Joined: 21 May 2008
Location: Portland, OR
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Posts: 649
Topic: LaurieN Posted: 27 May 2009 at 11:26pm
I checked Laurie's Facebook and she has died.
lump12-07 chemo Jan-May AC/T DD
30 Rads 2.2 cm, n/node, grade 3, stage 2
Diagnosed granulosa ovarian cancer 2/09
"May the lord...give you His peace no matter what happens."
II Thessalonians 3:16 N
Joined: 21 May 2008
Location: Portland, OR
Online Status: Offline
Posts: 649
Posted: 27 May 2009 at 11:59pm
I had to go back and check Facebook after I wrote that she had died,
hoping that I had misunderstood what people were writing on her
Facebook page. I am in shock.
lump12-07 chemo Jan-May AC/T DD
30 Rads 2.2 cm, n/node, grade 3, stage 2
Diagnosed granulosa ovarian cancer 2/09
"May the lord...give you His peace no matter what happens."
II Thessalonians 3:16 N
Joined: 22 Jan 2009
Location: Berkeley, CA
Online Status: Online
Posts: 328
Posted: 28 May 2009 at 12:00am
Oh my God, I am stunned. What the hell happened? She was just
diagnosed not long ago, right, and had some bone mets? That makes me
so very sad. Wow, that was horribly fast.
DX 2/08 stg II IDC; gr2,no nodes. Neoadjuvant chemo, first ACx2 (didn't
work) then CarboTaxotere x 6 (much better). Lumpectomy, Rads x 36 until
11/18/08; Clodronate.
Joined: 22 Jan 2009
Location: Berkeley, CA
Online Status: Online
Posts: 328
Posted: 28 May 2009 at 12:38am
Anger, RAGE at this horrible disease. We must find a cure, NOW. I
will do everything I can to make this happen. Our group got word that
we are funded by SUTC to do a triple negative trial and personalized
oncology study for metastatic disease. We have to keep ourselves
alive long enough to kick this things ass for the next generation.
f**k f**k f**k
d
Edited by dmwolf - 28 May 2009 at 12:39am
DX 2/08 stg II IDC; gr2,no nodes. Neoadjuvant chemo, first ACx2 (didn't
work) then CarboTaxotere x 6 (much better). Lumpectomy, Rads x 36 until
11/18/08; Clodronate.
Joined: 07 Dec 2007
Location: United States
Online Status: Offline
Posts: 352
Posted: 28 May 2009 at 12:39pm
For some reason I never got her on my Facebook friends, so I hadn't
known about this. I went back and read some of her posts, she seemed
really sweet. I wish I had known her better.
Oh, crap, she was on my FB friends. But I never corresponded with her. I wish I could go back and do better.
Edited by BrendaF - 28 May 2009 at 2:03pm
Dx 2005 2 cm, 5/12 nodes, A/C + T, 28 rads.
Dx mets 12/07 mediastinal and supraclavicular nodes, carbo + taxotere X 6.
hilar node progression Nov 08.
1 brain met, G/K 1/09, bone mets 4/09 rads
Joined: 21 May 2008
Location: Portland, OR
Online Status: Offline
Posts: 649
Posted: 28 May 2009 at 3:56pm
Pam, I would like her address. Thanks!
lump12-07 chemo Jan-May AC/T DD
30 Rads 2.2 cm, n/node, grade 3, stage 2
Diagnosed granulosa ovarian cancer 2/09
"May the lord...give you His peace no matter what happens."
II Thessalonians 3:16 N
I'm so shocked to read about Laurie! I just don't know what to say.
We were diagnosed around the same time and joined the forum around
the same time. My heart goes out to her loved ones esp. her little girl
and husband.
I will burn a candle for you again tonigh laurie..
Joined: 29 May 2009
Location: Delmar, New York
Online Status: Offline
Posts: 5
Posted: 29 May 2009 at 8:48pm
My name is John. I had the great fortune to have been married to Laurie
Newell. She was the greatest person that I ever met. When she was
diagnosed in October with breast cancer, it seemed early and we were
expecting to beat it. She had surgery in November and began chemo in
December. Unfortunately, she had a fast moving type that soon found
its way into her bones. Treatment was going well (although her
platelets were often low and she needed quite a few transfusions) and
she was looking forward to finishing chemo and starting radiation.
Near the end of April, Laurie began to
experience migraine like headaches. These really wiped her out.
During her regular doctor's visit on May 7th, it was suggested that she
go to the hospital for tests. During one of the scans, it was
discovered that cancer cells were in her spinal fluid. It was also
during this time that she suffered 2 debilitating seizures (one one the
14th & one on the 21st). The decission was made to install an
Ommaya Resevoir into her skull. This would enable them to inject chemo
into the spinal fluid. The cancer was too quick and she died on
Memorial Day. If she were here today, she would tell all of you to
keep battling. Thank you for giving me the opportunity to speak. Laurie will be loved & missed.
Joined: 29 May 2009
Location: Delmar, New York
Online Status: Offline
Posts: 5
Posted: 29 May 2009 at 9:21pm
Laurie loved this forum. She
would often comment about something that she read or something that she
wrote. She found strength, but also humor and friendship. I thank all
of you that helped during her ordeal. It really meant alot.
Joined: 13 May 2009
Location: New Jersey
Online Status: Offline
Posts: 34
Posted: 29 May 2009 at 10:54pm
John, I am so sorry for your loss; this is heartbreaking news. I did not know or correspond with Laurie
in this forum, but could tell she was full of fighting spirit just from
reading her many posts-- I hope you will be comforted in the coming
days, weeks and months by many warm and wonderful memories of her. God
bless you and your family during this difficult time.
Sister DX'ed 11/08
Lumpectomy & SN biopsy 12/08
1.1 cm tumor, poorly differentiated, lymphovascular invasion, node neg (0/2)
Stage 1
DD A/C x 4, Taxol x 4, to be followed by 33 rads
Joined: 21 May 2008
Location: Portland, OR
Online Status: Offline
Posts: 649
Posted: 31 May 2009 at 1:01am
John, Thank you for letting us know what happened. You and your family are in my thoughts and prayers.
lump12-07 chemo Jan-May AC/T DD
30 Rads 2.2 cm, n/node, grade 3, stage 2
Diagnosed granulosa ovarian cancer 2/09
"May the lord...give you His peace no matter what happens."
II Thessalonians 3:16 N
Joined: 07 Dec 2007
Location: United States
Online Status: Offline
Posts: 352
Posted: 01 Jun 2009 at 10:34am
John, thanks for noticing my Facebook message and coming over here to
tell us what had happened. It happens alarmingly often, to us women
who make cyberfriends on the metastatic breast cancer boards, that a
woman just disappears and we find out weeks later, or sometimes not at
all, that she has died. There's not a consistent way to trade
information, since we often don't know the woman's real name or her
location, only her screen name, and her fears and loves and longing
that we all share in some anonymity.
Dx 2005 2 cm, 5/12 nodes, A/C + T, 28 rads.
Dx mets 12/07 mediastinal and supraclavicular nodes, carbo + taxotere X 6.
hilar node progression Nov 08.
1 brain met, G/K 1/09, bone mets 4/09 rads
Joined: 29 May 2009
Location: Delmar, New York
Online Status: Offline
Posts: 5
Posted: 01 Jun 2009 at 12:01pm
Until I saw your facebook comments, I wasn't sure how to get to the
forum. The last 3 weeks were hard & it was obvious that Laurie
wasn't coming home. Wish I had entered the forum while she was still
with us. That was have made my announcement less of a shock. Once
again, I have to tell you how important this forum was for Laurie
Joined: 29 May 2009
Location: Delmar, New York
Online Status: Offline
Posts: 5
Posted: 09 Jun 2009 at 1:59pm
It was two weeks ago yesterday that I lost Laurie.
I want to thank everyone at the TNBC Foundation for all the cards &
support that you have given to me. Received good news yesterday.
Someone has sent a donation to TNBC in Laurie's name. It is the best way to keep her spirit alive. Anyone who is on Facebook, go to Friends of Laurie
Newell. Post something on her wall or just read some of the wonderful
comments that people wrote. She was well loved by all who knew her.
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