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2nd Chemo Update
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amylynn View Drop Down
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Joined: Feb 23 2009
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    Posted: Apr 10 2009 at 9:55am
 Hi.  Just wanted to report on my second chemo.  I had my second chemo yesterday, April 9th, and the good news was the Dr was happy that my tumor had shrunk 50% in the first three weeks.  So, that was a good feeling.  Also, they were able to access my port this time, so that made me happy. 
 The bad part was that my blood pressure was a higher than normal, most likely from the Avastin, so they put me on a diuretic and want me to have it checked next week.
 My hair was falling out terribly, so I broke down and had it shaved and its not as bad as I thought it would be.  I thought I would cry terribly, but I didn't.  It actually felt a lot better as I hated seeing my hair fall out everytime I touched it.  I am going to the Look Good Feel Better program for beauty tips tommorrow, so that should be fun. 
 Anyway, just an update on me.  Take care everybody and enjoy your Easter weekend.
 
Amy, 36 yrs old
BRCA 1 positive
Diagnosed 02/09
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mabel View Drop Down
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Joined: Apr 01 2009
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Points: 10 		Post Options Post Options   Thanks (0) Thanks(0)   Quote mabel Quote  Post ReplyReply Direct Link To This Post Posted: Apr 10 2009 at 1:41pm

amylynn, I am so happy to hear you are doing well. I felt good shaving my head, I was getting a little depressed with fallling out everytime I touched it. Question: What is avastin? I am also having chemo before surgery and am brca1 positive. I am 31. How did you like the Look good feel better program. I have not been . Take care.

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Nancy View Drop Down
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Points: 3814 		Post Options Post Options   Thanks (0) Thanks(0)   Quote Nancy Quote  Post ReplyReply Direct Link To This Post Posted: Apr 10 2009 at 2:57pm
Mabel,
 
Here are a few links about Avastin, and our own Kirby  wrote a really good clip for our chemo tips about the Look Good Feel Beter program. Jave you gotten all the resources from the site? I am sure that I sent you a private message with my email address. The chemo tips are on the second page of the TNBC News, Resources & Tips Forum.
Nancy
 
 
 
Nancy
DD Lori dx TNBC June 13,2007
Lumpectomy due to incorrect dx of a cyst
mastectomy July 6 2007
chemo ACT all 3 every 3 weeks 6 tx Aug-Nov
28 rads ended Jan 2008
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TamJ View Drop Down
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Amy Smile so glad all is going good with you.Hope you like the look good feel good program,never went myself.I am a volunteer for American Cancer Society,I am in the resource room in a clinic,we give out hats wigs scarves bras prosthetics all free just have to fill out a form for statistics.If you have one in your area be sure to check it out,or ask your Dr. Theres also alot of info about cancer of all types in the resource room.In Bismarck ND theres a lady that started a non profit organizatin I'ts called my pink scarf inc. www.mypinkscarf.com She is a nice lady and all the scarves are made buy women that are touched by cancer or not, they just want to help.The expence is hers or whoever is sending it for shipping.Gift%20with%20a%20bowTera has nice wrapped gift bags that are so nice.Hope I didnt rammble on to long,when you mentioned the look good feel good program it sparked my interest.Have any ??? just ask.
 
Also as a reach to recovery volunteer we also have a bag of info books we give free.To breast cancer patients only! They also put a little fluffly in there for for your bra to fill it out a little till you get your permanent Item.We allways include a little pillow to put between the seat belt and your incisicion.
 
 check in your resource room they usually have a starter kit it a large plastic envelope with folders so you can keep everything organized,dates and all so you can bring it to every appt.
TammyPink%20Ribbon I love my pink ribbon Sorry I'm finally done,guess I had to vent my thoughts,Good Day to you all !!!!!!!
 
Amy I sent you a pm
 


Edited by TamJ - Apr 11 2009 at 3:21pm
TNBC
DX 1-24-03 IDC 1.8cm
stage 2 gr 3
L Mastectomy 2-27-03 Chemo AC & Taxotere,Radiation,
R Mastectomy Preventative 04
Reconstruction L&R
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LittleMsSunshyn View Drop Down
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Points: 4 		Post Options Post Options   Thanks (0) Thanks(0)   Quote LittleMsSunshyn Quote  Post ReplyReply Direct Link To This Post Posted: Apr 10 2009 at 8:16pm
I'm glad you feel ok.  I shaved my head last Easter.  Felt strong some how!  Hang in there and try to not despair to much.  You are among other sisters who know how hard it is.  Stay in touch!
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Terri View Drop Down
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Dear Amy,
 
It`s so wonderful that you have PROOF that your chemo is working!! Clap
 
I know losing your hair was difficult. I had long hair my whole life and it was kind of like my physical trademark if you know what I mean. So losing it was really hard. But like you, when my friend came over to shave it, it was a relief not to have it falling out in clumps everywhere and I didn`t cry. I think we women look pretty darn GORGEOUS bald! Star
 
I hope you have a lovely Easter and keep us updated.
 
Terri
IDC DX 8/17/07 (age 41)
Stage 1 Grade 1-2, 1.35 cm
2 nodes neg, Lumpectomy 10/07
Chemo: FEC 100 x 6, 35 rads
BRCA 1/2 NEG
PET/CT & Brain CT Nov 09
Brain MRI Aug 2012 NED
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Beth Anne View Drop Down
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Points: 376 		Post Options Post Options   Thanks (0) Thanks(0)   Quote Beth Anne Quote  Post ReplyReply Direct Link To This Post Posted: Apr 11 2009 at 5:54am
Amy this is such good news that the chemo is working so well for you!

Clap I am soooooo happy for you!!!

You are stronger then me lady I tell you!!! When I had my sister in law shave my head we were out on my deck and there were tears flowing down the side of my face the entire time... God Bless her for being there for me!

I do have to say when it was gone I felt some power about being the one to have it cut off instead of just waiting for it to fall out!

Enjoy your weekend and Happy Easter!

Hugs,
Beth Anne
Dx 5/07 DCIS Stage3 gr9 A/C x 6, Abrax x 16 Bi-Mass 2/08
Navelbine x 12, finished radiation end of July 08. DX Brain Met's 2/09StageIV
CK3/09.Brain resection4/09 WBR
Dreaming of dancing with Ned!
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amylynn View Drop Down
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Points: 100 		Post Options Post Options   Thanks (0) Thanks(0)   Quote amylynn Quote  Post ReplyReply Direct Link To This Post Posted: Apr 13 2009 at 6:18am

 Yeah, I worrieed about what my head would look like and I had my hairdresser turn me away from the mirrors and put my scarf on and told her I would deal with it when I got home.   It turns out I look just like my brother thats in the Army LOL!  Anyway, the Look Good Feel Better program was nice.  They gave a lot of nice makeup to us and also gave us a few turbans and scarves.  I have an appointment for a wig fitting this weekend, so we will see what I can come up with. 

 Its Monday and I am at work, but feeling tired today, so I can't wait until this day is over.  Take care everyone! 
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