Help!! I'm Spinning |
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Kara Leenda 
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Joined: Sep 05 2023 Location: Asheville, NC Status: Offline Points: 3 |
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 Topic: Help!! I'm SpinningPosted: Sep 05 2023 at 6:04am |
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Just got diagnosed after a long round of inept practitioners slowing down the process. Now I feel like I'm under the gun to make such life impacting decisions immediately and I don't know where to go or who to see. Yikes! Freaking out! My head is exploding and I can't concentrate. Anyone have any recommendations on who/where is the best place to be treated for TNBC. I am willing to travel. Haven't even met with my local doc yet. Found out my biopsy results through it being posted on the patient portal! Yikes! DX 9/1/23 Stage 2 TNBC - tumor is 3cm grade2 Genetic tests came back negative for all gene mutations Fallopian Tube Cancer survivor Stage 1c2 dx Jan2020 as of 8/10/23 NED 67 years old |
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cookie54
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Joined: Oct 24 2020 Location: New Jersey Status: Offline Points: 78 |
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Posted: Sep 05 2023 at 4:42pm |
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8/16,IDC,StageIA,Gr3,0/1 nodes ER-PR-HER2-
9/16 BMX,AC 6/20,StageIIIC,Gr3,ER-/PR-HER2- 6/20 Carbo/Gem/pembro 10/20 ALND 5/8 nodes,Rad x25 11/20 thyroid ca Xeloda2/21 Stage IV 6/22 lung mets |
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Kara Leenda
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Joined: Sep 05 2023 Location: Asheville, NC Status: Offline Points: 3 |
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Posted: Sep 06 2023 at 5:49am |
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Hi Cookie54, Thanks so much for the
response and the info. Working on trying to get in to see Dr. Traina.
Currently living in NC. Considering Duke as a potential treatment
center. Do you have lead on anyone who is well versed in TNBC at Duke?
It would be nice to have the comforts of home but will do what's
necessary for the best outcome. Feeling the anxiety of getting into
treatment ASAP and waiting for appointments is stressing me out...yikes! Sending you strength and good vibes as well! Gratefully, Kara Leendah
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cookie54
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Joined: Oct 24 2020 Location: New Jersey Status: Offline Points: 78 |
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Posted: Sep 06 2023 at 10:01am |
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Your very welcome! I don't know of a specific doc at Duke. All breast cancer oncologists can treat TNBC my longtime oncologist is not specific to TN but is a fabulous intelligent doctor who is very up to date on all breast cancer treatment. I think it's important that you find a doctor you feel confident in and that you feel is knowledgeable and current. There are so many great breast oncologists out there and if your first choice isn't the one you can move on.
My second opinion doctor after I was diagnosed stage iv was Dr Traina. I am fortunate to get my treatment close to home but have her input on plans. I went to NY once for my initial consult and now if there is a change in my plan my oncologist can contact her. I believe this can be a consideration for you also. Of course you want to have treatment close to home as it is most convenient. You can choose a doc at Duke and then get a second opinion by a TNBC specialist of you choice. I know you want it all resolved yesterday and in our minds we think our cancer is going crazy spreading etc. Most of the time it is not. The anxiety is tough I know but you need this time to research and get all your ducks in a row. Start a binder of all your contacts, reports ,questions and any info related to this. It will help you feel a more organized and a feel like you have some control.
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8/16,IDC,StageIA,Gr3,0/1 nodes ER-PR-HER2-
9/16 BMX,AC 6/20,StageIIIC,Gr3,ER-/PR-HER2- 6/20 Carbo/Gem/pembro 10/20 ALND 5/8 nodes,Rad x25 11/20 thyroid ca Xeloda2/21 Stage IV 6/22 lung mets |
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