help??

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I have to say I am a little disappointed and heart broken. I didn't expect to feel like an outcast here...I have asked for advice and assistance on the TNBC facebook page and here...and have gotten zero response. Please tell me... Do I smell bad ??
  Am I asking the wrong questions?  

All I want and need is to feel like somebody understands but so far I am not getting that at all. 
I am reposting the question I asked earlier - in hopes that maybe some of you "veterans" will have pity on me and give me some advice. 

   I am newly diagnosed w/ TNBC - 
My journey started April 2012. I went for a well woman exam and my obgyn found a lump in my left breast. They sent me for a mammogram/ultrasound and My insurance denied  both requesting medical records from my gyn. Gyn apparently forwarded someone else's records in place of mine and insurance was denying my diagnostic tests stating that the breast issue was pre-existing. This was only the beginning of the nightmare.

  biopsy results-.  A core biopsy performed on the left breast on 05/12/2012 was positive for infiltrating ductal carcinoma of the breast.  ER 5% PR 0%, HER-2 negative

   Little did I know...for the next year - any time I went to have ANYTHING done - BCBS was going to use their little stall tactic of denying anything my providers wanted to do as pre-existing. 

When I went to my breast surgeon and she did a biopsy -- the biopsy came back as breast cancer. She sent me to get the routine mammogram to determine if the cancer was in my right breast and my lymph nodes. It was not. However, they found a spot on my liver and a giant mass in my chest cavity the size of a grapefruit (11.3 cm in diameter) they determined that the spot on my liver was a hemangioma (like a birthmark) but the mass in my chest was so big they needed to determine what is was.   It took 3 weeks to even get in to have the mass biopsied courtesy of BCBS stall tactic -- preexisting. Once that was done they determined that the mass was benin so they could proceed with chemo. In the 3 weeks that they delayed treatment the mass in my breast grew at least 2 cm. 

   I started chemo in June -- I did Adriamycin along with Cytoxan. I did these every other week for 4 weeks and then I switched to two other drugs
per the dictation they are as follows:  n 06/ 2012 the patient started neoadjuvant chemotherapy with.  dose dense AC followed by paclitaxel and complete 4 cycles of AC and 4 cycles of paclitaxel on 09/12/ 2012. 

   I had a bilateral mastectomy on Oct 15 and then Dec 3 had a sternotomy whereby they cracked my chest open the way they would a heart patient - and removed the mass. I died 4 times on the OR table and had to have a total blood transfusion. I am grateful to God and my surgeon to be here. 
I started radiation in February; once I was cleared to do so. My surgery was so invasive they said they didn't want me to do the radiation too soon because it would interfere with the healing process. 

  I finished radiation by 3/31/13.  
I've had pain intermittenly since radiation. Most people dismissed it as "normal" and made it seem like I was making a mountain out of a molehill. When I was still complaining of pain in July my Oncologist finally decided to order a CT scan. The CT scan showed abnormalities and so she ordered a PET Scan. The PET Scan showed hypermetabolic activity. In the left lung (where the schwanoma was attached to my lung-- there was what they thought was scar tissue) well THAT area lit up on the PET SCAN as well as my hilar lymph node. Biopsy confirmed it was cancer. Specifically -- metastatic triple negative breast cancer. 

   My question to you kind folks was and is as follows:

     I have been on the ketogenic diet for three weeks now in hopes of starving the cancer....& I've been exercising daily.... with the exception of yesterday- I had a biopsy of the mass in my lung to determine the nature of the cancer...what proteins are driving it etc...

         I was able to log in last night and view the dictation from my first visit with my Dr & it said that my oncologist back home (Atlanta) suggested ixabepilone (xeloda) & capecitabine.

       I wanted to ask you all what treatments you all have tried & what has worked for you? I really don't want to do chemo again but I will if it will give me longevity along with quality of life.... we meet with my oncologist Monday (hopefully to discuss a treatment plan) & I want to have as much knowledge going into this appointment as possible. Any experiences you can share, advice etc would be extremely helpful & appreciated

please respond????