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123Donna
Senior Member
Joined: Aug 24 2009
Location: St. Louis, MO
Status: Offline
Points: 13509
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Posted: Sep 19 2010 at 6:14pm |
Jenifer, I agree with Steve. The most important thing right now is to find a TNBC savvy oncologist and get on the right chemo regime for you. Once you begin treatment you'll feel much better like you are doing something to actively fight this disease. It's marvelous about your diet and everything you do will help your body and immune system to stay healthy. Ask your oncologist to test your Vitamin D level. Most of us at diagnosis have very low levels of Vitamin D. It is the one supplement that you can take while getting chemo and will actually help the chemo work better. http://forum.tnbcfoundation.org/vitamin-d3_topic5338_page35.html?KW=Vitamin+D3
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DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09) 11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15
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TracyAMac
Senior Member
Joined: Aug 01 2010
Location: Toronto, Canada
Status: Offline
Points: 401
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Posted: Sep 19 2010 at 8:50pm |
Hi Jennifer
Sorry to hear about your situation but as you have seen already there are so many wonderful people on this site with so much expertise. I know the experience of learning about everything then deciding with your med. team what will happen when can seem overwhelming at first. I felt that way earlier this year and this is my second experience dealing with cancer, surgery, chemo. Thankfully I am nearing the end of my chemo (had mast. first) then will be having hormone therapy after chemo as I had a second BC tumour that is not TN. As a fellow 'newbie' I would be glad to chat anytime. My 12 year old daughter is looking over my shoulder as I type this and she asked me to say she hopes the best for you!
Tracy
Tracy
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TN&non-TN tumors April/10 Gr3&2;1 metaplastic
Rmast.1/9 nodes w/isolated t.cells
Taxotere&Cytoxan x6
Bone cancer 1980 age17;surgery&chemo AC+Methotrexate
BRCA-ve
On hormone therapy & Metformin Trial
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jenifer419
Groupie
Joined: Sep 18 2010
Location: Long Beach, CA
Status: Offline
Points: 44
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Posted: Sep 19 2010 at 9:25pm |
Hi Tracy,
Thank you...it's nice to know there are people out there going through
the same thing. Even when you have people around, you sometimes still
feel all alone.
I'm sorry to hear this is your second go-around with cancer. At least your about finished with chemo. I'm not looking forward to it myself...but, at the same time I can't wait. If that makes any sense. Tell your little girl thank you! She sounds sweet. My son turns 12 in 3 days and he's so excited. This is a fun age. Also, if you ever need to chat...I'm here as well. Take care, Jen
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DX IDC TNBC 9/10 age 38, Stage IIb, Grade 3, 4.8 cm, 0/4 nodes, Taxol x12, AC x4 completed 2/28/11, I-SPY2 trial, bilateral mastectomy w/ recon 3/24/11, cPR 4/6/11
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TracyAMac
Senior Member
Joined: Aug 01 2010
Location: Toronto, Canada
Status: Offline
Points: 401
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Posted: Sep 19 2010 at 11:59pm |
Jen, your thoughts about chemo are very normal, and sometimes the anticipation of it is worse than what actually happens though it depends on many factors including your chemo protocol. I have to say that chemo this time is much more manageable than 30 years ago (at least physically- more worrying as an adult and mom). There are more strategies now to manage the side effects e.g. anit-nauseau meds., immunity building meds , steroids to help with other side effects etc. My first treatment for BC was the most difficult in terms of reactions etc. Fatigue is something that has become a bigger challenge with each round...sounds like you have a good attitude - so bring it on and stay strong!!! It is remarkable how strong our children can be too
Tracy
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TN&non-TN tumors April/10 Gr3&2;1 metaplastic
Rmast.1/9 nodes w/isolated t.cells
Taxotere&Cytoxan x6
Bone cancer 1980 age17;surgery&chemo AC+Methotrexate
BRCA-ve
On hormone therapy & Metformin Trial
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kirby
Senior Member
Joined: Oct 09 2007
Location: bay area,california
Status: Offline
Points: 1088
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Posted: Sep 21 2010 at 2:26am |
jenifer, look in the resource section of this site. There are tips ready to be printed on questions to ask your onc, things to prepare for chemo etc. Any other newbies be sure to look there as well.
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kirby
dx Feb. 2001. Age 44 Lumpectomy
2cm. no nodes stage 1 grade 3
4 rnds AC, 35 rads
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jenifer419
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Joined: Sep 18 2010
Location: Long Beach, CA
Status: Offline
Points: 44
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Posted: Sep 22 2010 at 12:36am |
Thanks Kirby. Donna actually sent me the questions and I have them all printed and ready to go. I'll go and check out the resource section now.
Jen
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DX IDC TNBC 9/10 age 38, Stage IIb, Grade 3, 4.8 cm, 0/4 nodes, Taxol x12, AC x4 completed 2/28/11, I-SPY2 trial, bilateral mastectomy w/ recon 3/24/11, cPR 4/6/11
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