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Darla
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Joined: Jul 24 2007
Location: United States
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Points: 162
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Posted: Mar 01 2008 at 9:23am |
Hi Ronda,
I am excited about the new nutrition, diet etc thread. I am also glad that my onc made a mistake when he said 20 grams of fat.
I am so glad you got to go to the conference, your reports have been excellent! Thank you so much.
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Skippy123
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Joined: Jul 27 2007
Location: United States
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Points: 101
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Posted: Mar 01 2008 at 10:02am |
Heed the low-fat/exercise advice!!
Saw my oncologist yesterday for a first follow-up after last day of chemo (12/26) and surgery (1/25 & 2/12.) He said he would see me again in 4 months. I asked him, "What is the best thing I could do for myself at this time?" Diet, exercise, immune system, supplements, other alternative therapies, etc.? He told me not to gain any weight and to exercise! He explained to me that there was enough substantial evidence in the cancer medical community (I know, there are differences of opinions...) to support rationale for triple negatives to defend themselves from reoccurences by eating a low-fat diet, exercising, etc. Interestingly, he added that telling me to not gain any weight was like telling a lung cancer survivor to stop smoking! This gives me some hope and restores my sense of control.
Please don't be offended by the weight remark. My doctor is wonderful, kind, caring, and a very good listener. He knew how to treat me right from the start! In case you were wondering, I'm 5'6" and weight 135lbs. Even for me, weight gain can be dangerous. Very interesting. I will however continue to follow the advice of my nutritional oncologist and through diet, supplements, and exercise work on building my immune system.
I began this journey on August 15th by starting chemotherapy. Today I'm one week into radiation after lumpectomy. I had 75% shrinkage of my triple negative tumor (according to lump. pathology report) from chemotherapy. I now have to fight any residual, rogue cancer cells that managed to escape into my system. My plan right now is to take my supplements every day (can't hurt) eat a low-fat diet rich in veggies and fruits, and exercise everyday by at minimum walking 30 minutes.
Two great reads: "After Cancer Treatment" by Julie Silver, and "Beating Cancer with Nutrition" by Patrick Quillin.
By the way, Ronda, I love what you have shared from the conference! Thank you.
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Skippy in Austin
Dx July 2007
IDC, Stage II?
Triple Neg
BRCA 1/2 Neg
A/C August - October 2007
Taxol October - December 2007
Lumpectomy Jan/Feb - 2008
node negative
Finished rads April 2008
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Ronda
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Joined: Jul 31 2007
Location: United States
Status: Offline
Points: 587
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Posted: Mar 01 2008 at 2:03pm |
You're All Welcome Ladies, I'm hitting another conference next weekend, I'm gonna find some long time triple survivors!!! Like I said before, we will change our statistics through what we can control and that's how we'll give those who come after us hope.
Skippy you sound like you're doing sooo good, I know I get pretty sarcastic sometimes times (morbid too) but I'm glad you're still hanging out with us!!
On a different note, I didn't get to critique the Young Survival Conference BUT I plan on pitching them a bit of sh%t because the food that was catered by the hotel was large volumes of fat (cheese), processed white flour, soda pop and generally crap. What a mixed message it sends to have all of these educational classes of nutrition and the feed us that. I have no will power either and ate too much cheese. I think that's why I caught this cold. There is so much out there that pushes us to make unhealthy choices, we really need to re-inforce this in one another. I just simply don't buy the crap, thus I make my whole family support me !
I did PM admin for those new threads.
Later,
Ronda
Edited by Ronda - Mar 01 2008 at 3:54pm
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DX 3/07 IDC Trip neg, stage 2b, SN biopsy 3 node neg. No vascular invasion, Mast 4/07 AC+T DD Finshed 8/07 BRCA 1, Proph Mast 10/07. Reconst & Prophy Hyst. 10/08
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cg---
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Joined: Jul 20 2007
Location: Canada
Status: Offline
Points: 1379
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Posted: Mar 01 2008 at 2:47pm |
I got an appointment with a registered dietitian for March 14, 2008 and I am going to get as much help as possible and meal plans.
I will keep everyone posted.
This might be trickier than I thought Ronda - Some how shrimp was under the column for LIMIT - egg yolks, nuts and seeds, shrimp.
The AVOID list looks like an inventory of my cupboards! So much for considering Lay's Chips as one serving of vegetables.
Love,
Connie
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Ronda
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Joined: Jul 31 2007
Location: United States
Status: Offline
Points: 587
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Posted: Mar 01 2008 at 4:14pm |
Hi Connie,
We'll all start finding cool tricks, short cuts and compromises to share with eachother. One thing is Nonfat/lowfat yougurt in place of sour cream for dressings and dips...you can't tell. Also I just discovered Ben & Jerrys Low fat Cherry Garcia...it's mine mine mine! I just eat a bite at a time when I need a bit of a sugar fix. I think I should also point out there are alot of nasty low fat foods out there that are loaded with chemicals...but are low fat. I tried to take that route before and ended up with hives from some nasty additive. If we can figure this out using whole, good foods I think all will benefit. Give us the scoop on what your dietician says. Let him/her know about the WINS study.
Ronda
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DX 3/07 IDC Trip neg, stage 2b, SN biopsy 3 node neg. No vascular invasion, Mast 4/07 AC+T DD Finshed 8/07 BRCA 1, Proph Mast 10/07. Reconst & Prophy Hyst. 10/08
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cg---
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Joined: Jul 20 2007
Location: Canada
Status: Offline
Points: 1379
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Posted: Mar 01 2008 at 5:09pm |
Two things for you to discover....Chunky Monkey and Carmel Sutra - by Ben&Jerry. (These should be reserved for extreme stress).....
I got red splotches from additives too.....
I will keep you posted on the dietitian's suggestions.
Connie
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Skippy123
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Joined: Jul 27 2007
Location: United States
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Points: 101
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Posted: Mar 02 2008 at 4:32am |
Ronda,
I've got a good one...during chemotherapy one day in December, a volunteer passed around a plate of sweet cookies, pastries, brownies, etc. to all of the patients in the infusion room. Bless those volunteers and all that they do, but come on! Sugar is the devil!
With that being said...my nutritionist did advise me to carb-starve my cells the day before chemo, and then when infusion began to carb-load by snacking on Goldfish, dates, raisins, or other high-glycemic foods. This, he explained, increased cancer cell glucogen (?) uptake and would feed very hungry cancer cells a hefty dose of toxic A/C or Taxol. This is the same reason that we are asked to not eat before scans and then are shot up with glucogen(?) isotopes to find evidence of cancer cells that are devouring the glucose. (I'll do my homework on this topic later as I'm not articulating very well.)
Ben and Jerry and ice cream fans...I can't live without Breyers Low-carb fudge bars. They are sweetened with Splenda, are 100 calories, 3g sugar, and 9 carbs. I role the fudge bar in chopped walnuts!
Discussion board idea...
How about a new topic devoted to threads relating to living beyond treatment? There we can post ideas and get support relating to diet, exercise, mood, etc. I've really been battling a bit of anxiety lately!
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Skippy in Austin
Dx July 2007
IDC, Stage II?
Triple Neg
BRCA 1/2 Neg
A/C August - October 2007
Taxol October - December 2007
Lumpectomy Jan/Feb - 2008
node negative
Finished rads April 2008
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Zellie
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Joined: Dec 21 2007
Location: Baltimore, MD
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Points: 6
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Posted: Mar 02 2008 at 3:55pm |
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Hello,
I'm really glad I found this site.
I've never quite understood where I fit in to this BC life.
I was 42 when diagnosed w/IDC, Stage I, grade 3. I had 8 rounds chemo, 33 rad & lumpectomy.
Since you guys are talking about nutrition, did alcohol ever come up at the conference? I like to drink white wine, but have limited it to 1-2x a wk out of fear. Any thoughts?
Edited by Zellie - Mar 02 2008 at 3:57pm
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Ronda
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Joined: Jul 31 2007
Location: United States
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Points: 587
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Posted: Mar 03 2008 at 5:04am |
Hi Giselle, Welcome! The PhD nutritionist at the conference said a little bit of wine is o.k. I too have limited my wine intake mostly to be kind to my poor chemo'd liver! Fat seems to be the bad guy for cancer, diet fat for triple negs, body fat for ER positives (body fat increases circulating estrogens). I will ask the question at the next conference to get a second opinion.
Skippy, That totally makes sense about carb starving the cancer! See, it's information like this that will make our doctors evolve. Of course they'd like us to stay off the internet, because that's how we discover the latest things THEY should know about! I'd like to develope a hand out out for the do-gooders that gives healthy food suggestions. I happened to sit next to the PhD nutritonist at the airport for an hour and we talked about this very issue. She said the oncs don't like to restrict diet during chemo because the women are going through so much, she said that's like letting a smoker continue to smoke during lung cancer treatment. If the oncs don't push it, who will?? WE WILL!!! Maybe they'll get it someday. FYI There's site on Splenda www.splendaexposed.com I use to use Splenda prior to BC and was having kidney problems, someone told me about this site and low and behold when I quit using splenda my symptoms went away and never came back. There is another alternative sweetner called stevia, it's derived from a plant, and is low carb/calorie. I thought Splenda was the greatest until I discovered it's closer to chlorine than sugar! (Now Splenda!!! Will our suffering ever end!?!)
Ronda
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DX 3/07 IDC Trip neg, stage 2b, SN biopsy 3 node neg. No vascular invasion, Mast 4/07 AC+T DD Finshed 8/07 BRCA 1, Proph Mast 10/07. Reconst & Prophy Hyst. 10/08
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sharon in Mich
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Joined: Feb 29 2008
Location: United States
Status: Offline
Points: 70
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Posted: Mar 04 2008 at 10:02am |
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Hi all--I screwed up my courage and asked my onc about wine in my first post rads appt. I like my two glasses of white wine with dinner and had read all alcohol was bad and was a risk factor for bc. During the chemo and all other nasty treatments I was not willing to give up one of my comforts, so delayed asking but took folic acid, which I red was a mitigator. She, the onc, said, and she does keep up with things, that alcohol was not a factor in hormone negative breast cancer. The reasons she gave were that the liver filters estrogen, and if the liver is at all compromised it does a worse job of that. Hence, if estrogen is not a factor in your cancer than alcohol in moderation isn't either. She was particularly keen on assuring me that I had done nothing to deserve this cancer, which was nice.
Sharon
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