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123Donna View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote 123Donna Quote  Post ReplyReply Direct Link To This Post Posted: Jan 02 2017 at 12:22pm
Penny,

You'd have to get an appointment with a new oncologist quickly in order not to delay treatment.  That may be difficult, but you can explain your situation and they could try to get you in sooner.  You would most likely have to gather all your medical records to be sent to the new doctor prior to the visit.  Breast oncologists are specialized oncologists for breast cancer.  

Here's a couple of links that might help you:






DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15

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Post Options Post Options   Thanks (1) Thanks(1)   Quote Jacklin Quote  Post ReplyReply Direct Link To This Post Posted: Jan 02 2017 at 1:15pm
Penny,

Donna wrote what I was trying to say much better. The oncologist should be a part of the team and if you don't like him/her, please get a new one asap. And yes, there are breast oncologists. This might not be as important now as treatment tends to be 'standard' ACT, but I would highly recommend finding a surgeon with a specialty in breast surgery. 

Please move quickly as Donna suggested, time is of the essence when one is dealing with TNBC. I hope you find a new MO soon.
Dx: Nov. 27/15, TNBC, left breast & lymph, BRCA -; Chemo: Dec 4/15 - Mar 4/16; 4 DD A/C, 3 DD Taxol; BMX/ALND: April 26/16; Stage 3C; Radiation: June 10-July 15/16; 1 cycle Xeloda: Aug 15 - 28/16
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Post Options Post Options   Thanks (0) Thanks(0)   Quote MomMom44 Quote  Post ReplyReply Direct Link To This Post Posted: Jan 03 2017 at 4:11pm
Hello Penny,

I rarely post as I feel checking in only sporadically helps me put it in the past & yet keep abreast (pun intended) of the latest developments for TN.  I am grateful for the wonderfully informative women here, who offer a wealth of information and insight - Donna being especially knowledgeable.  

That said, as you can see from my signature, in just a few days I will be 3 years from diagnosis.  Yay me!!!  I feel very blessed and fortunate to be here.  I've had "scares" that had to be investigated, so it's important to stay vigilant, but not let it lessen your joy of life.

Re weight.  I'll be 70 in early March, but have always been extremely active.  Chemo did not stop me!  I was either at the gym, or on my treadmill at home, at yoga & pilates classes exercising every single day through all treatment.  Yep, my butt was draggin' some days, and I was unable to perform at the high level I had before.  But it made me feel SO much better.  It gave me the control or that's the way I felt.  There was a study that came out about 18 months or so after I finished treatment that said women undergoing bc chemo who exercised regularly fared better tolerating chemo & after than those who did not.  As someone said, everyone is different, but I was never nauseated.  I was told I could either gain, lose or stay the same.  I lost about 4 lbs. but 3 yrs later, gained back 2 of those - so I'm at 115 lbs, 5' 2 1/2".  If you haven't done it already, you should check out the breastcancer.org website.  They publish studies (that's how I found out about the one mentioned above) & they also have an excellent TN thread of super supportive ladies.  The chemo threads also had great info.  Having said this, I fully realize that chemo is not the time to start an exercise program if you aren't used to doing it.  But for someone like me who is a daily exerciser, it just makes me feel great physically, mentally & emotionally.

Yes, as Donna said, get a bc oncologist asap that you can relate to; also get a good radiologist onc who specializes in bc & of course, a breast surgeon w/same credentials.  

Wishing you well on your journey.  You are wise to get the chemo.  As Donna says, don't take any chances with TN.  I had always been scared of the idea of chemo (aren't most people).  On the morning I left for my first chemo treatment, I had a huge smile on my face.  I asked my husband to take a pic of me smiling and texted it to my adult kids w/the message that I was happy to start my treatment.  And I was.  I am grateful to chemo.

Paula


DX TNBC 1/14; age 66; Stage 1; Grade 2; 1.2 cm; 0/2 nodes; lumpectomy; BRAC Neg; 4 DD AC; Completed 12 weekly Taxol July 2014; Radiation August 2014
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Penny View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Penny Quote  Post ReplyReply Direct Link To This Post Posted: Jan 03 2017 at 4:53pm
Thank you Paula for this note over.  I truly appreciate it.  I am a healthy and active 55 year old and felt horrible worrying about my weight.  My problem was my MO said I would gain 10-15% of my body weight on chemo.  I was shocked.  Everything posted on this site does not support that statement.  So, I am grateful to have this site and such wonderful and supportive new friends.  I will keep you all posted.  

Penny :) 
DX IDC, TNBC 12/7/16 (age 55), Stage 1a Grade 2, .6cm, 0/1 nodes, Lumpectomy & node dissection 12/22/16, BRCA1&2 negative 1/23/17 Chemo TC. Chemo completed 3/28/17. 30 RADs completed 6/6/17.

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Post Options Post Options   Thanks (0) Thanks(0)   Quote AmyL Quote  Post ReplyReply Direct Link To This Post Posted: Jan 03 2017 at 10:01pm
Hi Penny,
I understand completely your feelings of being out of control. I completed treatment in Oct 2016 and although I was one of the chemo "wt losers", already I'm finding that it's hard to keep the weight off. It's almost like my body has gone into "survival mode" in fear that I'll pour more chemo into it:) Keep your eyes on the finish line. Stay positive and know that everyone's body is going to react differently. I'll reiterate that the more water you can drink, the better you will feel. I will also agree with Jackie and Donna that you HAVE to have an open, trusting relationship with your MO. I remember many a visit during chemo when I was so sick that I would just cry in the office...I was never judged... just hugged.
Amy
Dx Dec '15, 1.1 cm, stage 1A, gr 2, TNBC, BRCA -, 1/16 lumpectomy with red/lift, 2/16 DD A/C x 4, Taxol x12, planed radiation summer '16.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Katdoll Quote  Post ReplyReply Direct Link To This Post Posted: Jan 03 2017 at 11:53pm
it is unconscionable for someone to just tell you that you will gain weight during chemo. At the start of chemo, I was told SOME women gain weight and to be vigilant. Everyone is different. Some lose, some gain, some stay the same. I've never been one of those people who can eat whatever I want and not gain weight. I did the same things to avoid weight gain during chemo that I'd always done, and I did not gain or lose weight during chemo. And I weigh the same now as I weighed before chemo. Maintaining weight has become a little more challenging, but I think that is due to menopause rather than chemo.
Tested positive for BRCA1 mutation (187delAG) in 4/09 @ age 44; BSO 9/09; diagnosed w/TNBC in 10/09; 1 cm Stage 1 TNBC IDC, grade 3 + 1.5 cm DCIS; BMX 11/09, nodes clear; chemo (AC/T).
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Powder Quote  Post ReplyReply Direct Link To This Post Posted: Jan 05 2017 at 8:58am
I too lost a great deal of weight, but the majority of it came off during the first year off of treatment.  At my lowest, I lost 45 pounds.  I am 4'11" and was a bit overweight when I was diagnosed, but I had complications during treatment (c-diff and pancreatitis) that left my body struggling to maintain weight.  My doctor was concerned with the loss, especially as I dropped under 100 pounds, but not concerned with a cancer relapse.  Keep watching your tumor markers and start tuning into how you feel.  My doctor ordered a PET scan for some bone pain I was having and all came back fine.  My weight stabilized one day out of the blue, stayed that way for about a year, and I am just beginning to put some pounds back on to bring me to a healthy weight.  I think things just take time.  Chemo and radiation take a toll out of you.  Allow yourself more healing time than you think you might need.
Blessings.

Diagnosed 9/2013 Stage 3B IDC, Triple Neg, AND Stage 0 DCIS, ER/PR+.  4 Rounds Dose Dense A/C, 2 Rounds Dose Dense Taxol, 2 Rounds Dose Dense Abraxane, 33 Rounds Radiation.  Bilateral Mastectomy with reconstruction.
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