Doctor studying TNBC & Treatment |
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Jessie 
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Joined: Aug 07 2007 Location: North Carolina Status: Offline Points: 515 |
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 Posted: May 19 2009 at 6:42am |
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Wow, this is awesome ! Thanks !
Jessie
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IDC,Stage I,Grade 3,dx 4/06
dbl mast 5/06, systemic MRSA post surgery septic shock, heart attack triple bypass 1/07 no chemo due to infections and heart issues so far NED! |
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NINASUZIE
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Joined: Mar 01 2009 Location: United States Status: Offline Points: 323 |
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Posted: May 19 2009 at 8:50am |
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How clever to put in the stats and get some info back...speaking of info, I am considering chemo regiments and saw that you had C/T? How come no Adriamycin? Why was cytoxan and toxol chosen? How was it to tolerate-how often and how do they know it's working? You and I have a similiar profile with size of tumor/grade/no nodes. I was thinking of pushing for c/t and wait for a later if at all since it isn't effective tn. thanks,
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Suzie
************** Dx: 1/09 Metaplastic TN IDC/3.5CM/DCIS/1.0;4/09 L mastectomy;6-11/09 Cytoxan/Taxotere X6;BRACA-; Recurrance 11/10 bone mets broke arm;Lung mets;rads X15; chemo/parp tbd 1/11 |
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Galina2
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Joined: Nov 01 2007 Location: Canada Status: Offline Points: 250 |
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Posted: May 20 2009 at 5:47am |
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Unfortunatelly, they would not know, in your case, if chemo worked. You would have to get chemo BEFORE your mastectomy, so called neoadjuvant therapy http://www.cmaj.ca/cgi/data/158/3/DC1/2. They would then do some kind of imaging (sono, ultra, MIR, etc.) before, during and after chemo, to see if the tumor is SHRINKING. People usually FEEL the tumor shrinking! Since you had mast., nobody can tell. This is called adjuvant therapy. The type of chemo depends on the doctor, "staging", e.g. pathology, node involvement, perceived danger and YOU PUSHING FOR BEST CARE!!!! Make sure your doctor knows about TNBC. http://www.cmaj.ca/cgi/content/full/158/3/DC1 Standard care in the States is dense dose AC + T, every two weeks. Some docs give only FEC +T (or D), every three weeks, if no node involvement. What I have heard from people, the "staging" is only for statistics in next 10-20 years, there is really no advantage for us at this time, as everybody is getting very similar treatment, regardless of pathology (EST+/- PRG +/-). See: Clinical guidlines for Treatment of BC on www.nccn.org
This is in .pdf file, so I cannot post any of that!
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Believing is 50%!Dx 7/10/07, Lumpectomy 8/24/07, double mast/no recont. 10/01/07, IDC, 3 cm, Grade 3, 0/4 nodes, Stage IIA, ER-/PR- HER2- Age 48, chemo 11/23/07 lung spots 3/08
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