Triple Negative, ki67 = 72%
3 smaller nodules lumped together forming a 5cm mass on my left side
Age 41, mother of two kids, both breastfed at least 6 months
No family history; have not yet done genetic testing
Found out 8/27 that I have cancer (received a call when I was at jury duty!)
Starting dense dose AC+T treatment next Thursday 9/20.
Port install on Monday and PET scan Wednesday.
Received diagnosis at a private breast specialist practice and started having conversations about surgery with a breast surgeon there and she even went ahead and had me meet a plastic surgeon too even before referring me to a Medical Oncologist because my final path results were still pending (the results that would indicate I have TNBC). After having choosing a medical oncologist at Emory Winship, I have since decided to go with a Surgical Oncologist at Emory too. The switch itself got stressful with multiple record transfers, lost CDs and finally being asked to redo all ultrasound, MRIs and a node biopsy etc.
That said, now that the full transition has been made, I'm appreciating how thorough my new surgical oncologist is.. she was the one adamant that I get new imaging done including a biopsy of the nodes that looked clear, and also insisted that the PET scan happen before the first chemo when my Medical Oncologist suggested getting chemo a day earlier than the PET scan shouldn't be a problem, because he knew how eager I was to start treatment asap. I'm guessing she's had experience with TNBC. I just looked her up.. yes she is experienced! She was on the scientific committee of a recent TNBC conference!!
The tiny incisions the biopsy and clip placement made are limiting my arm movements and I'm constantly icing it. I'm dreading how painful surgery is going to be!
(Unfortunately previous dr mentioned she would be placing a marker clip during my first biopsy of the lump and gave me the whole explanation of what it is, but she must have forgotten to place a marker, so I had to get it "redone"! I was so confused to hear that they couldn't find the marker)
That was kind of long... but this is my story so far...
So glad I found a forum of other TNBC patients like myself. Finding that I quickly get turned off when folks talk about all these other BC survivors they know. I need to know if they were TNBC too.
Thank you in advance