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TNBC Stage one women

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Karen Monique View Drop Down
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    Posted: Jan 27 2011 at 2:41pm
Hi all
 
I was recently diagnosed with Stage 1 TNBC and might have to undergo chemotherapy. I would love to talk to some Stage 1 TNBC survivors, especially if they are in the Caribbean.
 
Thanks
Karen
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LauraT View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote LauraT Quote  Post ReplyReply Direct Link To This Post Posted: Jan 27 2011 at 4:34pm
Karen,
 
I am a Stage I survivor and am happy to chat (I WISH I was from the Caribbean, especially this time of year!).  Can you tell us more about your diagnosis and what treatment options have been recommended?
 
Sorry you had reason to come here, but glad that you found us.  There are many excellent resources and wise, kind people here that are happy to answer any questions. 
 
Laura
DX 10/09 @44, Stage I IDC tnbc, DCIS other side, Neoadjuvant TCx4, Bilateral Mastectomy w/Recon 1/10, 1.2cm 0/7 Nodes, 5/11 Mets to Lungs/Lymph Nodes, Avastin/Taxol, 10/11 Bone Mets, Xgeva
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Eileen View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Eileen Quote  Post ReplyReply Direct Link To This Post Posted: Jan 27 2011 at 4:58pm
I also am a stage 1 survivor and would also love to chat. Unfortunately not in the carribian. I live in New Jersey but would love to chat.
Eileen
DX:2/08,3/08 lumpectomy with SNB, clear margins, no lymph node involvement, 4 cycles A/C (dose dense) every 2 weeks, 4 cycles Taxol (dose dense) every 2 weeks, 33 rads finished 9/08, BRCA 1 and 2 neg
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conniec View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote conniec Quote  Post ReplyReply Direct Link To This Post Posted: Jan 27 2011 at 6:47pm
Hi Karen,
Welcome to this forum.  I am going through chemo right now so feel free to ask questions.  We are all here to support each other.
Connie

Age 40,
Felt lump 8/20/10
Lumpectomy 9/7
DX 1.5 tumor stg I 9/13 margin not clear
Double MX w/ expanders 10/8
Final tumor size 1.7, 0/3 + nodes
AC-T chemo 11/8 - 2/21
TE/implant exchange 3/29

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123Donna View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote 123Donna Quote  Post ReplyReply Direct Link To This Post Posted: Jan 27 2011 at 6:54pm
Karen,

Welcome to this forum.  I visited Jamaica several years ago and had a wonderful time.  At this time of the year in the States, I miss the warm temperatures of the islands.

Can you tell us a little more about your diagnosis?  What is the size of your tumor?  Have you had surgery yet?  There's so much information on this site.  Please feel free to ask questions.

Have you had a chance to read the brochure about TNBC?

http://www.lbbc.org/Understanding-Breast-Cancer/Guides-to-Understanding-Breast-Cancer/Guide-to-Understanding-Triple-Negative-Breast-Cancer

Donna
DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15

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Charlene View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Charlene Quote  Post ReplyReply Direct Link To This Post Posted: Jan 27 2011 at 7:38pm
I was diagnosed with Stage 1 TNBC 3/10.  My tumor was multifocal; largest foci was 1.3 cm.  I had a lumpectomy 4/10; re-excision due to narrow margin 5/10.  Zero of 4 nodes involved.   My chemotherapy was 4 rounds of Taxotere/Cytoxan every 21 days.  Then I had 6 weeks of radiation, 25 whole breast and 5 targeted.  I finished treatment last October.  This is my first post, although I read them a lot.  I worry a lot about recurrence since there is no targeted treatment for TNBC.

Edited by Charlene - Jan 27 2011 at 7:55pm
DX 3/10 @59 ILC/TNBC
Stage 1, Grade 2, Multifocal; Lumpectomy/re-excision
SNB 0/4 nodes, BRCA-; Taxotere/Cytoxan X4, 30 rads
3/14:NED
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Post Options Post Options   Thanks (0) Thanks(0)   Quote abcmom Quote  Post ReplyReply Direct Link To This Post Posted: Jan 27 2011 at 7:46pm
Welcome Karen!  I visited Jamaica a couple of years ago.  Absolutely beautiful!  We are here for you!
 
Keri
Diag 11/06/09 @ 40; Diag w/ TNBC Stage IIA, Grade 3 12/01/09 Node Neg. Dble MX with Recon 12/09 (twice)
Chemo 1/13/10 Chemo done 4/22/10 More recon surg 07/10, PET/CT Scan clear 07/10 NED 07/11
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outnumbered View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote outnumbered Quote  Post ReplyReply Direct Link To This Post Posted: Jan 27 2011 at 8:10pm
Hi Karen,
 
I am a stage I.  I did not have chemo but I had bilateral mastectomies twice (long story, they screwed up the first time).  First time I had expanders exchanged for silicone.  Then they had to redo it and I had expanders again with latissimus dorsi flaps.  then exchanged out for silicone again. 
 
Anything I can do, please shout.  I only ask for a ticket to visit in exchange!  LOL Just kidding, I hate winter and would love to be in the caribbean.  Seriously, anything you need, just ask.  We are here for you. 
 
XO 
 
~Sara

DX @ age 40 6/24/08 Stage 1 Grade 3 BRCA1+ 187delAG

BMX (nipple-areola-sparing) 8/5/08

Redo BMX (remove nipple and areola) w/ Lat Flap 7/6/09

BSO 9/3/09

NED since 08/05/2008
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