New Posts New Posts RSS Feed - Telling your loved ones you have Cancer?
  FAQ FAQ  Forum Search   Events   Register Register  Login Login

Telling your loved ones you have Cancer?

 Post Reply Post Reply
Poll Question: How did you tell your family about your cancer?
Poll Choice Votes Poll Statistics
20 [66.67%]
9 [30.00%]
1 [3.33%]
0 [0.00%]
0 [0.00%]
0 [0.00%]
You can not vote in this poll

Author
hdeall View Drop Down
Groupie
Groupie


Joined: Jan 03 2009
Location: Southern Calif
Status: Offline
Points: 42
Post Options Post Options   Thanks (0) Thanks(0)   Quote hdeall Quote  Post ReplyReply Direct Link To This Post Topic: Telling your loved ones you have Cancer?
    Posted: Apr 28 2009 at 8:52am
I've recently been talking to newly diagnosed women and I want to ask a series of questions.  This is the first one in a series.  On this topic:  How did you tell you loved ones that you had Breast Cancer?:
 
I'd love to hear your comments.  Additionally, I'm trying to figure out separately how did you tell your children?  if they are under 10 or what age makes a difference.  is it different with girls or boys?  How honest can you be?  How honest do you have to be?  what are all the 'but's on this- depending on stage or what?
thanks sisters!Star
Back to Top
kirby View Drop Down
Senior Member
Senior Member


Joined: Oct 09 2007
Location: bay area,california
Status: Offline
Points: 1088
Post Options Post Options   Thanks (0) Thanks(0)   Quote kirby Quote  Post ReplyReply Direct Link To This Post Posted: Apr 28 2009 at 5:47pm
My daughters were 9 & 13 when I was dx. My mother had just passed away from ovarian 2 weeks prior. I had always been very upfront about Grandma's cancer. She had it 3 1/2 years. My daughters were used to seeing bald. My older daughter had just done a report for science on Ovarian cancer. If you can believe she needed permission from the principle because it being women's reproductive organs ! When I told my daughters the first words out of the oldest's mouth were " if you are going to have cancer this is a better type to have !" Whew, fortunately she really did her homework on that report. I worked thru treatment, keeping their schedule pretty much the same as always. Being a single parent I pretty much do everything. Occasionally someone else drove the older daughter to an event or something. Once I had to pick her up after I finished working. I felt really bad. Not enough energy to get out of the car to go get her but I couldn't wait in the car either. Fortunately she came out fairly soon. I just told her to hurry that I could barely make it. It would take all my focus to get us home. She offered to drive ! At 13, in a big city, there wasn't a chance !They both preferred my most "normal" looking wig, so that is what I wore when with them. The youngest didn't care if I went bald at home when her friends were over. All this was 8 years ago, My youngest now 18 recently commended me on how I handled things during that time period. She says it really didn't have much of an impact and she now realizes how much I did and went through and how normal I kept things. She recently did a paper for school about that time period. She wouldn't talk about it much but said I could read the paper. I had forgotten about it. I'll ask her tonight. Hmmm. I was always very honest.
kirby

dx Feb. 2001. Age 44
Lumpectomy

2cm. no nodes stage 1 grade 3

4 rnds AC, 35 rads
Back to Top
hdeall View Drop Down
Groupie
Groupie


Joined: Jan 03 2009
Location: Southern Calif
Status: Offline
Points: 42
Post Options Post Options   Thanks (0) Thanks(0)   Quote hdeall Quote  Post ReplyReply Direct Link To This Post Posted: Apr 29 2009 at 5:12am
Thanks for sharing - so much from the heart.  And your daughters sound amazing.  Hate to ask- but were you BRCA tested?  and the girls?  my girlfriend when 1st diagnosed was asked about getting she and her daughter tested- at that time 10 years ago, she thought they were nuts- Sara was only 11 years old.  Now that her cancer has come back, now that we've learned so much more about BRCA (since I am positive) they are re-thinking what they are going to do.  Sara is an adult now and it really is her choice...but tough on all to face.  (IF you face any of this- the book:  Preetty is What Changes is very well written)
Back to Top
kirby View Drop Down
Senior Member
Senior Member


Joined: Oct 09 2007
Location: bay area,california
Status: Offline
Points: 1088
Post Options Post Options   Thanks (0) Thanks(0)   Quote kirby Quote  Post ReplyReply Direct Link To This Post Posted: Apr 29 2009 at 1:36pm
I have been BRCA tested. Thank you.Probably in 2003. I had to meet with geneticist several X as well as a therapist before they would do the testing. My insurance paid for all. I always assumed that this was the procedure for everyone but have gathered most just do the blood test.  I was negative. I realize that is a good thing but I wanted a reason for my cancer. I came to realize luck of the draw. My mother was only 64 when she passed away and I was 44 when dx. We have been the only ones in the family to have these cancers and at younger ages. I think I'll read your book recommendation regardless.
kirby

dx Feb. 2001. Age 44
Lumpectomy

2cm. no nodes stage 1 grade 3

4 rnds AC, 35 rads
Back to Top
hdeall View Drop Down
Groupie
Groupie


Joined: Jan 03 2009
Location: Southern Calif
Status: Offline
Points: 42
Post Options Post Options   Thanks (0) Thanks(0)   Quote hdeall Quote  Post ReplyReply Direct Link To This Post Posted: Apr 29 2009 at 5:19pm

Yeah, guess it does make it easier to know where i got the pain in the neck...but then again, i've been dealing with 'knowing' that i'd get it for over 41 years.  I was 12 when my mom died.

I did question why i bothered to stay healthy and fit- when this was going to happen anyway.  but as everyone yells at me - they add that being somewhat fit has probably made recovery 'easier'.

yeah, life's been really easy- huh!

Back to Top
Shelley View Drop Down
Groupie
Groupie
Avatar

Joined: Feb 21 2009
Location: United States
Status: Offline
Points: 79
Post Options Post Options   Thanks (0) Thanks(0)   Quote Shelley Quote  Post ReplyReply Direct Link To This Post Posted: May 20 2009 at 1:58pm
I had to tell my 5-6 kids in Kindergarten last year that I had cancer and would be gone the last two months to do treatment.  When I came back with a hat this fall, all kids knew.  Here's how I told them.  I said I had a back sickness under my arm and on my chest wall.  That I was going to take a really strong medicine to make it all go away.  That medicine was so strong that my hair would fall out and I wouldn't feel so good.  But that soon I would feel better and the hair would grow back.  That's all I needed to say and all kids were great. 
My oldest is an RN.  I had to tell her on the phone.  Tears and then good.  She drove the doctors crazy with questions, but it was great to have another brain and ear. I told my college girls the same thing - more detailed.  My dear hubby was with me all the way, at diagnosis, appts, and never waivered.  Few tears when I had tears but not much to say.  Asked a few Q when he could see I was overwhelmed. 
Something we are taught as guidance counselors, is to never try to hide info from kids.  They definitely know that something is going on and feel left out and confused if you aren't upfront.  The older they are the more devalued they will feel even though we think we are loving them more by keeping something from them.  Tell them the facts.  You only have to add the details to the level they can understand.
Back to Top
 Post Reply Post Reply
  Share Topic   

Forum Jump Forum Permissions View Drop Down

Forum Software by Web Wiz Forums® version 12.01
Copyright ©2001-2018 Web Wiz Ltd.