Yet another triple negative |
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elsad 
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Joined: Oct 28 2007 Location: United States Status: Offline Points: 2 |
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 Topic: Yet another triple negativePosted: Oct 28 2007 at 7:42am |
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Hello,
My name is Denise and I am a survivor. Was diagnosed July of 2006 and finished my last radiation treatment in March of this year. Also did the Chemo trip with the TAC regimen. But I am still here and my hair has grown back. Are there any studies that we could get involved in to help find answers to our specific sub type problems? Have been looking for clinical trials that just target us but haven't found any yet. Just wanted to introduce myself. You will be hearing a lot from me.
Denise Tanner
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Nancy
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Joined: Jul 23 2007 Location: Altoona, PA Status: Offline Points: 3814 |
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Posted: Oct 28 2007 at 9:43am |
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Hi Denise,
Welcome!
 My name is Nancy and my daughter is Lori, (dtr dx TNBC). You are going to find a wealth of information from the ladies on this site. They are so knowledgeable, articulate, and just plain wonderful. With you on board now, there will be another source of information from someone who has gone down the same road they have. They will welcome you with open arms
Hugs,
Nancy
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shellieh51
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Joined: Oct 10 2007 Location: United States Status: Offline Points: 218 |
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Posted: Oct 28 2007 at 2:28pm |
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Welcome Denise. Please share any study information that you discover. There is so much information available but it seems that it takes a 'village' to decipher it.
Take care.
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dx 11/6/2006 1.5cm IDC, Gr3, TN, BRCA-, lump, partial breast rads 1/2007, 4 AC, 12 wkly Taxol. Completed tx 8/2/2007. NED 12/2007. Malignant parotid tumor 4/2008. Clear head 4/09 & bones 11/08 -
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CarolC
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Joined: Oct 27 2007 Location: United States Status: Offline Points: 7 |
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Posted: Oct 29 2007 at 4:08am |
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Hello,
And here I am yet another Triple Negative who was just DX 9/182007. My tumor turned out to be 1 cm and a Grade 3 and because it was discovered shortly before my scheduled surgery for breast reduction; I chose to have a bi-lateral mastectomy. That surgery was 10/15, no node involvement but now I wait and try to learn before meeting with the oncologist for the first time this week on Wednesday.
I do NOT want to have Chemo, but of course will weigh all the options that I am given. This Triple Neg. issue is of deep concern even though my surgeon tells me I am lucky that the Her2neu is negative...In fact, I've noticed that my docs tend to minimize the importance to the Triple Neg DX insisting that the size of the tumor and whether there was lymph node involvement is a more accurate method of determining prognosis. Not sure if this is to dissuade me from panic...
 I am curious about something else since I have no family history of BC that I am aware of. I grew up as an Air Force brat and lived in Puerto Rico in the mid-1950's and was exposed to quite a bit of DDT on a daily basis. Now I'm reading some of the research that indicates there may be a connection with DDT and BC and I'm wondering if anyone else has had that exposure? Especially if any other Triple Neg sisters have had that same exposure or believe there may be a connection since it is believed our cancer is possibly basal cell?
Thank you so much for this incredibly valuable website with resources leading to all the latest research on Triple Neg cancer. I will be checking in and reading here frequently.
CarolC
Omaha, NE
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shellieh51
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Joined: Oct 10 2007 Location: United States Status: Offline Points: 218 |
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Posted: Oct 29 2007 at 4:13am |
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Welcome!
I know I didn't want chemo but then I didn't want BC either - some things just don't bounce our way. Regardless of what the onc says, check it out and get another opinion. It is important to feel comfortable with your tx.
Bless you.
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dx 11/6/2006 1.5cm IDC, Gr3, TN, BRCA-, lump, partial breast rads 1/2007, 4 AC, 12 wkly Taxol. Completed tx 8/2/2007. NED 12/2007. Malignant parotid tumor 4/2008. Clear head 4/09 & bones 11/08 -
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trip2
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Joined: Jun 03 2007 Location: Under Palm Tree Status: Offline Points: 8549 |
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Posted: Oct 29 2007 at 8:25am |
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Denise and Carol a very warm welcome to both of you and we look forward to hearing more from you.
This is a great board to read thru, research online, read and second opinions as Shellieh mentioned can really help in the decision department.
Best wishes and keep us posted,
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Stage 2 2003
Stage 1 2007 BRCA 1+ |
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Lisa L
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Joined: Jul 06 2007 Location: United States Status: Offline Points: 146 |
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Posted: Oct 29 2007 at 2:18pm |
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Hi gals
Just my two cents worth. I would consider chemo if I were you. It is our best defense being triple negative. Chemo works best on aggresive cells, and that is what triple neg tumors are. I did chemo 6 A/C and 5 of 6 Taxol. I can honestly tell you it was not that bad. I know everyone is different, but I was never once sick. The Taxol was worse for me, usually it is the other way around. I was tired of course, and the house work suffered, but oh well! I worked full time throughout except for the time off after my surgery. Feel free to ask specific question if it will help with your decisions!
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Dx 8/05 age 43
mast & lat flap 10/05 Triple neg BRCA neg IDC 4.5cm rt br 0/1 sen node 6 A/C 5 Taxol, 25 rads 11/05-6/06 Central Illinois Currently NED |
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patricia
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Joined: Oct 26 2007 Location: United States Status: Offline Points: 15 |
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Posted: Oct 30 2007 at 4:59am |
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Hi Carol,
I also did not want kemo but they say that triple neg. responds very well to kemo. My tumor was larger but I had 4 of AC and 13 taxol. Good luck and if they want you to have kemo, remember it's only for a short while in respect to the rest of our lives.
Let us know how your doing.
Patricia
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CarolC
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Joined: Oct 27 2007 Location: United States Status: Offline Points: 7 |
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Posted: Oct 30 2007 at 9:19am |
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Thank you so much ladies.... I switched to a different oncologist who I will meet on Friday. A BC survivor that I met on another board who lives here in Omaha says he's the cream of the crop here. So we shall see.
Does anyone know anyone who didn't have chemo who is doing ok? Just curious...I know my fear is probably irrational but it is what it is.
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