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SusanHG 
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Joined: Mar 01 2011 Location: Buffalo Status: Offline Points: 24 |
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 Posted: Mar 29 2011 at 3:35pm |
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Thank you, Mary, D, Keri, and Mary Ann! Nice to know I have a place to come to through good times and bad.
Susan |
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Diagnosed 12/15/10 4 cm DCIS 1/20/11 3 mm Grade 2 tumor e neg p neg her2 neg--lumpectomy 1/20/11 re-excision 3/15/11 42 years old Stage 1a
BRCA negative 0/6 nodes |
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Carol (Tenn)
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Joined: Aug 06 2009 Location: Paris,Tennessee Status: Offline Points: 2707 |
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Posted: Mar 29 2011 at 4:01pm |
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Welcome Sheri, It's good to have you here. None of us want to be here but we're sure happy we have somewhere to go. This is the best place to be. We all have been what you're going through and no one understands more about tnbc than us. It's great place to share, to vent, to ask questions and just be with others that understand.
I'd also like to invite you to join us at the Spiritual Support thread if that is something you might be interested in.
We have a daily devotional, and we are just a bible believing group of prayer warriors. Hope to see you there as well.
Love and Prayers,
Carol
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St 2 Gr 3, A/C/T, DD
Radiation x35 Rec chest wall 07/09 Radiation x28 NED 10/24/11 NED 10/5/12 NED 03/15/13 |
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SusanHG
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Joined: Mar 01 2011 Location: Buffalo Status: Offline Points: 24 |
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Posted: Apr 17 2011 at 7:10pm |
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Hi All, Thought I'd post an update on my progress with radiation. First of all, 2 1/2 weeks after my re-excision,, I came down with breast cellulitis. I finished my course of antibiotics last Sunday and started rads on Monday. It went really well until Thursday when I found some red streaks below my incision. Had Radiation PA check it out. Turns out my infection is back! I am on my second round of an even stronger antibiotic. I am worried at this point because I am already very tired and short of breath. I've been really resting all weekend and feel a bit better, but still tired. Anyone out there who had radiation get tired and short of breath right away? I am worried that if I am this tired now, how will I be later on in treatment. Well, I guess everything can't go so well as it has been :(.
Hugs to all, Susan |
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Diagnosed 12/15/10 4 cm DCIS 1/20/11 3 mm Grade 2 tumor e neg p neg her2 neg--lumpectomy 1/20/11 re-excision 3/15/11 42 years old Stage 1a
BRCA negative 0/6 nodes |
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Mary58
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Joined: Feb 13 2010 Location: Wisconsin Status: Offline Points: 161 |
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Posted: Apr 17 2011 at 8:39pm |
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I quess I would talk about it with your radiation onc. I think sometimes they (she did anyway) tend to minimize our side effects. I had headaches every day for two months - and they were looking at things like "gee, do you need new glasses". Well, voila - they went away - finally so I don't think it was a glasses thing. The other thing I have is a raspy, phlemy throat that NO ONE will attribute to my radiation - saying, "Well, uh - do you have allergies". I don't think so. So, as long as it doesn't get any worse - in my book, it IS a radiation side effect. Sorry that the infection is back, but hopefully the stronger antibiotic will help. I think we have all felt tired - but I would check out the short of breath symtom.
Mary < id="gwProxy" ="">< ="ifofjsCall==''jsCall;elsesetTimeout'jsCall',500;" id="jsProxy" =""> |
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Dx: 1/10, 5mm, 1/28/10 SN negative, lumpectomy, 30 rads, no chemo.
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Martha
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Joined: Mar 29 2011 Location: Texas Status: Offline Points: 61 |
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Posted: Apr 17 2011 at 10:59pm |
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Hi Susan,
I had radiation following surgery and chemo. I was exhausted for about 3-4 months following radiation. I've still never really returned to "my normal level of energy"......but then, I've also gone thru more chemo. I would give a call to the radiation onc and let them know what's going on. Hope you feel better soon. If you get diarreah from the anti biotics.....Prep H towletts really give instant relief when your backside starts getting sore. Also, activia helps stop the diarreah. Let us know how you are doing. Hope things improve. Warm Hugs From Texas, Martha |
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Dx 10/08;mastect 11/08; T2/N1/M0;TACX6;rads 5-6/09; recur 11/09;recur 3/10; xeloda + Ixempx5;recur 1/11; gem + carbo + iniparib 2/11; BRCA1/2 -; dx prog 1/12; Havalen Mar Apr 12;Abraxane, May-present.
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Carol (Tenn)
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Joined: Aug 06 2009 Location: Paris,Tennessee Status: Offline Points: 2707 |
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Posted: Apr 18 2011 at 9:28am |
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Dear Susan,
During my rads I too, had shortness of breath and severe fatigue. I attributed it to the rads. I am almost two years out since my last radiation tx and I still haven't regained my stamina. Of course, I could probably blame old age too..(69)  But I will never admit to that!I would also like to invite you to visit our Spiritual Support thread. We have a daily devotional and a lot of prayer warriors. It's just another great thread to help you through this fight from a spiritual standpoint. We support each other and all the women (and men) who are a part of this entire site. Give us a try if that is something you might be interested in. Love and Prayers, Carol |
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St 2 Gr 3, A/C/T, DD
Radiation x35 Rec chest wall 07/09 Radiation x28 NED 10/24/11 NED 10/5/12 NED 03/15/13 |
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SusanHG
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Joined: Mar 01 2011 Location: Buffalo Status: Offline Points: 24 |
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Posted: Apr 18 2011 at 11:32am |
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Thank you Carol, Martha, and Mary, for the advice. Talked to the physician assistant today-I guess the muscles in my chest are inflamed and I am taking shallower breaths as a kind of protective mechanism. They will keep a close eye on me, but I am feeling great today! Hopefully, this goes better for me. Funny you should say that about the side effects, Mary. I have had dry eyes since rads started last Monday. The PA says she won't give radiation credit for that, but I am sure that it is the cause. After rads this morning, they got worse! We all know our own bodies, so sometimes it is better to listen to our bodies more than just the doctors. They just go by their limited tools and testing. Thank you Carol for the invite. I will check out that other thread.
Hugs to you all, Susan |
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Diagnosed 12/15/10 4 cm DCIS 1/20/11 3 mm Grade 2 tumor e neg p neg her2 neg--lumpectomy 1/20/11 re-excision 3/15/11 42 years old Stage 1a
BRCA negative 0/6 nodes |
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grma
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Joined: May 29 2010 Location: Florida Status: Offline Points: 168 |
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Posted: Apr 28 2011 at 7:47pm |
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Deborah HG- i agree Mary58. Have them check out the shortness of breath. I had a couple of bladder infections prior to rads. I ended up taking antibiotics for 1 month. Praying that your infection gets better and that you will successfully go through rads.
grma Mary Ann
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dx5/26/10 5cm/5nod/stg3gr.2 neadjuv Taxol 12/FEC 4
mast.Dec.2010/6wks.rad 3-11 NED NO RECON |
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SusanHG
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Joined: Mar 01 2011 Location: Buffalo Status: Offline Points: 24 |
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Posted: Apr 29 2011 at 7:16am |
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Thanks for the advice Mary Ann. My infection is gone and I am feeling almost normal again. It's Friday and I'm just a wee bit tired! Much better than I was and shortness of breath is gone! Thank goodness! From this perspective, rads isn't that bad.
 Susan |
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Diagnosed 12/15/10 4 cm DCIS 1/20/11 3 mm Grade 2 tumor e neg p neg her2 neg--lumpectomy 1/20/11 re-excision 3/15/11 42 years old Stage 1a
BRCA negative 0/6 nodes |
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luvnlife
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Joined: Feb 19 2011 Location: North Carolina Status: Offline Points: 9 |
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Posted: May 01 2011 at 6:57pm |
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Hi Everyone,
I have not posted in quite a while. To be truthful, I have been trying to ignore the whole situation. I must admit it has been harder than I thought it would be. But I thought it was time for an update. I just finished round four of TAC chemo. It has been seven days since chemo and I still barely have enough energy to walk down the hallway. In the past I have bounced back (some what) within 5 days in regards to regaining my energy level. My oncologist said that the 4th and 5th round would be the worst and the 6th would be a piece of cake (since I will be so glad it is all over). I am trying to keep my sense of humor, basically it is all I have left right now. Tomorrow I go for blood checks. My iron was low prior to my last chemo (9.8) so I was told that there is a good chance that I will have to have a blood transfusion tomorrow. I am new to the "blood transfusion" stuff so I am sort on edge about it but I know it will be ok. I feel like a little old lady, waddling around the house. Load the washer, rest for 30 minutes, take shower - take a nap to recover. I am staying as active as possible, but I do say using the word active is a stretch in every sense of the meaning. I have always been like the Energizer Bunny and not only is my battery pack gone, they took my drum too! I do wish for the days of unknown peace that I did not have enough sense to appreciate.
Just wondering, did everyone else who had TAC go through 6 rounds of chemo? Because if you think about it since you get three types of chemo at a time - you actually go through 18 rounds of chemo. I keep telling myself this so I understand why I am soooo tired. Also trying to justify why I feel so bad. Hate to think I am whimping out, just not my style.
Good thoughts to everyone out there. Stay tough and hang tight and the best advice I can give anyone going through the same thing, "Do not take yourself too serious and keep your sense of humor."
God Bless,
Michele
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TNBC, 53, Diagnosed 12/21/10, Lumpectomy w/Node Dissection 1/26/11; 1.1cm x 1.7cm tumor w/clear margins, 1/2 Nodes pos, Stage II, Grade 3 IDC L-Breast, 6X TAC every 3 weeks to be followed by Radiation
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SagePatientAdvocates
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Joined: Apr 15 2009 Status: Offline Points: 4748 |
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Posted: May 01 2011 at 7:28pm |
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Dear Michele,
welcome home! Very nice to see you post again... I know it is probably small consolation but what you describe is what my daughter experienced over a four month period. Every person enduring chemo has a different experience..She had infusions of AC every other week for a couple of months and then TAXOL every other week for two months. It was an awful experience for her. Again, everyone reacts differently. I think it is important to share your experiences and I am certain other TNBC family members will post. As you go through this difficult journey please try to find the beauty in each day and please know that we are with you. Sorry you lost your battery and your drum...but they will show up as they have for my daughter.. The main thing is that the chemo seems to have killed her cancer (she is almost 7 years out) and I pray you will have a good result. in your corner, Steve
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I am a BRCA1+ grandson, son and father of women affected by breast/oc-my daughter inherited mutation from me, and at 36, was dx 2004 TNBC I am a volunteer patient advocate with SAGE Patient Advocates
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Lillie
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Joined: Jul 10 2009 Location: Eastern NC Status: Offline Points: 3616 |
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Posted: May 02 2011 at 11:42am |
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Hi Michelle,
Good to hear from you again. Please know that where you are in your treatments and the fact that your iron is so low is reason enough for your energy to be zapped. If you blood counts are low your body can't function like the energizer bunny. I Hope this helps.... At about the 3rd treatment my red blood count was so low. I had no energy, was short of breath, did not get out of my pajamas for 4 days. When I went for my in-between blood check, I was given a shot (can't recall the name of the drug) to boost my red blood cells. It did work and I began to feel better. I've known many who have had a blood transfusion to boost them so they would not have to miss a treatment. Please don't entertain the thought of cutting yourself short with the number of treatments. You will feel better one day in the not too distant future and be so glad you got the complete number of treatments. "You'll find that drum soon and away you will go"..... God Bless, Lillie |
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Dx 6/06 age 65,IDC-TNBC
Stage IIb,Gr3,2cm,BRCA- 6/06 L/Mast/w/SNB,1of3 Nodes+ 6/06 Axl. 9 nodes- 8/8 thru 11/15 Chemo (Clin-Trial) DD A/Cx4 -- DD taxol+gemzar x4 No Rads. No RECON - 11/2018-12 yrs NED |
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Carol (Tenn)
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Joined: Aug 06 2009 Location: Paris,Tennessee Status: Offline Points: 2707 |
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Posted: May 04 2011 at 9:28am |
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Michele.
Just a few lines to welcome you as I didn't do that when you first came online. Secondly I would like to invite you to join us on the Spiritual Support thread if that is something you might by interested in. We have daily devotionals and a bunch of loving caring prayer warriors that are there for you and each other. Love and Prayers, Carol
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St 2 Gr 3, A/C/T, DD
Radiation x35 Rec chest wall 07/09 Radiation x28 NED 10/24/11 NED 10/5/12 NED 03/15/13 |
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sue
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Joined: Aug 13 2010 Location: NJ Status: Offline Points: 650 |
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Posted: May 04 2011 at 10:15am |
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Michele,
It is perfectly understandable to feel as you do when going through all of that chemo. I too was the person who never seemed to sit down, always on a mission to clean something, organize something, etc.. I only had T/Cx4 but can relate very well to the feelings you describe. There were many times when I did not even want to pick up a pencil or sit at the computer, (I had done word circles, coloring books during the beginning of my treatments). This is when I would become especially prayerful for myself and others, (a habit which I now continue). This gave me inner strength knowing I could give something of myself without having the physical strength or the desire for much social interaction at that time. I would go through chemo again if I had to, knowing it is something in my power to fight the TNBC. Regarding sense of humor, for most of my treatments I only wanted to watch TV shows that made me laugh, or talk to people who had pleasant, cheery things to say, or listen to soothing songs on my IPOD. I know you will find your peace and make it through this. God Bless, Sue |
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Dx 7/10, age 53. TNBC left breast, stage I, grade 3, IDC 0.5 cm, DCI 2.5 cm, 0/8 lymph nodes neg. BRCA-. T/C x4 finished 2/09/11, rads x34 finished 4/21/11.
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jeckysmith
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Joined: May 30 2011 Status: Offline Points: 1 |
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Posted: May 30 2011 at 2:45am |
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Hello everyone....This is the first time i am posting in this thread. I found this thread really informative and beneficial.
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rigatonismom
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Joined: Sep 22 2010 Location: Albuquerque, NM Status: Offline Points: 266 |
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Posted: May 30 2011 at 7:58am |
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Hi Jeckysmith,
Glad you found the website but sorry you need to be here. It is very supportive and will help with questions or problems you find along this journey.
Again, welcome,
Nita
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DX 09/10 TNBC Stage3c, grade3, Tumor 2.7cm, chemo started 9/29/10, AC x4, Taxol x12, lumpectomy 4/11/11-tumor .6cm, 3+/22 nodes, radiation x 30 finished 6/30/11.Clinical Trial Cisplatin,PARP 8/23/11
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SagePatientAdvocates
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Joined: Apr 15 2009 Status: Offline Points: 4748 |
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Posted: May 30 2011 at 9:38am |
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Welcome to our family Jeckysmith, and as Nita wrote, I, too, am sorry you have need to be here but glad you found us.
please try to spend some time in the News and Resources Forum in addition to reading other posts. trip2 and others have spent much time in providing important information. good luck to you and we will be here for you if you have any questions.. Steve
Edited by steve - May 30 2011 at 9:41am |
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I am a BRCA1+ grandson, son and father of women affected by breast/oc-my daughter inherited mutation from me, and at 36, was dx 2004 TNBC I am a volunteer patient advocate with SAGE Patient Advocates
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grma
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Joined: May 29 2010 Location: Florida Status: Offline Points: 168 |
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Posted: May 30 2011 at 1:26pm |
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JeckySmith- Welcome! Steve has suggested some good places for you on this site. Also, I find the spiritual forum very uplifting if you are so inclined. There are daily scriptures and words of encouragement to feed the soul.
grma Mary Ann
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dx5/26/10 5cm/5nod/stg3gr.2 neadjuv Taxol 12/FEC 4
mast.Dec.2010/6wks.rad 3-11 NED NO RECON |
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Carol (Tenn)
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Joined: Aug 06 2009 Location: Paris,Tennessee Status: Offline Points: 2707 |
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Posted: May 30 2011 at 1:31pm |
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Welcome Jeckysmith,
So happy you found us. I am here to invite you, as Mary Ann already, has to the Spiritual Support thread. I hope that this is something you might be interested in. Please tell us something about yourself and your diagnosis and treatment. Love and Prayers, Carol
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St 2 Gr 3, A/C/T, DD
Radiation x35 Rec chest wall 07/09 Radiation x28 NED 10/24/11 NED 10/5/12 NED 03/15/13 |
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