New Posts New Posts RSS Feed - Celebrating today AC is Done
  FAQ FAQ  Forum Search   Events   Register Register  Login Login

Celebrating today AC is Done
 Post Reply Post Reply Page  <12
Author
  Topic Search Topic Search  Topic Options Topic Options
123Donna View Drop Down
Senior Member
Senior Member
Avatar

Joined: Aug 24 2009
Location: St. Louis, MO
Status: Offline
Points: 13510 		Post Options Post Options   Thanks (1) Thanks(1)   Quote 123Donna Quote  Post ReplyReply Direct Link To This Post Posted: May 09 2013 at 11:52am
Lillie and Lee,

Thanks for your excellent posts.   My advice to anyone newly diagnosed:

1.  Get a 2nd Opinion before deciding upon treatment.  Make sure one is from an NCCN Facility or teaching university.  Travel if you must.

2.  Don't settle for anything less than Standard of Care treatment.  Look at and consider Clinical Trials and see if they are appropriate for your situation.
http://clinicaltrials.gov/

3.  Ask questions.  Bring someone with you.  Take notes or record the meetings.  Throw everything you have at this disease and live with no regrets.

Donna
DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15
Back to Top
annafriday View Drop Down
Groupie
Groupie
Avatar

Joined: Apr 25 2013
Location: Las Vegas
Status: Offline
Points: 49 		Post Options Post Options   Thanks (0) Thanks(0)   Quote annafriday Quote  Post ReplyReply Direct Link To This Post Posted: May 10 2013 at 1:05am
Donna
 
Im having a hard time getting in with my second opinion. Insurance and scheduling issues for the doctor. My question is how soon after surgery to start chemo has the best outcome? I am having my port placed tomorrow morning. Im worried when I see my oncologist tomorrow he is going to want me to start. I also get my tumor marker lab results tomorrow.  What is the best chemo cocktail for triple negatives. I also want to make sure when I see AC that means adriamycin and cytoxan. Do they give both of those drugs at the same time?
 
Thanks
 
Anna
DX:3/20/13 right breast multifocal stage 3a TNBC. Bilateral Mastectomy 4-18-13 largest tumor 6.2cm. 1 microscopic sentinal node positive. KI-67 77%. ACx4..doing Taxol now x12 weekly.
Back to Top
123Donna View Drop Down
Senior Member
Senior Member
Avatar

Joined: Aug 24 2009
Location: St. Louis, MO
Status: Offline
Points: 13510 		Post Options Post Options   Thanks (0) Thanks(0)   Quote 123Donna Quote  Post ReplyReply Direct Link To This Post Posted: May 10 2013 at 11:53am
Annafriday,

AC given together is adriamycin and cytoxan. A typical standard of care chemo is AC followed by Taxol. Sometimes Taxol is given first. Some women may get a different chemo combo, usually part of a clinical trial (a platinum drug like carboplatin or cisplatin). I think the optimal time to start chemo is within 3 months after surgery. I started about 3 1/2 weeks after my surgery.

I understand how difficult it is to get a 2nd opinion. Will your onc help? Most good oncs should be open to their patients seeking a second opinion. When I had my recurrence and was fighting with the schedulers for a 2nd opinion, they were dragging their feet. My onc asked if I had the appt yet (this was on a thur or fri). I told her about my difficulty. She made a call for me to the other onc and within an hour I had a call back for an appt on Monday.

Donna
DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15
Back to Top
Grateful for today View Drop Down
Senior Member
Senior Member
Avatar

Joined: Sep 21 2011
Location: U.S.A.
Status: Offline
Points: 1835 		Post Options Post Options   Thanks (1) Thanks(1)   Quote Grateful for today Quote  Post ReplyReply Direct Link To This Post Posted: May 28 2013 at 10:58pm
weekender09/Barb,

Noticed on the Forum Home page, that today is your BIrthday.

Hope your day was special for you.
Sending lots of good Birthday wishes for things you enjoy.

Thinking that you are probably nearing the end of your chemo.
All good and positive thoughts as you complete this part of your treatment plan.


With caring thoughts,
Grateful for today.........Judy
Back to Top
weekender09 View Drop Down
Senior Member
Senior Member
Avatar

Joined: Mar 29 2013
Location: United States
Status: Offline
Points: 135 		Post Options Post Options   Thanks (0) Thanks(0)   Quote weekender09 Quote  Post ReplyReply Direct Link To This Post Posted: May 30 2013 at 7:44pm
Thank you so much for the birthday wish Judy.  

I have one Taxol left scheduled for June 7th.  so basically 3 weeks left of this evil routine that is saving my life.  I have my surgery consult on Tuesday the 4th so I can look at the next phase of this process.  

Thankful for all of you. 

Barb
02/12/13 DX TNBC, Grade III, Stage 3, 3.3cm tumor, IMN and 1 lymph Positive, Chemo A/C T complete 6/13
BRCA1-/BRCA2+ Variance, BIL 7/13, 33 RADS complete 10/13 Remssion :)
Back to Top
 Post Reply Post Reply Page  <12
  Share Topic   

Forum Jump Forum Permissions View Drop Down

Forum Software by Web Wiz Forums® version 12.01
Copyright ©2001-2018 Web Wiz Ltd.