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*Nancy
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Joined: Jan 23 2012
Location: St. Louis, MO
Status: Offline
Points: 78
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Posted: Sep 14 2013 at 1:34pm |
I am 3.5 years since diagnosis. My 6th child graduated high school this May and went off to college at the end of the Summer. I now have 3 kids in college. I am grateful for every day. Small inconveniences of life are inconsequential now. Never give up.
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Dx March 2010, age 54, 5 mm tumor, Stage Ia, Grade 3, 0/3 Nodes, Ki-67 70%,
Lumpectomy April 2010, TC x 4, Rads x 33, Treatment completed Sept 2010, NED 06/17
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K in Sugar Land
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Joined: May 30 2011
Location: Texas
Status: Offline
Points: 79
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Posted: Sep 15 2013 at 3:23pm |
Today I celebrate my two year survival anniversary. I am doing the Snoopy dance! I continue to eat a low fat diet, exercise regularly and keep all of my doctor appointments. I am also in the metformin trial at Vanderbilt. I pray every day for a cure for all cancers. I read the posts on this site daily and I keep you all in my prayers too. I am so grateful.
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Dx IDC TNBC MDA2/11 age 51 T2N0M0 Grd 3 4.8cm BRCA- vitD22 Taxol 12wk FAC once 3 wk for 12 wk Complete chemo8/11 Tumor not seen on scans Lumpsurgery 0/4 nodes9/11 pCR 30rads done11/11 NED vitD3903/12
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chicaroo44
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Joined: Jul 27 2013
Location: Long beach
Status: Offline
Points: 16
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Posted: Sep 16 2013 at 5:02pm |
I was diagnosed mar 2013, had a double mastectomy may 17, 2013. started chemo jun 27. im beyond nervous of a re-occurance. my left breast was triple positive, my right breast was triple negative, I tested positive for the brca1 mutation. im getting ready to do my 5th treatment. I have six total to do. then my MO wants me to take tamoxifen for 5 to 10 years. ok, with that they want me to have my ovaries, uterus and cervix removed. because of the brca1 mutuation my ovaries have to be taken out because of the risk, then my uterus because of what the tamoxifen does. im 44 years old. i don't want to be pushed into menopause. what does that do to a woman sexually? my breast have already been taken away.. now they want to take the organs that make me feel like a woman... really? are there any others that this has happened to? how did you deal?
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STAGE 2, GRADE 9, O LYMPH NODES TRI POS IDC OF THE L BRST, STAGE 1, GRADE 9, 0 LYMPH NODES TN (QUAD NEGATIVE (AR-) IDC OF THE R BRST, DOUBLE MAST. /CHEMO CARBO/DEXETOL HERCEPTIN
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bondande
Senior Member
Joined: Apr 01 2009
Location: ohio
Status: Offline
Points: 167
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Posted: Sep 17 2013 at 9:56pm |
I posted over two years ago. It's been 4 1/2 years for me and next March will be my 5 year anniversary. I try not to have this disease be my identity but sometimes it's hard..Still VERY grateful to God that I am still here. I had diep flap reconstruction last Dec. and the results were wonderful and I feel much better about how I look. It was a miracle really. It took me four years before I realized that ,you know, I think I just might be around for a while and I don't want to look like this anymore. 9 1/2 hour surgery. SO SCARED but Sooooo glad I did it. Fantastic Dr. I never thought this would be the road I would be traveling but I still have God so I still have hope...I have learned there have been many good things resulting from this cancer diagnosis and to count my blessings not my problems. I have met many strong ,beautiful people along the way who helped me through the rough spots and this forum helped me greatly early on giving me support and guidance when I needed it most..Thank you! Blessings to you! Bonnie
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age55,Stg2a,Gr3,3.8cm tumor,mod.rad.mast.lft brst3/4/09,4ac,4taxol,33 rads.done11/2/09.BRCA1+oophorectomy1/5/2010,mast.rt brst 2/18/10,NED,bonescan 8/16/10,NED,catscan11/29/10NED catscan 3/17/11 NED
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chicaroo44
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Joined: Jul 27 2013
Location: Long beach
Status: Offline
Points: 16
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Posted: Sep 18 2013 at 10:02am |
bondande, wow five years is great. did you change your diet? exercise? vitamins?
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STAGE 2, GRADE 9, O LYMPH NODES TRI POS IDC OF THE L BRST, STAGE 1, GRADE 9, 0 LYMPH NODES TN (QUAD NEGATIVE (AR-) IDC OF THE R BRST, DOUBLE MAST. /CHEMO CARBO/DEXETOL HERCEPTIN
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bondande
Senior Member
Joined: Apr 01 2009
Location: ohio
Status: Offline
Points: 167
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Posted: Sep 18 2013 at 6:59pm |
I was really into exercising when I discovered my lump. After treatments I did start to watch my diet pretty close but now I eat and drink what I want for the most part. I take a multi vit and calcium each day and have my wine in the evening. I decided to just do things in moderation and not deprive myself of what I enjoy. Bunions keep me from running so now I just walk occasionally.
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age55,Stg2a,Gr3,3.8cm tumor,mod.rad.mast.lft brst3/4/09,4ac,4taxol,33 rads.done11/2/09.BRCA1+oophorectomy1/5/2010,mast.rt brst 2/18/10,NED,bonescan 8/16/10,NED,catscan11/29/10NED catscan 3/17/11 NED
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MissD
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Joined: Sep 06 2013
Location: California
Status: Offline
Points: 7
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Posted: Sep 22 2013 at 4:35pm |
I'm kind of courious? When do we begin to count the survival rate anyway? Is it from the day the cancer was removed ie after the mastectomy??
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bondande
Senior Member
Joined: Apr 01 2009
Location: ohio
Status: Offline
Points: 167
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Posted: Sep 23 2013 at 9:02am |
I count from the day my tumor was removed. It may be different for others. That was march 4th 2009 for me!
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age55,Stg2a,Gr3,3.8cm tumor,mod.rad.mast.lft brst3/4/09,4ac,4taxol,33 rads.done11/2/09.BRCA1+oophorectomy1/5/2010,mast.rt brst 2/18/10,NED,bonescan 8/16/10,NED,catscan11/29/10NED catscan 3/17/11 NED
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Grateful for today
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Joined: Sep 21 2011
Location: U.S.A.
Status: Offline
Points: 1835
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Posted: Sep 23 2013 at 9:26am |
Hi, I think of survivorship as: One is a survivior from whenever the survivor "says so". I like the term "survivior-thriver". From http://www.cancer.net/survivorship/about-survivorship"Defining survivorship. Surviving cancer or “survivorship” can be defined in different ways. Two common definitions include: - Having no disease after the completion of treatment, - The process of living with, through, and beyond cancer. By this definition, cancer survivorship begins at diagnosis. It includes people who continue to have treatment to either reduce risk of recurrence or to manage chronic disease. " From prior threads and posts on the forums, members have shared that they and their oncologists have defined survivorship as: From date of diagnosis. From date of surgery. From date of completion of complete treatment plan. And other definitions.. If one is reading a research article, it will usually include the author's perspective of the specific time period that "survival" is being referred to. With caring and positive thoughts to all survivors, Grateful for today.................Judy
Edited by Grateful for today - Sep 23 2013 at 9:50am
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lisab
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Joined: Sep 27 2007
Location: United States
Status: Offline
Points: 169
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Posted: Sep 23 2013 at 10:17am |
I am 5 years, 8 months from my last chemo. My oncologist says he is pretty sure we've beaten this, but I am always hesitant to think that.
I feel very blessed to have come this far and ache for all my sisters who haven't been so lucky.
God bless each and every one of you who are having to fight this horrible disease.
Lisa B.
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Diagnosed June 2004. Lumpectomy and radiation. BRCA2+. PBM w/DIEP Recon March 2005. Mets in chest wall June 2007. Chemo (Gemzar and Carboplatin) with radiation completed January 2008 - 5+ years ago.
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clwille708
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Joined: Oct 20 2010
Location: Wasaga Beach
Status: Offline
Points: 35
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Posted: Sep 23 2013 at 5:40pm |
I am now a three year survivor, , and I rarely think about recurrence possibilities. A few years ago my onc. tried to get me to understand the pointlessness of stressing and I was really stressing. To celebrate my 2nd year, we went off on a great trip to China. When I returned home, I was seriously ill from something. After a week in isolation and intensive care, I returned home and recovered. That experience made me realize there are a lot of things that can get you, so I quite worrying. Keep smiling, and live life! Linda ps. China was great in spite of nearly killing me.
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Dx Aug/10,age 62, Lump & SNB Sept/10,1.7 cm, grade 3, Triple Neg, Nodes clear. Annual screening due to family history of Ovarian C. BRCA - Chemo DD AC -->Taxol 21 Rads done. Hugs -Linda
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Alison41
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Joined: Nov 15 2008
Location: United Kingdom
Status: Offline
Points: 64
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Posted: Sep 25 2013 at 3:28pm |
I am a 5 year survivor today. It's been a long haul but worth it, I have come to understand that life is a precious gift so live it to the full.
Thank you to Steve who has been a wealth of knowledge and a great support especially in the early days, this site is lucky to have him.
Looking forward and not backward.
Alison
Edited by Alison41 - Sep 25 2013 at 3:30pm
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diagnosed Sep08,TNBC IDC 5cm tumour, 1+ node, Mastectomy and Axilla dissection May09, 4 of Fec and 4 of Taxotare. 15 Rounds of Radiotherapy. 2.5 years from diagnosis. Reconstruction November2010.
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Lorene
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Joined: Jul 10 2010
Location: Alabama
Status: Offline
Points: 211
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Posted: Sep 25 2013 at 5:43pm |
Congratulations, Alison!!!
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dx10/01@age59,IDC TNBC, St.IIB,Gr3,2.5cm,3+nodes, epirubicin,5FU,cytoxan,33Rads,No recurrence, 2018
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Lorene
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Joined: Jul 10 2010
Location: Alabama
Status: Offline
Points: 211
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Posted: Sep 25 2013 at 5:44pm |
. . . .and all you Survivors!!!
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dx10/01@age59,IDC TNBC, St.IIB,Gr3,2.5cm,3+nodes, epirubicin,5FU,cytoxan,33Rads,No recurrence, 2018
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hopeful57
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Joined: Jun 24 2013
Location: Unites States
Status: Offline
Points: 63
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Posted: Sep 25 2013 at 6:20pm |
Congratulations! You give us all hope!
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Susie
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Joined: May 12 2010
Location: Birmingham,Al
Status: Offline
Points: 212
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Posted: Nov 04 2013 at 10:47pm |
Today, on this day, November 4, 2013, I am a 5 yr. SURVIVOR!!!!! Hallelujah! Praise be to God!!
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dx 10/08,age 56,.75 cm. Stage1 Grade3,lumpectomy,SN neg..,AC 12/08-02/09,35rads,03/09-05/09,BRCA2+(E1415X),06/09,oophorectomy 10/09,
Zometa - IV/mo.,07/09-08/10, lumpectomy #2 10/20/10 NED
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Charlene
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Joined: Aug 14 2010
Location: Atlanta, GA
Status: Offline
Points: 613
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Posted: Nov 05 2013 at 8:13am |
Congratulations, Susie!! Thanks for posting! Very happy for you! Charlene
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DX 3/10 @59 ILC/TNBC Stage 1, Grade 2, Multifocal; Lumpectomy/re-excision SNB 0/4 nodes, BRCA-; Taxotere/Cytoxan X4, 30 rads 3/14:NED
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123Donna
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Joined: Aug 24 2009
Location: St. Louis, MO
Status: Offline
Points: 13509
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Posted: Nov 05 2013 at 8:21am |
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DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09) 11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15
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TNBC_in_NS
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Joined: Jul 26 2009
Location: NS Canada
Status: Offline
Points: 2028
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Posted: Nov 05 2013 at 9:44am |
Yeahhhhh!!!!! The five year mark is soooooooooooo veryyyyyyyyyyy crucial & YOUR MADE IT!
Thanks be to GOD & All His Saints who continue to watch over us!
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Diag@57TNBC04/092.5cm Lquad 05/09 TCx4Radsx30CT03/01/10 FU03/31/10ClearBRCA- 01/2011 RTNBC BMX 06/14/2011~2013 clear
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Lorene
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Joined: Jul 10 2010
Location: Alabama
Status: Offline
Points: 211
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Posted: Nov 05 2013 at 11:17am |
Rejoicing with you, Susie! Lorene
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dx10/01@age59,IDC TNBC, St.IIB,Gr3,2.5cm,3+nodes, epirubicin,5FU,cytoxan,33Rads,No recurrence, 2018
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