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Darla 
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Joined: Jul 24 2007 Location: United States Status: Offline Points: 162 |
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 Posted: Nov 08 2007 at 1:22pm |
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Hi Jules,
Thanks for the advice about the heating pads/ice packs - I never thought of it. I know what foods to avoid, what's interesting or strange is that those foods - green leafy vegs, anything with a lot of vitamin k, have to be avoided because they LOWER your INR - so the blood is too thick. I had the opposite problem, my INR spiked and my blood was way too thin. On the plus side I got to eat as much salad as I wanted this week. I'll find out tomorrow what it is now, hopefully between 2-3. |
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thinkpositive
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Joined: Jun 24 2007 Location: United States Status: Offline Points: 111 |
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Posted: Nov 08 2007 at 3:42pm |
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I am triple negative diagnosed March 2006 left breast, bilateral mastectomy, 4xac 4xtaxol. Took Neulasta during chemo and experienced muscle pain. Finished chemo 12-06. Knee pain started in April 07 - had xrays with no evidence of bone cancer. Orthopedic dr. suggested advil and exercise. Pain in upper right arm and shoulder started in August - xray of shoulder shows no evidence of bone issues. Pain in left arm and shoulder in October. Pain so extreme in both arms that I am unable to sleep. Orthopedic specialist diagnosed bursitus in both arms and am currently doing physical therapy. Just seems too odd that knee and arm problems started after chemo. Orthopedic dr. said bursitus typical for athletes with repetitive overhead activity (tennis etc.) I am not athletic.
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hope4life
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Joined: Nov 01 2007 Location: Canada Status: Offline Points: 1 |
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Posted: Nov 20 2007 at 9:39am |
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Hi Donna,
Well I don't want to upset you but I feel you need to know what my best friend went through. She was diagnosed with triple negative breast cancer Dec 4/06, and had a lumpectomy and lymp nodes removed (small percentage in nodes) she went through the most aggresive chemo and radiation and a 4-6 months later was experiencing a lot of back and leg pain. She had several tests including MRI and bone scans and they turned out normal. Dr's were telling her the pain was probably physcosamatic and prescribed her pain medication, anti-depression/anxiety medication. Then about a month ago she had a bone marrow biopsy and a PET scan which revealed she had cancer in her bones and liver. She was diagnosed Oct 29/07 with terminal cancer and passed away a week later November 6.
Please, please go to the doctor and demand the PET and bone marrow test as the MRI and bone scan did not detect anything. Apparently they don't do PET exams on breast cancer patients because it's very hard on the heart. I really hope that your case is not the same as my friends but you have to be your own advocate and push the Drs as much as you can. Please let me know how you make out. Here is my personal email address: robyn_maclean6@yahoo.ca
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Donna
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Joined: Aug 09 2007 Location: United States Status: Offline Points: 9 |
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Posted: Nov 20 2007 at 10:31am |
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Hi Robyn, I'm going to ask my Dr. next week about those test, thank you. On Monday having the second mastectomy for preventive. So for they think it hasn't spread but, always worried it will. I do have lymph nodes enlarged again but there praying its because of the port I had. I'll let you know how it all turns out. Thanks again.
Donna
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Donna
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trip2
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Joined: Jun 03 2007 Location: Under Palm Tree Status: Offline Points: 8549 |
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Posted: Nov 21 2007 at 3:02pm |
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Donna I just wanted to send you best wishes and hugs hoping your surgery goes smoothly Monday and you heal quickly!
Please do keep us posted,
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Stage 2 2003
Stage 1 2007 BRCA 1+ |
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Kris
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Joined: Jan 14 2008 Location: United States Status: Offline Points: 1 |
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Posted: Jan 14 2008 at 3:37pm |
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I was diagnosed with stage II, triple negative in July of '07. I was glad to run across this site because being triple negative, I've felt left out of many breast cancer discussions.
I was treated at a hospital outside of Chicago that focuses both on convention and naturopathic treatments. When I first started Taxotere, they immediately suggested glutamine supplementation because it helps with the neuropathy. I take a pretty high dose for 7 days after each treatment, then reduce it. It has really helped me - for a few days after I will feel that tingling starting but by the time the 7 days are up it's pretty much gone. It has also been shown to reduce mouth sores, and I never got any of those even after 4 A/C & 4 Taxotere. It also supposedly can help with wasting syndrome.
Glutamine is somewhat controversial though - some believe it feeds tumors. But if you Google "glutamine neuropathy" several sites come up saying that it has been shown to work against neuropathy.
While the tingling goes away, I do have some joint pain but I just finished my last treatment last week. I'm hoping it will subside over time if I keep up a regimine of good diet, appropriate supplements, etc. I was kind of relieved to hear someone else mention ankle and shoulder pain because I thought I was going nuts!
I hope this helps!
Kris
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woolie
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Joined: Jul 11 2007 Location: Uruguay Status: Offline Points: 30 |
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Posted: Jan 14 2008 at 4:12pm |
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Tomorrow is my last radiation treatment and that will complete all my treatments for now , the rest is follow up for now so Good Luck to everyone starting out it is a long road and this website does help.
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trip2
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Joined: Jun 03 2007 Location: Under Palm Tree Status: Offline Points: 8549 |
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Posted: Jan 15 2008 at 3:04am |
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Hi Kris,
Welcome and thank you for sharing your story about your experience with glutamine, it sounds like it really helped you. It helps so much going thru treatment when you have something you can take to ease up the side effects if you're experiencing them.
Interesting,
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Stage 2 2003
Stage 1 2007 BRCA 1+ |
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trip2
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Joined: Jun 03 2007 Location: Under Palm Tree Status: Offline Points: 8549 |
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Posted: Jan 15 2008 at 3:06am |
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Hi Woolie,
That is wonderful, today is your last treatment day!
 I hope you are doing well,
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Stage 2 2003
Stage 1 2007 BRCA 1+ |
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lisab
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Joined: Sep 27 2007 Location: United States Status: Offline Points: 169 |
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Posted: Jan 15 2008 at 6:26am |
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Dear Woolie - hooray - I am so glad for you. Now you can focus on getting some of your strength back. Rads really took alot out of me, not the first time, but the second time when I had chemo with them. I am so excited for you - nothing like finishing up a treatment. Woo Hoo!
Love and hugs,
Lisa B.
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