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Caryn Rose needs your prayers

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2boysmom View Drop Down
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    Posted: Oct 31 2008 at 9:25am
 
Hello to all of you.  I don't ever post on these forums but am often a lurker since I lost my Mother to TNBC three years ago.  I have had the pleasure of seeing Caryn Rose and her amazing strength and determination on so many different levels.  She is giving and selfless and just truly an inspiration to us all.  Unfortunately, she really needs your prayers and encouragement now more than ever. According to her husband she is scared and feeling very small and he is requesting that we reach out to her either by email, phone, cards or whatever.  She had been suffering from a major headache and starting experiencing some paralysis on her face.  This prompted her to go to the hospital.  The results show cancer cells in her spinal fluid.  Steve's message is below.  If you see this Caryn we love you and are praying for your recovery.
 
With Love and Blessings,
 
Brenda
 
 
No More Doubt...It's back

Posted 19 minutes ago
OK Folks,

This is it...the oncologist came by about an hour ago to tell us that they found some cancer cells in Caryn's cerebral spinal fluid (CSF). With no more to be done here at RWJUH,I'll likely br bringing her home tomorrow (SAT) and we still plan to go to AC Sun-Tues. After that,we need you....visit,call,send cards,etc to the house...if ever Caryn has touched you, touched your life, made a difference, you need to make a difference for her now.

As for next step, we will be consulting with CTCA and will likely be having a shunt installed in her skull(like a port) so the chemo can be put directly into the spine. I can honestly tell you all that we are very scared and we don't know how much time we have.....please please please visit, call,whatever before it's too late.

Steve
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Nancy View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Nancy Quote  Post ReplyReply Direct Link To This Post Posted: Oct 31 2008 at 10:34am
2boysmom,
 
Thank you for this and I did post exactly what Steve had written on Caryn's carepage. It is on the TNBC TALK forum. I receive her carepage update, and when Steve posted the first day, I know we all were shocked. Now, we are devastated. Caryn has been a source of encouragement and inspiration to everyone on this site.....and so many other sites and to anyone who knows her.
 
I asked Steve to please show Caryn the posts from the gals here, as I know it would lift her spirits. I have her address, as does Hayley and Pam (trip2), if you want to send a card to her home, but perhaps you already have it. If not, please PM me and I will give it to you.
Hugs,
Nancy
Nancy
DD Lori dx TNBC June 13,2007
Lumpectomy due to incorrect dx of a cyst
mastectomy July 6 2007
chemo ACT all 3 every 3 weeks 6 tx Aug-Nov
28 rads ended Jan 2008
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Danelle Quote  Post ReplyReply Direct Link To This Post Posted: Nov 08 2008 at 4:38pm
Caryn Rose,

I just sent a private message to you and then saw the request for prayers. Please ignore my private message and concentrate and YOUR return to better health. I and many others are praying for you.

Danelle in Phoenix
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glenine View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote glenine Quote  Post ReplyReply Direct Link To This Post Posted: Dec 01 2008 at 1:34pm
Hi Carynrose,
Sending you many hugs I am a newbie here but not a newbie to stage 4 trip neg.....Hang in there,
Love from NJ
glenine Ryan
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