must make you feel better.Cool
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Post Options Post Options   Thanks (0) Thanks(0)   Quote anna921 Quote  Post ReplyReply Direct Link To This Post Posted: Dec 05 2008 at 5:32pm
I also have a very concerned oncologist. She still schedules to see me every month and sometimes I feel she's more worried about me than I am about myself. I'm starting to get afraid mentioning any pain, as soon as I do, I'm scheduled for some kind of test. So far, all came back negative which is great, but the days leading up to the test are stressful. Lately, I have increased heartburn and I'm debating if I should tell her when I see her in two weeks. Heartburn is not a sign of stomach cancer I should think, otherwise millions of people would have it. Mentioning it might get me send to a scan involving drinking some obnoxious fluid.  
August 2007, Stage III, 5+ cm, Grade 4F, 4 FAC with booster after 4 days, 12 weekly Taxol, radical mastectomy, 36 radiation treatments.
Houston, Texas
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Post Options Post Options   Thanks (0) Thanks(0)   Quote trip2 Quote  Post ReplyReply Direct Link To This Post Posted: Dec 06 2008 at 7:36am
Hi Anna, you might try something off the shelf to see if it helps the heartburn?  Hopefully that would work.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Barb-42 Quote  Post ReplyReply Direct Link To This Post Posted: Dec 14 2008 at 4:12pm
when I finished Chemo my medical onc. saw me at 2 weeks, then 8 weeks, then at 3 months which is what it will be for a while, my radiation onc. saw me at 2 weeks, then he will see me in 6 months.

My surgeon is seeing me very frequent. She first would see me 1 week then 2 weeks then 3 months only because she did not want me having to run to another apt. but I was to call if I needed anything. Then it has been every 3 months unless I have a scan of some sort then she want's me back right after them. I feel like I am being watched very carefully.
dx-1/2/08 @ 42 yrs.old
lumpectomy w/close margins/ 1/14/08- no nodes/stage 1/gr.3
1.5 CM IDC
chemo-AC-3 Dose Dense
Taxol wkly 12- 2/21/08-7/17/08
Rads-33 w/8 boosts
8/6/08-9/22/08
BRCA 1/2 Neg.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote anna921 Quote  Post ReplyReply Direct Link To This Post Posted: Dec 14 2008 at 5:20pm

I've started drinking chamomille tea in the evening, Pam. It does soothe my stomach and also calms my nerves and helps me go to sleep. All this is good because I'm going cold turkey on Neurontin/Gabapentin which I took since January of this year, between 300 and 900 mg. per day, depending how I felt. I just found out that a side effect is weight gain and here I was driving myself bonkers wondering why I couldn't loose an ounce even with watching my caloric intake.

August 2007, Stage III, 5+ cm, Grade 4F, 4 FAC with booster after 4 days, 12 weekly Taxol, radical mastectomy, 36 radiation treatments.
Houston, Texas
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Post Options Post Options   Thanks (0) Thanks(0)   Quote trip2 Quote  Post ReplyReply Direct Link To This Post Posted: Dec 15 2008 at 4:15pm
Anna,
 
I'm so glad you've found something that relaxes you of an evening and helps you sleep.
 
I didn't realize the Neurontin caused weight gain.  I've been on it for some time and have had a weight problem I could't explain by my diet.  Hmm gonna look into this one, thanks for the tip!
 
Warm hugs,
Stage 2 2003
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BRCA 1+
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Nancy Bell Quote  Post ReplyReply Direct Link To This Post Posted: Dec 17 2008 at 5:59am
I had trouble with the Neurontin as well. I only took it for maybe 3 months because it wasn't helping.  I had horrible swelling in my calfs & feet which made the Neuropathy worse. That's when I read the side effects.... edema!  I told my oncologist I will not take those anymore. So he put me on Folbic (B12, B6 and Folic Acid).  It helps to regenerate the nerves without the side effects, not to mention it helps my energy level.
dx 8/17/2007 IDC Grade 3 Stage2
lumpectomy 9/19/2007
1.2cm w/extension into multiple intramammary lymph nodes
SNL 0/1
Ki-67 81%
Dose Dense AC/T completed 2/21/08
37 rads completed 5/02/08
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Post Options Post Options   Thanks (0) Thanks(0)   Quote asinglerose Quote  Post ReplyReply Direct Link To This Post Posted: Dec 17 2008 at 10:42am
Is it ok to take any kind of vitamins while chemo?
Wanted to make sure, taking, VITAMIN C, B COMPLEX, VITAMIN D, MULTIVITAMIN, CALCIUM (CALTRATE)
FISH OIL.
Is this too much? My onc said the multiviatmin would be fine, but I over do things and now, I am thinking hmm, well vitamins cannot hurt you.
Thanks
Aleida
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dx 8/22/08, TNBC, IDC,
Lumpectomy/10/6/08 right breast/ 8mm/
clear nodes/ clear margins/ Stage1/ TAXOTERE/CYTOXAN every 3 weeks X4/ 45 RADS!
PRAYING FOR THE BEST!!

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Post Options Post Options   Thanks (0) Thanks(0)   Quote krisa Quote  Post ReplyReply Direct Link To This Post Posted: Dec 17 2008 at 11:50am
too many vitamins can hurt you, whether or not you are on chemo. 
don't over do the vitamins; it has been shown that certain vitamins can interfere with what the chemo is trying to accomplish...your doctor should be aware of this, and probably is .

I recently attended a lecture put on by Dr. Miles Hassell at my hospital.  He has written a cookbook and recommends the Mediterranean diet.  He talked briefly about studies that have shown negative effects from a high dose of certain vitamins. (vitamin A and E for instance).  He believes a balanced diet and vitamin d-3 is all most people need.  On a case by case basis, he will recommend a vitamin or mineral to one of his patients.

On the power point handout, the studies Dr. Hassell cited are listed in fine print;  I can get the magnifying glass out and see if I can read them and post for you to peruse.

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Post Options Post Options   Thanks (0) Thanks(0)   Quote asinglerose Quote  Post ReplyReply Direct Link To This Post Posted: Dec 17 2008 at 12:53pm
Oh no! Then i am messing up my chemo? Well i will stop then and just take the mulitvitamin only, so confusing to me, just trying to make things better for myself, easier, and here i am messing up my chemo, probablyConfused
Thank you, please post the vitamins
Aleida
Aleida
dx 8/22/08, TNBC, IDC,
Lumpectomy/10/6/08 right breast/ 8mm/
clear nodes/ clear margins/ Stage1/ TAXOTERE/CYTOXAN every 3 weeks X4/ 45 RADS!
PRAYING FOR THE BEST!!

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Post Options Post Options   Thanks (0) Thanks(0)   Quote krisa Quote  Post ReplyReply Direct Link To This Post Posted: Dec 17 2008 at 2:12pm
Aleida,
Discuss your vitamin regime with your doctor.
I'll get the magnifying glass out and get back to you.
Heart
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Post Options Post Options   Thanks (0) Thanks(0)   Quote asinglerose Quote  Post ReplyReply Direct Link To This Post Posted: Dec 17 2008 at 2:51pm
I do not think anything in the world coud ever get in the way of something as strong and powerful as chemo, but pls get back to me when you canSmile
 
Thanks so much,
Aleida


Edited by asinglerose - Dec 17 2008 at 2:52pm
Aleida
dx 8/22/08, TNBC, IDC,
Lumpectomy/10/6/08 right breast/ 8mm/
clear nodes/ clear margins/ Stage1/ TAXOTERE/CYTOXAN every 3 weeks X4/ 45 RADS!
PRAYING FOR THE BEST!!

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Post Options Post Options   Thanks (0) Thanks(0)   Quote anna921 Quote  Post ReplyReply Direct Link To This Post Posted: Dec 17 2008 at 2:57pm

Alaida, your oncologist will let you know if you are overdoing it and what supplements you should drop while on chemo.

When I received radiation, I was told not to use any supplements outside the run-of-the mill multi vitamins which I don't think are doing a good job anyway and never took them. I could have all the vitamins I wanted from food and I did eat a lot of vegetables and fruit throughout my treatments, but I also found out that what I thought might be beneficial to me was actually the contrary when I loaded up on foods rich in potassium while on diuretics. I didn't know how to balance it correctly and ended up with a potassium level of 6.2 which in itself was a danger to my health.
August 2007, Stage III, 5+ cm, Grade 4F, 4 FAC with booster after 4 days, 12 weekly Taxol, radical mastectomy, 36 radiation treatments.
Houston, Texas
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Post Options Post Options   Thanks (0) Thanks(0)   Quote krisa Quote  Post ReplyReply Direct Link To This Post Posted: Dec 17 2008 at 3:13pm
Aleida,
Most of the citations are from JAMA and you have to pay to get the articles.

Flaxseeds have been mentioned many times on this forum and the health benefits:  from the power point presentation..

"Women who ate 25gm (4 tablespoons) ground flaxseed in a muffin research study (my kind of study) had reduced tumor growth at 39 days.
Flaxseed lignans reduce breast cancer cell adhesion, invasion and migration in in vitro and animal studies."

cite:  Er- cell lines  Chen & Thompson  Br Ca Res Treatment 2003 ;80:163-170

Didn't mean to freak you out.  others may weigh in with what they know about taking vitamins, etc. during and after treatment.  we al have our opinons based on what we know.
Smile

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