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which was the hardest for you to cope with?

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Poll Question: Which was the hardest to cope with concerning breast cancer?
Poll Choice Votes Poll Statistics
4 [11.76%]
27 [79.41%]
3 [8.82%]
0 [0.00%]
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outnumbered View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote outnumbered Quote  Post ReplyReply Direct Link To This Post Posted: Sep 23 2010 at 7:38am
The decision to have the mx was easy, but facing the initial result was difficult. 
The waiting for answers on everything was close to the top of the list.  The Very tip top of the list is held both by dealing with an incompetant non-tn savvy oncologist and facing my BRCA+.  The reality that this is not over, and my children may have to deal with this someday really sucks!  I have no family history, I have heard so many BRCA+ stories of families that are overcome with trauma and loss due to this horrid disease.  And now I am the beginning of that trauma in my family.  I got it from my mother, but she is a previvor.  My children were 11,12,and 13 when I was dx.  It has changed all of our lives forever.  They don't talk about it but every appointment I have, they worry.  I have to make it very clear when it is just a hair appointment, haha.  My daughter is the worst.  She deals with this by blocking it out.  Any time I do anything publicly like advocacy work, she is mortified.  She just wants to put it away.  I have to give back so I don't focus on my fear so I keep my BC public a lot.  Needless to say, we butt heads often.  I guess if it wasn't this, it would be something else, thats what mothers and daughters do at this age.  Its my job to embarass her.  Anyway, I digress...  This has just changed my whole family dynamic is the point I was making.  I hope when my children are older there is a vaccine to prevent. 
~Sara

DX @ age 40 6/24/08 Stage 1 Grade 3 BRCA1+ 187delAG

BMX (nipple-areola-sparing) 8/5/08

Redo BMX (remove nipple and areola) w/ Lat Flap 7/6/09

BSO 9/3/09

NED since 08/05/2008
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Rudy View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Rudy Quote  Post ReplyReply Direct Link To This Post Posted: Sep 23 2010 at 8:19am
Hi,
I got enormous financial help from the local BC organization...you know, the ones that organize local walks, etc.  No financial questions asked.  Also, Cancer Care   Call 1-800-813-HOPE or email info@cancercare.org  .  They ask that you fill out financial info, but they will definitely help.  YOu don't have to be destitute or uninsured.  Do this now because most organizations won't reimburse you, but will pay the bill directly to the dr. or pharmacy.
Try not to worry too much...everything always works out the way its supposed to.  Trust in the universe to take care of some of those uncertainties. 
Ruth
57 yrs/dx 3/24 IDC/Stage 2 Gr3 3.5cm Cl trial (Ad/Tax)neoadj. chemo April. BiMX with exp June. ACx1 July. Implants August. Started chemo again Sept. A/Cx2. Called it quits Oct. Port removed Nov.
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trip2 View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote trip2 Quote  Post ReplyReply Direct Link To This Post Posted: Sep 23 2010 at 4:54pm
Sara I am so liking your tattoo...Thumbs Up
Stage 2 2003
Stage 1 2007
BRCA 1+
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outnumbered View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote outnumbered Quote  Post ReplyReply Direct Link To This Post Posted: Sep 23 2010 at 5:03pm
Thanks, Pam.  Although I am not liking it so much at the moment...no one told me my whole foot and ankle would swell and hurt.  I suddenly have a cankle LOL and I am one week post tattooing.
So, does all this posting mean you are home?  Are you feeling better?
 
XO
~Sara

DX @ age 40 6/24/08 Stage 1 Grade 3 BRCA1+ 187delAG

BMX (nipple-areola-sparing) 8/5/08

Redo BMX (remove nipple and areola) w/ Lat Flap 7/6/09

BSO 9/3/09

NED since 08/05/2008
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trip2 View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote trip2 Quote  Post ReplyReply Direct Link To This Post Posted: Sep 24 2010 at 7:24pm
Ah oh, she has the owies, sorry to hear that.  Would an ice pack help?  Hope you heal soon so that you can enjoy..hugs,
Stage 2 2003
Stage 1 2007
BRCA 1+
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