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SagePatientAdvocates
Senior Advisor
Joined: Apr 15 2009
Status: Offline
Points: 4748
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Topic: Remembering Lori Baur Posted: Feb 21 2011 at 10:13pm |
Dear all,
I had a pen-pal/phone relationship with Lori for several years. She was a lovely person and passed away this past Saturday.
I don’t know if, at this point, you can access Lori’s CaringBridge pages but if you can I think you will get a sense of this courageous woman. We almost had a meeting in Chicago at a family BBQ. She had wanted me to speak to them about the BRCA mutation we shared but at the last minute Lori wanted to just be alone with her family. I am truly sorry I never met her.
rest in peace, my friend,
Steve
Edited by steve - Feb 21 2011 at 10:23pm
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I am a BRCA1+ grandson, son and father of women affected by breast/oc-my daughter inherited mutation from me, and at 36, was dx 2004 TNBC I am a volunteer patient advocate with SAGE Patient Advocates
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dmwolf
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Joined: Jan 22 2009
Location: Berkeley, CA
Status: Offline
Points: 3619
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Posted: Feb 21 2011 at 10:32pm |
Steve, I tried to access her site but it was restricted. So sorry to hear of her passing. Still, I remember seeing her post on other sites. She was warm and thoughtful, right? She had a devoted following, I think. Thanks for letting us know, and please take care. Your avocation brings you close to the shadows so very often. I know it's hard on you. love, d
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DX 2/08@43 stg II IDC; gr2,0 nodes. Neoadj chemo, first ACx2 (fail) then CarboTaxotereX6(better). Lump, Rads done 11/08; Clodronate. False alarm queen: PetCT lung & TM marker. NED. PBM w/recon 9/10.
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NINASUZIE
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Joined: Mar 01 2009
Location: United States
Status: Offline
Points: 323
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Posted: Feb 21 2011 at 10:41pm |
my dear....
my heart and hands reach out to you and all of us who know this shattering pain that joins us in strength and love. love you, love all of us, I STILL HAVE HOPE!!!!!!!!!!!!
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Suzie
**************
Dx: 1/09 Metaplastic TN IDC/3.5CM/DCIS/1.0;4/09 L mastectomy;6-11/09 Cytoxan/Taxotere X6;BRACA-; Recurrance 11/10 bone mets broke arm;Lung mets;rads X15; chemo/parp tbd 1/11
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dmwolf
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Joined: Jan 22 2009
Location: Berkeley, CA
Status: Offline
Points: 3619
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Posted: Feb 21 2011 at 11:42pm |
Steve, your mailbox is full. I posted a response to you which has now been gobbled by the ether. Lori - what a marvelous spirit, with a lion's heart. I can see why you loved her so much. sleep well, d
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DX 2/08@43 stg II IDC; gr2,0 nodes. Neoadj chemo, first ACx2 (fail) then CarboTaxotereX6(better). Lump, Rads done 11/08; Clodronate. False alarm queen: PetCT lung & TM marker. NED. PBM w/recon 9/10.
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NinaE
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Joined: Dec 11 2009
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Points: 181
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Posted: Feb 22 2011 at 2:41am |
Thank you for letting us know.
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Stage IV at dx in Dec 09, at age 38. Mets to lung, axillary, IM and mediastinal nodes.
4xAC-->dd Taxol. Dbl mast, 6/10. Radiation, 8/10. NED since June 2010.
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trip2
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Joined: Jun 03 2007
Location: Under Palm Tree
Status: Offline
Points: 8549
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Posted: Feb 22 2011 at 1:14pm |
Steve I am so sorry..
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Stage 2 2003
Stage 1 2007
BRCA 1+
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TNBC_in_NS
Senior Member
Joined: Jul 26 2009
Location: NS Canada
Status: Offline
Points: 2028
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Posted: Feb 22 2011 at 6:12pm |
Steve:
Another angel is among us! Be gentle with yourself Steve adn may Lori rest in peace, Amen.
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Diag@57TNBC04/092.5cm Lquad 05/09 TCx4Radsx30CT03/01/10 FU03/31/10ClearBRCA- 01/2011 RTNBC BMX 06/14/2011~2013 clear
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EileenF
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Joined: Jan 20 2010
Location: New York
Status: Offline
Points: 197
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Posted: Feb 22 2011 at 7:39pm |
I am truly sorry to hear this news,
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7/09:IDC,stg 3,Grade3, pos lymph;chemo ACT;12/09 lumpect n lymp disect;1/10 bilat masect/tis exp; rad cmpltd 4/10; 11/10 stg 4 lungs chest axil mets & parp trial;3/11 IBC diag;
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LRM216
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Joined: Mar 18 2009
Location: Marietta, GA
Status: Offline
Points: 1196
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Posted: Feb 23 2011 at 8:25am |
May she soar with the angels. I always read her posts on Inspire.com. Another sad tragic loss of a young and beautiful woman, taken away from her loved ones and friends much too soon.
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Linda - diagnosed at age 62
Diag 2/23/09 IDC 1.2 cent. IDC right breast,Stage 1, Grade 3,0/1 nodes - Triple Neg
4 DD AC every two weeks, 1 Dd Taxol, then 3 Taxotere every three weeks - rads x 33
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Shelly Rae
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Joined: Apr 25 2009
Location: US
Status: Offline
Points: 318
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Posted: Feb 24 2011 at 3:36pm |
May Lori rest in peace, Amen.
Shelly Rae
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4/09 age 47 Stage 3a, Gr 3,1 node micro ACx4 Tx4 Rads x 33, done Dec.1,2009 NED
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