Author |
Topic Search Topic Options
|
dmwolf
Senior Member
Joined: Jan 22 2009
Location: Berkeley, CA
Status: Offline
Points: 3619
|
Post Options
Thanks(0)
Quote Reply
Posted: Oct 26 2011 at 5:11pm |
Kim, I'm so glad Tammy is ok and that your energy and breathing are still much improved. Enjoy the week 'off', and hopefully SE's will be better once you start the rigamarole again. love, d
|
DX 2/08@43 stg II IDC; gr2,0 nodes. Neoadj chemo, first ACx2 (fail) then CarboTaxotereX6(better). Lump, Rads done 11/08; Clodronate. False alarm queen: PetCT lung & TM marker. NED. PBM w/recon 9/10.
|
|
trip2
Senior Member
Joined: Jun 03 2007
Location: Under Palm Tree
Status: Offline
Points: 8549
|
Post Options
Thanks(0)
Quote Reply
Posted: Oct 26 2011 at 7:34pm |
Hey Kim, good to hear Tammy is doing well. Disgusted to see you are dealing with bad pain, hope you have something to help? I had alot of pain with Taxol. Found soaking in a warm to hot bath helped and also pillows with the heat pad. Karen so nice to see you too :)
|
|
abcmom
Senior Member
Joined: Dec 15 2009
Location: Summerville, SC
Status: Offline
Points: 738
|
Post Options
Thanks(0)
Quote Reply
Posted: Oct 26 2011 at 9:52pm |
Kim, that is such wonderful news!! You are in my prayers! GO PINK WARRIOR!! Hugs, Keri
|
Diag 11/06/09 @ 40; Diag w/ TNBC Stage IIA, Grade 3 12/01/09 Node Neg. Dble MX with Recon 12/09 (twice)
Chemo 1/13/10 Chemo done 4/22/10 More recon surg 07/10, PET/CT Scan clear 07/10 NED 07/11
|
|
Pink Warrior
Senior Member
Joined: Dec 11 2009
Location: Missouri
Status: Offline
Points: 374
|
Post Options
Thanks(0)
Quote Reply
Posted: Oct 30 2011 at 9:36pm |
Hi all.
I'm still in recovery mode I guess. I surely thought I'd be better by now but I've had fever of 101 for 2 days now. I think it broke around 4 this morning because I woke up soaking wet and I think it's broken again since dinner. I feel more normal now than I have since just before my infusion last Friday. I've felt just plain YUCKY! I haven't left the bedroom much in the last couple of days. I went out with Karen the other day to see the trees out at the lake and just get out of the house. I stayed in the van the whole time just riding around but by the time I got back home, I was ready for bed. I am SO not used to feeling like this for such an extended period of time.
Maybe I need to expect less of myself and just be patient. *sigh*
I had some unexpected family stress that came up last week that might have something to do with it also. I can't really mention it here, but it's ripped my beautiful family apart- that said, we WILL recover and we WILL move on. Together, there's nothing Matt and I can't pull through.
Peace and love to all.
Kim
Edited by Pink Warrior - Oct 30 2011 at 9:37pm
|
Dx:10/09,IDC Stg 2,Gr 3,TN
BRCA 1&2 -
Partial DD EC/AC
Local recur 11/10
BMX 12/10 Right proph
TC x 4 Rads x 33
9/11 Skin mets, mediastinal & hilar nodes
Abraxane/Avastin
|
|
SagePatientAdvocates
Senior Advisor
Joined: Apr 15 2009
Status: Offline
Points: 4748
|
Post Options
Thanks(0)
Quote Reply
Posted: Oct 30 2011 at 9:40pm |
Dear Kim,
my thoughts and prayers are with you...
sorry you have so much stress in your life..
sending you some cyber hugs,
Steve
|
I am a BRCA1+ grandson, son and father of women affected by breast/oc-my daughter inherited mutation from me, and at 36, was dx 2004 TNBC I am a volunteer patient advocate with SAGE Patient Advocates
|
|
Barbi
Senior Member
Joined: Jan 04 2011
Status: Offline
Points: 471
|
Post Options
Thanks(0)
Quote Reply
Posted: Oct 30 2011 at 9:44pm |
Kim, Just be nice to yourself. Sorry you are feeling anything less than perfect and that life seems to be adding to your troubles. All good thoughts, Barbi
|
10/10,age49,St3,gr3,5+cm,1 node,BRCA-,T+Cisplatin+Rad0001(or placebo),Lump 1+cm,AND 0/15,AC,rads finished 7/6/11.Mets bone, liver,mamm node 8/11,abrax/tigatuzamab failed.Started bicalutamide 11/16/11.
|
|
123Donna
Senior Member
Joined: Aug 24 2009
Location: St. Louis, MO
Status: Offline
Points: 13509
|
Post Options
Thanks(0)
Quote Reply
Posted: Oct 30 2011 at 9:47pm |
Kim,
Please be gentle with yourself. You are dealing with a lot right now. You have a beautiful family and you'll pull through this.
Hugs,
Donna
|
DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09) 11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15
|
|
TNinTN
Senior Member
Joined: Apr 25 2011
Location: Knoxville, TN
Status: Offline
Points: 311
|
Post Options
Thanks(0)
Quote Reply
Posted: Oct 31 2011 at 5:54am |
Dear Kim, Sorry you're having family issues on top of everything else. I am so impressed and inspired by your determination and optimistic attitude. Hope you continue to feel better. Martin
|
Wife age 53@dx TN IDC Stage IIA 7/10; BRCA1&2 Neg; BROCA Neg; LN Neg; taxol+cisplatin+/-RAD001x12(clinical trial); lumpectomy 12/10;ACx4; 33 Rads complete 4/11; NED 5/5/11
|
|
sue
Senior Member
Joined: Aug 13 2010
Location: NJ
Status: Offline
Points: 650
|
Post Options
Thanks(0)
Quote Reply
Posted: Oct 31 2011 at 9:48am |
Kim,
Ditto what Donna said. You are an amazing person who I always look up to for the kindness, caring, sharing gifts you have brought and continue to bring to others no matter what life brings your way. You are in my prayers for healing and many sunny days to come soon.
Love and Peace, Sue
|
Dx 7/10, age 53. TNBC left breast, stage I, grade 3, IDC 0.5 cm, DCI 2.5 cm, 0/8 lymph nodes neg. BRCA-. T/C x4 finished 2/09/11, rads x34 finished 4/21/11.
|
|
Pink Warrior
Senior Member
Joined: Dec 11 2009
Location: Missouri
Status: Offline
Points: 374
|
Post Options
Thanks(0)
Quote Reply
Posted: Oct 31 2011 at 6:27pm |
What a difference a day can make. Hold onto that!!
I got up this mid day (haha) around 11:45 and came upstairs. I took my shower, got dressed, ate lunch and played around on Facebook a while. I bounced my baby girl on my lap, snuggled and hugged her, laughed with her, rubbed noses with her. Josh had the day off from school for teacher conferences so he watched Beth for me while I LEFT THE HOUSE ALONE. I drove my little blue Mustang all over town with my stereo blaring in my ears. I even flat ironed my hair and put on make up before I left.
Tonight, I'm making chicken and spinach bruschetta for dinner.
LOVING today.
xo
Kim
|
Dx:10/09,IDC Stg 2,Gr 3,TN
BRCA 1&2 -
Partial DD EC/AC
Local recur 11/10
BMX 12/10 Right proph
TC x 4 Rads x 33
9/11 Skin mets, mediastinal & hilar nodes
Abraxane/Avastin
|
|
dmwolf
Senior Member
Joined: Jan 22 2009
Location: Berkeley, CA
Status: Offline
Points: 3619
|
Post Options
Thanks(0)
Quote Reply
Posted: Oct 31 2011 at 6:28pm |
Kim, I hope whatever family sh*t has hit the fan will settle down soon. You certainly don't need any more drama. We love you, Kim, and admire your strength and humor and integrity, not to mention enormous kindness. love you, d
|
DX 2/08@43 stg II IDC; gr2,0 nodes. Neoadj chemo, first ACx2 (fail) then CarboTaxotereX6(better). Lump, Rads done 11/08; Clodronate. False alarm queen: PetCT lung & TM marker. NED. PBM w/recon 9/10.
|
|
BamaRachel
Senior Member
Joined: Sep 23 2011
Location: Alabama
Status: Offline
Points: 164
|
Post Options
Thanks(0)
Quote Reply
Posted: Oct 31 2011 at 6:35pm |
Glad to hear you're feeling better today, Kim!! Yay for rides in Mustang convertibles!
|
DX 7/5/11, TN Invas; Lump w/clear marg., 7/21/11; Stage 2A. Grade 3, 2.6 c; 0/6 nodes; TX 8/22/11 4DD E/C; 4Taxotere; Chemo ended 1/3/12; 33 Radiation Treatments, ended 3/15/12.
|
|
123Donna
Senior Member
Joined: Aug 24 2009
Location: St. Louis, MO
Status: Offline
Points: 13509
|
Post Options
Thanks(0)
Quote Reply
Posted: Oct 31 2011 at 6:39pm |
|
DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09) 11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15
|
|
Barbi
Senior Member
Joined: Jan 04 2011
Status: Offline
Points: 471
|
Post Options
Thanks(0)
Quote Reply
Posted: Oct 31 2011 at 8:55pm |
Happy you enjoyed today, Kim!
|
10/10,age49,St3,gr3,5+cm,1 node,BRCA-,T+Cisplatin+Rad0001(or placebo),Lump 1+cm,AND 0/15,AC,rads finished 7/6/11.Mets bone, liver,mamm node 8/11,abrax/tigatuzamab failed.Started bicalutamide 11/16/11.
|
|
LRM216
Senior Member
Joined: Mar 18 2009
Location: Marietta, GA
Status: Offline
Points: 1196
|
Post Options
Thanks(0)
Quote Reply
Posted: Oct 31 2011 at 9:19pm |
May you have a gazillion more days like today.
Hugs,
Linda
|
Linda - diagnosed at age 62
Diag 2/23/09 IDC 1.2 cent. IDC right breast,Stage 1, Grade 3,0/1 nodes - Triple Neg
4 DD AC every two weeks, 1 Dd Taxol, then 3 Taxotere every three weeks - rads x 33
|
|
janet c.
Senior Member
Joined: Jan 12 2011
Location: n.y.
Status: Offline
Points: 354
|
Post Options
Thanks(0)
Quote Reply
Posted: Nov 01 2011 at 5:37am |
Kim,
Glad to hear that you are feeling better. It is amazing what a little sleep can do to make you feel better. I hope you continue to take care of yourself.
Janet
|
dx 12/08 @47yrs.old TNBC stage 2a grade 3, 2.1cm. partial mastectomy sentinal node negative BRACA negative Cytocan/Taxatere x4 radiation 36 or 38rounds
|
|
nmunoz
Senior Member
Joined: Jan 20 2009
Location: Miami, FL
Status: Offline
Points: 371
|
Post Options
Thanks(0)
Quote Reply
Posted: Nov 01 2011 at 8:47am |
I'm happy to read that you had a better day. I will be praying for more like that to come.
Best,
Natalia
|
Natalia, 38 years
Dx TNBC 10/22/08, BRCA1+
Double Mx 11/20/08 with Recon.
3/37 nodes
Rads 7 weeks done 8/09
ACx4 every 2 weeks and Tx12 weeks. Avastin e/3 weeksx10 (Clinical Trial) Done Dec/09
|
|
abcmom
Senior Member
Joined: Dec 15 2009
Location: Summerville, SC
Status: Offline
Points: 738
|
Post Options
Thanks(0)
Quote Reply
Posted: Nov 01 2011 at 9:21am |
Kim, glad you are feeling better! You are such an inspiration!! Ride Kim Ride!
Hugs, Keri
|
Diag 11/06/09 @ 40; Diag w/ TNBC Stage IIA, Grade 3 12/01/09 Node Neg. Dble MX with Recon 12/09 (twice)
Chemo 1/13/10 Chemo done 4/22/10 More recon surg 07/10, PET/CT Scan clear 07/10 NED 07/11
|
|
Pink Warrior
Senior Member
Joined: Dec 11 2009
Location: Missouri
Status: Offline
Points: 374
|
Post Options
Thanks(0)
Quote Reply
Posted: Nov 07 2011 at 6:54pm |
Hi all.
Fighting back after treatment 1 of cycle #2. I feel pretty good for the most part. We'll see what the next two treatments do though as I believe the side effects are cumulative. I feel better today than I have in quite a while.
My oncologist did a chest xray the other day before my treatment to rule out pneumonia because of the fevers I keep having. There was no sign of the nasty bugger, so he figures the fevers are from the tumors in my lungs. I guess my body is trying to fight it as well. I still struggle with shortness of breath at times but not as much as I did 2 months ago when this all started. I find myself doing more a little bit at a time. I cook a few days a week now, which is something I wasn't able to do before. I still cough quite a bit, but I go longer periods of time between coughing and the duration of the coughing fits seem to be getting shorter. I'm hoping this isn't just my imagination! I do sleep better and the Tussionex is much more effective now than it used to be.
I had decreased wheezing in all lung fields and my skin mets are continuing to improve. Doc says he believes "we're moving in the right direction". I won't see him again until December 2nd which is when I'll have my contrast CT to check on my lung mets and see how well/if the chemo is working.
I don't know what my previous CA 15-3 marker was, but, on Friday it was 19. :)
xoxo,
Kim
|
Dx:10/09,IDC Stg 2,Gr 3,TN
BRCA 1&2 -
Partial DD EC/AC
Local recur 11/10
BMX 12/10 Right proph
TC x 4 Rads x 33
9/11 Skin mets, mediastinal & hilar nodes
Abraxane/Avastin
|
|
suec
Senior Member
Joined: Jun 10 2009
Location: jacksonville, fl
Status: Offline
Points: 240
|
Post Options
Thanks(0)
Quote Reply
Posted: Nov 07 2011 at 8:38pm |
kim, thanks for sharing your encouraging update. your improvement gives hope to others. i'm so happy you are more comfortable. suec
|
tnbc 3b: partial mas 5/06; 6 rounds FEC; 36 rad; 05/09-mets to bone; xeloda, avastin, zometa; gemzar & avastin; rads to hips; 8 mo on methotrexate+5fu; 5/11 mets to liver/lung; halevan fails;carb&Abrx
|
|