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Sunris
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Posted: May 13 2009 at 2:56pm |
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Donna,
Dr. Lucci spoke of surgery occurring approx. 4 weeks after receiving the last dose of FAC. I'm going to guess this is standard. If you have special requests, I'm sure he can delay it a week so you can attend your son's wedding. Oh, and he did not order any additional tests at all.
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Donna Zukowski
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Location: MD Anderson
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Posted: May 14 2009 at 3:02am |
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Hi Sunris. Thank you for this as it helps in my mind as I think about what I might wear for this wedding. I might just fly back here the day after the wedding if that is what works out. They get married on Sept 6th and my last FAC is Aug 7th.
I am wondering if anyone works while they are getting FAC and how that goes?? I know it affects everyone individually. Are you planning to continue working Sunris? I took a leave from work and am working on my Masters which has gone ok so far. But I have to do a 2 week practicum right after I get my first dose of FAC. I guess I am about to find out how it all goes. Donna
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Nancy
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Joined: Jul 23 2007
Location: Altoona, PA
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Posted: May 14 2009 at 7:17am |
Donna,
Lori had ACT and with the exception of Friday, the day of chemo and the following Monday and Tuesday, worked all through her chemo and rads. She teaches second grade, and I really do not know how she did it, but she did. Lori had just been offered the position about a month before she was dx, so she really felt she had to do this.
Lori did always make sure that she had all her lesson plans done before the day of chemo, and anything else which required her to use the computer, as her vision was so blurred and it made her nauseated to get on the computer, or to even watch TV. She very seldom watches TV, so that was not a big deal.
You will have to play this by ear as to your practicum, and you might do very well. Pehaps doing as Lori did as to any computer work might help.
Hugs,
Nancy
Edited by Nancy - May 14 2009 at 8:03am
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Nancy
DD Lori dx TNBC June 13,2007
Lumpectomy due to incorrect dx of a cyst
mastectomy July 6 2007
chemo ACT all 3 every 3 weeks 6 tx Aug-Nov
28 rads ended Jan 2008
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Donna Zukowski
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Joined: Apr 28 2009
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Posted: May 14 2009 at 8:01am |
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Thank you Nancy. This is quite helpful. I will be having chemo on Thurs and start the practicum the following Tues. for 2 weeks so will be done before I get the 2nd cycle of FAC. I am presently on taxol and doing ok. I am also not working and just doing Masters courses so I am sure this helps. I do have to get back to work though. I am a Registered Nurse so will be looking at this soon. Donna
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HoneyDawn
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Posted: May 14 2009 at 1:20pm |
Hi Donna, Hope you are doing OK at Anderson. My second consult has been at Moffitt, since I am in Florida, but if things look really bad, I am reserving Anderson for my third choice. How are you doing? I am not ignoring you, I am just so overwhelmed with all this stuff.
How are you doing?
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Donna Zukowski
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Posted: May 16 2009 at 3:25am |
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Hello HoneyDawn. It sounds like you caught things early. I sure wish I could have felt the lump before finding the enlarged lymph node. The docs her at Anderson could not feel it in the breast either. I just had my 10th out of 12 doses of taxol. I had a nasty rash on my head that I managed to clear up with tea tree oil in the morning, Vit E oil at night and benadryl ointment plus a Benadryl tablet at bedtime. The rash can be quite common and it is this regime that completely cleared it up for me. Next up was nasty blisters on my feet so bad they were threatenng my ability to walk. I like to get out for a 5 km walk daily. So nightly epsom salt and Vit E oil soaks have pretty much cleared them up. This week has been GI. Feels like my whole GI tract is raw and nauseated. Took Zofran and it worked somewhat. Anyways I am worried about the FAC I start on June 4th and the GI side effects. So anyone that has any tips that could help me. I already am taking a prescription antacid nexium.
Yes HoneyDawn this is unbelievably overwhelming. I was diagnosed Feb 27th (lymph node came back positive) and then an MRI on Mar 3rd showed it in the left breast 1.6 cm. I found the enlarged lymph node in the shower. My GP in Canada told me there was no rush as it is already in the lymph node. She did not send my referral in to the cancer centre where I live for 9 days. I was emotionally a wreck so came down here to Anderson. Started chemo on Mar 13th. I have 3 adult sons. One of them is holding the fort down in Canada and my husband came with me. Another son grads June 18th so we are aiming to get to that.
So are you ahving surgery first? This much be coming up soon for you then?? Donna
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Donna Zukowski
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Posted: May 16 2009 at 3:31am |
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By the way at this point I am stage 2a TNBC grade 3, 1.6 cm. 1 pos. lymph node for sure. CT, bone scan, MRI all came back ok. We don't know how many lymph nodes however.
Plan is 12 weekly Taxol, 4 cycles of FAC, surgery (either lumpectomy or mastectomy) and removal of lymph nodes. Radiation if there is anything showing positive at the time of surgery. So I pray the chemo clears it all by the time of surgery. Donna
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Judy g
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Joined: May 16 2009
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Posted: May 16 2009 at 8:57am |
Hello all,
My name is Judy I am 49 and was diagnosed with Stage II TNBC in April.
I have had a lumpectomy and had lymph nodes removed and 1 out of 7 had cancer.
This lump was 3.6 cm and kind of just came out of no where. After having it removed along with 2 benign cysts, I ended up in the hospital 4 days later with what we still have not clearly identified, but was most likely c-def (sp?) I was also the recipient of a bladder infection, so the two antibiotics gave me an infection in my intestines. I also have ulcerative colitis, so I get a little more bang for my buck so to speak :)
I am having my port put in on Monday 5-18 and start Chemo on Tuesday 5-19.
When my husband and I sat down with the Oncologist, she explained everything, wrote it down for us, and we left thinking we knew what was going on and we are completely overwhelmed which I am sure is the norm. So what I know is this:...I'm doing AC x 4 T x 6 (I think is Taxol)
the AC is 1x ev 3 weeks, I am guessing this is 4 cycles then the taxol 1 x a week for 6 weeks....then something called dexclense for 2 weeks, not sure if that's in between or with or what. Then radiation. I know when we see her on Tuesday we will ask again, but this is all pretty confusing.
I have been reading a little, not too much because I don't want to overwhelm myself with too much info and then just freak out. I found this site yesterday and have found all to be pretty positive, and helpful, so thank you in advance!
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Judy
dx 4/09
lumpectomy 4/24 4.5cm
node positive; stage 2
A/C, Taxol, Radiation
Brain Met, 6 cm 5-28-10 (surgery)
Gamma Knife: July'10,August'10, Sept.'10
WBR, October 10 (x15)
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Donna Zukowski
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Posted: May 16 2009 at 1:09pm |
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HI Judy. Yes it is alot to put together especially when you are living it. Please let me know how things go with your AC next week. I wonder what the dexclense is?? Is this a type of chemo. There are so many different combos and kinds that women seem to go on with breast cancer. I keep a piece of paper by my computer and when I think of a question jot it down for when I next see the oncologist. Did you find the lump yourself??
I am wishing you all the best Judy next week. Donna
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Suzanne
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Posted: May 16 2009 at 2:14pm |
Judy, I have a feeling what you thought was "dexclense" really is "dose dense", meaning chemo every other week. If your oncologist suggested AC every three weeks, you might ask about getting dose dense instead. Dose dense has been found to be more effective than treatment every three weeks. The Taxol you mentioned is usually given every week for 12 weeks or every other week for fewer treatments. I think both methods are thought to be equally effective.
It really is hard to keep everything straight. Good luck.
Suzanne
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1/2/07 IDC, stage 1 (T1c), 1.56cm, lumpectomy 1/8/07, triple neg., grade 3, sentinel lymph node biopsy negative, BRCA 1/2 negative; 4 AC/4 Taxol dose dense, 30 rads 2/07-7/07
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Judy g
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Posted: May 16 2009 at 3:12pm |
Hi Donna,
yes I found the lump myself, it was 4.5 cm. right on the front above my nipple, right breast. Just kinda came outta nowhere.
I still have my period and that month my breast was really sore, and I felt it, thought it was a cyst, and waited for it to go away but it didn't. I went to the Dr. and she sent me off for a diagnostic mamogram and ultra sound.
I opted not to have the needle biopsy as we knew it was big, so i had it removed, and then a week and a half later I had a lumpectomy and lymph node disection.
So now I await Monday and Tuesday and I will see how it goes.
thank you !
Judy
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Judy
dx 4/09
lumpectomy 4/24 4.5cm
node positive; stage 2
A/C, Taxol, Radiation
Brain Met, 6 cm 5-28-10 (surgery)
Gamma Knife: July'10,August'10, Sept.'10
WBR, October 10 (x15)
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Judy g
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Posted: May 16 2009 at 3:15pm |
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I know this sounds crazy, but i had to correct myself as my husband was reading this and said my lump was 4.5cm not 3.6 as i orignally thought, not that it matters but wanted to make the correction :)
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Judy
dx 4/09
lumpectomy 4/24 4.5cm
node positive; stage 2
A/C, Taxol, Radiation
Brain Met, 6 cm 5-28-10 (surgery)
Gamma Knife: July'10,August'10, Sept.'10
WBR, October 10 (x15)
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Donna Zukowski
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Posted: May 16 2009 at 5:41pm |
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Hi Judy. I was diagnosed 1-2 months before you (Feb 27th the lymph node biopsy was positive and we knew just not where it was). In some ways getting on the chemo was a relief because you know it is searching out any stray cancer cells. Every time I get it I imagine it tracking down those cells and knocking them out. The taxol has been not too bad. It is only after the 10th dose that I have been getting challening GI side effects. I do not know what the FAC will do but have been told it is harder on you but also harder on the cancer cells. It is the best we have. Sounds like you will get the AC part of FAC. Every person is individual and seems to get something different depending which oncologist you are going to. What amazes me is how fast it does come up. The same thing happened with me except it was the lymph node. Donna
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Judy g
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Posted: May 17 2009 at 4:06pm |
Hi Donna,
thank you for answering. I am just trying to keep an open mind and not really think too much about the chemo, I am trying to stay positive and I like the idea of thinking that it tracks down those cells.
I can't help feeling like everything in my life will now completely change and I guess the unknown part of how I react to all of this is what is causing me the most fear.
I think once I get the port and then the first dose of chemo I will have a better sense of things and be able to figure it out for the most part.
thank you again!
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Judy
dx 4/09
lumpectomy 4/24 4.5cm
node positive; stage 2
A/C, Taxol, Radiation
Brain Met, 6 cm 5-28-10 (surgery)
Gamma Knife: July'10,August'10, Sept.'10
WBR, October 10 (x15)
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trip2
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Joined: Jun 03 2007
Location: Under Palm Tree
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Posted: May 17 2009 at 7:34pm |
Hello Judy Q and welcome.
I hope next week goes smoothly as possible for you.
You seem to have a pretty good grip on this thing and yes once you begin your treatments you will fall into a sort of routine.
In the News, Rescource & Tips section of the forum you will find lots of information for those newly diagnosed and beginning treatment. Also many tips from members of this forum on how to get along during treatment and radiation if you are having that.
Best wishes and keep in touch,
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Stage 2 2003
Stage 1 2007
BRCA 1+
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Donna Zukowski
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Posted: May 18 2009 at 3:05am |
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Everything in my life has changed but much of it is because I have changed. Some of it is good as I never could say no, loved to volunteer etc. So I was juggling so much and loved doing so. I think once I get through the treatment process I will look at everything and be a different person and that will be the main reason my life will look different. I too have too many fears to think about the future just yet. I have been told this eases off but not when you are in the thick of it. I hope it all goes well for you today and tomorrow. You are taking things one step at a time already and this was the advice I got. Donna
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minniemouse
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Posted: May 18 2009 at 3:49am |
I have to jump in. I've spent the last few days comforted by the posts I read on this blog. It makes me feel so much less alone. I'm achy and tired after second round of chemo and not up to doing much more than short walks.
I, too, was someone who juggled many balls and kept taking on more. I love being in the thick of things, hosting gatherings, attending professional conferences, taking care of family and friends. Now people take care of me. They do it beautifully, my husband and friends, but I feel isolated from my world. I know many of you can relate.
Yesterday, my 89-year-old mom, who must use a walker and reside in assisted living and who relies on me for almost everything else, came up with an idea for "helping" me -- she could stay with me, keep me company, if my husband wanted to spend the day fishing or whatever. It touched my heart, it was so sweet, even if it was impractical. And it made me feel sad that my Mom can't take care of me the way moms yearn to do.
Thanks to all of you who tend this site and offer your wisdom and experience, and blessings to all of you who are on this journey too.
minnie
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dx 02/09 @62;lumpectomy 3/24/09; 1.5cm; node neg; stg I/gr I; BRCA 1/2 neg
2 rnds Taxotere/Cytoxan; 2 rnds A/C (after lung react to tax); 33 rads.
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Donna Zukowski
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Posted: May 18 2009 at 4:09am |
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Hi Minnnie. What a wonderful story about your mom. I can imagine what is going on in her heart.
When you talk about being in the thick of things the day I was suppose to get my biospy results of the lymph node I had found I was suppose to go on this big Canada wide nursing conference. I debated back and forth thinking the results could be benign, trying to talk myself out of thinking the worst etc. Thank goodness I did not go as I was not prepared at all for the emotional blow about to come.
Minnie where are you at in your chemo rounds? How are you doing and are you managing to work? I start FAC the beginning of June and have to decide whether to just take time off work and apply for the benefits to cover me and just think of going back to work in the fall after surgery. I know some people work. Probably an individual thing. My job is management and I am so focused on myself it is hard to imagine doing my job. It has been the self care that has kept me going day to day. Donna dx Feb 27/09 stage 2a TNBC 1.7 cm 12 weekly Taxol (on 10th) 4 -3 weekly FAC then surgery then radiation is anything pos at surgery
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minniemouse
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Posted: May 18 2009 at 4:28am |
Donna,
I just finished round 2 of 6 rounds of taxotere and cytoxan, to be followed by radiation (I can't recall how long a rest they give me between the two, but i recall being told it might be november when i'm finally done.)
And of course, we know "done" has limited meaning here.
A few years ago, I took early retirement as a journalist -- a smart move on my part considering the death spiral of the industry. I began writing a book, with which I am almost 2/3 done. But this all has taken so much out of me emotionally and physically that it's hard to continue. And I haven't been participating in any of the writing activities and critiques that kept me going. I am so lucky in many ways. I have a supportive husband and good health insurance. I am in awe of those who keep working during this. I would be missing one week of three of work for sure.
minnie
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dx 02/09 @62;lumpectomy 3/24/09; 1.5cm; node neg; stg I/gr I; BRCA 1/2 neg
2 rnds Taxotere/Cytoxan; 2 rnds A/C (after lung react to tax); 33 rads.
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Donna Zukowski
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Posted: May 18 2009 at 4:36am |
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Hi Minnie. I believe if I have radiation it will be after I heal from surgery. No idea what kind of surgery yet but may have some idea after seeing the surgeon on June 1st. I am guessing Oct I may be finished and yes I hear what you mean by "done".
Amazing re writing a book. I am working on a Masters. I have no idea how much of it I will keep going and am continuing right now. We'll see. Donna
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