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had my first chemo!

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Reggie24k View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Reggie24k Quote  Post ReplyReply Direct Link To This Post Posted: Apr 19 2009 at 9:02am
Yes, I have been informing them and Yes I have been getting the neulasta. They weren't sure what was causing the fever or the black out. Oh well, hopefully by next year this will be a bad memory.
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trip2 View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote trip2 Quote  Post ReplyReply Direct Link To This Post Posted: Apr 19 2009 at 11:22am
I certainly hope so Reggie.Smile
Stage 2 2003
Stage 1 2007
BRCA 1+
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Melissa View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Melissa Quote  Post ReplyReply Direct Link To This Post Posted: Apr 19 2009 at 2:56pm
Pattikakes50:
I had a port put in before I started chemo and although I don't like having it (constant reminder of chemo) it is mainly painless and my veins look great. I have small veins that are usually difficult to access, so I had no choice.
I was dx w/ TN IDC in Jan.09. I had a lumpectomy to remove a 1.8cm tumor and my sentinal node biopsy was clear. I began chemo in March doing DD AC (which I finished) and now onto DD Taxotere. I am so looking forward to June 4th= last treatment. I will then start 6 weeks of radiation. I hope to have my energy back to be active w/ my 2 young boys this summer.
CANCER SUCKS!!!!!!!!!!!!!!!!!
I have moments when I am still in disbelief, but then I look at my bald head and get back to reality. I just wasn't expecting to be dealing w/all of this at 37.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote partner to one Quote  Post ReplyReply Direct Link To This Post Posted: Apr 19 2009 at 3:19pm
Stay out of the sun this summer, radiation is no walk in the park. Good luck to you, it is a extremely difficult road, get some exercise to keep energy levels up.

Have one week left of radiation and it is HELL.


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Melissa View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Melissa Quote  Post ReplyReply Direct Link To This Post Posted: Apr 19 2009 at 4:17pm
Why is radiation hell? I thought after chemo, radiation would be easy.
Also, just to let you all know I am signed up for a program offered free of charge at the YMCA called LiveStrong (through Lance Armstrong's foundation) which offers 3 months of personal training 3x per week along w/ water aerobics, restorative yoga...all geared to help someone who survived cancer get their strength and energy levels back up. I believe this program is being offered at some YMCA's throughout the country.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote cduvall1 Quote  Post ReplyReply Direct Link To This Post Posted: Apr 19 2009 at 4:29pm
I'm sorry you have to go through this.  For me, radiation was nothing compared to chemo.  I had no fatigue I could subscribe to radiation.  The only reaction I had to radiation was a bit of skin irritation.  You are a young woman, and we all react differently to our treatments.  I fervently hope you will have an easy time of it. 

Edited by cduvall1 - Apr 20 2009 at 7:54am
Carol
dx 3/08 age 63, invasive metaplastic carcinoma, 2cm, node neg, grade 3, stage I, lumpectomy 5/08,AC 4x, Taxol 12x weekly, radiation 5wk, NED 4/29/09
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Reggie24k Quote  Post ReplyReply Direct Link To This Post Posted: Apr 20 2009 at 1:27am
I used to exercise every night after work but now since the chemo I am too tired to do anything. And when I do, I poop out. I used to ride my bike (which sits on a trainer in the basement) for 30 to 45 minutes. Now it takes all I have to do 15. Please tell me this will get better. I also used to walk to the mailbox which is 1 mile away and back giving me a total of 2 miles. The first time I walked it while taking chemo I felt lucky to make it back. I just hope that it doesn't last too long. I still have one more round of chemo and 6 weeks of radiation. I want to be me again.
Reggie
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Jenny Quote  Post ReplyReply Direct Link To This Post Posted: Apr 20 2009 at 4:29am
Hi Reggie,
Don't worry!  You will begin to feel like yourself again after the chemo starts clearing out of your system!  I had 4 rounds of the AC and 4 rounds of Abraxane followed by 6 weeks of radiation.  I found that as the radiation progressed, my energy returned in leaps and bounds because the chemo was hightailing out of my system.  It was a 20 minute walk from my work to the hospital so I was able to get a 40 minute walk in each day which helped.  It was literally a walk in the park! LOL  

 Radiation seemed like a breeze compared to the chemo.  I can't say it's the same for everyone, but I hope it is for YOU!  Hang in there!  You are almost there!  Clap

Peace,
Jenny
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Post Options Post Options   Thanks (0) Thanks(0)   Quote trip2 Quote  Post ReplyReply Direct Link To This Post Posted: Apr 20 2009 at 4:50am
Reggie you are almost done.  Your body is going thru turmoil and it isn't going to respond most likely the way you would prefer.  Your cells, the good and bad are being demolished and the good ones are trying to grow back.
Things will improve but it will be awhile after you are thru with your treatments.  Go easy on yourself and have some patience, it does get better.  We all recooperate at different speeds.


Edited by trip2 - Apr 20 2009 at 4:51am
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Post Options Post Options   Thanks (0) Thanks(0)   Quote trip2 Quote  Post ReplyReply Direct Link To This Post Posted: Apr 20 2009 at 4:55am
Melissa I had no idea the LA orgainizaton had a program set up at Y's across the Country what great news.  Now if I only had YMCA.Cry
 
My personal experience with radiation was not difficult at all.  Some of us have worse times than others just like with chemo.  Fatique was my main complaint I would say but no big deal really but as we know that is not the case for some.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote kirby Quote  Post ReplyReply Direct Link To This Post Posted: Apr 20 2009 at 1:28pm
Reggie24,
 
I didn't have as much chemo as you but was out of breath and activity level way down. I saved my energy so I could work. I had to walk up a slight hill to a concert during tx and half way to the entrance, I stopped and cried because this was something that had been so simple prior to tx.
 
I was so excited to be done with chemo I started running immediately, not far but was so glad to breath & move. I did have to discontinue towards the end of radiation. A bit of fatigue and very uncomfortable wearing the appropriate bra.I do think I maybe ran for 3 weeks. It has been so long that my memory is sketchy.  I tried weight lifting during rads but quit that too. The dr's didn't know what to tell me when I asked for advice about excersizing. With the lifting it was uncomfortable and I wasn't sure how much stretching and/or harm it was doing to muscle. Hopefully dr's have much more info on all that by now. My onc was always wonderful saying do what is comfortable. The radiologist was a d*ck. I only saw him because he was the one available at the early appt. I preferred. Trust me, I switched for the annual visits to a colleague.
 
After all tx was over, I began running again with no problems. Weight lifting seemed to bring the hot flashes on so I took a yoga class for the first year after and then resumed weight training once it was more comfortable. Some of it I just had to push myself.
 
I did feel I never quite regained my energy level but ended up being dx with thyroid a year or so later when that was checked.
 
Radiation was so much more comfortable it seemed like a cakewalk !
kirby

dx Feb. 2001. Age 44
Lumpectomy

2cm. no nodes stage 1 grade 3

4 rnds AC, 35 rads
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Reggie24k Quote  Post ReplyReply Direct Link To This Post Posted: Apr 25 2009 at 2:56am
Thanks Jenny,
     That sure makes me feel a lot better. I have managed to not miss any work during the course of my treatment so far. But as soon as I get home from work I head for the couch to take a nap. I just finished my last round of chemo and my toes and fingers under my nails hurt so bad that I can't hardly type this. I am looking forward to getting my energy and life back. Thank you for your post.

hugs,
Reggie
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Reggie24k Quote  Post ReplyReply Direct Link To This Post Posted: Apr 25 2009 at 3:04am
Hi Kirby,
    I know this is all frustrating. I am looking forward to having this all behind me. I do hope that the radiation is easier than the chemo. My chemo treatments were supposed to be 4 treatments of taxotere and cytoxine, once every 3 weeks, but my oncologist/surgeon said that young healthy individuals could do it every 2 weeks. Not that I am really young (49) but I am good health considering, I talked my oncologist into every 2 weeks. It has taken its toll on my body but at least right now it is over. I feel better with each passing day but just waiting to quit getting out of breath at the least bit of effort. Thank you for your post.

Hugs, Reggie :)
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Reggie24k Quote  Post ReplyReply Direct Link To This Post Posted: Apr 25 2009 at 3:13am
Thanks Pam,
    I did talk to the Dr. and he said probably 3 months after radiation I would start feeling like the old me. Can't wait. This whole process has opened my eyes. I would like to help others going through cancer. After my radiation I am thinking about enrolling in a class so that I can help others going through cancer. I have found that there are so many organizations that help people going through cancer that it is overwhelming. I would just like to do my part. Oh yeah, I can't wait for my hair to grow back either......LOL

Hugs, Reggie


Edited by Reggie24k - Apr 25 2009 at 4:37am
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Melissa Quote  Post ReplyReply Direct Link To This Post Posted: Apr 25 2009 at 3:31am
Let me know what you find out about helping others. After this expeience I also want to gove back as so many have helped mein so many ways.
I just had my 5th of 8 chemo rounds and am dealing w/ annoying bone pain from the neulasta shot and effects from taxotere. I hope radiation is a walk in the park after all these side effects.I will be done w/chemo june 4th :-)
NEED A BREAK!!!!!!!!!
dx Jan. 2009 w/ Stage 1 IDC triple negative, 1.8 cm and clear sentinal node.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Reggie24k Quote  Post ReplyReply Direct Link To This Post Posted: Apr 25 2009 at 4:11am
Melissa,
      The program is called "reach to recovery". Go to www.cancer.org and visit  the "In My Community". or call 1-800-227-2345. It says that volunteers give support for:
  • people recently diagnosed with breast cancer
  • people facing a possible diagnosis of breast cancer
  • those interested in or who have undergone a lumpectomy or mastectomy
  • those considering breast reconstruction
  • those who are undergoing or who have completed treatments such as chemotherapy and radiation
  • people facing breast cancer recurrence or metastasis

It also says that volunteers are trained to give support and up-to-date info, including literature for spouses, children friends, and other loved ones.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote kat27 Quote  Post ReplyReply Direct Link To This Post Posted: Apr 25 2009 at 9:01am
  i dont usually post but reading this reminds me of what my treatment days were like. i have stage 3a with 7 positive lymph nodes,1.2 tumor of course also triple negative. this june 26 i will have hit the 3 year mark.i had immediate reconstruction tissue expander  but a few weeks later had to have tissue expander removed because i got mrsa skin infection.it was like going through a mastectomy twice. i had to go home on iv vancomycin for 4 weeks before i could begin chemo.  my chemo was dose dense adriamycin,cytoxan, and then taxol. what a year it was , i started chemo 911 2006. i did a dose of chemo at 10 and took my daughter at 3 to take her road test. she passed.it was ajoy to see her happiness. that fall we toured many colleges, i worked ,i did all my normal activities.my chemo was not cumulative. my last dose was december17,my chritmas present. one week later we went to orlando and i walked 12 hours at magic kingdom. i guess my chemo expeience was agood one. the hardest thing was for me to loose my long blond curly hair.this was my pride and joy.irefused to cut it and yes it did fall out but each hair that fell out made me angrier and angrier and detemined to fight this disease and win .there are so many memories i have during this time. what i try to remember EVERY DAY is that most women survive this disease and i am surviving and will continue to do so. try not to give cancer power in your life. each and every one of us has the power to mentally conqeur this monster.live your lives knowing that you never gave cancer the power.each day we have now is a gift. we have been given a gift that only us exclusive cancer club members can truly understand.fight the bear every day by LIVING
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Melissa Quote  Post ReplyReply Direct Link To This Post Posted: Apr 25 2009 at 10:04am
Kat,
Thanks for the inspiration. I get my chemo on Thursday and then reward myself w/ a massage on Friday and a relaxing weekend sent w; family before heading back to work on Monday. Positive survivor stories really do help me to keep my emotional spirits up. Keep them coming!
dx Jan. 2009 w/ Stage 1 IDC triple negative, 1.8 cm and clear sentinal node.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Reggie24k Quote  Post ReplyReply Direct Link To This Post Posted: Apr 26 2009 at 1:37am
Kat,
Congrats to you. Sounds like it is just a bad memory for you now. A lot of good things have come out of this experience for me. Like, I try not to take life for granted because every day is a gift. I try not to say bad things about people or whatever the case may be. It has brought me even closer to those I love. I pray daily or sometimes more than once. And I try to help others. I just finished my chemo this past Tuesday and I am so glad that it is over. Each one seemed to get a little worse. The third one was the worst of all....I blacked out and cracked the back of my head on a concrete wall. Wow, did that hurt. Headache, large bump, abrasion. Even made my wig fit tight. The last one just seemed to zap everything that I had. Even as we speak my house is a mess. It is hard for me to do anything because my fingers under my nails hurt so darn bad that I can't pick up anything and it is hard to type this message. I am still looking at 6 weeks of radiation but hoping it won't be as bad as the chemo. And I did cut my hair because it made me feel like I was the one who was in power. I was not going to let the cancer beat me! And that was a tough choice because I had long brownish blond hair which I had all my life. But maybe this was God's way of telling me that I needed a new hair style......LOL


Edited by Reggie24k - Apr 26 2009 at 1:37am
dx 1-23-09, lumpectomy 2-20. 1.2cm, Stage 1, grade 2. no nodes, clean margins. Genetic testing=negative
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Reggie24k Quote  Post ReplyReply Direct Link To This Post Posted: Apr 26 2009 at 4:07am
Hi PattiKakes,
      I had a lumpectomy in Feb of this year, while they were there they installed a port on the right side of my chest. It sticks out where you can feel the bumps in it but otherwise pretty comfortable. I shaved my head because I knew what my sister went through. She would wake up and find clumps of hair on her pillow. This was devastating for her and I was not going to allow that to happen to me. I am the victor in this situation! As for the chemo, I never got sick where I was throwing up. I did have a little indigestion and when I would eat my throat felt real warm when the food was going down. It made me extremely tired but I made it to work every day. The only day that I missed was the day of my surgery.
dx 1-23-09, lumpectomy 2-20. 1.2cm, Stage 1, grade 2. no nodes, clean margins. Genetic testing=negative
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