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Barbi
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Joined: Jan 04 2011
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Points: 471
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Posted: Nov 15 2011 at 9:33am |
Caryn and Kim, Lots of love and good wishes to you both! Prayers are constant.
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10/10,age49,St3,gr3,5+cm,1 node,BRCA-,T+Cisplatin+Rad0001(or placebo),Lump 1+cm,AND 0/15,AC,rads finished 7/6/11.Mets bone, liver,mamm node 8/11,abrax/tigatuzamab failed.Started bicalutamide 11/16/11.
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Lillie
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Joined: Jul 10 2009
Location: Eastern NC
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Points: 3616
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Posted: Nov 15 2011 at 3:38pm |
Dear Kim,
I am so happy to hear that you are 'out' and 'about'. What a wonderful way God has answered all our prayers for you. I cannot express my joy for you in words.
God Bless,
Lillie
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Dx 6/06 age 65,IDC-TNBC Stage IIb,Gr3,2cm,BRCA- 6/06 L/Mast/w/SNB,1of3 Nodes+ 6/06 Axl. 9 nodes- 8/8 thru 11/15 Chemo (Clin-Trial) DD A/Cx4 -- DD taxol+gemzar x4 No Rads. No RECON - 11/2018-12 yrs NED
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Lillie
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Joined: Jul 10 2009
Location: Eastern NC
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Points: 3616
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Posted: Nov 15 2011 at 3:41pm |
Dear Caryn,
I am praying that the strength and confidence that has returned to Kim will be returned to you also.
Would it help if some of us girls came by and boosted your spirits? I will ask in prayer. I wish we could do it, for real.
God Bless Sweetie,
Lillie
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Dx 6/06 age 65,IDC-TNBC Stage IIb,Gr3,2cm,BRCA- 6/06 L/Mast/w/SNB,1of3 Nodes+ 6/06 Axl. 9 nodes- 8/8 thru 11/15 Chemo (Clin-Trial) DD A/Cx4 -- DD taxol+gemzar x4 No Rads. No RECON - 11/2018-12 yrs NED
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trip2
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Joined: Jun 03 2007
Location: Under Palm Tree
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Points: 8549
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Posted: Nov 16 2011 at 4:13pm |
Caryn and Kim, love to you both~
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Pink Warrior
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Joined: Dec 11 2009
Location: Missouri
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Points: 374
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Posted: Dec 03 2011 at 3:49pm |
Post CT Update:
I had such a busy day yesterday and got home completely exhausted around 9PM. My day started at 6AM. Whew.
CT scan at 9:20 but ended up having to wait an extra 2 hours because they were so far behind. Lab tests at 11 Onc at noon Chemo Cycle 3, round 1 at 1:30
CT showed
"There has been interval improvement in pulmonary metastatic disease. The disease is predominantly peribroncovascualar with nodules along the brochovascular bundles consistent with lymphangitic carcinomatosis. Some of the previously seen masses have nearly resolved. For reference, a previously seen mass in the right lower lobe measures 2.3 x 3.0 cm compared to 3.7 x 5.1 cm when measuring at similar position on the prior study. The right middle lobe is re-expanded. There is a trace residual left pleural effusion. No pneumothorax.
The pericardium, heart and great vessels are normal. No pulmonary embolus.
There is persistent extensive supraclavicular, mediastinal, hilar and subcarinal adenopathy, which is overall slightly decreased since the prior study. For reference, a pretracheal lymph node measures 3.0 x 2.6 cm compared to 3.1 x 2.9 cm on the prior study.
The liver, gall bladder, spleen and pancreas are normal. The adrenal glands, kidneys, ureters and bladder are normal. The uterus, ovaries and adnexa are unremarkable. No bowel wall thickening or obstruction. The appendix is normal. No abdominal or pelvic lymphadenopathy or free fluid. No vascular abnormalities. No suspicious lytic or blastic osseous abnormalities."
Impression: Interval improvement in pulmonary metastatic disease and lymphadenopathy in the chest.
I was never told I had a partially collapsed lung or a pleural effusion. I knew I had pneumonia and I knew I couldn't breathe. I guess he figured that was enough and didn't want to frighten me further.
Either way. Good news!
I also have pictures of the CT where you can see all of the "c word". My oncologist was so excited, he printed before and after pics for me. Such good news after 2 cycles. I pray this continues.
Thank you all for your support and prayers.
xo
Kim
Edited by Pink Warrior - Dec 03 2011 at 3:50pm
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Dx:10/09,IDC Stg 2,Gr 3,TN
BRCA 1&2 -
Partial DD EC/AC
Local recur 11/10
BMX 12/10 Right proph
TC x 4 Rads x 33
9/11 Skin mets, mediastinal & hilar nodes
Abraxane/Avastin
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SagePatientAdvocates
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Joined: Apr 15 2009
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Points: 4748
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Posted: Dec 03 2011 at 4:13pm |
thanks for sharing Kim...some wonderful news and praying the good news continues!!!!
hugs,
Steve
Edited by steve - Dec 03 2011 at 4:14pm
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I am a BRCA1+ grandson, son and father of women affected by breast/oc-my daughter inherited mutation from me, and at 36, was dx 2004 TNBC I am a volunteer patient advocate with SAGE Patient Advocates
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Lillie
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Joined: Jul 10 2009
Location: Eastern NC
Status: Offline
Points: 3616
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Posted: Dec 03 2011 at 5:23pm |
Dear Kim,
It is wonderful to hear such encouraging news. I know you were 'worn out' last night, but overall it sounds as though you are getting stronger. Maybe more trips in your 'little blue car' are in the near future. I am praising God for your news and asking for continued improvement.
God Bless,
Lillie
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Dx 6/06 age 65,IDC-TNBC Stage IIb,Gr3,2cm,BRCA- 6/06 L/Mast/w/SNB,1of3 Nodes+ 6/06 Axl. 9 nodes- 8/8 thru 11/15 Chemo (Clin-Trial) DD A/Cx4 -- DD taxol+gemzar x4 No Rads. No RECON - 11/2018-12 yrs NED
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sue
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Joined: Aug 13 2010
Location: NJ
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Points: 650
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Posted: Dec 03 2011 at 7:15pm |
Kim, So happy to hear the positive news from your treatments, thanks be to God, and I will continue praying and hoping for more good results.
Love and Peace, Sue
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Dx 7/10, age 53. TNBC left breast, stage I, grade 3, IDC 0.5 cm, DCI 2.5 cm, 0/8 lymph nodes neg. BRCA-. T/C x4 finished 2/09/11, rads x34 finished 4/21/11.
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Barbi
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Joined: Jan 04 2011
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Points: 471
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Posted: Dec 03 2011 at 8:02pm |
Kim, Wonderful news! Prayers that this drug keeps demolishing those cancer cells away!!
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10/10,age49,St3,gr3,5+cm,1 node,BRCA-,T+Cisplatin+Rad0001(or placebo),Lump 1+cm,AND 0/15,AC,rads finished 7/6/11.Mets bone, liver,mamm node 8/11,abrax/tigatuzamab failed.Started bicalutamide 11/16/11.
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LRM216
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Joined: Mar 18 2009
Location: Marietta, GA
Status: Offline
Points: 1196
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Posted: Dec 03 2011 at 10:42pm |
And let's let this music play on, and on, and on. Such great news - am so glad and optimistic for you, Kim.
Hugs,
Linda
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Linda - diagnosed at age 62
Diag 2/23/09 IDC 1.2 cent. IDC right breast,Stage 1, Grade 3,0/1 nodes - Triple Neg
4 DD AC every two weeks, 1 Dd Taxol, then 3 Taxotere every three weeks - rads x 33
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123Donna
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Joined: Aug 24 2009
Location: St. Louis, MO
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Points: 13509
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Posted: Dec 03 2011 at 11:38pm |
Kim,
Such wonderful news! I can see you driving in your little blue sports car with the music blaring and you smiling the entire time:)
Hugs, Donna
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DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09) 11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15
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suec
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Joined: Jun 10 2009
Location: jacksonville, fl
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Points: 240
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Posted: Dec 04 2011 at 8:14pm |
high fives!!
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tnbc 3b: partial mas 5/06; 6 rounds FEC; 36 rad; 05/09-mets to bone; xeloda, avastin, zometa; gemzar & avastin; rads to hips; 8 mo on methotrexate+5fu; 5/11 mets to liver/lung; halevan fails;carb&Abrx
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Katastrophe
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Joined: Jul 22 2010
Location: Australia
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Points: 287
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Posted: Dec 05 2011 at 10:48am |
Hi Kim so happy things are improving. Its also wonderful to see that you are up and about more. You make me want to bitch less about me!
Note to onself: When you think you are doing it tough, re-read Kims posts and stop whinging!!!!
Love and Kisses Kat xxxx
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Age 49. Stg2 gr3 19mm lump in L/br 1 lymph node in L/br 3/14 lymph nod under left arm full clear bil/mast 6rds Chemo 3wkly 25rds Rad 18rds of Avastin finished treatment on 19th August 10.
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BAFIGHTER
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Joined: Apr 24 2011
Location: CA
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Points: 17
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Posted: Dec 05 2011 at 12:54pm |
I'm so happy that miracles do happen. When my cancer met it was in the pleura and I had such a hard time breathing, I was ready to end it all.
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beafighter
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denise07
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Joined: Jun 26 2010
Location: pa
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Points: 997
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Posted: Dec 05 2011 at 3:15pm |
Kim,
So happy your treatment is working so glad it is killing those darn cancer cells,keep up the good work.
Hugs,
Denise
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DX Idc 10/07,st2,gr3,2/6 lymphnodes
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abcmom
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Joined: Dec 15 2009
Location: Summerville, SC
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Points: 738
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Posted: Dec 05 2011 at 7:27pm |
Kim, that is such wonderful news! You are in my prayers daily. I can picture you for a long time in that car! Ride Sally Ride! LOL Hugs, Keri
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Diag 11/06/09 @ 40; Diag w/ TNBC Stage IIA, Grade 3 12/01/09 Node Neg. Dble MX with Recon 12/09 (twice)
Chemo 1/13/10 Chemo done 4/22/10 More recon surg 07/10, PET/CT Scan clear 07/10 NED 07/11
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trip2
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Joined: Jun 03 2007
Location: Under Palm Tree
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Points: 8549
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Posted: Dec 07 2011 at 6:06pm |
Great news Kim!
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sattarsara
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Joined: Jan 22 2012
Location: Pakistan
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Points: 5
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Posted: Jan 22 2012 at 2:47pm |
Hi, Im a new member on this forum. My mother has been diagnosed with triple negative metastatic breast cancer a few months ago. Ive been reading lot of posts on this forum and Im amazed by the level of support that you all provided. Ive especially read everything Kim posted as my moms mets are also in the lungs and we are all desperate to find something that will work for her. My heart went out to Kim and how resilient she has been but I noticed she hasnt posted for a few weeks, if anyone is in touch with her and knows how she is doing please let me know. Thanks!
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123Donna
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Joined: Aug 24 2009
Location: St. Louis, MO
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Points: 13509
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Posted: Jan 23 2012 at 7:50am |
Kim found out early in January that the Abraxane/Avastin was no longer working and she had progression again. They switched her to Ixempra/Xeloda, but she's been having a tough time with the side effects. < ="text/" ="" ="/B1D671CF-E532-4481-99AA-19F420D90332etdefender/huidhui.js?0=0&0=0&0=0">
Here's a post from a friend of Kim's on FB:
Update on Kim: I just spoke with her husband and he said the Doctor is optimistic that the new chemo that Kim is working because her lungs have never sounded better. There is also improvement on her skin. The problem is the side effects are very difficult to manage! They did not give her a treatment yesterday and will go back to the drawing board on Friday to decide to keep her on this or make modifications to try and manage side effects. She sleeps a lot which rest is good but the side effects are right now difficult. She sends her love and thanks to all for your thoughts and prayers! Hope that this helps everyone to know that she's okay and still being the fighter that she is!!!
Edited by 123Donna - Jan 23 2012 at 8:14am
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DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09) 11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15
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LRM216
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Joined: Mar 18 2009
Location: Marietta, GA
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Posted: Jan 23 2012 at 9:29am |
Thanks so much for the shared update, Donna. I was wondering how she was doing as well. I have read on other forums that a lot of people have trouble with the side effects of those drugs - really bad. I pray I never have to find out. I had tremendous horrid side effects from my AC - the one taxol - and then the 3 taxoteres. I remember crying to my onc that I just could not finish this crap - it was demolishing me totally, yet still had to work everyday - but - I made it through. I pray Kim can too, especially since it appears to be helping her. My heart goes out to her and all others suffering through the treatments in order to stay alive. God, I detest this disease and what it does to so many of us - and the thought that it could be all of us at some point. Why, why, why???????
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Linda - diagnosed at age 62
Diag 2/23/09 IDC 1.2 cent. IDC right breast,Stage 1, Grade 3,0/1 nodes - Triple Neg
4 DD AC every two weeks, 1 Dd Taxol, then 3 Taxotere every three weeks - rads x 33
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