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To work or not to work while fighting cancer

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Adriana View Drop Down
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    Posted: Jun 23 2011 at 8:30pm
Hi,

I am new to this forum, but I've been fighting the fight now for over two years.  I've had two regimens of chemo, four surgeries, and radiation.  I'm now on a clinical trial involving gemzar, carboplatin and iniparib, which seems to be working for me.  Last scan in May showed that one of the tumors is gone and the other is diminishing.  Can't help but thank my lucky stars for that.  Lately, I've been grappling with "retirement", something I never thought I would think about until I was at least 70.  I've been able to work full-time, with times where I'm just plain pooped out, which translates into the mental.  I'm realistic that the research for PARP helps progression free survival, and may not be a permanent cure (although a girl can only hope).

Along my journey, whether it be the case manager from the insurance company, the new colleague that I've disclosed my illness to, or the person passing on the street (because if I can tell everyone I know, I hope to save someone else before its too late), I tend to get the response of "you're still working?!".   Some of our identity comes from working, but it definitely doesn't define us; however, there are still bills to pay and benefits needed to help fight this.  Not a lot of the world outside of us fighters understand the secondary battle of keeping up with the finances and basic needs.  My questions to those of you out there reading this are: are you still working?;  have you stopped working? what got you to the point of making that decision (from the mental perspective)?; has it been helpful to you? 

Appreciate your stories and a swift kick in the bum, if that's what I need to stop working already!


 
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123Donna View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote 123Donna Quote  Post ReplyReply Direct Link To This Post Posted: Jun 23 2011 at 8:49pm
Adriana,

Thanks for posting on this very good topic.  I've personally been grappling with this decision for the last 6 months.  As you can tell from my signature, I've been fighting this battle for two years and am both physically and mentally exhausted.  I'm leaning toward the decision to either retire (can I say that at my age?) or cut my hours drastically.  If I knew I was cured, then it would be easier to stay working.  However, with this disease there are no guarantees and I also want to enjoy each and every day.  I too get people asking me if I'm still working.  It sometimes makes me think what's wrong with me?  I keep hoping my life will return to normal, but I don't know if I'll ever have normal again.  It's extremely hard to make this decision financially when your family is dependent on your portion of the income.  It's going to mean some sacrifices and lifestyle changes.  That just puts more stress on us.  Whether we work or not, those co-pay bills just keep pouring in the mail.  So while I haven't pulled the plug, I'm working towards it.

Donna
DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15

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Post Options Post Options   Thanks (0) Thanks(0)   Quote Charlene Quote  Post ReplyReply Direct Link To This Post Posted: Jun 23 2011 at 9:17pm
Hi, Adriana,
 
I retired shortly after my diagnosis.  I had been thinking about it anyway, so the cancer just sealed the deal.  I was ready for a break after teaching for 36 years and needed time to just focus on me and improving my health.  I am glad that I did because I am definitely under less stress and have more time to exercise and pay attention to diet, etc.  I also have more time to connect with those who are important to me and to reach out to others in a variety of ways.  I think it might depend on how fulfilling your work is to you and what you would spend your time doing if you weren't working.  Of course, finances have to be considered, too.  I think one advantage of continuing to work is that it gives life a sense of normalcy, even during cancer.  I had a sister-in-law who continued working through advanced colon cancer.  At the time I didn't understand, but now I do.  She just wanted her life back the way it was.  Best wishes to you!
 
Charlene
DX 3/10 @59 ILC/TNBC
Stage 1, Grade 2, Multifocal; Lumpectomy/re-excision
SNB 0/4 nodes, BRCA-; Taxotere/Cytoxan X4, 30 rads
3/14:NED
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Adriana View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Adriana Quote  Post ReplyReply Direct Link To This Post Posted: Jun 26 2011 at 7:52pm
Thanks for your responses.  
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Angie*1 Quote  Post ReplyReply Direct Link To This Post Posted: Jun 26 2011 at 10:09pm
Hi Adriana,
  I chose to work throughout my chemo. I work in elementary as an instructional assistant and I missed the day of chemo because it was an all day thing. Then after around the 3rd month I also started missing the Monday after also. It started to wear me down. I was 36 going through and my husband and I have 4 children. Staying on my busy schedule was the answer for me. It kept me from feeling sorry for myself and wondering why me. However, having said that, it definitely has to be your choice. I had people wonder why I was working. I got so much support from the people that I worked with. They rallied around me and my family. I could not have stayed if I didn't have such wonderful coworkers. I also knew when I had to go home early or just stay home all together. I will say I'm like you. I try to let everyone know to pay attention to their bodies and any changes. Good luck!
Angie
Dx'd age 36 (Nov.1,07)
0/11 nodes TACX6
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Lillie Quote  Post ReplyReply Direct Link To This Post Posted: Jun 27 2011 at 1:34pm
Dear Adriana,
I was dx in 2006 at the age of 65. I, like you, saw no reason to retire and planned to work as long as possible.

After my dx I did take 6 1/2 months of short term disability. My job as executive assistant for the Mgr. of Engineering was very hectic and kinda 'all' or 'nothing'.... The disability was available to me after 19 years with the company, so I had no problem getting it. I also knew that the company had to hold my job or a comparable job for me to return to.

I went back to work, full time, after my treatments and it was a real challenge. By then I had turned 66 and had inherited a new boss during my short term disability time off. The Aerospace company I worked for had doubled its number of employees in just 6 months. My new boss would not agree to getting another person to help me and encouraged me to retire. I wasn't ready to retire; I needed to work in more ways than one. I went to Human Resources and was made aware of a more manageable job in another department.

I took the new position and worked until I was 68 yrs old. The reason I retired then was because the company was having some cut-backs and offered a "Retirement Incentive Package" to several of us older folks. It was one of those "once in a lifetime things and I couldn't turn it down.

Before I retired I accepted a couple of jobs in my church to fill my time, also set up a day for volunteering at the oncology clinic. I also became active in playing bridge after many years of not playing.

I also had a meeting with yourself to see if my Social Security and small pension, and dividends from 401K would cover my expenses.   I knew in the back of my mind that I could always go through a temp. agency and work some, if I needed to.

This is just some food for thought. It is how I retired and still lead an active life. Good Luck with everything.

God Bless,
Lillie
Dx 6/06 age 65,IDC-TNBC
Stage IIb,Gr3,2cm,BRCA-
6/06 L/Mast/w/SNB,1of3 Nodes+
6/06 Axl. 9 nodes-
8/8 thru 11/15 Chemo (Clin-Trial) DD A/Cx4 -- DD taxol+gemzar x4
No Rads.
No RECON - 11/2018-12 yrs NED
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123Donna View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote 123Donna Quote  Post ReplyReply Direct Link To This Post Posted: Jun 27 2011 at 5:03pm
Adriana,

I think sometimes it's harder to keep working or working full-time when you're dealing with a recurrence.  It's somewhat easier the first time when you think great I'll have the surgery, chemo, rads and I'll be all better and can get on with my life.  It's when it comes back (or never goes away) that working full time can be too much.  It's such a personal decision for you.

Best to you,

Donna
DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15

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Adriana View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Adriana Quote  Post ReplyReply Direct Link To This Post Posted: Jun 28 2011 at 9:25pm
Hi everyone,

I deeply appreciate all of your helpful responses.  I've been agonizing about this decision for some time and that, in and of itself, is taxing.  I've been on a self-imposed reduced schedule like you, taking the days off of chemo and when I'm really feeling bad, taking that day off as well.  I've been blessed with not having so many really bad days, but I broke that record this past weekend when I had to make a trip to the ER.  (I'm okay now.) That and my counts are struggling more and more these days with bouncing back, a subtle sign.   I think making that trip put this battle, which has always been in my peripheral vision, right up in front of my nose, and made this decision a bit easier.  Still, making such a decision certainly comes with lots of emotion, and I've had my share of that this week. 

Thank you for your insight.
Adriana
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Post Options Post Options   Thanks (0) Thanks(0)   Quote MrsLyons Quote  Post ReplyReply Direct Link To This Post Posted: Jul 01 2011 at 12:20pm
Hi Adrianna,
 
I chose to keep working through all of my treatment. But, that's for two reasons. One, we need my income and insurance (my husband is a Fire Fighter for the city and they offer horrible insurance, which makes no sense to me). Also, I needed it to keep my mind busy and I love my job. I have a tendency to let myself get depressed or sad if i don't stay busy. Work has allowed me to put my attention on things other than cancer and that has really helped. I might also add that I am lucky enough to work from home. So, I truly can take things at my own pace. There are days when i don't work at all and others when I work way longer than I should.
 
I know our situations are very different, but I thought I'd just give you my two cents.
 
Hugs,
Tina 
DX IDC TNBC 11/10 age 32, Stage 3a, Grade 3, 3.5 cm, 1/9 nodes, Right, KI-67 91%, BRCA-1, ACx4 (12/13/10) followed by TXx12, BMX w/expanders (6/1/2011), Rads begin 7/11/11
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Post Options Post Options   Thanks (0) Thanks(0)   Quote dmwolf Quote  Post ReplyReply Direct Link To This Post Posted: Jul 03 2011 at 10:44am
Hi Adrianna,
This is a great topic.   After I was diagnosed in 2-08 my intention was to work throughout treatment, but after my second week at work following round one of chemo I noticed that after an afternoon of intense work I didnīt have the energy to go to yoga, a real source of sustenance for me in general and especially during treatment.  It seemed my energy was significantly lower, so with two kids (7 and 10 at the time) I was going to have to choose between work and thoroughly taking care of myself during treatment.  I chose yoga-meditation-walking and went on medical leave for almost 9 months.  When I decided to do this, and on my first day home, I cried my eyes out.  I have always loved my job and coworkers, and felt lost without this side of my identity active.  But soon, very soon, sooner than I ever in a million years would have guessed, I came to enjoy having my time freed up.   I had a weekly schedule of yoga, walks, lunches with friends, and of course more time with the kids.  This kept me pretty busy and happy.  As my energy returned, I started cooking and gardening, too.  I became obsessed with rocks, going to the quarry almost daily and dragging around huge strange stones all over my yard.  I planted my first vegetable garden, and tons of flowers.  Anyways, this story is I guess to say that you might  like having more time to play with more than you would guess.  The identity part might be more fluid than you realize.  Iīve been back at work full steam, with a new job even a of last July, since January of 2009.  I love my work and my colleagues, as much or even more than before.  But if I recur, I donīt know whether Iīll continue to work.   My work is very draining, so there are trade-offs that I decide in favor of work when I am healthy and it looks like I can reasonably expect many years ahead of me.  If conditions change and I can no longer expect the carpet of time to unroll to the horizon, these trade-offs might very well become unacceptable.    Anyways, this is how I reason about these things.  Maybe you could try taking a week or two off and see how it feels.  See how much you miss working.  Hopefully, if you let yourself be very still your body will tell you what to do.  Good luck with the decision.  Either way, it doesnīt have to be irrevocable.  You can change your hours, take more vacations, quit and return.  What does your family say?

love,
Denise


Edited by dmwolf - Jul 03 2011 at 10:45am
DX 2/08@43 stg II IDC; gr2,0 nodes. Neoadj chemo, first ACx2 (fail) then CarboTaxotereX6(better). Lump, Rads done 11/08; Clodronate. False alarm queen: PetCT lung & TM marker. NED. PBM w/recon 9/10.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote TNinTN Quote  Post ReplyReply Direct Link To This Post Posted: Jul 03 2011 at 11:23am
Hi Adrana,
 
My wife, Susan, managed to work all through treatment. This required some planning. Our oncologist advised that the worst days would be the second and third days after chemo and she was right. As a result, we scheduled chemo on Thursdays so that the worst days would fall on the weekend. She was blessed to have the support of her co-workers on the days she was at work to ease her load a little also. Even though Saturday and Sunday were, by far, the worst days, Susan was not completely non-functional. We even managed to go to some UT football games on Saturday to watch our daughter who is in the band. Hopefully you'll be a ble to plan carefully and have some support to make it easier if you chose, and are able, to continue working. Best of luck whatever you decide.
 
Martin


Edited by TNinTN - Jul 03 2011 at 12:18pm
Wife age 53@dx TN IDC Stage IIA 7/10; BRCA1&2 Neg; BROCA Neg; LN Neg; taxol+cisplatin+/-RAD001x12(clinical trial); lumpectomy 12/10;ACx4; 33 Rads complete 4/11; NED 5/5/11
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Post Options Post Options   Thanks (0) Thanks(0)   Quote tdeliberty Quote  Post ReplyReply Direct Link To This Post Posted: Jul 03 2011 at 5:27pm
I was diagnosed with TNB in December 2009.  Six months before, I had started a new job as an attorney at a law firm after being in-house counsel for a private company.  My job and previous jobs are all very high stress.  However, very quickly, I was building a successful practice.  When I found out I had cancer, I really worried about what effect stopping working would have on my career.  

A few things made the decision easier.  First, I took a look at my priorities.  My girls (ages 7 and 9) and husband, and my health.  There was no way I could give my health and my family 100% and give my job 100% at the same time.  I didn't have enough energy to do it all well.  Additionally, I believe stress is a great contributor to cancer and other disease.  So I needed to use my limited physical and mental energy on my most important things.  Again, these were my priorities and obligations and not everyone's.  

Second, I had an "ah ha" moment.  My identity is very tied to being a successful lawyer.  But that is only one thing I do.   I have had so many wonderful jobs and been so many wonderful and different things throughout my life (daughter, student, volunteer, lawyer, mother, mentor).  I knew that if I focused on my health and family, I would live to do more and rebuild my career.  And at the time, the plan was chemo, surgery and reconstruction.  Then back to work.  Finally, I was blessed to have private disability insurance.  While it does not cover everything, it has offered monthly financial support.  Without the insurance, I would have never had the choice not to work.

Not working has turned out to be the best thing that has happened.  Not only have I had time to focus on my health and my kids, with less stress, I have explored other things like culinary school and volunteering, that are important to me and take up less energy than working as a lawyer.  And I can still do that when I am well again.
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