Will post here today (also responded via messenger)
Hi,
Yes, I started the Xeloda and mistletoe injections together. I started round 3 of Xeloda today.
The first round of Xeloda was unremarkable. Half way through the second round, I got very nauseous and vomited. I called triage and they suggested I start to take Zofran to control the vomiting and nausea. While the vomiting stopped, the nausea continued. My appetite decreased tremendously and I had occasional cramping in my stomach. I lost 3 lbs during the "bad" week of Xeloda. Once I stopped the Xeloda, things improved.
I had labs and follow up with my oncologist yesterday. She is not convinced that my nausea and vomiting was from the Xeloda since I did well the first round. My labs came back good - both red blood cells and white blood cells are coming back strong (I did infusion chemo first, then surgery, now Xeloda). Takes a while for those counts to come back from the infusion chemo.
I discussed the nausea and vomiting with my naturopath and she suggested a ton of remedies and supplements to help, so I am prepared if the nausea and vomiting comes back.
So far, no signs of hand / foot syndrome or diarrhea with Xeloda (which from what I understand are the most common side effects).
Re: mistletoe, I am doing well. I was nervous about injecting myself but its pretty easy once you get the hang of it. Typically, it takes a while to find the right dose / level of reaction, however, I got an amazing reaction at 1 mg (which is the lowest ampoule from the pharmacy I buy from). So much so that my naturopath advised me to try .5 mg (1/2 ampoule) and I am still getting a good reaction there. I believe the mistletoe is recommend for years, so good to get comfortable with it.