| Author |
Topic Search Topic Options
|
MaryFox
Groupie
Joined: Aug 20 2013
Location: Vero Beach, FL
Status: Offline
Points: 46
|
Post Options
Thanks(0)
Quote Reply
Topic: Newbie Here Posted: Aug 20 2013 at 6:25pm |
I've just been diagnosed with TNBC. I'm 70 years old so It looks like I'm very much in the minority here age-wise. Right now my biggest problem is waiting. Lumpectomy is scheduled for 8 days from today. I don't wait well. What scares me the most is what this will do to us financially. We're retired and living on a fixed income and I've been reading about the costs of chemo. Holy Cow!!!!!!!! At this point, the disease doesn't frighten me. With one exception everyone in my family has had cancer. In fact, I had cervical cancer 20 years ago and came out just fine. But I know that I'm entering foreign territory now so I'm grateful for all the warmth and support I see on this forum. Onward and upward, as they say.
|
 |
SueCape
Newbie
Joined: Jul 02 2013
Location: Mass.
Status: Offline
Points: 16
|
Post Options
Thanks(0)
Quote Reply
Posted: Aug 20 2013 at 8:09pm |
|
Mary, So sorry that you are going thru this. I am almost done with chemo( very doable). Had a mastectomy in June. Will follow with radiation. I get my treatment in Boston. You should ask to speak with a social worker at the hospital. They do have reduced or free treatment available. Also I believe Obama care is kicking in in October. The last thing you need to worry about is the cost of treatment. I am sorry for the stress. You need to worry about getting well. I have so much hope and I don't always feel positive energy on this site. My best wishes to you. You are in my thoughts and prayers.
|
 |
Charlene
Senior Member
Joined: Aug 14 2010
Location: Atlanta, GA
Status: Offline
Points: 613
|
Post Options
Thanks(0)
Quote Reply
Posted: Aug 20 2013 at 8:25pm |
Welcome, Mary, but sorry you have a reason to be here. I admire your courage when you say that the disease doesn't frighten you. I, too, was shocked at the cost of chemo. I assume that Medicare covers this cost? Perhaps some others will respond who had chemo under Medicare. From the time of my diagnosis until my lumpectomy, a month passed, so 8 days (while the waiting will still be awful) is really not too bad. Wish you the best. Charlene
|
|
DX 3/10 @59 ILC/TNBC Stage 1, Grade 2, Multifocal; Lumpectomy/re-excision SNB 0/4 nodes, BRCA-; Taxotere/Cytoxan X4, 30 rads 3/14:NED
|
 |
Nana Mimi
Newbie
Joined: Jun 14 2013
Location: Framingham, MA
Status: Offline
Points: 34
|
Post Options
Thanks(0)
Quote Reply
Posted: Aug 20 2013 at 8:33pm |
Welcome MaryFox,
Yes, waiting is very hard. Any hobbies you have - now's the time to pursue them - or try a new one! Reading is sometimes difficult when you are under stress. I found sewing and jigsaw puzzles a great distraction. Also I listened to a lot of comedy on CD's. Pandora radio lets you pick anything you like! Keep a journal - just open up a word page and type away your worries. Try to keep busy while you wait.
I found it helpful to keep a notebook with questions to ask my oncologist and whom ever I was going to see next. Write down the answers or have someone go with you for your appointments and take notes.
As for finances - I'm guessing you are already on Medicare and may also have supplemental insurance. I have found Medicare to be very good. Our out of pocket has been manageable. Yes, the costs of some of the drugs are very expensive but they have made chemo more than tolerable. Not a moment of nausea/vomiting and my blood counts have not dropped a bit thanks to Neulasta. The most I have had to pay has been a $40 co-pay. I had a good supply of OTC meds like ibuprofen, Tylenol, stool softeners, antacids, so check for coupons and sales on those and stock up! My DH has a hip and a knee replaced over the past 3 years so I had a good supply on hand!
I had my last chemo 8/6 and will start radiation next week. I have to say as I look back an what I have been through so far - it wasn't as bad as I thought it was going to be. And this is a great place for all kinds of support, answers and encouragement! There are some really, really smart people here. Don't be shy about joining us!!! Do check out the post about all the abbreviations you will see here. I made a copy and keep it here next to my PC for a handy reference.
Stay connected with us here and we will do what we can to get you through this. Good vibes are being sent you way!
Nana Mimi
|
|
65 yrs old. Dx 5/13. IDCIS. TNBC. Lumpectomy 1.1cm clean margins. SNB 0/3. Stage 1. Grade 2. 4/4 rnds TC. Rad X 33. Done!
|
 |
Lillie
Senior Member
Joined: Jul 10 2009
Location: Eastern NC
Status: Offline
Points: 3616
|
Post Options
Thanks(0)
Quote Reply
Posted: Aug 20 2013 at 9:19pm |
Dear MaryFox,
I welcomed you on another thread, but 'hey! who's counting?? You are not the oldest person on this site. I'm going to be 73 in January and there are others who are about that age or older. I was 65 at diagnoses, but just today, Aug. 20, 2013, I had my 7 year follow-up and was declared cancer-free by my oncologist. I was Stage IIb, Grade 3 with 1 cancerous lymph node. I had a mastectomy followed by very agressive chemo treatments. I know you are at the beginning of your journey, but so were we all once. Just keep posting and we will be your "cheerleaders"  . Remember, no question is too small or too large. No question is stupid when it comes to triple negative cancer. Ask away, we are here for you.
God Bless,
Lillie
|
|
Dx 6/06 age 65,IDC-TNBC Stage IIb,Gr3,2cm,BRCA- 6/06 L/Mast/w/SNB,1of3 Nodes+ 6/06 Axl. 9 nodes- 8/8 thru 11/15 Chemo (Clin-Trial) DD A/Cx4 -- DD taxol+gemzar x4 No Rads. No RECON - 11/2018-12 yrs NED
|
 |
Jude
Groupie
Joined: Feb 17 2013
Location: Maryland
Status: Offline
Points: 47
|
Post Options
Thanks(0)
Quote Reply
Posted: Aug 20 2013 at 9:27pm |
|
Lillie,
Congratulations on your good news. So happy for you! I'm sure you'll sleep easily tonight!
Judy
|
|
Dx TNBC 1/20/13; age 60 BRCA-, 4.7 cm, stage 2A, grade 2 lumpectomies 1/24/13 and 2/15/13 clear margins not obtained; SND 0/6 TAC chemo completed 6/21 bilateral mastectomy 7/25
|
 |
dldlogan
Groupie
Joined: Sep 02 2012
Location: Phoenix, OR
Status: Offline
Points: 83
|
Post Options
Thanks(0)
Quote Reply
Posted: Aug 20 2013 at 9:30pm |
Lillie,
Congratulations on your 7 year anniversary!!!!  Here is a toast to you!
Wishing you many more to come. Party time... 
"Cancer free" is something I can't wrap my head around. Maybe in time, I'll get to that point.
I like your new picture. I'll have to figure out how to do one of myown.
Lots of Love to you,
Diana
|
|
Diagnosis 6/25/12 Biopsy 7/20/12 Mastectomy 8/15/12 IDC 1.9 cm TN Gr 3 Stage I Chemo Start 9/27/12 ACT Done 3/7/13 BRCA Neg Reoccurence-Lung 12/3/13-Biopsy 12/16/13 Brain MRI 2/20/14 Stage IV
|
 |
Lillie
Senior Member
Joined: Jul 10 2009
Location: Eastern NC
Status: Offline
Points: 3616
|
Post Options
Thanks(0)
Quote Reply
Posted: Aug 20 2013 at 10:03pm |
Diana,
My oncologist said "cancer free".... I promise you I still cannot wrap my head around those words. He has said that every year since about the 3rd year after diagnoses, and I told him I didn't believe it; every year he would say, "well today there is No Evidence of Disease".
Today, I just decided not to question him about it.
I wrote in another thread that he told me today that there are no guarantees, but after 7 years the chance of recurrence becomes less and less. I have this hope today and I pray the same for everyone on this site.
Thank all of you for your wonderful comments.
God Bless,
Lillie
|
|
Dx 6/06 age 65,IDC-TNBC Stage IIb,Gr3,2cm,BRCA- 6/06 L/Mast/w/SNB,1of3 Nodes+ 6/06 Axl. 9 nodes- 8/8 thru 11/15 Chemo (Clin-Trial) DD A/Cx4 -- DD taxol+gemzar x4 No Rads. No RECON - 11/2018-12 yrs NED
|
 |
MaryFox
Groupie
Joined: Aug 20 2013
Location: Vero Beach, FL
Status: Offline
Points: 46
|
Post Options
Thanks(0)
Quote Reply
Posted: Aug 21 2013 at 9:45am |
Thanks to all for the warm response. Nana MiMi, I am encouraged by your comments about Medicare coverage and your lack of nausea. I have Medicare supplemental insurance but have never had to use it before so I'm hoping it will be adequate. I've started a spreadsheet to track expenses, and a hardcopy journal to keep track of details and questions for the docs. I also have started a blog www.beat3neg.blogspot.com where family, friends, and anyone else who's interested can follow my adventure. I'll be a regular visitor here; lurking, absorbing information, and contributing if Ican.
|
 |
Nana Mimi
Newbie
Joined: Jun 14 2013
Location: Framingham, MA
Status: Offline
Points: 34
|
Post Options
Thanks(0)
Quote Reply
Posted: Aug 21 2013 at 11:27am |
Hello Lillie and congratulations!!! Hope you have been treating yourself to something nice every year that you have been NED! I'm thinking of a circle pin to which I will add a diamond every year that I am NED!!!
And Hello again MaryFox - see, this is what you and I are looking forward to. From all I have read about TNBC the older you are at dx the better our chances of survival. I like to think of what I am going through this year as "Once and done!!!" As in there will be no re-occurrence and I will be NED every year from now on. I hope you will feel the same in a few months time. It's a scary and sometimes lonely journey but just reach out and you will find a helping hand! Sending you positive vibes and a cyber hug. Nana Mimi
|
|
65 yrs old. Dx 5/13. IDCIS. TNBC. Lumpectomy 1.1cm clean margins. SNB 0/3. Stage 1. Grade 2. 4/4 rnds TC. Rad X 33. Done!
|
 |
CAfree12
Groupie
Joined: Jul 26 2012
Location: Texas
Status: Offline
Points: 51
|
Post Options
Thanks(0)
Quote Reply
Posted: Aug 21 2013 at 12:53pm |
MaryFox,
So sorry that you are facing a new cancer. I know you are anxious about waiting for the surgery, but 8 days is really an acceptable (and sometimes considered quick) time period. I had to wait 5 weeks between diagnosis and surgery due to coordination of surgeon and plastic surgeon schedules.
Listen carefully to your medical oncologist about pros and cons of doing chemo at your age. 70 tends to be the cut off age for when to offer chemo depending on side effects, risk vs benefits.
(If taking chemo reduces recurrence risk from 20 to 10% - is it really worth it?)
I don't know what kind of Medicare or supplement you have - that will determine your out of pocket. I have major medical through my hospital and used all "in network" physicians and groups so that I would have the best coverage. I kept very careful records of every co-pay, RX payment and deductible / medical balance payments because we decided to pull from our 401K get back what we had paid out of pocket. The total came to about $9,000 over 12 months - that was with no radiation therapy. We had a $1000 deductible per person. I know everybody has different situations, but that was my out of pocket.
Good luck!
|
|
Diagnosed Oct 2011 @ age 53, Stage 1c, grade 3, 1.5Cm, neg nodes;double mastectomy with TE, dose dense AC+Taxol; BRCA neg; treatments finished April 2012
|
 |