Hello! It’s been a long time since I have posted, I had nearly reached 5 years cancer free when I was diagnosed this past fall with a recurrence - a large brain tumor! I had a craniotomy that removed the tumor and speech therapy, OT and PT to rehab. I had cyberknife to the cavity/surrounding tissue in my brain, started Xeloda and was NED as of Jan! I was thrilled to receive that good news, and was hopeful the good news would continue while I continued with scans every 3 months.
This week my brain mri showed tumors in the dura layer of my brain, it’s been a bit of a blow. I’m getting in with my various specialty oncologists, first is my cyberknife dr. then surgeon. I don’t believe I am a surgical candidate since there are multiple spots. We will see and weigh all the options.
I will also see my medical oncologist, who does only breast cancer and is at a NCI/NCCN cancer center. My neuro onc said chemo and immunotherapy are options for part of my treatment plan.
I’m still in a bit of shock over this, staying positive but still in disbelief that I’m dealing with brain Mets again. Taking it one day at a time helps.
Anyone else with brain mets, or anyone that experienced that disbelief- like I didn’t think any of this could/would happen to me. And now adjusting life to a new normal, while grieving a loss of the future I thought I was going to have. Even the summer I thought I was going to have!
Support & encouragement appreciated.