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Zometa?

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nmunoz View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote nmunoz Quote  Post ReplyReply Direct Link To This Post Posted: Nov 19 2010 at 11:15pm
Dear Autumn,

My oncologist believes in keeping you as healthy as possible overall so he prescribes supplements and promotes changes in diet and life stlye not only focused on cancer prevention but overall health. So, supplement wise he has me on 5,000 is of vit D3 (I began with 2,000 but after testing showed that my levels were low he increased it and they are now almost normal), B complex, CoQ10, Niacin, Magnesium, Selenium, Vitamin C, baby Aspirin, Probiotics, DHA, Melatonin and folic acid. I also follow Edge's CAM regimen which I showed to my oncologist and he told me to go ahead and do it. As for the diet he advocates the mediterranean diet, eating organic, low fat, low sugar, whole grains. Also plenty of exercise.
I take more pills than my parents nowadays but at least I feel I'm doing something.

Best,

Natalia
Natalia, 38 years

Dx TNBC 10/22/08, BRCA1+

Double Mx 11/20/08 with Recon.

3/37 nodes

Rads 7 weeks done 8/09

ACx4 every 2 weeks and Tx12 weeks. Avastin e/3 weeksx10 (Clinical Trial) Done Dec/09
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Autumn10182001 View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Autumn10182001 Quote  Post ReplyReply Direct Link To This Post Posted: Nov 20 2010 at 8:45pm
This is what I take 6 days a week.. This is my own plan.. some of these are all part of the mulit vitamin or the Energy B Complex, so it is not that many pills, but I do take 31 pills a day.. 29 vitamins/supplements and 2 medicine...  I take cinnamon and tumeric at every meal.. Wheat grass capsules first thing in the morning..  and a couple of them are caliums.. and of course 2 are vitamin D3..  I am exercising more, probably not enough, eating mostly organic-- I try to keep the iron and copper down as I have read that they help TNBC grow.
   
Vitamin / Mineral   Total  
       
A - 50% beta carotene 50 Palmitate   5000 IU
A mixed Carotenoids (BETA &  ALPHA)   25000 IU
Alfalfa Leaf   1050 mg
Aspirin   Take at Dinner x 3 days a wk   81 mg
B1   (3 days per week)   75 mg
B-12  (3 days per week)   175 mcg
B-2  (3 days per week)   75 mg
B-5 (Pantothetic acid) (3 days per week)   125 mg
B-6 (3 days per week)   100 mg
Beet Root   2100 mg
Betanine HCI   10 mg
Biotin   150 mcg
Biotin (vit H)  (3 days per week)   1 mg
Bioperine  (Black Pepper)   27  
Boron   1 mcg
C   273 mg
Calcium   2000  
Celexa   20 mg
Choline   120 mg
Chromium   200 mcg
Cinnamon  x 3   2700 mg
Copper   1 mg
D3   (51 D3 on Oct 14th)    9000 IU
E  (dalpha)   100  
E  (dgamma - 45, ddelta 20 dbeta 2)   400 IU
Eleuthero root  (3 days per week)   800 mg
Femara   0 mg
Fish Oil Omega -  3     EPA 650, DHA 450 Other 180   2560 mg
Fish Oil Omega -  9   112  
Folic Acid   1600 mcg
Ginkgo leaf (4:1 Extract) (3 days per week)   240 mcg
Green Tea Extract    450 mg
Inositol (Vit Bh)  (3 days per week)   50 mg
Iron   6 mg
K   100 mcg
Kale, Spinach, Dandellion Greens, Beets    40 mg
Maganese   2 mg
Magnesium   100 mg
Molybdenum   75 mcg
Niacin (vit B3)  (3 days per week)   75 mg
Oat Grain (in the maitake)   200 mg
Octacosanol from spinach (3 days per week)   300 mcg
Raspberry leaves   960 mg
Selenium   200 mcg
Shiitake Maitake     200 mg
Spirulina Organic  (3 days per week)   100 mg
Tumeric (825 from extract , 525 Tumeric)   4050 mg
Ubiquinol (COQ10)   50 mg
Wheat Grass (Kamut) Capsules    1950 mg
Zinc   10 mg
DX2/99 Stg I,ER+PR+ Chemo lumpectomy - Neg nodes,rads, tamox,femara. DX4/09, Stg IIB /III, TNBC IDC, Grade III, 2.5CM, mastectomy. 4AC DD,12 wkly taxol,BRAC1&2Neg, Right Mast 11/25/09
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tasoulla View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote tasoulla Quote  Post ReplyReply Direct Link To This Post Posted: May 17 2011 at 8:12am
How many of you had or are on Zometa?
Please i need your opinion as my mum doesn't know what to choose for her Osteopenia..
Her treatment was finished on 1.5 years ago had a DEXA 3 months after treatment which was normal and now repeated DEXA and shows increased osteopenia.......
Two conflicting opinions at the moment...
Her suregon recomments to start with Fosamax or Actonel and her ocnologist recomments to have Zometa twice a year.
Her surgeon suggests that zometa is to strong to start with and is of no use as an anticancer...but her oncologist says that zometa is use also as an anticancer..

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Lillie View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Lillie Quote  Post ReplyReply Direct Link To This Post Posted: May 17 2011 at 1:30pm
Wow Tasoulla, I can't help with this one. I'm sure someone will be along soon that can identify with this situation.

I'm wishing your mother and you good luck with whatever choice is made.

God Bless,
Lillie
Dx 6/06 age 65,IDC-TNBC
Stage IIb,Gr3,2cm,BRCA-
6/06 L/Mast/w/SNB,1of3 Nodes+
6/06 Axl. 9 nodes-
8/8 thru 11/15 Chemo (Clin-Trial) DD A/Cx4 -- DD taxol+gemzar x4
No Rads.
No RECON - 11/2018-12 yrs NED
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dmwolf View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote dmwolf Quote  Post ReplyReply Direct Link To This Post Posted: May 17 2011 at 2:04pm
Tasoulia,  a recent study did not show Zometa prevents or delays recurrence, though earlier studies suggested a benefit to women with ER+ cancers.  Other studies in europe suggest a benefit in using Clodronate, another bisphosphonate.  Drugs like Zometa carry the risk of osteonecrosis of the jaw ONJ. 

Though ONJ is more likely to occur in women who take Zometa often and for a long time (monthly or bimonthly for years), it has also been observed after a single dose, or in women who rarely get it.

ONJ is probably less likely to occur (not sure about this, but by hearsay) in milder bisphosphonates like Clodronate and Fosomax.

So...she'll have to decide.  There's no clear answer (what else is new in cancer?)

Good luck,

d
**Ostopenia is mild, therefore maybe take something low risk?  (not Zometa)
DX 2/08@43 stg II IDC; gr2,0 nodes. Neoadj chemo, first ACx2 (fail) then CarboTaxotereX6(better). Lump, Rads done 11/08; Clodronate. False alarm queen: PetCT lung & TM marker. NED. PBM w/recon 9/10.
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tasoulla View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote tasoulla Quote  Post ReplyReply Direct Link To This Post Posted: May 18 2011 at 2:20pm
hank you Lilie for your wishes....
Dennise thank you for your reply....most of oncologists for some reason highly recommends Zometa and i think is very strong for osteopenia.....
From the other point of view, oral drugs sush as fosamax carry the risk for esopgagecal cancer...
I will search for the Clodronate....did you ever had DEXA test?

Thank you...
All the best to all of you...!
Thank you
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