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had my first chemo!

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gerriesue View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote gerriesue Quote  Post ReplyReply Direct Link To This Post Posted: Apr 07 2009 at 10:32am
yah, It seemed I cried a lot during chemo. Especially at church! It felt almost hormonal, just like when you are first pregnant. I'd cry on the phone, to strangers, or especially when I was having to tell someone for the first time about the diagnosis. It is a rollercoaster, hang on!! luv, gerriesue
57 yrs. old at DX Oct. 2008 Stage 1, Grade 3, TNB, 1.7 cm tumor,Negative nodes TX partial masectomy, 4 rounds A/C, 4 rounds Abraxane
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Post Options Post Options   Thanks (0) Thanks(0)   Quote HairSprayMom Quote  Post ReplyReply Direct Link To This Post Posted: Apr 07 2009 at 10:38am
Thats fine Bon. You are entitled to a good cry. Heck were girls..we are allowed! HAHA Have a cookie and some tea. Cookies make everything all better.

Sending HAPPY THOUGHTS!!!

Regina
39 yr old. DX Metaplastic Carcenoma/Triple Negative IIIb 9-26-07, bilat mod rad MX 10-1-07, 2.7cm in Chest Wall. Dense dose Chemo 11/07-03/08 AC/Tax. NED 4-09 YEA! Deconstructed 12-13-10 & Happy!
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Post Options Post Options   Thanks (0) Thanks(0)   Quote PATTIKAKES50 Quote  Post ReplyReply Direct Link To This Post Posted: Apr 07 2009 at 11:30am
I was diagnosed with TNBC in February 09.  I underwent a lumpectomy and axillary node dissection on March 24 (1/20)and will begin chemo within the next week or two.  I am happy that I found this site and, after reading for a while, decided to join.  As strong as I am trying to be, this whole ordeal gets a little overwhelming at times and, like the typical woman, I find it difficult to ask for help.
 
I look forward to having the opportunity to reach out to women who really know how I feel and hope that you all will be tolerant of my questions. 
 
My biggest fear is the effects of the chemo - my onc already advised me to cut my thick natural hair so that I am not traumatized by seeing clumps of it wash down the shower drain! Is it true that this will happen after my 1st treatment (ACx4 Taxolx4 then radiation)?  I'm told that any nausea can be minimized so, hopefully that will not be an issue.
 
Also, does anyone have experience with a port?  My veins are almost non-existent so I'll need to get one.  Thanks!!!Big%20smile
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Diane in AZ Quote  Post ReplyReply Direct Link To This Post Posted: Apr 07 2009 at 12:03pm
Hi Patti,
 
Go ahead and ask us as many questions as you want.  I wish I had known about this website when I was being treated.  I could talk to women in my area who had been through breast cancer, but not one of them had been triple negative so I felt alone.  But you don't have to feel alone here!
 
Yeah, you'll definitely want to get a port.  I think most of us had/have them during treatment, although I may be wrong.  It's a quick, out-patient procedure with minimal pain (at least for me).  I even started chemo the next day, so it's pretty easy and definitely saves our poor veins!
 
About your hair . . . I believe it starts falling out between Day 12 and Day 14 after your first chemo treatment.  When I noticed more than the usual amount of hairs coming out I proceeded to march down to my hairdresser and got a buzz cut.  Much better than hair all over the place.  Plus, I felt in control of that part of the process.  If you feel like you want to wear a wig during treatment, start shopping now for one that looks pretty close to your usual hair color and style.  I actually had people ask me when my hair was going to fall out because they thought my wig was my real hair.  Wink
 
If your doctors and nurses are on top of everything, they will give you prescriptions for everything before you will need them.  That includes anti-nausea medication (ask for two . . . . the usual one and the heavy-duty one, in case the usual one doesn't work), and also the steroids you will need for your Taxol.  Go ahead and get everything so you'll have them on hand when you need them.
 
I'm sure these wonderful ladies will add to your knowledge so you won't feel like you're alone.  Remember that we're just a website away with help and understanding and encouragement for you.
Diane

Hope is the thing with feathers
That perches in the soul,
And sings the tune--without the words,
And never stops at all
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Post Options Post Options   Thanks (0) Thanks(0)   Quote HairSprayMom Quote  Post ReplyReply Direct Link To This Post Posted: Apr 07 2009 at 12:10pm
Hi Patti and welcome!

I had the port and I was very happy with it. I was sore for a few days after placement, but it was a God send! I cut my hair as well. 1st I cut it short  and donated it to locks of love (I had really long hair). About 2-3 weeks into chemo I got a pixi cut. Then I had a party to shave my head bald. You will feel much better without having to worry about hair and just imagine NO BAD HAIR DAYS! HAHA I chose not to wear a wig, but I bought all kinds of cute hats to wear. It gave me an excuse to shop.YEA!

Sending happy thoughts!

Regina
39 yr old. DX Metaplastic Carcenoma/Triple Negative IIIb 9-26-07, bilat mod rad MX 10-1-07, 2.7cm in Chest Wall. Dense dose Chemo 11/07-03/08 AC/Tax. NED 4-09 YEA! Deconstructed 12-13-10 & Happy!
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Post Options Post Options   Thanks (0) Thanks(0)   Quote bondande Quote  Post ReplyReply Direct Link To This Post Posted: Apr 07 2009 at 2:00pm
hi patti,       glad you joined us.    im a young 54, two boys aged 26 and 27, i guess they are men now, and a wonderful husband who is a very hard working architect..     life was pretty grand.     we took everything for granted as most people do.  then the stock market fell,  obama was elected ,  (sorry democrats) and you find the lump.     everything changes, some for the better.       you find out who your friends are,   that" things "dont matter much to you,   and that you  are very vulnerable.    you look at people differently and have more compassion for people who are struggling.     at least , so far, that has happened to me.    of course at first your world crumbles,     you cry, your scared,  you hate that its happening,    then one day you realize you are not alone, and that we are all going to die someday, and that there are millions of women going through or have gone through the same thing.    they are going on with their lives,   dealing with it.    you will too.              i am stage 2 a triple negative.    no lymph nodes, 3.8 cm tumor.    on wednesday , april 1st  i  had the first of  my  8, every two week chemo treatments  which will be followed by 4 weeks rest before starting 5 weeks of radiation 5 days a week.  i  should be done the second week of october.    the first night i was a bit queasy ,   felt a bit wiped out the next day, like i was in a fog.   the next day i went in for my neulesta shot.   uneventful really. i cried in front of the nurse who gave it to me.   she was understanding.   i did have a headache at times but not bad.       i slept sitting in a recliner which helped, and i  took it real easy eating only crackers, water ,yogart, whatever sounded good.    i drank LOTS of water then i drank more water.  its important to flush that stuff out of your system as quickly as possible.    im a retired hairdresser.   i bought a wig for special occasions, then i ran a #4 clipper attatchment across my head which revealed my now grey hair.    i love it.      my sons and i have the same haircut.    so easy.     im going to enjoy it til it falls out completely.   i dont want to lose my long eyelashes or dark eyebrows.   but , oh well.   its going to happen.        i will pray for you and wish you the best while you go through this shxt.    but you can do it.    all of us here will help.     blessings to you and your family,         bonnie.                                   oh and yes i have a port .     it is better than getting an iv each time  i understand, so if drs . want to put one in,    i think youll be happy you did.

Edited by bondande - Apr 07 2009 at 2:06pm
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Post Options Post Options   Thanks (0) Thanks(0)   Quote trip2 Quote  Post ReplyReply Direct Link To This Post Posted: Apr 07 2009 at 4:52pm

Hi Patti, we are so glad you joined us. 

In the Resource section you will find chemo/radiation tips and articles you might find interesting.  Near the top of the page there is a link that says Resource, if you click on that then you'll have a drop down, click on Taking charge of your care.
 
The beginning is so very overwhelming and now we are lucky enough the Foundation was kind enough to provide a forum where we could finally come together.  Since we are such a small group of breast cancer we can feel pretty darn alone sitting in our home thinking we are alone.
 
Many women take a mild sedative and/or a anti-depressant to help get thru this difficult time.  Try not to look ahead, no one has any idea what lies ahead so focus on today, an hour at a time if you have to.
Once treatments begin then things will fall into line.
 
There are also some hat/wig/scarf links in the Resource section.
http://www.tlcdirect.org are two places that have large selections of head wear.  Summer is coming so you might find a wig hot and some can be scratchy on a tender head.
Pick up a satin pillowcase, it feels so good and helps to make you feel special which you are.  A sleep cap also feels good for night time, they are soft and our heads can get cool.
 
Arrange for help thru family/friends, someone to run errands, collect meds, grocery shop, bring by supper.  During you treatment you will probably have days you'd rather not mess with these everyday things.  This is about you now so delegate.  It is hard but it is important.  You've got to get better.
 
Ask us any questions and we will do our best to help.  We do understand the stress, tears, anger, anxiety and it is normal.  A rollercoaster ride since cancer also works on our emotions.
 
Be sure and prepare a chemo bag, pack water, snacks, newspaper, mag, ipod, take company if you can, they can go out to bring back lunch and you have someone to talk to, makes it go faster.  Be sure and ask any questions you might have to the Onc or nurse and have paper and pen so you can take notes.
 
Also get copies of all your bloodwork, pathology, any scans and office dictation if you prefer.  You want to prepare a file for yourself at home.
 
Best wishes
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Post Options Post Options   Thanks (0) Thanks(0)   Quote bondande Quote  Post ReplyReply Direct Link To This Post Posted: Apr 09 2009 at 4:45pm
ive had an emotional day.    many ups and downs.    songs trigger tears.   shocked faces of friends when they see me bring tears too.    i wish i could figure out a way to hold them back..............  the sun will come up tomorrow
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Post Options Post Options   Thanks (0) Thanks(0)   Quote trip2 Quote  Post ReplyReply Direct Link To This Post Posted: Apr 09 2009 at 4:48pm
Oh my dear you bet the sun will come up tomorrow!  We have all had those days I'm afraid and you may have more before it's over.
 
I'm pretty wobbly also with my markers being off.
 
Tomorrow will be a better day.  Sounds like a good night's sleep will do you a world of good.
 
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Post Options Post Options   Thanks (0) Thanks(0)   Quote partner to one Quote  Post ReplyReply Direct Link To This Post Posted: Apr 09 2009 at 4:59pm
you have a great attitude and that will be good to see you through this tough time.

What helped us:

1. Bring your slippers to the chemotherapy ward, it will make you feel more comfortable, be sure to ask for the "warm blankets".

2. You should not have to feel sickness, so if you do let your oncologist know, we went through 27 weeks of various chemotherapy drugs and never once had got sick.

3. You are right about the cumulative effect of chemotherapy. It does get a little worse as you get close to finishing the treatments.

4. Try to have ready made meals for dinner that night. Usually I cooked something that only had to be reheated the day of chemotherapy.

5. Do drink lots of water, and try and laugh, it is so important to keep your humor.

I wish you the best, take one day at a time, and if you need anything and have friends that offer to do things for you...take them up on it.

Dave
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Post Options Post Options   Thanks (0) Thanks(0)   Quote trip2 Quote  Post ReplyReply Direct Link To This Post Posted: Apr 09 2009 at 6:11pm
Great ideas Dave, thanks!
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Post Options Post Options   Thanks (0) Thanks(0)   Quote bondande Quote  Post ReplyReply Direct Link To This Post Posted: Apr 14 2009 at 2:20pm
going for my second treatment tomorrow.   scared.   first one went ok,  hope this one will too............................    bon
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Post Options Post Options   Thanks (0) Thanks(0)   Quote bondande Quote  Post ReplyReply Direct Link To This Post Posted: Apr 14 2009 at 2:24pm
thanks dave for the tips.       fear is my worst enemy.   i try to knock it down with prayer.    still creeps in .......   my second treatment is tomorrow.    deep breath.        bonnie
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Post Options Post Options   Thanks (0) Thanks(0)   Quote gerriesue Quote  Post ReplyReply Direct Link To This Post Posted: Apr 14 2009 at 2:57pm
I found that I would start feeling anxious about two to three days before chemo. I took ativan at night and it really helped me sleep through the night. Before I did that I would fall asleep and then wake up two hours later and not be able to get back to sleep. I would get up and have tea, sometimes a cookie. Sometimes I would take one during the day as well.
57 yrs. old at DX Oct. 2008 Stage 1, Grade 3, TNB, 1.7 cm tumor,Negative nodes TX partial masectomy, 4 rounds A/C, 4 rounds Abraxane
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Post Options Post Options   Thanks (0) Thanks(0)   Quote trip2 Quote  Post ReplyReply Direct Link To This Post Posted: Apr 14 2009 at 3:30pm

Bondande,

Honey try to take it a day at a time, hour however you can.  If you aren't taking a sedative try one, they help.

If possible take someone with you for distraction or pack a chemo bag with things to do to keep you busy.

It will be ok.  We are here anytime, you are in our thoughts and prayers and just come talk anytime.  Let us know how you are doing.Hug

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Post Options Post Options   Thanks (0) Thanks(0)   Quote HairSprayMom Quote  Post ReplyReply Direct Link To This Post Posted: Apr 15 2009 at 2:06am
Hi Bon,

I took Xanax at night and during the day sometimes while going through treatment. It is a lot to take in at one time and sometimes the fear of the unknown is worse than just knowing how your body will react. I took someone different with me almost every time I had chemo. We kinda made a game out of it...whos takin mama this time. It is good to have some distraction to make the time go quicker. Hang in there we all know YOU CAN DO IT!!!Thumbs%20Up

Sending Love and Happy Thoughts!!

Regina
39 yr old. DX Metaplastic Carcenoma/Triple Negative IIIb 9-26-07, bilat mod rad MX 10-1-07, 2.7cm in Chest Wall. Dense dose Chemo 11/07-03/08 AC/Tax. NED 4-09 YEA! Deconstructed 12-13-10 & Happy!
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Post Options Post Options   Thanks (0) Thanks(0)   Quote bondande Quote  Post ReplyReply Direct Link To This Post Posted: Apr 15 2009 at 9:14am
well i'm home from treatment #2.   just juiced some apples with some ginger and ate a few saltines.    and drinking lots of water, of course.    all is well so far.   i have a look good feel good class at 3.  thanks so much for your responses.  i'm telling anyone, if i can do this stuff, anyone can.   and im doing it.     good advice on the sedative.  i wont hesitate this time.  my husband went with me.  he is such a doll baby.  im so glad to have another treatment behind me.    2 down,   6 to go........    :)  God Bless,    bon
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Post Options Post Options   Thanks (0) Thanks(0)   Quote trip2 Quote  Post ReplyReply Direct Link To This Post Posted: Apr 17 2009 at 2:32pm
Hey bondande,
How did the look good feel better program go, aren't they fantastic!  I went once and really enjoyed it, it surprised me.
Yes a sedative and/or a anti-depressant.  We might sound like druggies in here, it isn't meant that way but these meds do help us through a very difficult time.Hug
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Reggie24k Quote  Post ReplyReply Direct Link To This Post Posted: Apr 18 2009 at 6:35am
I haven't written on here in a while, but I am getting ready to do my 4th chemo treatment which is my last.....taxotere and cytoxan. The first one, I got a bad sinus infection (which I was probably going to get anyway), the second one, I ended up with a 102 degree fever, after the third one I got feeling really sick, so I took an anti-nausea pill and ended up passing out and cracking the back of my head really bad. Now I am freaking out thinking what might happen after #4. Has anyone else experienced anything like this?
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Post Options Post Options   Thanks (0) Thanks(0)   Quote trip2 Quote  Post ReplyReply Direct Link To This Post Posted: Apr 18 2009 at 1:13pm
Hi Reggie24k,
 
I have had Taxotere, no Cytoxan.  I ran fevers most times I had an infusions, probably 4 out of 6 treatments I was in the hospital with neutropenia and other issues also came along.  I was very ill and a year and half later I am still recovering.  I did pass out but there was so many health problems I was dealing with I don't know what caused those to happen for sure.   I have one big toe that I evidently hit on something hard when passing out the last time and it has to be broke.  It has never healed right.
Taxotere can be rough.  I know many get along easily enough but not all of us. 
I never had nausea issues though.
 
You should discuss your concerns with your Onc or the nurse and see if they can somehow change your med some or give you something to help keep you from having anything happen.  Are you having the Neulasta shots?  They help most but they were useless for me.
 
Taxotere is supposed to be good for tri negs but I sure don't want to look at another bag of it.Confused 
It would be great if you can finish out your treatment though as planned.  Talk to them and see what they say.  They need to know what is going on with you anyway.  Have you been calling them when these things happen?
Good luck to you and hope you'll update us!
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