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TracyAMac 
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Joined: Aug 01 2010 Location: Toronto, Canada Status: Offline Points: 401 |
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 Posted: Oct 06 2010 at 8:28am |
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Chirs, I am so sorry to learn about Heather. Your note really touched me and reminds us all of how unpredictable TNBC, and life in general can be. For myself I go from days of "bring everything on to fight this" to "I wonder what would have happened if I had left things alone." Thanks for sharing your story and your thoughts
Tracy in Toronto |
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TN&non-TN tumors April/10 Gr3&2;1 metaplastic
Rmast.1/9 nodes w/isolated t.cells Taxotere&Cytoxan x6 Bone cancer 1980 age17;surgery&chemo AC+Methotrexate BRCA-ve On hormone therapy & Metformin Trial |
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hummingbird10
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Joined: Jun 20 2010 Location: ohio Status: Offline Points: 418 |
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Posted: Oct 06 2010 at 9:13am |
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Dear Chris,
Keep posting here. Heather's additional legacy is she is providing her Triple Negative
Sisters with information about what happened to her in the hope that something
can get better---and you can agree there's a LOT to get better in the overall
treatment for us! You guys are invaluable with all your information.
Welcome here and God bless,
Hummie
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diane1234
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Joined: Jun 05 2009 Location: Arkansas Status: Offline Points: 292 |
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Posted: Oct 06 2010 at 9:43am |
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Wanted to post to say that I think of you often. YES THIS DISEASE IS HORRIBLE!!!! AS I sit here unable to take a treatment because my counts are NOT GOOD. How long will it take to destroy me? We just dont have the answers.....OH GOD JUST HELP US!!!!!!! PLEASE BE WITH CHRIS AND HIS CHILDREN....... Diane
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dx 4/09 at 36 yrs old. dbl Mast. 5/09. 12 weekly Taxol 4 FAC tri weekly. 32 rads completed 2/2010. Its Back 5/2010!! Chest wall, Mediastinal node, Lft mammary node and liver. Back on chemo.
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hummingbird10
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Joined: Jun 20 2010 Location: ohio Status: Offline Points: 418 |
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Posted: Oct 06 2010 at 10:16am |
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Dearest Diane,
What can we do to help? I'm sending hugs and kisses, but what else can we help
you figure out? You are so right about this disease--it sucks! Which counts are low,
the RBC or the one that they say can't get below a certain no? My counts are just
hanging on a thread since starting the 13 weekly Taxols. Are they giving you anything
to bring counts up?
Diane, you must REFUSE to let anything destroy you. What about diet? What about VitD3?
Tell us more so we all can at least throw in our 2 cents.
Thinking and sending more HUGS and KISSES for your recovery NOW!
Love,
Hummie
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Ashlyn
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Joined: Jul 14 2010 Location: Spain Status: Offline Points: 58 |
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Posted: Oct 07 2010 at 1:00pm |
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Hi Diane I am deeply sorry to hear that the cancer is back. I am currently reading a book called "Healing with Whole Foods" by Paul Pitchford, 3rd edition. It's a big book 2 inches thick but I find it easy to read, well written and informative. I agree with Hummie re diet.
God's richest blessings.
Ashlyn
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32y-o, married, one 5y-o girl. Dx 13/5/10. TNBC, stage 2A, sentinel node biopsy 2 nodes+. Neoadjuvant chemo 5 x EC. Bilat mast & axil dissec on left, Oct 10. 0/13 nodes. No evidence of disease.
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diane1234
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Joined: Jun 05 2009 Location: Arkansas Status: Offline Points: 292 |
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Posted: Oct 09 2010 at 12:53am |
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The platelets are to low. We have delayed chemo one week. Hopefully we can go next week and I will be able to get chemo. Yes it is tough. I manage by taking one foot in front of the other. I am also scheduled for scans next week. Let us just KEEP ON PRAYING.....
Thanks for the concern, YES I am doing the D3....I do eat the best I can. I have a pretty good book called Killing Cancer with Food. It is an interesting book.
Chris I think of u and Heather and the kids so often......
May God Bless Us All,
Diane
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dx 4/09 at 36 yrs old. dbl Mast. 5/09. 12 weekly Taxol 4 FAC tri weekly. 32 rads completed 2/2010. Its Back 5/2010!! Chest wall, Mediastinal node, Lft mammary node and liver. Back on chemo.
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zoomommy2
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Joined: Sep 26 2009 Location: Denver, CO Status: Offline Points: 1356 |
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Posted: Oct 09 2010 at 1:15am |
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Diane,
Praying for your platelets to get back up where they need to be for chemo to continue. You are a fighter and an inspiration!
Lee in Denver
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dx6/09,stageII,gr3,(L)mastectomy 7/09,ACx4,Taxolx7,Avastin study,gall bladder surgery 1/10,4/11 Stage 4, mets to lung, 4/11 Started Taxotere and Xeloda, 5/11 Taxotere stopped, off Xeloda
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trip2
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Joined: Jun 03 2007 Location: Under Palm Tree Status: Offline Points: 8549 |
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Posted: Oct 09 2010 at 10:51am |
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Diane all my best wishes for good news on the scans,
Let us know...
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Stage 2 2003
Stage 1 2007 BRCA 1+ |
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123Donna
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Joined: Aug 24 2009 Location: St. Louis, MO Status: Offline Points: 13510 |
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Posted: Oct 09 2010 at 11:14am |
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Diane,
Thinking of you and wishing for good scans. Donna |
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DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15 |
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hummingbird10
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Joined: Jun 20 2010 Location: ohio Status: Offline Points: 418 |
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Posted: Oct 09 2010 at 2:03pm |
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Diane,
However you do it, eat your way to higher platelets!!!! We are all in your corner,
rooting you on. Here's for good scans. Keep thinking positive.
Hummie
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MsBliss
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Joined: Apr 25 2009 Location: Lost Angeles Status: Offline Points: 722 |
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Posted: Oct 09 2010 at 6:13pm |
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Diane,
When did you start taking D3, how much are you taking and do you know what your levels were/are? Bliss |
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hummingbird10
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Joined: Jun 20 2010 Location: ohio Status: Offline Points: 418 |
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Posted: Oct 09 2010 at 7:50pm |
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Open Question: What are some of the great foods to help stop this disease?
Maybe we need to start a list. We can all add something that we've been told to
include, something we've read about, etc.
1. berries: straw, blue, rasp., bl. rasp, bl.
2. pomegranates
Hummie
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diane1234
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Joined: Jun 05 2009 Location: Arkansas Status: Offline Points: 292 |
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Posted: Oct 09 2010 at 11:15pm |
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Bliss..... I started taking the D3 after my original dx. I was at a 27. Last i was checked. Right after the mets were confirmed and it was 33. I had to take 10000 iu a day to get it up. MY CHOICE TO DO THAT. I hope this helps....
Lots of Love,
Diane
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dx 4/09 at 36 yrs old. dbl Mast. 5/09. 12 weekly Taxol 4 FAC tri weekly. 32 rads completed 2/2010. Its Back 5/2010!! Chest wall, Mediastinal node, Lft mammary node and liver. Back on chemo.
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T1N0M0
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Joined: Nov 26 2010 Location: No. Virginia Status: Offline Points: 2 |
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Posted: Nov 27 2010 at 10:51pm |
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What is the RDA for D3? My oncology nurse practitioner told me to take 2,000 iu a day.
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Dx Aug 3 2009 - Lumpectomy -1.2cm - Grade 3 - 0/3 Sentinal Node - 4 AC - 12 Taxol - 29 Rads - Finished 6/18/10
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krisa
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Joined: May 21 2008 Location: Portland, OR Status: Offline Points: 1090 |
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Posted: Nov 27 2010 at 11:28pm |
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T,
I take 10,000 units of vitamin d3 a day( I may miss a day here and there)I was taking 5000 units a day and having my blood checked every three months.. The trend went from 21 to 60 in a year and then started to go down last tested it was 49. So I upped the dosage and will be checked in January. |
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123Donna
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Joined: Aug 24 2009 Location: St. Louis, MO Status: Offline Points: 13510 |
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Posted: Nov 27 2010 at 11:53pm |
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T,
There is another thread that has lots of information about Vitamin D3. Please check it out. I take 7,000 to 8,000 iu of D3 a day. I was checked a few months ago and my levels are now around 66. http://forum.tnbcfoundation.org/vitamin-d3_topic5338_page1.html?KW=Vitamin+D3 Donna |
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DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15 |
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Pink Warrior
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Joined: Dec 11 2009 Location: Missouri Status: Offline Points: 374 |
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Posted: Nov 28 2010 at 3:14pm |
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Hummie,
V8 makes a "VFusion" juice with Pomegranate and Blueberry juices. I keep it in my fridge at all times. Kim
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Dx:10/09,IDC Stg 2,Gr 3,TN
BRCA 1&2 - Partial DD EC/AC Local recur 11/10 BMX 12/10 Right proph TC x 4 Rads x 33 9/11 Skin mets, mediastinal & hilar nodes Abraxane/Avastin |
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Katastrophe
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Joined: Jul 22 2010 Location: Australia Status: Offline Points: 287 |
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Posted: Dec 08 2010 at 3:14am |
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Hi guys and gals, I have been reading all your posts and I have been contemplating what to write that has not already been said by all of you wonderful ladies to Chris. The thing that springs to my head over and over again is this .... We like to think that when we get sick, that if we go to the appropriate doctor he will find a solution and miraculously cure us. If he does, then he gets our undying gratitude, (and we get to live) if he does not, then we start to question every single thing that has been done to us from start to finish and we want desperately to place the blame. Was it his/her fault? Was it our fault? Did we choose the wrong course of treatment? Did I wait too long? The list is endless. My point here is this ... We like to believe we have choices in our lives about which path we should take to make our lives full and rich and healthy and happy, but the truth is from the moment we are able to decide things for ourselves we make errors ... from brushing our teeth incorrectly (causing us tooth decay) to choosing our life’s partners (only to find out in some cases, they are dicks!) The thing is, at the time we thought that we were doing the right thing. They say, “the road to hell is paved with good intentions”. I believe, that our destiny is preordained and the outcome is already written. We like to think that we have control on our lives, and when it’s out of control we like to find someplace or someone to point the finger at. When in reality it was simply just “meant to be”. I am so sorry for your loss Chris. You need to focus on the fact that you have had a wonderful woman to share a part of your life with. She was lucky to have had a loving and caring man to share with her the good times as well as the bad. Some people don’t get that in their entire lifetime. Remember only the good, as the bad will eat you up and spit you out. I am sure she would not want that. Luv Kat xxx |
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Age 49. Stg2 gr3 19mm lump in L/br 1 lymph node in L/br 3/14 lymph nod under left arm full clear bil/mast 6rds Chemo 3wkly 25rds Rad 18rds of Avastin finished treatment on 19th August 10.
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zoomommy2
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Joined: Sep 26 2009 Location: Denver, CO Status: Offline Points: 1356 |
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Posted: Dec 08 2010 at 4:15pm |
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Kat,
I, too, believe in the Plan and it's already in action. I do, however, believe that we have to help ourselves. I don't think if we lie down on the highway that God will save us just because that's not in the Plan He has for us. We have to help our doctors do their best to save us by being an active participant in our care. We can do all the right things and it may not work. I think that's the Plan working. I don't have all the answers or even many of them. Just my two cents worth.
Lee in Denver
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dx6/09,stageII,gr3,(L)mastectomy 7/09,ACx4,Taxolx7,Avastin study,gall bladder surgery 1/10,4/11 Stage 4, mets to lung, 4/11 Started Taxotere and Xeloda, 5/11 Taxotere stopped, off Xeloda
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