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AKA04 View Drop Down
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Joined: Mar 23 2010
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    Posted: Mar 23 2010 at 10:52pm
Hi Everyone,

I was diagnosed and treated (lumpectomy, Chemo and radiation) in 2008 for triple negative breast cancer in the right breast.  Exactly 2 yrs later, today my mammogram show a lump in the left breast.  I saw my Oncologist today and will seek a biospy soon.  I plan this time to go to MD Anderson for evaluation and whatever will be needed to go through this process again if warranted.  I ask for my fellow Triple Negatives for prayers.  I will keep you posted.
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dmwolf View Drop Down
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Joined: Jan 22 2009
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Points: 3619 		Post Options Post Options   Thanks (0) Thanks(0)   Quote dmwolf Quote  Post ReplyReply Direct Link To This Post Posted: Mar 23 2010 at 10:57pm
Hi, AKA04.  So sorry about the new lump - but don't panic.  It may not be cancer.   Either way, I would be freaked out too.    Were you tested for BRCA1,2?    If it is cancer, it is a new primary and not a recurrence or metastasis.  That is a good thing.
Good luck, and let us know what you find out. 
Love,
Denise
DX 2/08@43 stg II IDC; gr2,0 nodes. Neoadj chemo, first ACx2 (fail) then CarboTaxotereX6(better). Lump, Rads done 11/08; Clodronate. False alarm queen: PetCT lung & TM marker. NED. PBM w/recon 9/10.
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sfalcon55 View Drop Down
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Points: 30 		Post Options Post Options   Thanks (0) Thanks(0)   Quote sfalcon55 Quote  Post ReplyReply Direct Link To This Post Posted: Mar 23 2010 at 11:04pm
Hi AkA04,
 
I will be praying for the gift of healing for you.
Blessings
Jessica's Mom

DX12/15/09TNBC,Tested Positive for the BRCA1 Treatment Docetaxel, bevacizumab, Xleoda.
AC
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SagePatientAdvocates View Drop Down
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Dear AKA04,

you shall be in my prayers..I am sorry you are going through this..

I think going to MD Anderson is an excellent choice.

I also second the idea of seeing a Certified Genetic Counselor...If you will be going to MDA soon I would ask your MDA oncologist to try to get you an appointment with Dr. Banu Arun, a breast cancer expert and also head of their Clinical Genetics Dept. It is generally hard to see her right away. There is also a Kaylene Ready, a Certified Genetic Counselor, there. She is very knowledgeable/nice.

I just spent a bunch of time at MDA and know several Breast Medical Oncologists there...If you would like please send me a PM and I will try to help you, if you wish..

Also, try to stay in the Rotary House house. It is attached to the hospital and is very convenient..

all the best,

Steve

p.s. I just sent you a PM when you were not sure about how to post...you can reply to that if you wish..


Edited by steve - Mar 23 2010 at 11:24pm
I am a BRCA1+ grandson, son and father of women affected by breast/oc-my daughter inherited mutation from me, and at 36, was dx 2004 TNBC I am a volunteer patient advocate with SAGE Patient Advocates
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MaryinSarasota View Drop Down
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Hi,

We all hope your fears will be for nothing but if not then you can't ask for a better place for your treatment. Also, here too we will be here for you for answers and support. You will find we become like a mama and her cub around here. Your fight is our fight!

Mary
53 @ Dx 5/08 Stage 1, grade 3, IDC 1.6 cm, 0 nodes, TNBC, lumpectomy, chemo TAC-6, radiation-34 12/18/08
NED-10/09, PBM w/TE recon. 7/10, removal of TE/infec 8/10. CT chest. Rec fat-graft & stem cells
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Carol (Tenn) View Drop Down
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Points: 2707 		Post Options Post Options   Thanks (0) Thanks(0)   Quote Carol (Tenn) Quote  Post ReplyReply Direct Link To This Post Posted: Mar 24 2010 at 1:02pm
Hello and a great big Hug
We will be praying for you sweetie...dilegently..
Also, please make use of the Spiritual Support thread. We have daily devotionals, prayer requests and a lot of love.
LoveHeart and Prayers,
Carol
St 2 Gr 3, A/C/T, DD
Radiation x35
Rec chest wall 07/09
Radiation x28
NED 10/24/11
NED 10/5/12
NED 03/15/13
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TNBC_in_NS View Drop Down
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Dear AKA04:
So sorry to hear you are going through the worries again! Please know that we are here for you in any way you need, but most of all through our prayers from sisters and brothers who have been there and know what a burden it is to have to deal with more issues about our health.  I feel that because we have been diagnosed in the first place, that the worry will be ongoing throughout the rest of our lives, but this time, we know in our hearts that we are definately not alone and that is a gift that is sent by the Grace of God!  We are here to help in any way we can.  Keep us up to date and may this note find you in a positive spirit of mind and soul.
Your sister in NS, Helen Hug
Diag@57TNBC04/092.5cm Lquad 05/09 TCx4Radsx30CT03/01/10 FU03/31/10ClearBRCA- 01/2011 RTNBC BMX 06/14/2011~2013 clear
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123Donna View Drop Down
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Points: 13510 		Post Options Post Options   Thanks (0) Thanks(0)   Quote 123Donna Quote  Post ReplyReply Direct Link To This Post Posted: Mar 24 2010 at 7:40pm
Hello,

So sorry that they found a lump in the other breast.  It may be nothing, so try not to worry too much until you get it biopsied.  Please let us know what you find out.  We're here for you.

Donna
DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15
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Sarah99 View Drop Down
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Dear AKA04,

This is a horrible time for you and your family but fingers crossed for you. Please let us know how you get on and my thoughts and prayers are with you.
 
Sarah
xx
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lrderedita View Drop Down
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Points: 69 		Post Options Post Options   Thanks (0) Thanks(0)   Quote lrderedita Quote  Post ReplyReply Direct Link To This Post Posted: Mar 25 2010 at 1:12pm
If it is cancer, I have found that molecular profiling gave my oncologist and I a lot to think about regarding treatment. Not sure about your insurance and whether they will cover it, but worth the information. Gives you information on what drugs may be ineffective or more effective on the cells. Will definitely pray for you, for peace and assurance that He is in control and will provide you with all that you need to fight the battle.
Lynne
Age 46-5/06 lump ACT, Rads; 5/08 Rec bi-mast,Etopiside/ Cisplatin; 11/08 Rec Rads/ Gemzar(rad dose); 7/09 supraclav nodes Avastin/ Abraxane Sept09-current
Joyful in Christ through all circumstances!
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trip2 View Drop Down
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Points: 8549 		Post Options Post Options   Thanks (0) Thanks(0)   Quote trip2 Quote  Post ReplyReply Direct Link To This Post Posted: Mar 25 2010 at 1:28pm
Hi AKA04, have you learned anymore?  Here's hoping it is a scare and nothing more.  Let us know.Heart
Stage 2 2003
Stage 1 2007
BRCA 1+
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AKA04 View Drop Down
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Joined: Mar 23 2010
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Points: 58 		Post Options Post Options   Thanks (0) Thanks(0)   Quote AKA04 Quote  Post ReplyReply Direct Link To This Post Posted: Mar 25 2010 at 11:51pm
Hello Everyone and a special greeting to you trip2.

I saw my breast surgeon this afternoon.  she performed a biospy on the left breast and I should have the results tomorrow afternoon or Monday.  Thanks for caring and checking on my status.  I will celebrate my 59th birthday on Sunday the 28th regardless of the outcome.  I will keep everyon posted as I get the information.
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Genie View Drop Down
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Points: 390 		Post Options Post Options   Thanks (0) Thanks(0)   Quote Genie Quote  Post ReplyReply Direct Link To This Post Posted: Mar 26 2010 at 12:01am
Dear AKA04,

Prayers are being lifted up for you as you await your test results. May God give you "the peace that passes all understanding".

May your birthday be filled with God's blessings and may you celebrate many, many more.

Hugs,
Genie
DX 3/10/08 at age 67, IDC. Stage 1, Grade 3, 1.5 cm.
KI-67 99% at MX . Bilateral mastectomy 4/1/08 Node-, BRCA 1/2-,BARD1+, TX:Cytoxan/Taxotere x4,3 in family with TNBC
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