Where Exactly are We From |
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SagePatientAdvocates 
Senior Advisor 
Joined: Apr 15 2009 Status: Offline Points: 4748 |
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 Posted: Sep 27 2009 at 9:03pm |
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I am from Los Angeles and my daughter who was dx with TNBC lives in NY.
Dawn, I agree, I think it would be marvelous to have a get-together. What would really make it special I think would be a couple of guest TNBC specialists who can talk to us. I think there is a yearly scientific meeting not open to the public that TNBCF has...if we could be included that would be super and then we can have social time as well.. I just met with some folks from the Bay area last weekend and although the group was small it was wonderful to meet everyone... Maybe as a start we can post some informal get together ideas as Kirby and Suzanne do in the Bay area? all the best, Steve |
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I am a BRCA1+ grandson, son and father of women affected by breast/oc-my daughter inherited mutation from me, and at 36, was dx 2004 TNBC I am a volunteer patient advocate with SAGE Patient Advocates
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dmwolf
Senior Member 
Joined: Jan 22 2009 Location: Berkeley, CA Status: Offline Points: 3619 |
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Posted: Sep 27 2009 at 9:04pm |
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Hi, all. I'm a Berkeley semi-hippie, 45 years old, with a husband, two
daughters ages 9 and 12, and two very silly looking 'stretch terrier'
dogs, Merkin and Dingleberry.
-Denise |
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DX 2/08@43 stg II IDC; gr2,0 nodes. Neoadj chemo, first ACx2 (fail) then CarboTaxotereX6(better). Lump, Rads done 11/08; Clodronate. False alarm queen: PetCT lung & TM marker. NED. PBM w/recon 9/10.
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Suzanne
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Joined: Jun 13 2007 Location: San Francisco Bay Area Status: Offline Points: 191 |
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Posted: Sep 28 2009 at 5:04pm |
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Everyone is always welcome to join us at our San Francisco Bay Area luncheons. We tentatively plan to meet in San Francisco on Sunday, Nov. 22. We also might be having an overnight "slumber party" in the spring on the Pacific coast at Rena's house. Stay tuned for details (and thanks to Rena for the offer to share her home)! Suzanne |
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1/2/07 IDC, stage 1 (T1c), 1.56cm, lumpectomy 1/8/07, triple neg., grade 3, sentinel lymph node biopsy negative, BRCA 1/2 negative; 4 AC/4 Taxol dose dense, 30 rads 2/07-7/07
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pwcassidy
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Joined: Jan 19 2009 Location: United States Status: Offline Points: 7 |
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Posted: Sep 28 2009 at 5:55pm |
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Hi Everyone, I am Patty from Massachusetts, I do know one other person around here who is triple negative. Her initial dx was about a year before me and so far for her she is fine. I am just about to enter my 3rd treatment since my reaccurance in dec 08. I started with carboplatin and avastin which worked jan through june, then started a clinical trial gemcitibine and sorafenib (blind not sure if i got it). That did not work at all. Not sure what my next step will be.
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TNC, stage3, Grade 3 1/08
Mets to lymph nodes and bones 1/09 |
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dmwolf
Senior Member
Joined: Jan 22 2009 Location: Berkeley, CA Status: Offline Points: 3619 |
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Posted: Sep 28 2009 at 6:50pm |
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Suzanne, a slumber party? I LOVE slumber parties! Can we dance and make fruity drinks and eat chocolate? I have a friend who has a slumber party every year. Her husband and children disappear, and we girlfriends arrive with our pajamas, sushi, and serious alcohol. Big fun!
Love, Denise |
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DX 2/08@43 stg II IDC; gr2,0 nodes. Neoadj chemo, first ACx2 (fail) then CarboTaxotereX6(better). Lump, Rads done 11/08; Clodronate. False alarm queen: PetCT lung & TM marker. NED. PBM w/recon 9/10.
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KatePV
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Joined: Apr 20 2008 Location: Bay Area, CA Status: Offline Points: 34 |
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Posted: Sep 28 2009 at 9:28pm |
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Hi-
I'm from the Bay Area, too. Please add me to your email list for the next outing. My email address is Katepv2@gmail.com. I look forward to meeting some new BC ladies. Thanks- Kate |
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DX 11/29/07 Stage 2, Grade 3 No Nodes involved, DD ACT chemo, Rads, bilateral mastectomy, hysterectomy
Lumpectomy Dose-Dense chemo 4 A/C 4 Taxol 30 radiation |
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Carol (Tenn)
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Joined: Aug 06 2009 Location: Paris,Tennessee Status: Offline Points: 2707 |
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Posted: Sep 29 2009 at 12:29am |
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It almost makes me sorry I'm not from the Bay area..lol
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St 2 Gr 3, A/C/T, DD
Radiation x35 Rec chest wall 07/09 Radiation x28 NED 10/24/11 NED 10/5/12 NED 03/15/13 |
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musette green
Groupie 
Joined: May 29 2009 Location: So.Ca Status: Offline Points: 82 |
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Posted: Sep 29 2009 at 11:16am |
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I don't live in the bay area, but I do know how to get there! Sleep over sounds fun! Haven't been to one since I was 12. Currently live in Southern Cal., about an hour or so from LA ( traffic permitting) and 30 minutes from Santa Barbara, Ca. The best of both worlds, San Buenaventura
(Ventura) Californa!. |
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DX 10/08. IIB,gr 3, 2.5cm. TNBC, BRAC1&2-, nodes+(left axillary, supraclavicular, ant. mediastinal & IM). Neoadjuv. chemo 4x C/T. Left mast.3/09,completed 40 rads 9/09. Reconstruction pending.
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tnbcmom45
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Joined: Feb 22 2009 Location: Mansfield, Ohio Status: Offline Points: 10 |
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Posted: Sep 29 2009 at 5:34pm |
 Hi everyone I'm from SUNNY MANSFIELD, OHIO. LOL
Thats what they say on the radio... but it's almost never sunny
I have a question for everyone too
I'm Native American is anyone else?
Edited by tnbcmom45 - Sep 29 2009 at 5:49pm |
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IDC TN dx Dec 12 2008
Had lumpectomy on 01/2008 0 Node involvement Clear margins. After second surgery 6x A/C & Neulasta 6x Taxol & Neulasta 5 weeks rads. about to start 
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Suzanne
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Joined: Jun 13 2007 Location: San Francisco Bay Area Status: Offline Points: 191 |
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Posted: Sep 29 2009 at 6:26pm |
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Kate, I'm adding you to the Bay Area email list. Welcome to the group! Denise, you can do whatever you want at the sleepover...as long as it's legal. Chocolates and fruity drinks sound yummy! This will be such fun. Would anyone else like to rent a kayak and go on a short sunset coast tour? Or how about whale watching?
Musette green, you, of course are invited. PM your email address and I'll add you to our list.
Suzanne Edited by Suzanne - Sep 29 2009 at 6:27pm |
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1/2/07 IDC, stage 1 (T1c), 1.56cm, lumpectomy 1/8/07, triple neg., grade 3, sentinel lymph node biopsy negative, BRCA 1/2 negative; 4 AC/4 Taxol dose dense, 30 rads 2/07-7/07
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bondande
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Joined: Apr 01 2009 Location: ohio Status: Offline Points: 167 |
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Posted: Sep 30 2009 at 3:07am |
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I am from Mansfield, OH-IO. If there is a tnbc group here please let me know or maybe we could start one.
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age55,Stg2a,Gr3,3.8cm tumor,mod.rad.mast.lft brst3/4/09,4ac,4taxol,33 rads.done11/2/09.BRCA1+oophorectomy1/5/2010,mast.rt brst 2/18/10,NED,bonescan 8/16/10,NED,catscan11/29/10NED catscan 3/17/11 NED
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123Donna
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Joined: Aug 24 2009 Location: St. Louis, MO Status: Offline Points: 13510 |
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Posted: Sep 30 2009 at 4:16am |
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I wish I lived in the Bay Area, what fun! I only know 3 other people in the St. Louis, MO area that area TNBC. It would be wonderful if we could have some sort of local support group.
Maybe this has been discussed before, but could this forum have a new section about local area events, meetings where members can post about upcoming events? |
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DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15 |
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cmtrots
Senior Member
Joined: Sep 04 2008 Location: Montana Status: Offline Points: 108 |
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Posted: Sep 30 2009 at 7:53am |
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HELLO!!!!! I'm sitting here watching it snow. I'm from Bozeman Montana. I bet big bucks no one from this site is from there. I've met women with breast cancer here, but no TN.
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12/02 mast w/recon neg nodes A/C
12/05 5/11 pos nodes,taxotere 6/06 3 nod pos,6 wks rad'tn and Xeloda 7/07 lung met, lung surgery,Taxol and Carbo 8/08 lung mets again, Avastin and Abraxene |
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dmayes
Senior Member
Joined: Apr 23 2009 Location: Alberta, Canada Status: Offline Points: 183 |
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Posted: Sep 30 2009 at 2:22pm |
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Hi ladies,
I am an aussie living in Alberta! Was Dx a few months after moving here (and no I dont blame the move
 ). I have finished chemo (also had no side effects - except the hair falling out). My friends all tell me to act sick, like they knew I was doing chemo but couldn't get over the energy and appetite I had (I loved curries - couldnt get enough!).I meet with the support group here - no one has TNBC but all are lovely ladies who share their experiences and support. It is good to be able to meet them - and hope to meet a TNBC soon :)
Cheers Debs
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Debs | Laugh every day, Love every minute.
Dx Mar09 - LB IDC 4.5cm - 0 nodes. BRCA - Cytoxin/Taxotere x4 end Jul09. ReCon surgery March10. |
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dmwolf
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Joined: Jan 22 2009 Location: Berkeley, CA Status: Offline Points: 3619 |
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Posted: Sep 30 2009 at 2:47pm |
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Maybe we could have a remote, distributed slumber party. Many local slumber parties on the same night, with pictures and descriptions posted after the fact. Or we could teleconference in! Ichat?
love, Denise |
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DX 2/08@43 stg II IDC; gr2,0 nodes. Neoadj chemo, first ACx2 (fail) then CarboTaxotereX6(better). Lump, Rads done 11/08; Clodronate. False alarm queen: PetCT lung & TM marker. NED. PBM w/recon 9/10.
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laghdam
Groupie
Joined: Jul 28 2009 Location: VA Status: Offline Points: 59 |
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Posted: Sep 30 2009 at 4:41pm |
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HI Alli,
I am in Centreville Va. ARe you in any of the local groups?
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age 42
dx may 09 TNBC IDC-no node involvement Stage 1, Grade 3 1.7 cm tumor 61509 dbl mast/ reconst 72309 AC/T dose dense 91709 Taxol (8 weekly rounds) 1109 completed treatmt 12110 implant |
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tnbcmom45
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Joined: Feb 22 2009 Location: Mansfield, Ohio Status: Offline Points: 10 |
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Posted: Sep 30 2009 at 5:02pm |
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I don't think there is one here in Mansfield. Starting one ourselves seems the best answer. I like the slumber party idea too.
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IDC TN dx Dec 12 2008
Had lumpectomy on 01/2008 0 Node involvement Clear margins. After second surgery 6x A/C & Neulasta 6x Taxol & Neulasta 5 weeks rads. about to start
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LisaMarieS
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Joined: Jul 11 2008 Location: Chicago Status: Offline Points: 36 |
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Posted: Sep 30 2009 at 5:20pm |
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checking back in --- im from a suburb of CHICAGO, Barrington Hills.
Slumber party sounds fun -- at least dinner and drinks..... (((PS my brother-in-law is from Lexington Ohio... weird with you few from Mansfield --- i LOVE the Leaning Tower Bologna sub, has anyone had that?))) |
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11/05 misdx needle biopsy
9/06 dx 37yrs old 10/06 lump/axil diss-TNBC Infil Carc w/medullary features 3.1cm, 13 neg nodes, stage IIa, grade 3 11/06-3/07 6x TAC 6/07-8/07 rad's 7/07-BRCA 1/2 Neg |
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MaryinSarasota
Senior Member
Joined: Nov 08 2008 Location: Sarasota Status: Offline Points: 362 |
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Posted: Oct 01 2009 at 3:07am |
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Used to live at Fort Loramie Lake, Ohio. Born in Troy, Ohio. I am missing the change of leaves this time of year. Also the Oktoberfest in Minster.
But, tis a beautiful day in Sarasota, Florida with no humidity and sunny 74. |
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53 @ Dx 5/08 Stage 1, grade 3, IDC 1.6 cm, 0 nodes, TNBC, lumpectomy, chemo TAC-6, radiation-34 12/18/08
NED-10/09, PBM w/TE recon. 7/10, removal of TE/infec 8/10. CT chest. Rec fat-graft & stem cells |
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