Beginning the Journey |
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Fran325i 
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Joined: Oct 03 2010 Location: New Jersey Status: Offline Points: 14 |
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 Posted: Oct 13 2010 at 11:05am |
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Hello Carol,
Andreamycin not part of my treatment. Taxotere and Cytoxin are the 2 chemo drugs being used. Not sure what Andreamycin is. We discussed using Adriamycin but decided against it since it can cause heart problems. Thank you for your offer to be part of the Spititual Support Thread.
Sending Positive Energy, Peace and Blessings to you.
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DX 8/9/10 Stage 1 Grade 3 1.8 cm, lymph node negative, age 58, 4 cycles chemo every 3 weeks starting 9/20/10 cytoxon and taxotere, radiation will follow,no family history or lump
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Fran325i
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Joined: Oct 03 2010 Location: New Jersey Status: Offline Points: 14 |
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Posted: Oct 13 2010 at 11:27am |
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Thanks Donna for your reply. Appears you are in very good hands with your doctors. You are correct - Taxotere and Cytoxin are the 2 chemo drugs that I'm taking. Had cycle 2 treatment yesterday. Had reaction to Taxotere; chest pain, headache and red facial flushing. Temporarily stopped treatment. Benadryl and additonal steroids given to counteract the effects. Was able to be rechallenged with Taxotere once I was feeling better and completed the treatment successfully. Had no reaction cycle 1 but can occur in cycle 2. No problems with Cytoxan. See oncologist tomorrow to discuss Neulasta alternative due to the extreme pain and side effects that kicked in after a few hours of receiving the injection. I'm sure oncologist will also revise pretreatment drugs prior to cycle 3. Wishing you much positive energy on your road to health and wellness. May we all find NED...No Evidence of Disease...
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DX 8/9/10 Stage 1 Grade 3 1.8 cm, lymph node negative, age 58, 4 cycles chemo every 3 weeks starting 9/20/10 cytoxon and taxotere, radiation will follow,no family history or lump
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TNBC_in_NS
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Joined: Jul 26 2009 Location: NS Canada Status: Offline Points: 2028 |
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Posted: Oct 13 2010 at 11:31am |
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Hi Fran:
I had the same chemo as you are getting with 16 rounds of radiation! I was also 58 years old but Stage II, Grade 3, 2.5 cm/lymph neg. and no known history. I am waiting for BRCA 1 & 2 results (six months.)
It would be interesting to know more about your lifestyle and what you believe caused your cancer.
If you would like to share with me privately, my email is helenthibeault@hotmail.com
You are in New Jersey and I am in Halifax, Nova Scotia Canada... would be interesting to share lifestyles...Blessings to you as you journey on...Helen in NS
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Diag@57TNBC04/092.5cm Lquad 05/09 TCx4Radsx30CT03/01/10 FU03/31/10ClearBRCA- 01/2011 RTNBC BMX 06/14/2011~2013 clear
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Fran325i
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Joined: Oct 03 2010 Location: New Jersey Status: Offline Points: 14 |
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Posted: Oct 13 2010 at 12:12pm |
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Helen,
Doctors nor I really know what causes TNBC. My focus is on survivorship and power of positive thinking. Prefer not looking back but moving forward. Prior to all this I had changed my diet. I was in good health prior to diagnosis and wanted to stay that way. Met with Nutritionist. Organics, Green Tea with Antioxidants and Matcha, Raw Wild Honey (no sugar) Wild Caught Fish (no meats, pork or poultry), whole grains and nuts and avoid all additives and preservatives. What foods you eat in combo and when increases your energy. Spiritual direction, chiropractic care, reflexology have also been incoprated into my holistic approach to health and wellness to compliment my chemotherapy.
Fortunately I do not have BRCA 1/2. Test taken but negative for the gene. Hope you have the same response. My email is fran@chrisautobody.net Sending positive energy and blessings.
Please stay in touch.
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DX 8/9/10 Stage 1 Grade 3 1.8 cm, lymph node negative, age 58, 4 cycles chemo every 3 weeks starting 9/20/10 cytoxon and taxotere, radiation will follow,no family history or lump
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Fran325i
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Joined: Oct 03 2010 Location: New Jersey Status: Offline Points: 14 |
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Posted: Oct 13 2010 at 12:24pm |
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Helen,
Is it ok to ask if new lump was found in the same breast? Did you have a lumpectomy originally?
My prayers are with you and hope good news will follow after the 21st and BRCA results. Did you make any lifestyle changes before or after DX in 09? My personal email is in my earlier response if you prefer to communicate more privately. Have put a bucket list together and trip to Nova Scotia is on my list. Wishing you peace and wellness. Very thankful we have each other to share our journey.
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DX 8/9/10 Stage 1 Grade 3 1.8 cm, lymph node negative, age 58, 4 cycles chemo every 3 weeks starting 9/20/10 cytoxon and taxotere, radiation will follow,no family history or lump
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trip2
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Joined: Jun 03 2007 Location: Under Palm Tree Status: Offline Points: 8549 |
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Posted: Oct 13 2010 at 6:15pm |
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Stage 2 2003
Stage 1 2007 BRCA 1+ |
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Carol (Tenn)
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Joined: Aug 06 2009 Location: Paris,Tennessee Status: Offline Points: 2707 |
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Posted: Oct 13 2010 at 6:44pm |
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Pam,
Thanks for that link.
Carol
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St 2 Gr 3, A/C/T, DD
Radiation x35 Rec chest wall 07/09 Radiation x28 NED 10/24/11 NED 10/5/12 NED 03/15/13 |
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JBBest
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Joined: Sep 29 2010 Location: Virginia Status: Offline Points: 12 |
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Posted: Nov 21 2010 at 8:46pm |
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Is anyone participating in a clinical trial with weekly AC? I have had 3 "A" treatments....taking daily oral Cytoxan. This was to go for 15 weeks......now it has changed to every other week AC thru my port for 4 more treatments....and then 12 weekly "T" treatments....other than minor nausea and being tired, no problems with chemo. With the stronger doses of "AC" every other week, what should I expect? |
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DX IDC 8/10; age 56; stage I; gd 3; Lumpectomy & SNB 9/10; 1.2 cm; 1/2 nodes isolated tumors; clear margins. Trial with mod sch ACT. AC every 2 wks X 6. T weekly X12 after. started 1 Nov 2010.
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SagePatientAdvocates
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Joined: Apr 15 2009 Status: Offline Points: 4748 |
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Posted: Nov 21 2010 at 9:20pm |
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Hi JBBest,
My daughter had two months of AC and then 2 months of TAXOL.. she lost all of her hair on the AC and was very fatigued and nauseous at times.. here are some things (please see macmillan link below) folks have experienced...and everyone is different The good thing is that it can be very effective, at times, with TNBC. My daughter is a six year survivor. There are also cardio-toxicity issues so please make sure the docs check out your heart. Ask them about a MUGA scan if you haven't had one. good luck to you!!! Please try to find the beauty in each day...This will pass but it may be a rough ride..It was for my daughter...even at the age of 36, when she was diagnosed... all the best, Steve Edited by steve - Nov 22 2010 at 3:25pm |
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I am a BRCA1+ grandson, son and father of women affected by breast/oc-my daughter inherited mutation from me, and at 36, was dx 2004 TNBC I am a volunteer patient advocate with SAGE Patient Advocates
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CiGi
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Joined: May 12 2010 Location: Bound Brook, NJ Status: Offline Points: 223 |
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Posted: Nov 22 2010 at 3:05pm |
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Welcome Joy,
Just read your thread, I had the same issue with the sloshing fluid in the breast from the lumpectomy. I was able to hear it when I walked fast. It will go away. Mine took 3 months after surgery. But shortly after it went away, my hand swelled from lymphedema and I still have the swelling. I went through PT and it has gotten better but not gone. I finished chemo at the end of Sept. The worst of the chemo for me was the constipation. I did have a bout of really bad heartburn, and minor issues with mouth sores. It was not that bad and time flew by. I worked the whole time, took off the day of treatment and worked from home the day after. Just started radiation today, not bad so far. Good luck with your treatment. You're at the right place on this site. Our TNBC family is the best.
Carol (CiGi) Edited by CiGi - Nov 22 2010 at 3:08pm |
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Age 40, 4/28/10 lumpectomy (3 cm) TNBC Grade 3 Stage 2 0/3 nodes, TAC 6x 3 week cycles start 6/15 finish 9/27, 33 rounds rads 11/22. BRCA1 & 2 neg. Lymphedema rt hand 8/14. Joint pain Dec 2010.
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JBBest
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Joined: Sep 29 2010 Location: Virginia Status: Offline Points: 12 |
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Posted: Nov 23 2010 at 9:26am |
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Thanks Steve for the link and the info......big help. Yes, I did have the MUGA before I started the chemo. My schedule was every week, but they have changed it to every other week now....have 4 more of the AC treatments to go; then the T.....yes hair is now coming out.
Everyday os a good day, because I am blessed with those around me. Wishing you all a Happy Thanksgiving.
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DX IDC 8/10; age 56; stage I; gd 3; Lumpectomy & SNB 9/10; 1.2 cm; 1/2 nodes isolated tumors; clear margins. Trial with mod sch ACT. AC every 2 wks X 6. T weekly X12 after. started 1 Nov 2010.
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